Welcome to Caden's page

Caden has Neurofibromatosis type 1 (NF-1). He was born on 11/21/02. As a result of his NF, Caden has a bone deformity called isolated congenital pseudarthrosis of the fibula. He had an iliac crest bone graph and internal rod placed in his fibula on Sept. 19, 2006 to try and repair the damage. Caden had a second graph from his rib to his fibula and had the internal rod replaced on March 8,2007 ,after the first attempt to repair his leg didn't work. Caden also has sensory integration disorder and some gross and fine motor skill delays. Caden loves to talk, but is not typically understood because of articulation problems. January of 2007 Caden was diagnosed with Attention-Deficit/Hyperactivity Disorder (ADHD). He has had two sets of ear tubes, surgery to remove tubes & a cyst growing on them, an adenoidectomy, five MRIs, two closed head traumas, nine casts,& way more x-rays than anyone could ever count. Caden has had multiple laryngoscopies that have all shown very mature vocal nodules as well as severe damage from reflux. These are all things that have been associated with NF-1. He is a happy, energetic, funny, cute little boy who loves to play. Caden has had a lot of medical problems in his young life, but has pushed through them and keeps getting stronger for it. Thank you for visiting us and keeping up with us. We appreciate the prayers and support!


Caden's favorite things:

- anything green
- penguins
- his "shrocs" (crocs)
- His Basset Hound, Hank Verde Yoshi
- Cassaday, his favorite lifeguard/babysitter
- Mumble, Lightning McQueen, Transformers Bumblebee, Dash, Buzz Lightyear, Nemo, Batman, Superman, Spiderman, Diego, Scooby Doo, Curious George, Spongebob and of course Stitch
- Mrs. Amy's class at Binion
- Life Church
- Joyfull the clown
- anything that has anything to do with any kind of racing
- skateboard anything
- swimming
- Taggies, bunny, and teddy bear
- ALL his build a bear animals
- Texas Scottish Rite Hospital for Children
- bubbles
- fruit snacks, cereal, juice boxes, popsicles, crackers, and donuts
- reading books
- going on walks


Caden's momma's myspace web page! www.myspace.com/karabelle

Journal

Thursday, July 2, 2009 4:06 PM CDT

It's been a busy week & it's not through yet! Caden's opthamology appt went very well. We got the exact report we've been praying for, maybe even better! Caden's optic nerves look perfect, they are pink & healthy & just the right size. He has no lisch nodules & his vision is near perfect! He may be slightly nearsighted & could need glasses in the next five years, but the doctor said even then it won't be bad. What a blessing to hear such positive words from one of Cadens specialists!

Now onto today's neurology appt. Caden was excited for this appt, me not so much. He loves going to Scottish Rite, as always he got some prizes & a bag of popcorn! It's so great to have a place to take him to see his doctors that he loves to be there. It makes such a huge difference. The nurse & the PA were great with Caden & didn't mind his crazy antics. They gave hi
a coloring book & crayons & a storybook, & then took turns playing with him so I could talk & discuss our concerns. The doctor was puzzled by Cadens sleeping habits & wants me to journal his sleep routine for a few weeks along with a few other facts. Then I'll call & we'll review them & discuss doing a sleep study, that or we might have MRI results by then. The neurologist also requested that we see a GI doctor to discuss the vomiting episodes. We are waiting on a call from the hospital dietician to talk about Caden's eating habits & see if we can get something figured out there. Apparently Caden has grown perfectly in height since our last appt, but has barely gained any weight. He did order an MRI but we have to wait for insurance approval before we can even schedule it. So please pray insurance approves it quickly & the hospital can get it on the schedule quickly! That leaves us exactly where NF typically likes to leave you, waiting. So we will wait & while we wait we will pray that we get the answers we need.

That is all for now! We celebrate my birthday tomorrow & then my brother & sister will be here for the weekend! It should be fun, but there's no guarantee. I absolutely love the 4th so I'm just hoping we see a good show & have fun! I'll update again when we have a MRI date or hear anything more about everything that's going on. As always, sign the guestbook - if you have a problem please email me, some people haven't been able to get it to work. It worked for me this morning, so hopefully it'll work for you!


With thankfulness, Kara

Hospital Information:

Texas Scottish Rite Hospital for Children
2222 Welborn Street
Dallas, Texas 75219
214-559-5000

Links:

E-mail Author: cadsmom19@aol.com

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