Chrissy's Page

Welcome to our Chrissy's Web Page. It has been provided to keep people updated about her, and all of her accomplishments. Chrissy was born with a rare neurological condition called Hydranencephaly. Later her official diagnosis was changed to Schizencephaly. She is missing a large portion of her brain. She was expected to live only weeks. We adopted her at 7 days of age. She has proven many doctors wrong and given us 8 years of joy and love!! She is an inspiration to our family and to all who have been touched by her life. She is happy, plays with switch toys, and is Homebound for school. She is in second grade life skills class and loves to participate by hitting her switches and hand over hand activities with her teacher. She is a happy, healthy little girl and we love her so much!!

Journal

Monday, March 16, 2009 1:07 PM CDT

Well, it is March 2009 and we are just getting out of the hospital with Chrissy. On March 3, 2009 she went in for a tracheostomy. Chrissy has been having difficulty breathing since December. Her neurological condition causes her to "curl" her tongue towards the back of her throat. As a result, she was blocking her own airway!
The best, fastest, and least intrusive procedure to fix this problem was a trach.
She has been doing well in the hospital and is going home tomorrow. She is as happy and relaxed as ever and doesn't seem to be bothered by the trach at all. She is such a little trooper! And breathing is a good thing!!
We will be glad to get home to her dad and siblings tomorrow! Two weeks in the hospital is a looooong time! Thanks for everyone's prayers!

Links:

http://www.hydranencephalyhhh.com   More about this rare neurological condition
http://www.myspace.com/mykidzmoma  

E-mail Author: mason7ak@aol.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.