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DANIEL MARRERO

Daniel,Nicholas,Ariel and Michael at our Independance Day celebration.


Welcome to Daniel's Web Page.About 5 years ago after a head injury Daniel started having grand mal seizures.He had those about once to twice a week for 6 months and then they changed to complex partials.Since then life has been full of ups and downs and a lot of battles trying to control his seizures,he now has many different types.He has been on 6 different anti epileptic medications and a special diet and still continues to have seizures.On February 1st Daniel had a VNS implanted to hopefully help control his seizures.You see after having so many seizures the brain starts getting overloaded and you start seeing all sorts of cognitive and neurological problems,like slurred speech and memory loss and school which was once so easy is now very difficult.Daniel is homeschooled,so it gives us a chance to catch up between doctors appointments.As of May Daniel's VNS implant was turned off because it was making him worse,now he is on the last med and it does seem to be helping.If this fails the only other option is brain surgery.Please keep Daniel in your prayers and sign Daniel's guestbook and drop us a line.


ANY HAPPY MAIL FOR DANIEL CAN BE SENT TO P.O. BOX 551 BURLEY,WA.98322.


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CLICK ON THE CB FAMILY AND FRIENDS BUTTON TO VOTE FOR DANIEL'S SITE AND VISIT OTHER CB FRIENDS.

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DANIEL AT THE USSA FISHING EVENT.

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CHECK OUT DANIEL'S NEW MACS PHOTO ALBUM AT

MACS PHOTO ALBUM

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TAKE A LOOK AT THE ARTICLE ABOUT OUR FISHING TRIP.

THE FISHING STORY


HERE ARE SOME OF THE WONDERFUL ORGANIZATIONS DANIEL'S BEEN FEATURED ON.

MAKE A CHILD SMILE

CHILDREN OF PROMISE

LOVE QUILTS

THE TUMBLEWEED FOUNDATION

HUGS&HOPE

BRIDGE OF DREAMS

SHARE THE LOVE


FUN SITES

DISNEY 2 GO

DISNEYLAND

GARFIELD.COM

SNOOPY.COM

LEGO.COM

THE DISNEY STORE

DISNEYWORLD

I-LOVE-DISNEY


OTHER HELPFUL SITES.

MONSTER LINKS

KIDS SITES

STARLIGHT FNDTN WA.

GREAT ESCAPES

GREAT ESCAPES 2

STARLIGHT FNDN

STARLIGHT OREGON

ALL ABOUT EPILEPSY(tons of links)

CARINGCREW

KEIKI CARDS

THE EPILEPSY FOUNDATION

THE MAKE A WISH FOUNDATION

WASHINGTONS MAKE A WISH

GIVE KIDS THE WORLD

SUNSHINE ON EAGLES WINGS

SMILE N HUGS

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GREAT GRAPHICS

CUTE COLORS

GRAPHIC GARDEN

DISNEY 2 GO

ANNES GIFS

TEX LASS

APPLE BLOSSOM ART

TENDER HART

DISNEY CLIPS

DOLLIE CRAVE

TEDDY GRAPHICS

SNO.GIRL

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SCHOOL LINKS

OUR SCHOOL PAGE

JODY'S HOMEMADE LIVING

CHARLOTTE MASON SCHOOLING

PUGET SOUND PARENT

KITSAP KIDS

BELFAIR HS

FAMILY FUN

EXPERIENCE WASHINGTON

HOMESCHOOL LINKS

1000 GOOD BOOKS

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WE ARE DOING A POSTCARD DRIVE FOR DANIEL.I SAW KATIA WAS DOING THAT AND THOUGHT IT WAS A GREAT IDEA.DANIEL LOVES TO SEE DIFFERENT PLACES AND WHAT A GREAT WAY TO SHOW HIM THE STATES.IF ANY OF YOU COULD SEND HIM A POSTCARD FROM THE STATE YOU LIVE IN IT WOULD BE MUCH APPRECIATED.

WOOHOO!Today Daniel's up to 650 postcards!,it's a great start.Please keep them coming it brings him a lot of joy.


THERE ARE MANY GREAT BOOKS OUT THERE FOR INFORMATION ON EPILEPSY & TREATMENT HERE ARE A FEW

SEIZURES AND EPILEPSY IN CHILDHOOD,By John M. Freeman,M.D.

PARTIAL SEIZURE DISORDERS,By Mitzi Waltz

EPILEPSY AND SEIZURES,By Dr.Donald Weaver

THE KETOGENIC DIET by Dr.John Freeman.

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DANIEL LOVES

GOOFY & GARFIELD

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GOING FISHING

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COOKING WITH EMERIL

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DISNEYWORLD and all things DISNEY.

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*HUGS* TOTAL!
give danielmarrero more *HUGS*

Get hugs of your own


















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Daniel with Meeko & Pocahontas


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The beautiful snowglobes on my site are at Volsgal.com

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Proud parent of Bret currently serving as a Military Policeman in Honolulu Hawaii.

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IN MEMORY OF SWEET ANGEL JACOB

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"SO LONG MATE YOU'LL BE MISSED"

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PLEASE SIGN DANIEL'S GUESTBOOK IT SURE CHEERS HIM.

Helens Banners

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If you're having trouble getting the guestbook to load after you click on it hit stop and it will open right up.

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Our true stars!

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Daniel getting Goofy hugs.

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Daniel caught in the net at California Adventure.


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Daniel enjoying his balloons from Hugs 7 Hope.


MANY BLESSINGS AND THANK YOU TO:

Everyone who was so kind to Ariel on her birthday.

THANK YOU SO MUCH YOU'RE A BLESSING TO OUR LIVES.







Midi Playing Is
Grand Disney Theme

courtesy of
Belle' Midi Library3


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Daniel and Michael having fun with the miner's band.

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The spinning tea cups.

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Daniel,Michael and Ariel having fun on The Jungle Cruise.

Ariel's site

Ariel's quilt of love


Journal

Wednesday, July 9, 2008 11:25 AM CDT

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4th of July fun.

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Mad science fun.

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Having fun at the aquarium.

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Hello sorry I've been gone for so long,we've been busy having summer fun.My darling son is in Honolulu having a good time.Hopefully we can visit him next year.Healthwise everyone has been well,although we are still having to keep heads up on Daniel's blood pressure.Other than that seizure wise everyone is doing fine.A few blips here and there,but nothing major.

We have been having such a great time thus far this summer.The sun finally came out and it's starting to get warm.For almost all of June it was in the 50-60's.We so far have gone to Portland were it was a scorching 105 degrees to see Mad Science.We have also been bowlingthe zoo and have just been having fun at home playing croquet and swimming in our pool.

Our 4th was fun it was just us.We barbecued,played games and did fireworks.This coming week we will go to the zoo in Seattle,get a special showing at the airshow and get to be the special guests of the AAA team in Portland.Starlight has really been a blessing to us in providing tickets to do so many fun things for us.They are well aware that parents of kids with medical issues pay out most of their money on medical expenses.We are also busy buying curriculum and planning our school year as well as our Disney trip in October.Have a great week everyone and enjoy your summer.God bless,Linn

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Hospital Information:

We are home in Port Orchard,Wa.
Mailing address: P.O. Box 551
Burley,WA.98322

Links:

http://home.earthlink.net/~linngilbert7/linnslittlehomeontheweb/id7.html   Daniel's main page
http://quiltsoflove.com/quilt_2005/daniel_M/daniel.html   Daniel's quilt of love
http://smilequilts.com/danielm.html   Daniel's Smile Quilt.


 
 

E-mail Author: gillinn7@msn.com

 
 

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