Journal

Thursday, August 14, 2008 6:30 PM PST

Hello friends,It seems everytime I come here I'm apologizing for being away so long,but anyway that's because we again are busy,busy.First I want to say Happy 17th Birthday Daniel!

I can't believe my baby is that old.Michael will be 16 on the 21st.Daniel and Michael had a wonderful birthday party Monday.His theme was Kung Fu Panda.The neighbor boys came over and we went bowling followed by KFC,swimming,party games,pizza,cake and a sleepover,whew!No wonder I'm so pooped out this week.Thank you all for the wonderful birthday cards Daniel received.

The other things we have been doing is lots of dental appointments.I'm going to be broke by the time we get everything that needs to be done finished.I've also been running quite a few errands and cleaning house and trying to get everything done and ready for this upcoming school year.Today I went to The University Of Washington to drop off records from Ariel and the boys.They have an appointment on the 1st to see the Neuro developmental Geneticist.Just to see if they can add any new info.Michael goes in hospital on the 8th of September for his VEEG.He will be there for 2 days.

Right now I'm trying to plan a camping trip or one last outing of the summer.I can't believe there's only two weeks left until summers done.We are getting excited for school.I love homeschooling .It's such a blessing to be able to teach your own children.Anyway I hope you all have a wonderful rest of the summer.God bless,Linn

08/02:Hello friends,I'm so sorry I've had such long absences,but we have been enjoying the sun and fun of summer.We have been pretty busy with some doctoring,numerous long overdue dentist appointments and then just enjoying our free days while the kids and I have some time off of school.

The pictures are from a special event that we got to go to courtesy of Starlight and that was a special day out to the air show with The Thunderbirds.They are very much like The Navy Seals only Air Force instead.It was an amazing show and then the kids got to meet the pilots.They were very kind and we were all amazed at their aerial acrobatics.That same weekend we got the priveledge to go to Portland and be special guests of The Beavers baseball team.The kids even got to go on the field and meet the players and after the ball game they had the most amazing fireworks show.It was so much fun.Other than that we have been doing a lot of bowling and movies and the kids have been having a lot of fun swimming in their pool.

On the doctors side Daniel has been doing great seizure wise anyway,although his bllod pressure has been the main concern and he needs to get an Echocardiagram and a renal ultrasound.Ariel has also been doing very well seizure wise,although school is her main challenge.She's so severely cognitively impaired and because she looks so normal a lot of people including family just don't get it.We are really focusing on her reading this year and hoping to get her to a good level.Michael's been having these weird spells again and just looks unwell to me.He had a thorough blood work up and the only thing that consistantly comes out is elevated blood sugar,but not quite diabetic range,although to be 105 fasting when your as thin as Michael and eat very little sugar does have me concerned a bit.Anyway his Neuro wants him to have a VEEG in hospital for 2 days to see what's going on.Unfortunatley we couldn't get any sooner than September 8th.I'm planning on making a phone appointment with his regular doc and see about a sleep study as well,since he has these spells and just falls asleep on the floor.

We also went to some very much delayed Dentist appointments.Our insurance isn't so great and so we had put it off and we all needed work and so that has been pretty expensive.

Michael and Daniel are having their birthday party on the 11th which is Daniel's official birthday.They are going to be 17 & 16.They are having a Kung Fu Panda party and camping outside with a fire pit and smores.Gilbert and I are celebrating our Anniversary this weekend and will go out somewhere.Nicholas passed his test to get into The Shipyard and hopefully that will happen soon and Bret is doing great in Hawaii driving around in his police car.Have a great weekend.God bless,Linn