|

Blowing out the candles! 
 Welcome to Daniel's Web Page.About 5 years ago after a head injury Daniel started having grand mal seizures.He had those about once to twice a week for 6 months and then they changed to complex partials.Since then life has been full of ups and downs and a lot of battles trying to control his seizures,he now has many different types.He has been on 6 different anti epileptic medications and a special diet and still continues to have seizures.On February 1st Daniel had a VNS implanted to hopefully help control his seizures.You see after having so many seizures the brain starts getting overloaded and you start seeing all sorts of cognitive and neurological problems,like slurred speech and memory loss and school which was once so easy is now very difficult.Daniel is homeschooled,so it gives us a chance to catch up between doctors appointments.As of May Daniel's VNS implant was turned off because it was making him worse,now he is on the last med and it does seem to be helping.If this fails the only other option is brain surgery.Update as of April 08'Daniel had surgery and had his VNS implant removed .He's doing great on 600mg of Topamax and has not had a Grand Mal in almost 2 years.Now he's having blood pressure issues.Please keep Daniel in your prayers and sign Daniel's guestbook and drop us a line. ANY HAPPY MAIL FOR DANIEL CAN BE SENT TO P.O. BOX 551 BURLEY,WA.98322.

CLICK ON THE CB FAMILY AND FRIENDS BUTTON TO VOTE FOR DANIEL'S SITE AND VISIT OTHER CB FRIENDS.
 DANIEL AT THE USSA FISHING EVENT. CHECK OUT DANIEL'S NEW MACS PHOTO ALBUM AT MACS PHOTO ALBUM TAKE A LOOK AT THE ARTICLE ABOUT OUR FISHING TRIP.THE FISHING STORY HERE ARE SOME OF THE WONDERFUL ORGANIZATIONS DANIEL'S BEEN FEATURED ON.MAKE A CHILD SMILE CHILDREN OF PROMISELOVE QUILTS THE TUMBLEWEED FOUNDATIONHUGS&HOPE BRIDGE OF DREAMSSHARE THE LOVE FUN SITESDISNEY 2 GODISNEYLANDGARFIELD.COMSNOOPY.COMLEGO.COMTHE DISNEY STORE DISNEYWORLDI-LOVE-DISNEY OTHER HELPFUL SITES.MONSTER LINKSKIDS SITESSTARLIGHT FNDTN WA.GREAT ESCAPESGREAT ESCAPES 2STARLIGHT FNDNSTARLIGHT OREGONALL ABOUT EPILEPSY(tons of links)CARINGCREWKEIKI CARDS THE EPILEPSY FOUNDATIONTHE MAKE A WISH FOUNDATIONWASHINGTONS MAKE A WISH GIVE KIDS THE WORLDSUNSHINE ON EAGLES WINGSSMILE N HUGS GREAT GRAPHICSCUTE COLORSGRAPHIC GARDENDISNEY 2 GOANNES GIFSTEX LASSAPPLE BLOSSOM ARTTENDER HARTDISNEY CLIPSDOLLIE CRAVETEDDY GRAPHICSSNO.GIRL SCHOOL LINKSOUR SCHOOL PAGEJODY'S HOMEMADE LIVINGCHARLOTTE MASON SCHOOLINGPUGET SOUND PARENTKITSAP KIDSBELFAIR HSFAMILY FUNEXPERIENCE WASHINGTONHOMESCHOOL LINKS1000 GOOD BOOKSWE ARE DOING A POSTCARD DRIVE FOR DANIEL.I SAW KATIA WAS DOING THAT AND THOUGHT IT WAS A GREAT IDEA.DANIEL LOVES TO SEE DIFFERENT PLACES AND WHAT A GREAT WAY TO SHOW HIM THE STATES.IF ANY OF YOU COULD SEND HIM A POSTCARD FROM THE STATE YOU LIVE IN IT WOULD BE MUCH APPRECIATED. WOOHOO!Today Daniel's up to 700 postcards!,it's a great start.Please keep them coming it brings him a lot of joy. THERE ARE MANY GREAT BOOKS OUT THERE FOR INFORMATION ON EPILEPSY & TREATMENT HERE ARE A FEWSEIZURES AND EPILEPSY IN CHILDHOOD,By John M. Freeman,M.D.PARTIAL SEIZURE DISORDERS,By Mitzi WaltzEPILEPSY AND SEIZURES,By Dr.Donald WeaverTHE KETOGENIC DIET by Dr.John Freeman. DANIEL LOVESGOOFY & GARFIELD  GOING FISHING COOKING WITH EMERIL DISNEYWORLD and all things DISNEY.

*HUGS* TOTAL! give danielmarrero more *HUGS*
Get hugs of your own








     Daniel with Meeko & Pocahontas
     The beautiful snowglobes on my site are at Volsgal.com Proud parent of Bret currently serving as a Military Policeman in Honolulu Hawaii. IN MEMORY OF SWEET ANGEL JACOB "SO LONG MATE YOU'LL BE MISSED" PLEASE SIGN DANIEL'S GUESTBOOK IT SURE CHEERS HIM.Helens Banners If you're having trouble getting the guestbook to load after you click on it hit stop and it will open right up. Our true stars! Daniel getting Goofy hugs. Daniel caught in the net at California Adventure. Daniel enjoying his balloons from Hugs 7 Hope.  I was asked to write some of the things the kids have interests in,so here goes.Daniel,likes cooking items,cookbooks and anything to do with cooking.He loves to watch Alton Brown on The Food Network.He also likes fishing,bowling and things about WW2.He likes Garfield and Goofy.Michael really likes artsy type things.He's always making little cards and comics and likes all sorts of art supplies.He likes Calvin and Hobbes and Mario things.Ariel loves all things animal. She loves animals of all kinds and that is her passion.Besides that she really likes High School Musical and ds games.  MANY BLESSINGS AND THANK YOU TO:The Williams family for the boys wonderful birthday boxes.To:Ms.Lu,Thanks for all the sweet and wonderful cards you always make us.THANK YOU SO MUCH YOU'RE A BLESSING TO OUR LIVES.
Midi Playing Is Grand Disney Theme courtesy of Belle' Midi Library3
Daniel and Michael having fun with the miner's band. The spinning tea cups. Daniel,Michael and Ariel having fun on The Jungle Cruise.Ariel's siteAriel's quilt of love
Journal
Thursday, August 14, 2008 6:30 PM PST        Hello friends,It seems everytime I come here I'm apologizing for being away so long,but anyway that's because we again are busy,busy.First I want to say Happy 17th Birthday Daniel! I can't believe my baby is that old.Michael will be 16 on the 21st.Daniel and Michael had a wonderful birthday party Monday.His theme was Kung Fu Panda.The neighbor boys came over and we went bowling followed by KFC,swimming,party games,pizza,cake and a sleepover,whew!No wonder I'm so pooped out this week.Thank you all for the wonderful birthday cards Daniel received.The other things we have been doing is lots of dental appointments.I'm going to be broke by the time we get everything that needs to be done finished.I've also been running quite a few errands and cleaning house and trying to get everything done and ready for this upcoming school year.Today I went to The University Of Washington to drop off records from Ariel and the boys.They have an appointment on the 1st to see the Neuro developmental Geneticist.Just to see if they can add any new info.Michael goes in hospital on the 8th of September for his VEEG.He will be there for 2 days. Right now I'm trying to plan a camping trip or one last outing of the summer.I can't believe there's only two weeks left until summers done.We are getting excited for school.I love homeschooling .It's such a blessing to be able to teach your own children.Anyway I hope you all have a wonderful rest of the summer.God bless,Linn  08/02:Hello friends,I'm so sorry I've had such long absences,but we have been enjoying the sun and fun of summer.We have been pretty busy with some doctoring,numerous long overdue dentist appointments and then just enjoying our free days while the kids and I have some time off of school.The pictures are from a special event that we got to go to courtesy of Starlight and that was a special day out to the air show with The Thunderbirds.They are very much like The Navy Seals only Air Force instead.It was an amazing show and then the kids got to meet the pilots.They were very kind and we were all amazed at their aerial acrobatics.That same weekend we got the priveledge to go to Portland and be special guests of The Beavers baseball team.The kids even got to go on the field and meet the players and after the ball game they had the most amazing fireworks show.It was so much fun.Other than that we have been doing a lot of bowling and movies and the kids have been having a lot of fun swimming in their pool.On the doctors side Daniel has been doing great seizure wise anyway,although his bllod pressure has been the main concern and he needs to get an Echocardiagram and a renal ultrasound.Ariel has also been doing very well seizure wise,although school is her main challenge.She's so severely cognitively impaired and because she looks so normal a lot of people including family just don't get it.We are really focusing on her reading this year and hoping to get her to a good level.Michael's been having these weird spells again and just looks unwell to me.He had a thorough blood work up and the only thing that consistantly comes out is elevated blood sugar,but not quite diabetic range,although to be 105 fasting when your as thin as Michael and eat very little sugar does have me concerned a bit.Anyway his Neuro wants him to have a VEEG in hospital for 2 days to see what's going on.Unfortunatley we couldn't get any sooner than September 8th.I'm planning on making a phone appointment with his regular doc and see about a sleep study as well,since he has these spells and just falls asleep on the floor.We also went to some very much delayed Dentist appointments.Our insurance isn't so great and so we had put it off and we all needed work and so that has been pretty expensive.Michael and Daniel are having their birthday party on the 11th which is Daniel's official birthday.They are going to be 17 & 16.They are having a Kung Fu Panda party and camping outside with a fire pit and smores.Gilbert and I are celebrating our Anniversary this weekend and will go out somewhere.Nicholas passed his test to get into The Shipyard and hopefully that will happen soon and Bret is doing great in Hawaii driving around in his police car.Have a great weekend.God bless,Linn
Read Journal History
Links:
|
|