Journal

Monday, November 3, 2008 2:16 PM CST

We have had such a busy busy time lately. Megan has recovered really well following her surgery in July. The stitch has dissolved now and her back looks great. We recently had an appointment at Stanmore ortheopedic hospital. Everything went ok and we have been given some new excercises to try. They are a bit concerned about her pelvis as she isnt sitting very well. Her pelvis seems to sit very awkwardly with her trunk. they doctors and physios feel that the muscles on one side of her trunk are not contracting properly causing this problem. We are going to be admitted for a week to try some electrode type therapy, this should make the muscles start contracting and possibly we can correct her sitting position some more. We may also try a type of spinal jacket that she can wear that isnt solid plastic and she may be able to tollerate it better.

Last week was half term and Megan had a wheelchair skills course that was run through Wizz kids. We had to go to the Britt school in Croydon everyday and the course was run by Emily and Mark. Emily and Mark are both active wheelchair users. Megan proved to be a little star, her skills are great. She has learned all about road safety, spatial awareness and how to use her wheelchair properly. Emily feels that Megan is very advanced in her skills and we are now practicing her back wheel balancing. Hopefully this course will be repeated every year which will be great not just for Megan but me aswell. Its been great meeting other people in similar situations, and also great for Megan to interact with other children in wheelchairs. Because Megan is in main stream school its very rare that she ever comes across another wheelchair user.

We had a really busy weekend at my mums. Friday was halloween of course and Joe and Megan wanted to go trick or treating. It was freezing cold but we braved the wind and took them out for an hour. Joe was frankenstein and Megan was a witch. they both did very well and have a huge bag of sweets each. Joe and Megans sister Jenny came down with her boyfriend Andy for half an hour, Andy was dracula and Jenny was a big blow up ghost. You wouldnt think they were in there mid twenties.


Joe and Megan


Joe, Megan, Jenny and Andy

Well were all getting ready for christmas now, i know its about 9 weeks away but it will be here before we know it. Megan wants a keyboard and Joe an electric guitar. Our house will be noisey xmas day if Santa obliges lol.

Hospital Information:

Patient Room: giraffe ward and elephant day care

great ormond street childrens hospital
great ormond street
london

Links: