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Delaney's Diary

June 6, 2000-July 27, 2004
EVENTS SINCE DELANEY'S DIAGNOSIS

July 16, 2003: Delaney had a headache while at the beach on vacation

July 30, 2003: Took Delaney to pediatrician because of 2 headaches inwhich she grabbed the back of her head and said it hurt.

July 31, 2003: Delaney had another headache and went to sleep afterwards. Took her to the ER and a catscan showed a golfball sized mass in her cerebellum. She was shipped to University of VA Hospital.

August 8, 2003: Delaney had a craniotomy and total resection of the tumor which was malignant, a medulloblastoma

August 27, 2003: Delaney had a broviac placed in her chest to recieve chemo which we began that evening at Children's National Medical Center in Washington, D.C.

January 2, 2004: Delaney had her last stem cell transplant which concluded chemotherapy

February 23: Started 6 weeks of M-F focal radiation at National Institute of Health in Bethesda, MD

April 2, 2004: Last day of Radiation

April 27, 2004: Surgical consult for Delaney's broviac removal

May 3: MRI @ Children’s showed “spot” on spine at T1-T2 vertebre

May 13: Started Oxillaplatin (new chemo in Phase II Trial)

June 6: Delaney’s 4th Birthday

June 21: MRI @ Children’s showed T1-2 spot 3x bigger, spot in Cerebellum, spot lower on spine, and spot in “top of brain, between the two lobes”

July 2: Began new chemo O6 & T________________ which are in Phase I trial

July 3, 2004: Delaney lost use of both legs

July 7, 2004: Began 1 of 10 radiation treatments to the tumors on Delaney's spinal cord

July 27, 2004
Our little angel left this Earth while laying on Mommy's chest with Daddy, Trevor & Corrin at her side



www.caringbridge.com/va/jeffreysjourney

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www.caringbridge.org/va/amber/

http://www3.caringbridge.org/sc/leigha/

http://www3.caringbridge.org/va/leah/

http://www2.caringbridge.org/md/chrismelko/

http://www2.caringbridge.org/md/christian/

Journal

Tuesday, August 19, 2008 9:39 PM CDT

Today I miss Delaney more than ever... one of those lows on the never ending rollercoaster ride...


Michelle

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Hospital Information:

Patient Room: Heaven

No more hospitals ever again



Links:

http://main.acsevents.org/goto/delaneyswings    Delaney's Wings Relay Team
www.cancerkids.org   Kid's telling their stories
http://www.candlelighters.org/   Candle Lighters


 
 

E-mail Author: nathalie24577@yahoo.net

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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