Delaney's Diary

June 6, 2000-July 27, 2004
EVENTS SINCE DELANEY'S DIAGNOSIS

July 16, 2003: Delaney had a headache while at the beach on vacation

July 30, 2003: Took Delaney to pediatrician because of 2 headaches inwhich she grabbed the back of her head and said it hurt.

July 31, 2003: Delaney had another headache and went to sleep afterwards. Took her to the ER and a catscan showed a golfball sized mass in her cerebellum. She was shipped to University of VA Hospital.

August 8, 2003: Delaney had a craniotomy and total resection of the tumor which was malignant, a medulloblastoma

August 27, 2003: Delaney had a broviac placed in her chest to recieve chemo which we began that evening at Children's National Medical Center in Washington, D.C.

January 2, 2004: Delaney had her last stem cell transplant which concluded chemotherapy

February 23: Started 6 weeks of M-F focal radiation at National Institute of Health in Bethesda, MD

April 2, 2004: Last day of Radiation

April 27, 2004: Surgical consult for Delaney's broviac removal

May 3: MRI @ Children’s showed “spot” on spine at T1-T2 vertebre

May 13: Started Oxillaplatin (new chemo in Phase II Trial)

June 6: Delaney’s 4th Birthday

June 21: MRI @ Children’s showed T1-2 spot 3x bigger, spot in Cerebellum, spot lower on spine, and spot in “top of brain, between the two lobes”

July 2: Began new chemo O6 & T________________ which are in Phase I trial

July 3, 2004: Delaney lost use of both legs

July 7, 2004: Began 1 of 10 radiation treatments to the tumors on Delaney's spinal cord

July 27, 2004
Our little angel left this Earth while laying on Mommy's chest with Daddy, Trevor & Corrin at her side



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Journal

Tuesday, August 19, 2008 9:39 PM CDT

Today I miss Delaney more than ever... one of those lows on the never ending rollercoaster ride...


Michelle

Read Journal History

Hospital Information:

Patient Room: Heaven

No more hospitals ever again

Links:

E-mail Author: nathalie24577@yahoo.net

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