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Delaney's Diary

June 6, 2000-July 27, 2004
EVENTS SINCE DELANEY'S DIAGNOSIS

July 16, 2003: Delaney had a headache while at the beach on vacation

July 30, 2003: Took Delaney to pediatrician because of 2 headaches inwhich she grabbed the back of her head and said it hurt.

July 31, 2003: Delaney had another headache and went to sleep afterwards. Took her to the ER and a catscan showed a golfball sized mass in her cerebellum. She was shipped to University of VA Hospital.

August 8, 2003: Delaney had a craniotomy and total resection of the tumor which was malignant, a medulloblastoma

August 27, 2003: Delaney had a broviac placed in her chest to recieve chemo which we began that evening at Children's National Medical Center in Washington, D.C.

January 2, 2004: Delaney had her last stem cell transplant which concluded chemotherapy

February 23: Started 6 weeks of M-F focal radiation at National Institute of Health in Bethesda, MD

April 2, 2004: Last day of Radiation

April 27, 2004: Surgical consult for Delaney's broviac removal

May 3: MRI @ Children’s showed “spot” on spine at T1-T2 vertebre

May 13: Started Oxillaplatin (new chemo in Phase II Trial)

June 6: Delaney’s 4th Birthday

June 21: MRI @ Children’s showed T1-2 spot 3x bigger, spot in Cerebellum, spot lower on spine, and spot in “top of brain, between the two lobes”

July 2: Began new chemo O6 & T________________ which are in Phase I trial

July 3, 2004: Delaney lost use of both legs

July 7, 2004: Began 1 of 10 radiation treatments to the tumors on Delaney's spinal cord

July 27, 2004
Our little angel left this Earth while laying on Mommy's chest with Daddy, Trevor & Corrin at her side



www.caringbridge.com/va/jeffreysjourney

www.caringbridge.org/ca/jordan

www.caringbridge.org/sc/chelseaaltman

www.caringbridge.org/va/amber/

http://www3.caringbridge.org/sc/leigha/

http://www3.caringbridge.org/va/leah/

http://www2.caringbridge.org/md/chrismelko/

http://www2.caringbridge.org/md/christian/

Journal

Monday, March 24, 2008 9:26 PM CDT

Easter this year was the most "normal" since prior to Delaney's diagnosis. See the new photos!!!

God is so very good. After all of the heartache and struggle, our family has come back together and we have been so very blessed.

We are helping plan for the Relay For Life for Westmoreland County, Al's hometown in which we live. Al's dad, "Popoo" as Delaney called him, is the chairman Al's mom, "Mamee" is the co-chairman of the Relay Committee. As many of you know, Al's mom, Becky was diagnosed with breast cancer soon after Delaney was diagnosed. She is cancer free and has since done so much in the way of awareness and prevention.

Trevor and Corrin are so excited to be a part of the Relay. Our team is called "Delaney's Wings," which Al started in 2005 and has continued since.

Trevor is so big, as you can see him towering over me in the pictures. He is excited about the upcoming golf season.

Corrin is as tall as I am. She is such a wonderful cook, for which she gives all the credit to my dad. She is doing really well in school.

Al works for Northrup Grumman supporting Ft. A.P. Hill. He is doing very well and also looking forward to warmer weather.

I have returned to my Hospice work after a stint in the O.R. and Home Health. I am a R.N. Case Manager at Hospice of Virginia.

Please stay in touch with us! If you would like to be a member of Delaney's Wings, email me or give me a call. We'd love to have you walk with us on May 17th!!!

With Love,
Michelle

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Hospital Information:

Patient Room: Heaven

No more hospitals ever again



Links:

http://main.acsevents.org/goto/delaneyswings    Delaney's Wings Relay Team
www.cancerkids.org   Kid's telling their stories
http://www.candlelighters.org/   Candle Lighters


 
 

E-mail Author: nathalie24577@yahoo.net

 
 

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