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happy 4th!
Glad you had a great trip!
jane
jane <janemartin02@comcast.net>
berwyn, il usa - Thursday, July 2, 2009 9:11 PM CDT

Have FUN in FL!!!!!!
Take care,jane
jane <janemartin02@comcast.net>
berwyn, IL usa - Monday, June 29, 2009 6:20 PM CDT

wow. I'm in awe. I'd love to make a donation. and probably will some time in the future. I don't have a credit card yet. or the ability to use paypal (which is ok because they take part of the money anyway) but wow. All the best wishes!
-www.myspace.com/k8lynbush89
-www.myspace.com/breatheeasycurecf
katelyn <kkbush@optonline.net>
wayne, nj usa - Monday, June 29, 2009 2:52 PM CDT

Hi Baylie and Tressie. I believe we've met once at the RMH but it's been awhile. I can't wait to get the brain Tshirt for Reesa to wear to school...LOL. Hope all is going well with you and yours, and that you're having a great summer :)
Jacki Athey <reesas_mum@hotmail.com>
Villa Grove, IL US - Monday, June 29, 2009 1:00 PM CDT

have fun In Florida!!!
Take care,jane
jane <janemartin02@comcast.net>
berwyn, IL usa - Tuesday, June 23, 2009 4:36 PM CDT

Hi Baylie, What a sweet girl you are! I was just found out that I have IH and my husband has Chiari and had surgery a few years ago. My heart is with you and I am so excited to get my braclets that I ordered.
Shannon Lee <ucshanny619@yahoo.com>
Santee , Ca - Sunday, June 7, 2009 1:11 PM CDT

Hi Baylie! I recently found out about you and your race for chiari. My mom had 3 brain surgeries because she also has chiari malformation & I think it's a wonderful thing what you're doing! I actually ordered a few bracelets, I can't wait to get them! I read that you had surgery earlier this yeah, I hope that you're doing well. You're a very brave & very strong little girl. I wish the best for you in the future!
God bless!
Ashley <abittenbend@student.northampton.edu>
Kunkletown, PA USA - Saturday, May 2, 2009 2:16 PM CDT

hi baylee. i have conections because was in the ocean and i saw a dolphin in the ocean. I hope you have fun swimming with the dolphins and I love the bracelet that I got at my friend's party. It says hope. I hope you get better soon. I am happy that you get to swim with the dolphins. I hope that your headaches will go away.
Sofia
- Sunday, April 26, 2009 10:12 AM CDT

Hi Baylie, I don't know if you remember me, I sent you the angel bear that played music to sleep with, and the comfort angel. I hope you still have them. know that God and everyone loves you. I think of you often, I pray for the day you are well, and able to go home forever. Take care, and keep up the good work.
Cathy Wilson <cathy4330_2@hotmail.com>
Medford, OR United States - Monday, April 13, 2009 4:12 PM CDT

Hope everyone is feeling better.Happy Easter!!
jane
jane <janemartin02@comcast.net>
- Wednesday, April 8, 2009 5:53 PM CDT

Hope all are feeling better.
jane
jane <janemartin02@comcast.net>
- Wednesday, April 1, 2009 10:26 PM CDT

Hey, hopefully you knew that i was kidding around about the Erica thing. She is atcually one of my friends. We just kid around by saying that we're nerds. Hope you are doing well.
Devyn Raver <lraver@indy.rr.com>
Carmel, IN USA - Tuesday, March 17, 2009 8:22 PM CDT

hey Baylie goodluck with the surgery ;^) i know its a little late and im sorry about everything ;^( the surgery and everything else. i wondered if you were OK . But be happy u don't have a brother. Even though its early Hapyp St.Patties Day !!!!!!!!!!!!!!!!!!!!!! :^) BE HAPPY DONT WORRY BE HAPPY AN LIVE,LAUGH,LOVE,AND.. ........ BE HAPPY!!!!!!!!!!!!!!!!!!!!!!!!!! :^) :^) :^) GOOD LUCK WITH EVERYTHING BAYLIE EMAIL ME ASAP P.S. nice music
Erica Zirkelbach <superhorselover1@yahoo..com>
Carmel, IN United States - Thursday, March 12, 2009 9:32 PM CDT

Hey Baylie tis erica or eric i just wanted to tell u about a horse website. I know u mite not be interested but hey oh well. if you want to go to it ok it is called howrse.com. I LOVE HORSES SOOOOOO MUCH!!!!!!!!!!!!!!!!!!!!!!! Craw fish rule to of course : D I think you r so cool!!!!!! who wouldnt I hope you Write back ASAP BYE!!!!!!!!!!!!!!!!!!!!!!
Erica Zirkelbach <superhorselover1@yahoo.com>
Carmel, IN United States - Wednesday, March 11, 2009 7:58 PM CDT

HI BAYLIE ITS ERICA AGAIN AND I JUST WANTE TO SAY THAT EVEN THO IT WILL NEVER GO AWAY KEEP FIGHTING FOR IT!!!!!!!!!!!!! ONE DAY WE WILL GET THERE :D YAY US
Erica Zirkelbach <superhorselover1@yahoo.com>
Carmel, IN USA - Wednesday, March 11, 2009 7:45 PM CDT

hi baylie i am reiley harrington! u came to my school today i think that u r awesome u have gonr through so much!!
Reiley <tennisgirl98@indy.rr.com>
Carmel, IN USA - Wednesday, March 11, 2009 7:39 PM CDT

Baylie my name is Erica Zirkelbach. You came to our school today. I was the one that asked what your fav animal is. I think it is really cool that you have gone through this much and only miss school to go have surgery :^) SO COOL!!! My email is superhorselover1@yahoo.com I hope you will email me back

Erica Zirkelbach <superhorselover1@yahoo.com>
Carmel, IN USA - Wednesday, March 11, 2009 7:34 PM CDT

Hi my name is Julia Miller and I go to Woodbrook the school you just visited thanks for coming!!
Julia Miller <julesam199@live.com>
Carmel, IN USA - Wednesday, March 11, 2009 7:26 PM CDT

hi Baylie I am Hope Henderson and you came to our school today, Woodbrook Elementary.I am a advertiser and I hope you feel better!!You are very brave and you also have alot of courage!!!! You inspire me.
Hope Henderson
Carmel, IN USA - Wednesday, March 11, 2009 7:14 PM CDT

Hey i am the girl in the gray jacket and brown pants. I was woundering what your e-mail is. I e-mailed you off of your moms. Is that OK? I am thinking acbout buying a shirt.So are you comeing to the Woodbrook Carnival? And when are you going to start making bracelets at Smokey Row? Is that where you go to school?
Devyn Raver <lraver@indy.rr.com>
Carmel, IN USA - Wednesday, March 11, 2009 5:55 PM CDT

Hi! I eas at the presintation at woodbrook
Carolyn <Carolyn_maya@hotmail.com>
carolyn, IN USA - Wednesday, March 11, 2009 5:53 PM CDT

Hey i was wounder what your e-mail was. I am the girl that was wearing the gray jacket and brown pants. I also asked you what grade your sister was. I have been e-mailing off of your moms e-mail. Is that OK?
Devyn Raver <lraver@indy.rr.com>
Carmel, IN USA - Wednesday, March 11, 2009 5:51 PM CDT

Hi! I'm Carolyn.I was At the presintation at woodbrook.
Carolyn <Carolyn_maya@hotmail.com>
Carmel, Indiana USA - Wednesday, March 11, 2009 5:50 PM CDT

hi!!im alisha the wieving was from me...hope you get better soon!!!!i have a question... where is your favorite place youve been?and wat is you email??
alisha wang <alishawang899@gmail.com>
carmel, indiana united states of america - Wednesday, March 11, 2009 5:46 PM CDT

I really hope you liked visiting us!!!! :) I really hope that you come to the Woodbrook Carnival. I am in Avertizing. Signed by Devyn (Devy, Dever, and Dorky Devy).
Devyn Raver <lraver@indy.rr.com>
Carmel, IN USA - Wednesday, March 11, 2009 5:40 PM CDT

Hi Baylie. I'm Sami Mann. Today you came to my school.{Woodbrook} I am one of the Card Company Directors. Was it fun meeting all of those cool people? It was nice meeting you!
Sami Mann
Carmel, IN U.S.A - Wednesday, March 11, 2009 3:30 PM CDT

hi baylie! i am from the woodbrook elementry card company.
[it was fun to meet you!] [march 11, 2009]
Sami
carmel, IN USA - Wednesday, March 11, 2009 3:24 PM CDT

hi baylie!!!im the one who gave you the wieving.hope u get better soon!!!
alisha wang <alishawang899@gmail.com>
carmel, indiana united states of america - Wednesday, March 11, 2009 2:10 PM CDT

hi baylie i am reiley harrington i was at the presentation at woodbrook!!! you are so cool!!!!!! i hope that u get well soon!!
Reiley Harrington <tennisgirl98@indy.rr.com>
Carmel, IN USA - Wednesday, March 11, 2009 2:06 PM CDT

Hi I am Riley Deam. You came to my school today (Woodbrook) and you might not have seen me but I was in a purple and green jacket with my hair in a pony tail. You seem sooo lucky to me to meet all those cool people. Oh and by the way my teacher was the gray haired one Mrs. Fadel. Okay that's all so Cya another time. Riley/Riles/Rockin' Riles
Riley Deam <sdeam@mac.com>
Carmel, IN USA - Wednesday, March 11, 2009 2:01 PM CDT

Hi I was at your presentation at woodbrook elementry school. I hope you raise your 1000000$
Jonah Lane <jonahlane@mac.com>
Carmel, IN U.S.A. - Wednesday, March 11, 2009 2:00 PM CDT

hey Baylie!!!!!!!!!!!!!1this is Jasmine Saffa.GET WELL SOON!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Jasmine Saffa <jasminesaffa123@gmail.com>
Carmel, IN USA - Wednesday, March 11, 2009 2:00 PM CDT

Hi! I'm the boy in the gray shirt, who asked about the webpage. :D
Blake Miller <btvgm101@gmail.com>
Carmel, IN USA - Wednesday, March 11, 2009 1:58 PM CDT

hey Baylie!!!!!!!!!!!!!1this is Jasmine Saffa.GET WELL SOON!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Jasmine Saffa <jasminesaffa123@gmail.com>
Carmel, IN USA - Wednesday, March 11, 2009 1:58 PM CDT

I can't believe I got to meet you. I am the girl in the gray shirt with brown pants that asked you how old you oldest sister is.
Devyn Raver <lraver@indy.rr.com>
Carmel, IN USA - Wednesday, March 11, 2009 1:54 PM CDT

I can't belive I got to meet you. I am the girl in the gray jacket with brown pants that asked you how old your oldest sister is.
Devyn Raver <lraver@indy.rr.com>
Carmel, IN USA - Wednesday, March 11, 2009 1:52 PM CDT

want to find a friend

beth jeffries <bkjeffries@cox.net>
va beach, va usa - Monday, March 9, 2009 2:52 PM CDT

As always You are in my prayers!
Take care,jane
jane <janemartin02@comcast.net>
berwyn, IL usa - Saturday, March 7, 2009 9:53 PM CST

Tressie,

For sure, I'll be saying prayers - it was great to see your update. I'll ask about the beads - one of the srt teachers has a jewelry class - maybe she can lead us to the right site.

As for you, Baylie, the Beautiful, whatttttupppp, lil girl? Aunt AJ loves ya!!!
A.J. Johnson <avisjohnson@vuhsd.net>
Fallbrook, CA USA - Friday, March 6, 2009 1:00 PM CST

Baylie,
You don't know me, but I have spoken to your mom before. I came across your website when I was researching Chiari. I have Chiari Malformation type I too. I had a decompression surgery in '07. I cannot imagine going through what you have gone through with 11 surgeries and being so young. I have your race to a million t-shirt and your obama t shirt and some bracelets! They are beautiful and I wear them all the time! I have one of your ribbons on my car too! I think you are such a brave and courageous person and though you are very young, you teach so many of us older folks about faith and how to be strong. Thank you for being "you" and helping me. I will aways tell people about you, and I will tell them about your website to help you raise more money!
Linda Kimbro <kimbro722@mchsi.com>
Cedar Rapids , IA United States - Friday, February 27, 2009 0:15 AM CST

hi
allison
thief river falls, mn us - Thursday, February 26, 2009 12:15 AM CST

Hey there Baylie the Beautiful,

Whatzzzuppppp girlfriend? It's A.J. from California, and I have a message for you: From here on in, all headaches are not allowed!! Tell the headaches to go bug the scorpions in the S. California desert?

Love,

A.J.
A.J. Johnson <avisjohnson@vusd.net>
Vista, CA USA - Monday, February 23, 2009 11:19 AM CST

Hello Baylie!!!!

Looking forward to meeting you soon!
James Kimball McEachern <hhgreggindy@yahoo.com>
Fishers, IN USA - Friday, February 20, 2009 6:56 PM CST

Hi Baylie, The fourth graders at Woodbrook Elementary want to help you meet your goal. We have started a card company and are going to give you all the proceeds to help fight Chiari. We are looking forward to meeting you!
Mrs. Fadel, 4th grade teacher <jfadel@ccs.k12.in.us>
Carmel, IN USA - Friday, February 20, 2009 8:55 AM CST

Happy valentine`s day!!
jane
jane <janemartin02@comcast.net>
berwyn, IL usa - Saturday, February 14, 2009 10:13 PM CST

Hi Bailey! I hope you have a Happy Valentines Day! Take care of yourself!
Love, Joy
Joy Stoerger <joystoerger@yahoo.com>
- Saturday, February 14, 2009 11:58 AM CST

Greetings Baylie from cold Alaska - however, we did have sunshine yesterday, which is a treat :>) Just a quick note to wish you a Happy Valentines Day.
Debbie K.
Juneau, AK - Friday, February 13, 2009 9:59 AM CST

Hey Girl! I saw the news story about the Polar Bear swim in Chicago and I wondered if you took the plunge with them? 50 may have been balmy, but I bet that water was still COLD!

Happy Valentines Day to you, your sisters and your beautiful mama!
The Paluchs
Houston, TX USA - Thursday, February 12, 2009 5:22 PM CST

Hi Baylie girl!!!!

I am so glad to hear that you are feeling better. You are in our thoughts and prayers all the time! My nephew, Justice, was asking about you tonight..so we thought we would check to see how you are doing...When you get a chance, have your mom email your address...The Strutters have a belated Christmas gift for you. We didn't want to overwhelm you these past months but we would like to send it! All our love, Andi
Andi Haddox <danenberga@hotmail.com>
Houston, TX USA - Wednesday, February 11, 2009 9:28 PM CST

Well my you are a very brave girl and I hope things are working out well for you, did you know that you have been picked by God to teach others about being brave even though I bet you didn't feel brave sometimes, I was a mommy who lost her little gril to wilms tumor now I have to be brave
Cynthia Marston <toresa1@shaw.ca>
Edmonton, ab canada - Tuesday, February 10, 2009 9:22 PM CST

Came across your website and wanted to sign your guestbook. Hope everything is going well for you right now.
Christi Haywood <chris_sissy@hotmail.com>
Moundville, Al USA - Tuesday, February 10, 2009 3:30 PM CST

Hello little sweetheart! Thank you so much for sharing your life with all of us..... my neice just found out about this dis-ease.... her name is Xandra... i hope she can get some help from Dr. Frim as well...she sure is having lots of headaches....feel better ok i will always think of you and how you share love take care xxoo, Tina

Tina Farber <tinafarber@gmail.com>
Jacksonville, FL USA - Thursday, February 5, 2009 6:27 PM CST

Dear Baylie the Beautiful,

Thanks so much for the bracelets - I have big plans for them!

I hope the weather warms up quickly tp help the headaches. You are such a trooper.

Love,

A.J.
A.J. Johnson <avisjohnson@vusd.net>
Fallbrook, CA San Diego - Thursday, February 5, 2009 9:50 AM CST

just stopped by to say hi!!!!
take care,jane
jane <janemartin02@comcast.net>
berwyn, il usa - Wednesday, February 4, 2009 7:34 PM CST

Greetings Baylie from snowy Alaska. Did you know for the month of January we received 75 inches of snow!!! Holy cow, that is a lot for us. Hope you had a good birthday. Valentines Day is right around the corner. Take care,
Debbie K.
Juneau, AK - Wednesday, February 4, 2009 10:49 AM CST

Happy, happy birthday Baylie! I think of you every day as I see your pretty bracelet on my car's dashboard. I am sending good thoughts and happy, healthy wishes your way for your birthday.
Jeanne Mooney <jeannemooney@aol.com>
Tinley Park, IL USA - Thursday, January 29, 2009 9:05 PM CST

Happy 10th Birthday Baylie!!! I was hoping to see you today at school to wish you a happy birthday personally but with the delay that didn't happen!! I hope the bracelet party goes well today and remember if you need any help while Mrs. Hollingworth is gone come see me. I am always happy to help you!!
Love,
Mrs. Jacobs
Lacey Jacobs <ljacobs@ccs.k12.in.us>
Carmel, IN USA - Thursday, January 29, 2009 1:53 PM CST

Happy Birthday Baylie!!
From Uncle Sean, Aunt Myriam and Lil Sean
Myriam Martin <sean.myriam@yahoo.com>
Cypress, TX - Thursday, January 29, 2009 12:49 AM CST

Greetings Baylie from snowy Alaska! Happy Birthday - wow, you are 10! It's very excited to now be in the double digits. Have a super day,
Debbie K
Juneau, AK - Thursday, January 29, 2009 10:11 AM CST

Dear Baylie,

Happy Birthday and many more!! I wish you love, laughter, blessings, healing, no headaches, and so much more!

Love, A.J. (Andi's aunt)
A.J. Johnson <avisjohnson@vusd.net>
Fallbrook, CA USA - Thursday, January 29, 2009 9:19 AM CST

Happy Birthday to you,
Happy Birthday to you!
Happy Birthday dear Baylie-eeeeee!

Happy Birthday to you!!

Love, Sammi www.caringbidg.org/mi/sammijean
Sammi Robertson <NeuroGirl716@hotmail.com>
Westland, Michigan United States - Thursday, January 29, 2009 9:04 AM CST

HAPPY HAPPY HAPPY 10th Birthday!!!!
Have a great day!!
jane
jane martin <janemartin02@comcast.net>
berwyn, Il usa - Wednesday, January 28, 2009 8:56 PM CST

Baylie dear, I understand this roller coaster ride that you have been riding for nearly 9 years, as I was diagnosed with a Chiari Malformation in 2006. I had a successful surgery on August 6th, 2007, when I was 11 years old and now today, I am fully healed, and I can do so much more. I am a star in softball, basketball, performing musicals on stage, cross country, and I feel confident all the time! My prayers are with you that you will feel better, and become more strong as the days go by.
I love you dear!
Allison
Illinois - Sunday, January 25, 2009 5:24 PM CST

Hello all, my name is Tiffany & I am almost 30 years old. I just stumbled upon this site checking on the risks for flying with a VP Shunt & Arnold Chiari. I want to go to Florida to visit my brother for a long weekend.
I was diagnosed with Psuedotumor Cerebri in 1999 where they put in a lumbar shunt. I told that Neurosurgeon it wasn't working after about 6 years & he said everything was fine, and he wanted me to see a Pshyciatrist. I saw one & they said I was perfectly normal other than being frustrated & giving the situation a little depressed.
I then went to my Neurologist (who is now retired) & she sent me to The Cleveland Clinic. There is where they found out the lumbar shunt wasn't working & I was actually losing most of my parifial vision, and thats when they also found out I have Arnold Chiari Malformation. They ended up closing off my lumbar shunt(but left it in me) & put in a programable Ventrical shunt. We are still trying to get the VP shunt regulated after 1 1/2 years & no luck so far. We started at the highest setting of 300 & now I am down to 90 & still have elevated pressure behind my eyes, as well as excruciating, debelitating headaaches, shooting pains in head, eye pains, & pretty much whole body pain, poor balance, ringing in my ears & weakness. I can barely get out of bed somedays.
I have no health insurance & it has been a strugle to find a family doctor to help control my pain so I can semi function on a daily bases & who will work out a payment plan for me so I can continue to work part time & help support my mom. A Pain Management doctor is out of the question considering their charges & how long it takes to get into them.
On September 11, 2008 my dad suffered a ruptured anurysm & 3 strokes. He can walk & talk ok with help but will never be able to come home. He has no short term memory & has to have constant supervision. He was our provider, & we were not prepared for any of this. It just goes to show you how short & precious life is.
I was also denied disability twice, their resoning was I am not disabled enough, even with all the reports from all my doctors & proof of all 20 surgeries I have had... 2 for Psuedo Tumor - 1 for Arnold Chiari - 1 for Crhons Disease -9 laproscopic surgeries for Endometriosis & Cycst on my ovaries, fallopian tubes & Uterus - 2 lumps in my left breast removed - appendectomy -tonsilectomy - hysterectomy, left nee surgery & finaly my gallbladder removed.
I feel so lost sometimes, especially when I cannot find a good doctor who beleieves me when I say how much pain I am in & how I know there is something wrong with my body. I have a good docotor in Cleveland who is my Neaurosurgeon & he adjustments my shunt for me, but driving 4 hrs one way not to see him but his nurse only for a 5 min office visit that cost $250.00 is getting expensive. I tried to get back into a doctor around where I live but they are all affiliated together & because I left my origianl Neurosurgeon, no one else will see me cause they don't want to step on his toes.
I feel like I'm at the end of my rope & if there is nayone out there who can help or offer some advice or would just like to talk plese feel free to contact me.
Sorry for the novel I wrote, but I needed to vent to somone who is going through this.
God Bless & take care. I will be praying for all of you.

Tiffany Northcutt <tiffers624@yahoo.com>
Union, OH USA - Sunday, January 25, 2009 6:06 AM CST

Hey Baylie! I hope your headaches are better and your feeling OK these days!

Love and Prayers, Sammi
www.caringbridge.org/mi/sammijean
Sammi Robertson <NeuroGirl716@hotmail.com>
Westland, Michigan United States - Friday, January 23, 2009 5:42 PM CST

Greetings Baylie from freezing Alaska! Just a quick wish to say I hope you have a good weekend. Sounds like you have an important birthday coming up. How exciting is that! Take care sweetheart,
Debbie K.
Juneau, AK - Friday, January 23, 2009 10:23 AM CST

hope all turns out ok
Kris <kjlprinter@gmail.com>
- Sunday, January 18, 2009 9:38 PM CST

I have ptc thanks for your support
Rochelle Ondesko <rockyrochelle95@yahoo.com>
Meadville, PA USA - Wednesday, January 14, 2009 2:19 PM CST

Hello, Baylie the Beautiful,

I hope you had a wonderful weekend and are feeling well.
Have a great week and keep doing what you're doing.

Love and Healing,

A.J.
A.J. Johnson <avisjohnson@vusd.net>
Fallbrook, CA - Monday, January 12, 2009 11:15 AM CST

Greetings Baylie from snowy Alaska! I'm glad to hear you were able to go back to school. Remember to take it easy and to listen to your body. Missing school once in a while is ok but I'm sure when you do, you miss your friends. We had over 12 inches of snow overnight! Can you imagine how many snow angels one could make? Have a super weekend,
Debbie K.
Juneau, AK - Friday, January 9, 2009 10:02 AM CST

Baylie, Hi, so sorry you had to go through another surgery, but glad that you are feeling better :-) We're thinking of you. (Tell mom, "Hi") Take care, Sherri & Kara

www.caringbridge.org/oh/kara

sherri <ketch16@yahoo.com>
ohio - Thursday, January 8, 2009 10:40 AM CST

Dear Baylie and family,

I loved reading the information about Obama's selection for Surgeon General. I enjoyed the picture of you two as well. I hope you had a wonderful time in Texas, but you are glad to be back with family and friends.

Love, AJ

Avis (A.J.) Johnson <ajfragrancelady@marykay.com>
Fallbrook, CA 92028 - Wednesday, January 7, 2009 8:29 PM CST

Hi! We just wanted to pop onto your site again to say hello and send well wishes your way.
I have to tell you, I just heard that President-elect Obama has asked Dr. Gupta, a neurosurgeon (seen on CNN too) to be Surgeon General.
This may be our prayers being answered. All I can think about is that photo of Baylie and then Senator Obama speaking!
Love,
The Gameron Family
www.caringbridge.org/nj/jessica
Michelle & Jessi Gameron <amgameron@comcast.net>
Atco, NJ - Tuesday, January 6, 2009 7:07 PM CST

Baylie,
I found your site while searching Comers site for my son. He was diagnosed with a rare syndrome that they don't have any answers to why, Moyamoya syndrome. His doctor is Dr. Frim too. The picture you have with Dr. Kahana is priceless. We love her too. She gave my son, Cash, his first taste of chocolate! I am very impressed with your accomplishments with the braclets, t-shirts, and magnantes. It has given me some ideas for helping Dr. Frim raise funds for moyamoya research. Can I borrow your ideas? My son also has a page here on caringbridge. You can visit it under cashharpp I will pray for your health and your determination. You are a very special girl. But you knew that, right? God bless you!
Sincerely,
Abbe Harpp
Abbe Harpp <abbelynne@sbcglobal.net>
Merrillville, IN USA - Monday, January 5, 2009 3:32 PM CST

Dear Baylie,

I Hope you had a great time in Texas and you are feeling better! Are you glad to be back at school? Please know how wonderful you and your family are!

Love,

AJ
A.J. Johnson <avisjohnson@vusd.net>
Fallbrook, CA 92028 - Monday, January 5, 2009 9:52 AM CST

:(
kokoa dean <mykalde@sbcglobal.net>
st. louis, mo usa - Sunday, January 4, 2009 6:41 PM CST

Happy New Year.
Ally Fleckenstein <ZacharyFleck@Yahoo.com>
Carmel, IN USA - Friday, January 2, 2009 2:40 PM CST

happy New Year!!
let`s hope 2009 is a good one for you.
take care,jane
jane <janemartin02@comcast.net>
berwyn, il usa - Thursday, January 1, 2009 8:09 PM CST

Baylie,
Sorry to hear you had another stay in the hospital, especially over Christmas. Hopefully 2009 will be your year!! I can't wait to see you on Monday!!!
Love,
Mrs. Jacobs
Lacey Jacobs <ljacobs@ccs.k12.in.us>
Frankfort, IN USA - Thursday, January 1, 2009 2:06 PM CST

Happy New Year Baylie! I dearly hope that 2009 is a much better year for you!

Love, Sammi www.caringbridge.org/mi/sammijean
Sammi Jean Robertson <NeuroGirl716@hotmail.com>
Westland, Michigan United States - Wednesday, December 31, 2008 8:50 PM CST

Happy New Year Baylie!!! I hope you have a great 2009!!!
Rachael
Carmel, IN USA - Wednesday, December 31, 2008 5:26 PM CST

Happy New Year from a very cold Alaska!
Debbie K.
Juneau, AK - Wednesday, December 31, 2008 10:24 AM CST

Glad you`re home.
take care,jane
jane <janemartin02@comcast.net>
berwyn, Il usa - Monday, December 29, 2008 9:32 PM CST

Hi Baylie,
I found your site from a post on Riley's CB, and as I read your journal, I see that you are also from Indiana!! I have two children, my 9 y.o. son Keegan had his decompression in June of this year, and my 11 y.o. daughter Kaylee had hers also on Dec. 8th.

I'm really sorry you had to be in the hospital on Christmas, but I'm glad you are home now. I know how rotten those incision infections can make you feel, Keegan's got infected too. I'll be praying for a smooth recovery for you from here forward :)
Lori
www.caringbridge.org/visit/keegantutrow
www.caringbridge.org/visit/kayleetutrow

Lori Tutrow <lttutrow@prodigy.net>
Greenfield, IN - Monday, December 29, 2008 4:29 PM CST

Hi baylie we all wished that you were going to be at the school chirstmas party on the 19th,but that okay!I can not wait to see you on the 5th of January! I also hope you had a great chirstmas!
Love,Emily Fleck.
Emily Fleckenstein
Carmel, !N USA - Monday, December 29, 2008 3:14 PM CST

Dear Baylie, I am so happy you are out of the hospital. I hope you are feeling better and have a great new year.
Rachael
Carmel, IN USA - Monday, December 29, 2008 1:01 PM CST

Baylie,
We are so so so so HAPPY that you are home! It sounds like you had a nice Christmas even though you were in the hospital. YEA!!! We hope 2009 is a great year for you!!

Love~ The Wagenbach family ~Jon, Rebekah, Nichole, Whitney, Jordan, & Ryan =)
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Monday, December 29, 2008 12:10 AM CST

Hello Baylie and family! I hope you had a very Merry Christmas, I know the circumstances were not the best but we all carry Christmas in our hearts! 2009 will bring better days, I am sure of it! Matthew and I are waiting to hear back from his school about a fundraiser for Baylie for Brains and Matthew is really excited about helping out. God Bless you all!
Angie Bowers <angietheaggie@hotmail.com>
Hedgesville, WV USA - Sunday, December 28, 2008 7:44 PM CST

I'm sorry you had to be in the hospital at Christmas, but I'm glad to hear you were surrounded by family that dearly loves you. That counts the most! Hoping for pain-free days in the future for you, Baylie!

Supporting you,
Cheryl
www.caringbridge.com/visit/annalinnea
Cheryl Sundman
- Sunday, December 28, 2008 6:42 PM CST

Dear Baylie,

I hope you're on your way to Texas as I write!! You are in our thoughts and prayers here in Southern California and we support your fund raising efforts!! Have a great time in that huge state!!

Love, A.J. and supporters from Vista High School

Avis Johnson <ajfragrancelady@marykay.com>
Fallbrook , CA USA - Saturday, December 27, 2008 3:51 PM CST

Dear Baylie,

I hope Santa was great to you & you had a Merry Christmas with your family. I will be praying that you'll be home with your family if you're not already & you'll raise enough money to help find a cure. You're definitely a little girl that has inspired so many. Keep up the GREAT work!

Lots of love to you little one!
Jackie :)
Jackie McMahel <jmcmahel@earthlink.net>
Ocoee, FL 34761 - Friday, December 26, 2008 9:23 PM CST

Dear Baylie,

I hope and pray that you are ready to leave the hospital and join your father and sisters for the Texas trip! Thank you for brightening my life and helping so many others. You are a wonderful gift to all of us!

Love,

A.J. (Andi's aunt)
Avis Johnson <ajfragrancelady@marykay.com>
Fallbrook, CA 92028 - Friday, December 26, 2008 4:34 PM CST

Baylie, I am hoping you are doing better and will be out of the hospital soon. Chicago was covered in ice this morning and luckily the shuttle bus was running to take me to Comer's. THe only way to get down the driveway at RMH was to slowly slide down the drive while hanging onto the fence posts. I am sure I looked really funny. My daughter Emily is in the hospital too, so I understand you being sad at Christmas. It was wonderful that you could be with your sisters. Please tell your mom hi for me and hope you are home soon.
JulieW <jkw1960@comcast.net>
- Friday, December 26, 2008 3:18 PM CST

Merry Christmas Baylie....
I know it's a bummer being in the hospital for Christmas.
But, at least you got to spend it with your sisters just like I did. Hope Santa was good to you!! Things were boring here at Comer anyhow!
Hugs to you,
Amanda
www.caringbridge.org/visit/amandapeters
Amanda
Chicago, IL - Thursday, December 25, 2008 9:26 PM CST

Hi Baylie,
I'm so sorry you're spending Christmas in the hospital. I hope you get back to feeling improved really fast!
Jeanne Swack <jswack@wisc.edu>
Madison, WI 53711 - Thursday, December 25, 2008 8:37 PM CST

Dear Baylie..I am so sorry to hear you are spending Christmas in the hospital. But I know you probably cheered up another child there with your wonderful personality! We hope you get home by New Years...but remember..you have such a wonderful family and friends and can share all your love with other kids who need it too.Love, Jill Zarin
jill zarin <jillzarin@aol.com>
New York City, NY - Thursday, December 25, 2008 8:27 PM CST

Dear Baylie,

I am so sorry that you're in the hospital and I'm so sad for you and your family. Please know you're in my thoughts and prayers. I know you must be terribly disappointed and I understand why. Hang in there, beautiful; there are happier times ahead which you so richly deserve!
You will feel better and better as time moves on!! You are so loved and cherished and we are supporting you.

Love,

A.J.
A.J. Johnson <ajfragrancelady@marykay.com>
Fallbrook, CA 92028 - Thursday, December 25, 2008 6:42 PM CST

I'm so sorry you are in the hospital for Christmas, that really stinks. But I hope you have a very very Merry Christmas and I hope this upcoming year is lots better for you!

Merry Christmas! Sammi www.caringbridge.org/mi/sammijean
Sammi Jean Robertson <neurogirl716@hotmail.com>
Westland, MI USA - Thursday, December 25, 2008 9:09 AM CST

sorry to hear you`re in the hospital at christmas time.
feel better.
love jane
jane <janemartin02@comcast.net>
berwyn, Il usa - Wednesday, December 24, 2008 9:18 PM CST

Baylie and Tressie, I am so sorry that you are back in the hospital, and not even the RIGHT hospital at Christmas. This just shouldn't be. We aren't with you physically, but we (and I'm sure all of your Comer and RMH family) are with you in spirit. Lots of love and big hugs to you.
Kat and Rhonda
- Wednesday, December 24, 2008 6:20 PM CST

Oh Baylie you poor thing! I'm sorry to hear that you're back in hospital, and at xmas too :( I hope your infection clears up very soon and you can have a better New Year at home with your family
Thinking of you!
Lydia xx

,

Lydia Blackmore <lydiablackmore@blueyonder.co.uk>
- Wednesday, December 24, 2008 12:13 AM CST

Greetings Baylie from snowy Alaska. I was sorry to read that you are back in the hospital. Do know you are in good care and the doctors will get you better soon so you can go home. I know it's not the same as traveling with your family but do know there are a lot of folks who care about you and your friends. Merry Christmas sweetheart,
Debbie K.
Juneau, AK - Wednesday, December 24, 2008 10:53 AM CST

Dear Baylie, I hope you are doing well. I hope you feel better real soon. I'm thinking about you and praying for you. I hope you come home soon. Love, Rachael
Rachael
Carmel, IN USA - Wednesday, December 24, 2008 10:52 AM CST

Hi Baylie! This is Lindsay. How are you feeling? I am feeling pretty bad. My head hurts a lot. I hope that you have a great Christmas and it was fun spending time with your at the hospital.

XOXOXO
Lindsay
www.caringbridge.org/visit/gabehartman

p.s. Hi Baylie! I typed this for Lindsay. Many hugs!
Michelle
Michelle <twinsmommy@mchsi.com>
DeMotte, IN - Tuesday, December 23, 2008 11:01 PM CST

just want to wish you all a Merry christmas!!
Glad you are feeling good Baylie.
take care,jane
jane martin <janemartin02@comcast.net>
berwyn, Il usa - Tuesday, December 23, 2008 9:49 PM CST

Greetings Baylie from snowy Alaska. I hope you and your family have a merry Christmas!
Debbie K.
Juneau, AK - Tuesday, December 23, 2008 10:36 AM CST

Baylie,
I am so glad that you are home!! I'm sorry that I missed you when you came to school the other day, Nurse Gwen filled me in on your surprise visit. I'm happy that you can spend Christmas at home with your family. I can't wait to see you on January 5th!!
Happy Holiday!!
Love,
Mrs. Jacobs
Lacey Jacobs <ljacobs@ccs.k12.in.us>
Carmel, IN USA - Monday, December 22, 2008 5:02 PM CST

Greetings Baylie from cold and windy Alaska! I am so happy that you get to have Christmas at home with your family. You are such a amazing young lady. Meeting football players sounds so exciting - so are they really as big as they look on tv? Happy holidays,
Debbie K.
Juneau, Ak - Monday, December 22, 2008 11:03 AM CST

Hey Baylie

I am so happy that you will be spending Christmas at home!! I need your mom to email me your address, the girls at the studio got your family a gift for Christmas and I want to send it to you all!!! Love to everyone, Andi
Andi <danenberga@hotmail.com>
Houston, Tx USA - Sunday, December 21, 2008 8:54 PM CST

glad your home!
alaina
Carmel, IN United States - Sunday, December 21, 2008 8:32 AM CST

Hi Baylie,

I am so glad that you are home; I've been checking your site every day. I can't stop thinking about you and your mom because you are a true inspiration.

I'm A.J. and my niece is Andi Haddox who teaches dance at Stacey's Dance Studio in Kingwood. Andi's told me so much about you and she loves you so much!! I can see why!

I will do everything I can to help you reach 100 million dollars for Chiari research. Baylie and Tressie, you are my heroes.

Love,

A.J.
A.J. Johnson <ajfragrancelady@marykay.com>
Fallbrook, CA 92028 - Saturday, December 20, 2008 6:48 PM CST

Great Website &Guestbook.
Babu/
Take back your life -http://tinyurl.com/5rj6gm
babu <greattips2003@yahoo.co.in>
india, tn india - Saturday, December 20, 2008 3:00 AM CST

So happy you're home! I hope you are feeling better!

Love, Sammi www.caringbridge.org/mi/sammijean
Sammi Jean Robertson <neurogirl716@hotmail.com>
Westland, MI USA - Friday, December 19, 2008 7:33 PM CST

Glad you are home.Feel better.
jane
jane <janemartin02@comcast.net>
berwyn, Il usa - Friday, December 19, 2008 6:08 PM CST

Hi Baylie! It was good to meet you! I liked your jersey and your question. Hopefully my answer can help you cheer for both teams (more for us though)! Keep fighting and helping others along the way! You're doing an amazing job......GO BEARS!!
Brian Urlacher
Chicago, IL US - Thursday, December 18, 2008 4:31 PM CST

HEY BAYLIE!!,
MERRY ALMOST CHRISTMAS! YOU ARE SUCH A BRAVE GIRL!! I HOPE YOU START TO FEEL BETTER, I ALSO HOPE THAT I GET TO SEE YOU SOON!

LOVE HALEY!! A KINGWOOD STRUTTER
TX - Wednesday, December 17, 2008 5:36 PM CST

hi bailey. everyone is missing you. i want to see how you're doing. i really really reaally think you are the bravest girl in the world.:-)
LOL,Alaina

Alaina
Carmel, IN United States - Wednesday, December 17, 2008 4:59 PM CST

glitter-graphics.com
karen
- Wednesday, December 17, 2008 3:19 PM CST

glitter-graphics.com
Karen
- Wednesday, December 17, 2008 3:10 PM CST

glitter-graphics.com
Karen
- Wednesday, December 17, 2008 3:07 PM CST

Hi! I miss you on the bus and at school. I hope you feel better soon! Love, Megan
Megan Cline <stephanie.cline@gmail.com>
Carmel , IN United States - Wednesday, December 17, 2008 2:19 PM CST

Hey Baylie,
Thank you for the Gingerbread House and all of the yummy candy you and your mom gave me. I am glad that you came and hung out in my room and thanks for asking your friends to pray for me!! Hope to see you again soon!
Love,
Amanda
www.caringbridge.org/visit/amandapeters

Amanda
Chicago, IL USA - Tuesday, December 16, 2008 8:18 PM CST

hey baylie! doing o.k? i've heard you've been having a couple rough and tough days. i am sure the visit cheered you up. i am always so so excited and happy to see that you've been doing better!:-)

Alaina
Carmel, IN United States - Tuesday, December 16, 2008 8:02 PM CST

Hi Baylie! I wanted to let you know that I miss seeing your smiling face at school. :)
I am praying that you feel better soon. Love, Mrs. Bradley
Moira Bradley <mbradley@ccs.k12.in.us>
Indianapolis, IN USA - Tuesday, December 16, 2008 5:08 PM CST

Baylie, We just wanted to let you know that we are thinking about you! Devynn O'Donnell's family.
Natalie O'Donnell <ndonnell@sbcglobal.net>
Carmel, IN - Tuesday, December 16, 2008 4:35 PM CST

Hang in there Bailey-- We hope you are feeling better today. We are trapped in the ICU- but if you are up to it meet us in the playroom after bingo- Emily is a little tired and wants to play in bed-
Karen and Emily
Karen Cullen <kacull@ameritech.net>
- Tuesday, December 16, 2008 12:55 AM CST

Greetings Baylie from snowy Alaska! Man I sure wish there was something I could do to help you and your friends feel better!! You are such a sweetheart and I know you touch the lives of many people. I'm glad you got to work on a ginerbread house. We did that this weekend - my collapsed :>) I think I had too much candy and do dads! Take care honey and rest knowing there are people praying for you,
Debbie K.
Juneau, AK - Tuesday, December 16, 2008 9:50 AM CST

hope you feel better
olivia and skye <tukie2005@aol.com>
carmel, IN USA - Tuesday, December 16, 2008 9:02 AM CST

Hey Baylie,
Hang in there sweetie! We are all praying that you will feel better soon!!!
Love ~ The Wagenbach's =)
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Monday, December 15, 2008 10:37 PM CST

Hey Little Girl...You are continually in our thoughts and prayers. I love that your mom keeps us updated through your journal. We want nothing more than for you to feel better. If there is anything we can do, please let us know!

Love, Andi and family
Andi Haddox <danenberga@hotmail.com>
Houston, TX USA - Monday, December 15, 2008 5:47 PM CST

Baylie sorry to hear that you are struggiling right now. I will pray for comfort and that Dr. Frimm will have some answers for you. My friend, Conor, who is also in the PICU is having a difficult time. I will pray for all of the Caring Bridge families.
Tina L. Landis <CLandis941@aol.com>
Evergreen Park, IL USA - Monday, December 15, 2008 5:09 PM CST

HEY BAYLIE! I'M GLAD TO HERE SOME FRIENDS CAME TO VISIT YOU TO GET THE SPIRITS UP. I HAVE A FEELING THERE IS PLENTY MORE WERE THAT CAME FROM. :-)
LOL,Alaina
Alaina
Carmel, IN United States - Monday, December 15, 2008 5:08 PM CST

Hello Bailey! My name is Hannah and I am 7 1/2 years old. I live in Ohio and think you are amazing!!! My mommy has Pseudotumor Ceribri and we think you are a true insperation!! I hope you feel better soon! Lotsa love from the Buckeye state:)
Hannah Lanning and mommy <laciehasaredcar@yahoo.com>
New Lexington, ohio USA - Monday, December 15, 2008 5:01 PM CST

Baylie,
I hope today brought you less pain than yesterday, and each day gets better. It's hard to be patient isn't it????? Your Smoky Row friends all miss you and are praying for you to be home soon. Take it easy and see you soon,
Mrs. Grubbs
Mrs. Anne Grubbs <agrubbs@ccs.k12.in.us>
Carmel , IN USA - Monday, December 15, 2008 3:02 PM CST

HI Baylie! Just checking in to see how you are doing. Wish I could give you a hug to make things better. I know you will start improving everyday because you are so determined! (That's just another name for stubborn!!) Have a good evening!
Fondly,
Mrs. H :-)
Carol Hollingsworth <cholling@ccs.k12.in.us>
Carmel, IN US - Monday, December 15, 2008 2:16 PM CST

Hi Baylie, Hope you feel better very soon! I'm sending you some sunshine and smiles to cheer you!...sunshine....sunshine...sunshine! :-):-):-) !!!!
Each day will get better and before you know it you will be back with all of us!
Glad to hear that Meredith and Cidney were able to be with you!
Love and prayers,
Nurse Gwen
Mrs. Gwen Knipstein <gknipste@ccs.k12.in.us>
Carmel, IN USA - Monday, December 15, 2008 2:12 PM CST

We hope that today is a better day for everyone. Please know that you are always in our thoughts and prayers!

Love,
The Gameron Family
www.caringbridge.org/nj/jessica
Michelle Gameron <amgameron@comcast.net>
Atco, NJ - Monday, December 15, 2008 11:42 AM CST

I hope you feel better soon
Brandon <cholling @ccs. k12.US.kids.com>
IN - Monday, December 15, 2008 11:36 AM CST

Yo baylie,
Are you feeling alright? Everyone in the fourth grade is e-mailing you, boy you have millions of friends!!! Your missing all the tests when we have to do them. I hope to see you come back to school before winter break!

your friends,
SHIVA and SITHA
Shiva <cholling@ccs.k12.in.us>
Carmel, IN US - Monday, December 15, 2008 11:36 AM CST

hope you get better.
Natalie <NatNat903@hotmail.com>
- Monday, December 15, 2008 11:32 AM CST

Hi Baylie,
It's Rachel.I hope you get better soon! I can't wait for you to get back to school!
Bye!
Rachel Kasper
carmel, IN USA - Monday, December 15, 2008 11:26 AM CST

Hi Baylie i really really miss you come back very soon.
Samantha Frye
Carmel, IN USA - Monday, December 15, 2008 11:26 AM CST

baylie

hi. I hope U feel better. I hope youget good gifts for christmass
audrey arceneaux < cholling@ccs.k12.in.us>
carmal, in U S A - Monday, December 15, 2008 11:25 AM CST

hi baylie! i have been thinking about you. we all need you back! it just dosen't feel the same without you.
please come home,Alaina
Alaina
Carmel, IN USA - Monday, December 15, 2008 11:25 AM CST

Hpe you feel a lot better!!!
Hannah Champine
Carmel, IN USA - Monday, December 15, 2008 11:25 AM CST

hop you fell ok.I will see u at school.ANDREW

ANDREW CANNON
CARMEL, IN USA - Monday, December 15, 2008 11:25 AM CST

I hope yyou feel better.
chad sauder <Football500@sbcglobal.net>
carmel, IN USA - Monday, December 15, 2008 11:25 AM CST

Hey Baylie,
sorry you had a bad weekend and are still felling bad.I hope you fell better sonn!!!!!!!!At least you don't have homework!
Tommy
Tommy Dietmeyer <Tommypd@indy.rr.com>
carmel, IN USA - Monday, December 15, 2008 11:24 AM CST

I hope you feel better!
Kevin <cholling@ccs.k12.in.us>
Carmel, IN USA - Monday, December 15, 2008 11:24 AM CST

I hope you get well soon. We miss you.
Sara Dill <cholling@ccs.klz.in.us>
Carmel, IN U.S.A - Monday, December 15, 2008 11:24 AM CST

I hope you come back soon..............and hope you feel better also
Drew shumate <shudog76@sbcglobal.net>
carmel, In. usa - Monday, December 15, 2008 11:23 AM CST

Hi baylie I hope you are doing well!!!!
Olivia Crump <cholling@ccs.k12.in.us>
Carmel, I N USA - Monday, December 15, 2008 11:22 AM CST

hope you come back to school soon we miss you
olivia suggs <tukie2005@aol.com>
carmel, IN USA - Monday, December 15, 2008 11:22 AM CST

Hope you feel lots better!!!
Hannah Champine
Carmel, IN USA - Monday, December 15, 2008 11:19 AM CST

i hope u feel better.
Tony <Safraneks@aol.com>
Carmel, IN USA - Monday, December 15, 2008 11:19 AM CST

i hope u feel better.
Tony <Safraneks@aol.com>
Carmel, IN USA - Monday, December 15, 2008 11:18 AM CST

Hi Baylie. I hope things are better today and that you soon start feeling better and better. I know your brain is going to be so much happier with all of its new room and you will be doing so much better when you get home. We love you!
Kat and Rhonda
- Monday, December 15, 2008 10:12 AM CST

Greetings Baylie from freezing cold Alaska! I am so sorry to hear that you are having such a rough time. Please hang in there. You are a amazing young lady and have been through so much - we thing and pray for you daily. Take care and don't rush at trying to be up and running. I can only imagine how hard it must be but you are lucky your mom is with you. Take care sweetheart,
Debbie K.
Juneau, AK - Monday, December 15, 2008 10:06 AM CST

Hang in there Baylie!!! Hopefully everyday will bring you less pain!! I will be looking for your sweet, smiling face when we return to school after winter break!!! Take care of yourself.
Love, Mrs. Jacobs
Lacey Jacobs <ljacobs@ccs.k12.in.us>
Carmel, IN USA - Monday, December 15, 2008 7:01 AM CST

Dear Baylie,

Hi, beautiful! I am A.J. Johnson, and my niece is Andi Haddox. She's told me so much about you!! You are a very strong, special, and inspirational young lady.

Tonight I pray for your healing and happiness. I'm so sorry that you are in such horrible pain and I can't even imagine what it must be like.

I know you want to go home to be with your friends and family and I know that will happen.

Please have your wonderful mom tell either me or Andi about your favorite things - for example, your favorite colors, foods, music, clothes, places to visit, etc.

Baylie, the lives you have touched are many. Here I am all the way in Southern California and I can feel all the wonderful things you have done. You have blessed so many lives with your courage and service.

Hang in there, sweet one. Just know how many people love you for the many gifts you've given us.

Love,

Aunt AJ

Avis (A.J.) Johnson <ajfragrancelady@marykay.com>
Fallbrook, CA USA - Monday, December 15, 2008 0:00 AM CST

so sorry you are having such a difficult time.
i`m praying for you.
jane
janemartin <janemartin02@comcast.net>
berwyn, Il usa - Sunday, December 14, 2008 10:45 PM CST

Baylie,
Just wanted to let you know that I am sending a huge box of beads and some very special bracelets to you in the morning.

You are such a brave person - hang in there. Better days are ahead!

You are in my prayers,
Briar
Briar Picchietti <briarp915@yahoo.com>
Glen Ellyn, IL USA - Sunday, December 14, 2008 7:26 PM CST

hang in there girl! My thoughts and prayers are with you!
rose leso
watsonville, ca usa - Sunday, December 14, 2008 6:54 PM CST

Thinking of you always. You are such a brave little girl...hoping you are feeling better today. We will visit again soon to see how you are doing!

Lots of hugs,
Mylee & Sara Eaton
http://myleegrace2006.blogspot.com/

http://www.caringbridge.org/visit/mylee

Mylee <eatonfam1@msn.com>
- Sunday, December 14, 2008 2:12 PM CST

Praying for you always Baylie! You are such a brave little girl....brave like our warrior princess! We will visit again soon to see how you are feeling!

Lots of hugs,
Mylee & Sara Eaton
http://myleegrace2006.blogspot.com/

http://www.caringbridge.org/visit/mylee
Mylee <eatonfam1@msn.com>
- Sunday, December 14, 2008 2:06 PM CST

Hi Baylie
I just wanted to stop by and let you know i have been thinking about you. I hope you are feeling better today. Lydia
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore
- Sunday, December 14, 2008 1:14 PM CST

Baylie,
We just wanted you to know that we are thinking of you and praying for you to feel better.
Love the Smith family-Lori Chris, Kayla Nicholas, & Emily
Lori, Chris, Kayla, Nicholas and Emily Smith <lori@miraclekayla.com>
- Sunday, December 14, 2008 8:59 AM CST

Baylie, I hope today is a much better day for you.

JulieW <jkw1960@comcast.net>
- Sunday, December 14, 2008 7:54 AM CST

Baylie,
We have been thinking about you all week and saying prayers for you. Little Anderson sends you a HUGE hug and kisses from California. It was such a pleasure to meet you in March, and wish we were there in person to hug you. We will continue our prayers and look for your Mom's updates!
Hugs,
Liz, Charlie, Anderson Mescher...and the rest of our family
Liz Mescher <clmescher@osocal.rr.com>
Orange, CA - Saturday, December 13, 2008 5:04 PM CST

Baylie, I am so sorry to hear that you have so much pain. I was at the hospital on Wednesday with another Caring Bridge family, Conor Morrissey. Conor had grids placed for epilepsy resection surgery. He is in the PICU and will be there for another 7-10- days. He is in alot of pain also and he just got his PCA pump. I am hoping to get to visit him on Sunday. I know that Emily is not feeling well either. I am praying that things improve for all of the Caring Bridge families.
Tina L Landis <CLandis941@aol.com>
Evergreen Park, IL USA - Saturday, December 13, 2008 2:54 PM CST

i am so sorry baylie! i really hope you feel better. try watching TV to get your mind off of your pain. please feel better because i'm so worried about you.
best wishes,Alaina

Alaina
Carmel, IN United States - Saturday, December 13, 2008 12:35 AM CST

its me again devynn i really hope you are ok right now Avery sreaming and yelling at my brother! i mean she is 2 my brother 7. :) :) :) :):):):):):):):):):):):):):):):):):):):):):):):):): :)
devynn Odonnell
carmel, in usa - Saturday, December 13, 2008 12:35 AM CST

hi baylie i feel so bad for you i heard you have'nt been feeling good . i hope you'll be better soon
Devynn
carmel, in usa - Saturday, December 13, 2008 12:26 AM CST

Hi Baylie! I've been reading your CB for a couple of weeks now but just haven't signed. I know, I know. But now I am! I know you're in Chicago and I'm sending you love from just the other side of the city! I'm less than 10 miles from you, so the love will be there so soon! Hoping you get home for Christmas!

Love,

Caitlin Kirkpatrick (cb.com/mi/sammijean's sister!)
Caitlin Kirkpatrick <ctm.kirkpatrick@gmail.com>
Chicago, IL - Friday, December 12, 2008 8:03 PM CST

b is for brave
a is for awesome
y is for you rock
l is for loved
i is for intelligent
e is for extraordinary
Alaina
Carmel, IN United States - Friday, December 12, 2008 5:25 PM CST

Hi Baylie! Happy Friday! I hope today was a good day for you! We all miss you at Smoky Row and I'm praying for quick healing and less pain every day! Before you know it you will be back with all of us! Keep your sweet smile! You are an amazing young lady! Love you! :-)Nurse Gwen
Mrs. Gwen Knipstein <gknipste@ccs.k12.in.us>
Carmel, IN USA - Friday, December 12, 2008 4:37 PM CST

You are such a brave and strong little girl, Baylie! I read about you in a magazine a few years ago, and have been helping you sell your bracelets ever since. I hope you are feeling well. Just a little note to let you know how incredibly special you are. Hope you and your family have a very Merry Christmas! Big hugs, Angie
Angela Rutledge <blondebomb@sbcglobal.net>
Lawton, OK USA - Friday, December 12, 2008 4:01 PM CST

Baylie, Sorry to hear you had to have surgery, but glad that you are doing a little better and are able to go to the playroom when you feel up to it. We will be at the Ronald McDonald house starting Dec 21, but I bet you will be home by then.
JulieW <jkw1960@comcast.net>
- Friday, December 12, 2008 2:33 PM CST

Hi Baylie!
Hope you are feeling better and better every day. It will be so much fun to see you again. I need you to help me with our little math group----you know, the multiples of 8! See you soon.
Mrs. Roberts <mroberts@ccs.k12.in.us>
Carmel Carmel , IN - Friday, December 12, 2008 12:29 AM CST

Hi Baylie!

I hope you are doing better. Thank you for showing all of us the courage and strength we need on a daily basis. We all miss you here at SRE! Get better soon!
Mr. Benell
- Friday, December 12, 2008 12:25 AM CST

Greetings Baylie from frosty Alaska. Sorry to hear that you've had a rough day. Just take care and rest up. Don't feel pressured to do anything and enjoy the time together with your family. Sounds like the staff at your hospital are awesome and you've had some great visitors. You are so special Baylie, take care
Debbie K.
Juneau, AK - Friday, December 12, 2008 10:45 AM CST

Whasup Baylie,
I hope you are having a awesome time watching TV, playing all th time it's just not fair. Fortunatly it's Friday like the restaurant Thank God it's Friday. Well come back soon. When will I see you again?
Sincerely,
Shiva and Shiva
Shiva <cholling@ccs.k12.in.us>
Carmel, IN US - Friday, December 12, 2008 8:37 AM CST

Hi Bayle remember me Wil Roberts? I'm happy to hear that you are getting better. I will tell the teachers to NOT give you homework that you missed. I miss you. and for christmas, I hope one of your presents is:you getting better. bye! hope you get well soon!
Wil Roberts <cholling@ccs.k12.in.us>
indianapolis, IN U.S - Friday, December 12, 2008 8:34 AM CST

Dear Baylie,
Hope you feel better soon! But you are soooooooo lucky, you don't have to take all of these tests!
Sincerly,
Rachel Kasper
Rachel Kasper
Carmel, IN USA - Friday, December 12, 2008 8:34 AM CST

Hi Baylie,
This is Olivia Crump I hope you are doing well and I hope you are not in pain but if you are then just dont think about the pain you probley allready know that but I hope you still do. I hope you have a wonderful day and feel happy all the time!!!!!!! Your Freind,
Olivia Crump!!!
Olivia Crump <cholling@ccs.k12.in.us>
Carmel, I N USA - Friday, December 12, 2008 8:34 AM CST

Hi baylie I hope you get well soon.Your luky you do not have to take any test.
Sara Dill <cholling@ccs.k12.in.us>
Carmel, IN U.S.A - Friday, December 12, 2008 8:33 AM CST

Baylie
hi! I hope U feel better! Merrychristmas

Audrey Arceneaux
Audrey Arceneaux
carmal, IN usa - Friday, December 12, 2008 8:32 AM CST

Good Morning Baylie and Tressie! I got my winter t-shirt yesterday in the mail along with the auto ribbon and Matthew's t-shirt. He is gonna wear it to school today and I am wearing mine as well! I hope you are feeling better!
Angie (mom of Matthew-Chiari I) <angietheaggie@hotmail.com>
Hedgesville, WV USA - Friday, December 12, 2008 7:06 AM CST

Sending you some warm hugs and thoughts, hoping you have better days.
I know that when you feel up to it, Dr.Frim will be proud of you for walking.

www.caringbridge.org/visit/stefbarber
Stef
Victoria, BC Canada - Friday, December 12, 2008 1:03 AM CST

Oh Baylie, no one could ever be disappointed with you! You are going at your own pace and no one could expect any better! You are one of the bravest and toughest girls I know of, and look at what you've done for people with Chiari already!

Love and Prayers, Sammi www.caringbridge.org/mi/sammijean
Sammi Jean Robertson <NeuroGirl716@hotmail.com>
Westland, Michigan United States - Thursday, December 11, 2008 9:58 PM CST

Hi Baylie we miss you. Hope you feel beter soon.
Alexandra Lawburg
Carmel, IN USA - Thursday, December 11, 2008 10:38 AM CST

Hi Baylie i'm sorry you had surgery. Are you feeling much better? Baylie we are having alot of fun at banana splits. Come back soon I really miss you:)
Samantha Frye
Carmel, IN USA - Thursday, December 11, 2008 10:33 AM CST

Hey Baylie!
I just wanted to stop by and tell you that I hope you feel better real soon! I wish I was just half as strong as you are!
Jamie McClaskey <jdmcclaskey@yahoo.com>
Darlington, IN USA - Thursday, December 11, 2008 10:32 AM CST

I hope you are felling better! I realy miss you! for a confess. Well does it hurt I hope you fell better soon!by
Ryan Warner
Carmel, IN USA - Thursday, December 11, 2008 10:29 AM CST

Baylie,
Today's Banana Splits is all about you! We are making you cards (check your mail :)) and writing to you. You aren't missing a thing! We miss you here, but know we will see you soon. My good news is that you seem to be doing great!
Mrs. Elliott <eelliott@ccs.k12.in.us>
Carmel, IN USA - Thursday, December 11, 2008 10:22 AM CST

Baylie! We miss you. I am so glad to hear you are feeling better and doing fun things! I can't wait to see you soon. Hang in there :)
Love, Mrs. Elliott
Elizabeth Elliott <eelliott@ccs.k12.in.us>
Carmel, IN USA - Thursday, December 11, 2008 9:31 AM CST

yoy bayie its me devo were in school right now here rachel is going to say hi.bye. its not okay to hit. bye bye baylie
devynn odonnell
carmel, in usa - Thursday, December 11, 2008 8:27 AM CST

hi baylie its mackay i hope you feel better after surgey[?] well i hope i can see you soon
mackay brown
carmel, in U.S.A - Thursday, December 11, 2008 8:26 AM CST

We are so glad your surgery went well! You are an amazing girl. Take some time off to enjoy the holidays, before you get back to work. Tell your Grandma to leave her Christmas lights on until 9:30. We voted for her as a finalist last year, but her lights went out too early on the big judging night. Many people think they saw snow yesterday in JV. I think it was sleet, but everyone enjoyed it falling through the sky. The girls came home with snowballs last night. They had scraped the snow off of the cars to make them.

Merry Christmas!
Paluch Girls
- Thursday, December 11, 2008 6:57 AM CST

Good Morning, Baylie! Just wanted you to know that while you are in Illinois, we in Indiana are celebrating Indiana's birthday! It is officially 192 years old today. We are thinking of you each day and hoping that your pain lessens each day as well. Glad to hear that Santa stopped by to see all of you, too!
Love,
Mrs. H :-)
Carol Hollingsworth <cholling@ccs.k12.in.us>
Carmel, IN US - Thursday, December 11, 2008 6:44 AM CST

Glad the surgery is behind you.
Hope you start feeling better.
take care,jane
jane martin <janemartin02@comcast.net>
berwyn, IL usa - Wednesday, December 10, 2008 11:41 PM CST

Hello Miss Baylie!

I'm glad this surgery is behind you now and that you are on the road to healing! I'm glad you have so many people that love you! Sending you lots of love and hugs from snowy Minnesota.

Cheryl
www.caringbridge.com/visit/annalinnea
Cheryl
- Wednesday, December 10, 2008 8:12 PM CST

Hi Baylie. I'm glad you're awake some of the time now and got to enjoy the Tuesday highlight: Hospital Bingo! I hope you're feeling better and up to going to the playroom very soon. We love you!
Qat and Rhonda

Rhonda Herring <rehcorni@gmail.com>
- Wednesday, December 10, 2008 7:52 PM CST

hey balyie its me devynn i am just hagging out having a relaxing time! i hope when your better you can come over! i realy hope you raise 1 million dollars it will be so ...............................so......................so...........................{drum roll please} aswome,cool,great,aswome,cool.................................ASWOME. i hope so much that you are going to be allrigt love Devynn
devynn Odonnell
carmel, in usa - Wednesday, December 10, 2008 7:05 PM CST

I'M SORRY TO HERE THAT YOU HAVE NOT BEEN FEELING WELL.I REALY WISH YOU COME HOME! KEEP ON SMILING. LOVE,ALAINA

ALAINA
CARMEL, IN United States - Wednesday, December 10, 2008 2:23 PM CST

Hi Baylie, I hope you are feeling better after your surgery. You don't know me but I check up on you via your website every now and then. My son Matthew (age 6) has chiari. He was decompressed 3 years ago and has been doing well since then. I count my blessings every day that he feels good. Me and my family appreciate all you do to raise money and awareness for chiari. You are a champion and your strength helps all of us effected by chiari. Hope you recover quickly in time for all the holiday fun.
Andrea Stephens
Lynnfield, MA usa - Wednesday, December 10, 2008 2:14 PM CST

Hi Bailey! This is the Smith family. (We met you at the Ronald McDonald House this weekend.) Hang in there and feel better soon. ((((HUGS))))

http://caringbridge.org/visit/nicsmith

Smith Family <tnajk@cox.net>
Guthrie, OK USA - Wednesday, December 10, 2008 2:12 PM CST

Hey Guys-
Hang in there Bailey! We have a Christmas Blanket for you! If it looks like you will be gone before we get there Monday we will mail it to you. Tressie if you need anything call me- I enjoyed talking to you the other day-
Karen and Emily
Karen Cullen <kacull@ameritech.net>
WFB , WI - Wednesday, December 10, 2008 10:21 AM CST

Greetings Baylie from snowy Alaska! I am glad your surgery is over and now you can begin to heal. I'm sure they are taking good care of you at the hospital - children are like little angels no matter where they are. We had almost 12 inches of snow over night. Do you get snow where you all live? I pray you are up and feeling good soon. Remember, Santa can hardly wait to bring you something special. Take care sweetheart,
Debbie K.
Juneau, AK - Wednesday, December 10, 2008 9:56 AM CST

I hope you are still getting a little better each day! You deserve it!

Love and Prayers, Sammi www.caringbridge.org/mi/sammijean
Sammi Jean Robertson <NeuroGirl716@hotmail.com>
Westland, Michigan United States - Wednesday, December 10, 2008 9:20 AM CST

hey how are you doing well iam just fine i heard yuor geting beter i know last time my email wasnt that great! BUT.........................................your GREAT i would never have enough courage like YOU!!!!!!!!!!!!!!!!!!!
DEVYNN ODONNELL
carmel, in usa - Wednesday, December 10, 2008 8:34 AM CST

I hope u feel better soon
Drew
carmel, in usa - Wednesday, December 10, 2008 8:34 AM CST

Hi Baylie, I am thinking about you. I hope you have a really good day today. I know you will feel better and better everyday. I love talking to you yesterday, I know you didn't feel good at all. I love you very, very much!!!
Love Granny
Granny
Houston, TX USA - Wednesday, December 10, 2008 8:33 AM CST

Brave
Amazing
You rock
Loyal
I wish you can come back
Extrodinary
COME BACK SOON BAYLIE I MISS YOU SO MUCH!!!!!!!!!
Samantha Frye
Carmel, IN USA - Wednesday, December 10, 2008 8:31 AM CST

Sorry to here u puked. I hope u feel better.
Tony <Safraneks@aol.com>
Carmel, IN USA - Wednesday, December 10, 2008 8:30 AM CST

So glad to hear your surgery went well! Feel better soon!
Angie (mom of Matthew-Chiari I) <angietheaggie@hotmail.com>
Hedgesville, WV USA - Wednesday, December 10, 2008 7:00 AM CST

Baylie,
I am so glad to hear you are starting to feel better!! I can't wait to see your smiling face at Smoky Row again!! I will continue to pray for you and your family as you recover!!!
Love,
Mrs. Jacobs
Lacey Jacobs <ljacobs@ccs.k12.in.us>
Carmel, IN USA - Wednesday, December 10, 2008 6:18 AM CST

Hi Baylie!
Glad the surgery is behind you and now you can just work on feeling better. You and mom try to gt some rest so you can get home soon.
Janet & Daniel
Janet Hutcheson
Columbia, KY - Tuesday, December 9, 2008 11:20 PM CST

Baylie,

I know that you will be feeling better soon. I will be at the hospital tomorrow with a friend of ours, Conor Morrissey and his mom Anne. Conor will be having brain surgery to help control his epilepsy, Conor Morrissey. I also read that Emily is coming next week for some help from Dr. Frim.

Take care and get well soon.

www.caringbridge.org/il/natesdome

www.caringbridge.org/conormorrissey

Tina L. Landis <CLandis941@aol.com>
Evergreen Park, IL USA - Tuesday, December 9, 2008 11:09 PM CST

Hi Baylie,
I'm sure you are not feeling very good today (Cristina always feels worst a couple of days after surgery), but you will feel better in a few more days. I hope for you to be home before Cristina and I get to Chicago next week. But I hope for me and Cristina that you are still at the RMH so we can see you in person!
In any case I hope you are feeling a lot better by then. Enjoy your time in the playroom once you get there!
love,
Kathy and Cristina
kathy s
- Tuesday, December 9, 2008 9:37 PM CST

Baylie, So happy to hear that surgery went well. Hope you are feeling better today. We're anxious for an update! Miss you,
Mrs. H :-)
Carol Hollingsworth
Carmel, IN US - Tuesday, December 9, 2008 6:12 PM CST

Hello Ladies!
Baylie, I hope that you stay nice and sedated until all the ickiest of the post-surgery pain is gone. Your brain will be much happier soon, and this will all be just a memory of something that helped. Tressie, get some sleep! Much love to you both.
Rhonda
Hot Springs Village, AR USA - Tuesday, December 9, 2008 5:57 PM CST

Hi Baylie, I'm glad to hear the surgery went well and hope you start feeling better soon. Still praying for you. Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Tuesday, December 9, 2008 11:48 AM CST

Hi Baylie....I am so happy to hear that the work Dr. Frim did was small compared to other surgeries. I am sure you will be sore for a few days but I have a feeling you will start feeling much better in time for the holidays!

Take care,
Ann

P.S. If you want to giggle have your mom show you my carepage, I'm a turkey!

www.caringbridge.org/visit/annbanfield
Ann <ann_banfield@glenbard.org>
Lombard, IL - Tuesday, December 9, 2008 11:06 AM CST

I'm so glad to hear that Baylie's surgery went well. I hope she gets better soon. I just bought 2 bracelets!! I hope Baylie reaches her goal!!
Mary Anne Pine <mapine1970@yahoo.com>
Folsom, CA USA - Monday, December 8, 2008 10:44 PM CST

Hey Baylie

I am so happy to hear that your surgery went well! You are the toughest little girl I know... we will continue to send positive thoughts and prayers your way!

All my love, Andi
Andi Haddox <danenberga@hotmail.com>
Hosuton, TX USA - Monday, December 8, 2008 9:28 PM CST

HI BAYLIE! AM SOOOOOOOOOOOOOOOOO HAPPY YOUR SURGERY WENT O.K. I REALY WISH YOU COULD COME HOME. BEST WISHES,ALAINA
ALAINA
CARMEL, IN USA - Monday, December 8, 2008 7:42 PM CST

I'm glad to hear surgery went well and I wish Baylie a smooth recovery. I'm thinking about you all.

www.caringbridge.org/visit/stefbarber
Stef
Victoria, bc Canada - Monday, December 8, 2008 5:56 PM CST

Baylie, So glad to hear that your surgery is over! I'm praying for you and your family! You are the bravest person I know! Please keep the sunshine in your smile and never lose it! Sending lots of hugs! :.) Love, Nurse Gwen
Mrs. Gwen Knipstein <gknipste@ccs.k12.in.us>
Carmel, IN USA - Monday, December 8, 2008 5:32 PM CST

glitter-graphics.com
Karen
- Monday, December 8, 2008 1:54 PM CST

glitter-graphics.com
Matt
- Monday, December 8, 2008 1:52 PM CST

glitter-graphics.com
Kalani
- Monday, December 8, 2008 1:50 PM CST

Karen
- Monday, December 8, 2008 1:47 PM CST

my thoughts and prayers are with you baylie. god bless you..
rose leso <roxykwik@cruzio.com>
watsonville, ca usa - Monday, December 8, 2008 1:37 PM CST

Hey Shuggie,
Glad to hear you are out of surgery, sounds like a pretty long and involved one. I know you are still sleeping right now, but when you awake, and your mama reads this to you, just wanted you to know that All of us are praying a WHOLE lot...and we are anxious to know you are doing ok...hugs, and lotsa love all the way from Georgia! Hang in there baby....
Karen and Family
Fayetteville, GA - Monday, December 8, 2008 1:29 PM CST

hi baylie its chad s. I hope you get better soon. dose it feel scary before you go into brain sugery?
chad s. <football500@sbcglobal.net>
carmel, IN usa - Monday, December 8, 2008 11:30 AM CST

Yo Baylie whatcha doin huh huh? Well i hope u are ok and when your awsome u are great and when your good your ok but u get the point. Love Devynn ps get better.
devynn odonnell
carmel, in usa - Monday, December 8, 2008 11:30 AM CST

HI BAYLIE!TODAY AT LUNCH ME AND DEVYNN WERE THROWING GRAPES AT EACH OTHER'S HEAD!WE WERE BOARD SO IT WAS JUST RANDOM.I WILL BE THINKING OF YOU EVERY SECOND OF THE DAY!
GOOD LUCK! LOVE,ALAINA
ALAINA SCHALLWIG
CARMEL, IN USA - Monday, December 8, 2008 11:29 AM CST

you've missed alot.
Tony <Safraneks@aol.com>
Carmel, IN USA - Monday, December 8, 2008 11:29 AM CST

Hi Baylie,
It's Tommy.I hope your surgery whent or is going well.Fell better!

From,
Tommy D.
Tommy Dietmeyer <Tommypd@indy.rr.com>
carmel, IN USA - Monday, December 8, 2008 11:28 AM CST

I miss you! Get well soon! SMILE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
NATALIE K.
- Monday, December 8, 2008 11:26 AM CST

i hope you feel better..........ps you dont have to do homework
drew shumate
carmel, in. usa - Monday, December 8, 2008 11:24 AM CST

HI ITS ANDREW GET WELL SOON .I HOPE U R OK

ANDREW
CARMEL, IN USA - Monday, December 8, 2008 11:24 AM CST

I am thinking about you!!!
Hannnah champine <indychampines@yahoo.com>
Carmel, In USA - Monday, December 8, 2008 11:22 AM CST

I have the same amount of pain as u because I fell bad about your surgery.
Tony <Safraneks@aol.com>
Carmel, IN USA - Monday, December 8, 2008 11:20 AM CST

Greetings Baylie from snowy Alask! You are in our thoughts and prayers. I hope your stay at the Ronald McDonald House will be brief and you will be home soon. Take care sweetheart,
Debbie K.
Juneau, AK - Monday, December 8, 2008 9:35 AM CST

Baylie I am so sorry for you.
Samantha Frye
Carmel, IN USA - Monday, December 8, 2008 8:39 AM CST

baylie we miss you. COME HOME!!!!!! JUST KIDDING BUT WE REALLY DO MISS YOU.
olivia suggs <tukie2005@aol.com>
carmel, IN USA - Monday, December 8, 2008 8:37 AM CST

Hi Baylie, its Tony. Hope u r okay and make it through the surgery okay.
Tony <Safraneks@aol.com>
Carmel, IN USA - Monday, December 8, 2008 8:35 AM CST

hi it is Andrew cannon. hope u get better.
andrew canon <tukie2005@aol.com>
carmel, in USA - Monday, December 8, 2008 8:34 AM CST

HI BAYLIE!I HOPE YOUR DOING WELL.I AM IN THE MEDIA RIGHT NOW.MY MOM SAID THAT IF I GET STRAIT A'S THEN I COULD GET A GUINEA PIG!HOPE YOUR DOING WELL.LOVE,ALAINA

ALAINA
CARMEL, IN USA - Monday, December 8, 2008 8:31 AM CST

Hi Baylie sorry you have to have surgery hope you come back soon.
Samantha
carmel, indiana United states - Monday, December 8, 2008 8:29 AM CST

hi baylie. we're praying for you. good luck today.(olivia typed this)(andrew did not)
olivia suggs and andrew cannon <tukie2005@aol.com>
carmel, IN USA - Monday, December 8, 2008 8:29 AM CST

Hi baylie. it's olivia andrew.how are you? hope you you feel better soon
olivia suggs and andrew cannon
carmel, IN USA - Monday, December 8, 2008 8:23 AM CST

We are praying for you and thinking about you today, Baylie!
Love, The Clines
The Clines <stephanie.cline@gmail.com>
Carmel, IN USA - Monday, December 8, 2008 8:16 AM CST

Good luck today Baylie!

Love and Prayers, Sammi www.caringbridge.org/mi/sammijean
Sammi Jean Robertson <NeuroGirl716@hotmail.com>
Westland, Michigan United States - Monday, December 8, 2008 6:28 AM CST

Hi Baylie,
Hope your surgery goes well for you tomorrow and nice and boring for Dr Frim! Cristina and I are coming to Chicago on the 16th to see Dr Frim. Maybe you will be hanging out at the RMH and we can say hi.
Give your mom a big hug and tell he hi from us!
Kathy
www.caringbridge.org/visit/cristinas
kathy s
- Monday, December 8, 2008 0:58 AM CST

Hey Baylie, I have read all your updates. I wish you good luck and all the best with your surgery tomorrow. You are a strong and tough girl!!! You are always in my troughts and prayers always!!!!!

Take Good Care!!!!!!
God Bless You!!!!
All My LOVE and PRAYERS ALWAYS!!!!!
Hugs,
Chantelle
XOXOXOXOXOXOXOXOXO

www.caringbridge.org/visit/chantelle
Chantelle Gavin <double_trouble_80@hotmail.com>
Oshawa, On Canada - Sunday, December 7, 2008 5:38 PM CST

Baylie,

Your Kingwood Strutter friends will be praying for you tomorrow!! Keep the faith sweet girl and keep fighting! Mommy I am praying for you and your family. ....for strength and stamina for all of you. Blessings - Linda Sewell
Linda Sewell <ssewell@kingwoodcable.net>
Kingwood, Tx. USA - Sunday, December 7, 2008 1:25 PM CST

Baylie, Your hug on Friday was the best! It will continue to hold you and I before, during and after your surgery tomorrow. Love, Mrs. H :-)
Carol Hollingsworth
Carmel, IN US - Sunday, December 7, 2008 6:14 AM CST

Baylie,
You are the bravest girl that I know!! I will be thinking about you next week and praying for a speedy recovery!!
Love,
Mrs. Jacobs
Lacey Jacobs <ljacobs@ccs.k12.in.us>
Carmel, IN USA - Friday, December 5, 2008 7:02 AM CST

Oh, and Baylie, can't wait to get my winter shirt so I can wear it!
Angie (mom of Matthew-Chiari I) <angietheaggie@hotmail.com>
Hedgesville, WV USA - Thursday, December 4, 2008 5:37 AM CST

Still praying for you, Baylie! Tressie, stay strong, I think God really does give Moms some type of super powers... God Bless You!
Angie (mom of Matthew-Chiari I) <angietheaggie@hotmail.com>
Hedgesville, wv USA - Thursday, December 4, 2008 5:35 AM CST

I so agree and empathize with you! You are absolutely right, and what you have written is something I've thought many times, and something I, having a Lumbar shunt too, have had to deal with.

I hope you are doing well, Baylie, at least doing a little better and I pray that the surgery will work and help you for a long time!

Love, Sammi www.caringbridge.org/mi/sammijean
Sammi Jean Robertson <NeuroGirl716@hotmail.com>
Westland, Michigan United States - Tuesday, December 2, 2008 6:42 PM CST

Well said Tressie! I was frustrated too when my VP shunt quit after 10 months but I found out it was because the tubing got stuck in scar tissue in my abdomen. Last October 29th was 1 year since my last shunt surgery and I'm doing well. Best of luck to Baylie. I will be praying.
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Tuesday, December 2, 2008 12:57 AM CST

good luck with your surgery baylie hope all goes well
aaron thompsen <sjofirefighter12@aol.com>
st. joseph, il usa - Monday, December 1, 2008 4:09 PM CST

Hey Miss Baylie. I hope you are having a fantastic day. We are here in first grade. It's the Monday after our Thanksgiving break and we are trying to make it through the long day. We are used to shopping and eating lunch out and not having to do school work. Maybe by Tuesday we will be back in the groove. Have a wonderful day. I really enjoy reading all your cool entries.
Mary Wells <mary.wells@cfisd.net>
Cypress, Tx USA - Monday, December 1, 2008 1:02 PM CST

Well said Tressie!! Tell the girls we say hi!

Sending our HUGS and PRAYERS!
Rachel, Kurt, Alex and Smiley Riley
www.caringbridge.org/visit/rileyjohnson
Rachel Johnson <smiley_rileys_mom@yahoo.com>
Oswego, IL - Monday, December 1, 2008 10:28 AM CST

Hi Baylie
Hang in there sweetie! Hope to meet you one day.
Sending you hugs and blessings.
Meri and Del
Meri Pezzoni <Warbler44@aol.com>
Aptos, Ca. USA - Monday, December 1, 2008 9:52 AM CST

High Baylie: This is Uncle James in Texas. Hope you are doing good and will get to come see us sometimes soon. We love you.
James Owen <james.owen@attorneyjamesowen.com>
Athens, TX USA - Monday, December 1, 2008 9:26 AM CST

Just thinking of you. Hope you are feeling better soon.
Jill Zarin
New York, NY USA - Monday, December 1, 2008 9:08 AM CST

Hang in there, Baylie and Tressie! I'll be thinking good thoughts for you during the surgery. I'm really behind with the bracelets, but I'll try to do some over winter break (when I re-emerge from under the pile of stuff I still have left to do for the university). Love, Jeanne
Jeanne Swack <jswack@wisc.edu>
Madison, WI 53711 - Monday, December 1, 2008 8:36 AM CST

AMEN! Tressie you have echoed many parents frustrations... It's tough, very tough to think your childs life and her quality of life all comes down to dollars & cents, supply & demand. We fight the fight with you and 27 surgeries later we continue...
Patty C <christliebnews@aol.com>
- Monday, December 1, 2008 7:06 AM CST

Happy Thanksgiving Baylie and family! I hope you get just a tiny bit of relief from your pain today.

Love, Sammi www.caringbridge.org/mi/sammijean
Sammi Jean Robertson <NeuroGirl716@hotmail.com>
Westland, Michigan United States - Thursday, November 27, 2008 10:38 AM CST

Greetings Baylie from rainy Alaska. I just wanted to wish you and your family a blessed Thanksgiving. Take care and I hope you get relief soon from your pain,
Debbie K
Juneau, AK - Wednesday, November 26, 2008 9:55 AM CST

You are in our prayers. Baylie, you are such a strong little girl and God has a purpose for your life. Get well soon! I would love for Matthew to come and meet you someday soon so you can play and share stories!
Angie (mom of Matthew-Chiari I) <angietheaggie@hotmail.com>
Hedgesville, wv USA - Wednesday, November 26, 2008 5:35 AM CST

wishing you a speedy recovery for upcoming surgery! our family is praying for you
Shenay
Danville, CA USA - Tuesday, November 25, 2008 2:30 PM CST

I am a decomp girl myself and think you are the bomb for what you do. Keep on keeping on....
Valerie Hancock <valerie.h.hancock@wellsfargo.com>
Dadeville, AL USA - Tuesday, November 25, 2008 11:13 AM CST

Hi Baylie & Tressie,
I pray you will reach your million and that your wish of a cure and helping others overcome this painful disease will come true. You are loved, and keep on fighting!
Love & Hugs,
Alicia Vasquez Beard
Alicia Beard <albeard@cabrillo.edu>
Watsonville, Ca United States - Tuesday, November 25, 2008 10:49 AM CST

HEY BAYLIE,
OUR FAMILY IS PRAYING FOR YOU! YOU ARE TOTALLY SPECIAL AND MY BOYS STILL REMEMBER WHEN YOU AND SIDNEY SPENT THE NIGHT. HOPEFULLY EVERYTHING WILL BE GOOD FOR CHRISTMAS!
LOVE, MIKE, RENEE, ALEX AND MICHAEL
RENEE HARRINGTON <renee_harrington@sbcglobal.net>
- Tuesday, November 25, 2008 9:33 AM CST

Greetings Baylie from rainy/snowy Alaska. I am so sorry to hear about you needing surgery - I pray that Dr. Frim will be able to give you some pain relief. Take care and enjoy your Thanksgiving holiday,
Debbie K.
Juneau, AK - Monday, November 24, 2008 9:45 AM CST

Hi Baylie,
I am so sorry to hear about your surgery. You will be in my thoughts and prayers. I miss you and I hope that I get to see your smiling face soon!!! All my love, Andi
Andi <danenberga@hotmail.com>
Houston, TX USA - Sunday, November 23, 2008 10:06 PM CST

I'm sorry you are feeling so bad Baylie...it really stinks and I wish you, or anyone else, didn't have to go through this. But I'm praying that the surgery will help you feel better. Keep fighting Baylie!

Love, Sammi www.caringbridge.org/mi/sammijean
Sammi Robertson <NeuroGirl716@hotmail.com>
Westland, Michigan United States - Sunday, November 23, 2008 1:49 PM CST

Thinking about you Baylie!! U are amazing:) I know you'll do great, even though this is something none of us ever want to go through over and over again.....I'm right up there with you Baylie. You'll be with me on surgery day and I'll be thinking about you and hoping that everything will be going well.

www.caringbridge.org/visit/stefbarber
Stef
- Saturday, November 22, 2008 1:02 PM CST

I`ll keep you in my prayers.sorry to hear about your surgery.
You take care,jane
jane <janemartin02@comcast.net>
berwyn, Il usa - Friday, November 21, 2008 9:30 PM CST

Hi Baylie,

I'm sorry to hear you need surgery again. I hope Dr. Frim can make you feel better. You are an inspiration to me. Keeping you in my thoughts and prayers.

Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Friday, November 21, 2008 3:26 PM CST

It has been a long time since I've posted. I'm really sorry to hear you're going to have surgery, Baylie. Hopefully Dr. Frim will make you all better.

Anna is going to have Chiari revision surgery also--next Monday. Her surgery is in Milwaukee. She is pretty sick, but she has lots of people praying for her.

Thinking of you, and we'll be praying for you also!

Cheryl and Anna
www.caringbridge.com/visit/annalinnea
Cheryl
- Thursday, November 20, 2008 8:28 PM CST

dear, Baylie i hope you feel better i miss you i want you to be in my class

taylor goldberg
carmel, in usa - Thursday, November 20, 2008 5:09 PM CST

Hi Baylie, I wanted to wish you the best week you can have. I'm going to do the same and I'll be thinking about you as always. Keep up the good fight!! U are amazing and I wish I had more of your strenght to get through some days with the pains I have been developing over the last two years. I'm giving everyday the best I can, sometimes though my body wins esspecially when I have pressure headaches, and have to take time off work, but when it's gone I'm right back in there smiling and giving back and loving my job!!

I'm wearing I really had brain surgery what your excuse shirt tonight:)

www.caringbridge.org/visit/stefbarber
*Hugs from Canada*
Stef
Victoria, BC Canada - Monday, November 17, 2008 0:36 AM CST

Hi Baylie and Tressie-

It is Meri from sunny California. Baylie, you are an inspiration to all of us. I will have my singers put you in our prayer circle. Hang in there.....
I send you hugs and kisses to you and your Mom.... :)

XXOO
Meri
Meri Pezzoni <Warbler44@aol.com>
Aptos, Ca. USA - Sunday, November 16, 2008 1:42 PM CST

Hang in there, Baylie. I have been checking your site and rooting for you ever since I read about you in the Chicago Sun-Times a few years back. There are a lot of very smart people at the University of Chicago Hospital (I go to a doctor there myself), and I'm sure Dr. Frim is one of the smartest. I'm also a teacher so I know how hard it must be for you to concentrate on school work when you're in pain. But you are stronger and braver than most grownups I know and I'm sure Dr. Frim will try to make things a little easier for you. I'm also not too far from Indiana so I'll wave to you across the border! :)
Kathy <ktchr630@aol.com>
Thornton, IL - Saturday, November 15, 2008 9:57 AM CST

Hi Baylie, I'm sending some warm hugs and love from Canada!!

Keep smile, becasue you are awesome!! I know it's hard, isn't it though sometimes.

www.caringbridge.org/visit/stefbarber
stef
- Friday, November 14, 2008 11:16 PM CST

Sorry Baylie,you`re struggling so much.We`ll be praying for you.
the martin`s
jane martin <janemartin02@comcast.net>
Berwyn, IL usa - Friday, November 14, 2008 10:59 PM CST

Hi Miss Baylie,
I'm sorry to hear that your spirits are as gloomy as the weather. Perhaps a good book would put a smile on your face (it works for me :))I recommend Beatles Lightly Toasted! Hang in there Kiddo! You're in my thoughts and prayers! ~Mrs. Trenshaw
Mrs. Trenshaw <ctrensha@ccs.k12.in>
- Friday, November 14, 2008 2:53 PM CST

Greetings Ms. Baylie from rainy Alaska,
Just a quick note to let you know we are thinking about you. It's hard to believe that Thanksgiving is right around the corner! We think and pray for your daily,
Debbie K. <debster2551@yahoo.com>
Juneau, AK - Friday, November 14, 2008 10:53 AM CST

Baylie,
Just wanted to send you a note that we are all thinking of you and praying that Dr. Frim can help your pain. You are a very special girl. Kayla is always talking about you and how she misses seeing you.
Lori, Chris, Kayla, Nicholas and Emily Smith <lori@miraclekayla.com>
- Friday, November 14, 2008 9:38 AM CST

Hi Baylie, You are in our thoughts and prayers. Hang in there! Love, Megan, Peter, Julian, Stephanie and Chris
The Clines <stephanie.cline@gmail.com>
Carmel, IN USA - Friday, November 14, 2008 7:24 AM CST

Baylie...I miss seeing you here at school, so next time you get a chance stop by my class. Tell your sisters that I said hello. Hang in there kido!!!
Mr. Hoyt <bhoyt@ccs.k12.in.us>
- Friday, November 14, 2008 7:15 AM CST

I'm so sorry Baylie...this sucks beyond words but just hang in there! By the looks of your guestbook, you've got a lot of people praying for you. I am too!

Love and Prayers, Sammi www.caringbridge.org/mi/sammijean
Sammi Robertson <NeuroGirl716@hotmail.com>
Westland, Michigan United States - Sunday, November 9, 2008 10:00 PM CST

Hi,
I have two children with chiari. My son Will who is 8 has a vp shunt and had a decompression two years ago Oct2. He too has had the non stop eye blinking...I always wondered if that had to do withhis chiari. Then we have our little Lily sho is just 9 months old. We found out she had hydro about 6 weeks ago and she had a vp shunt placed 4 weeks ago yesterday. She has hhad continuous problems in and out of Hopkins since. She started doing weird head bobbing 4 days after surgery...her eeg is noprmal but these have evolved that they are now her head/neck /eyes and trunk jerking and out of control. they did an mro and she has a small chiari too but we can not figure out what is happening and we feel so helpless. I hope your Baylie is doing better
Mandy <mandyspollen@verizon.net>
- Thursday, November 6, 2008 8:08 AM CST

Hello Baylie and family. God Bless you all! We are thinking about you. Matthew, my little guy, goes to see a new Pediatric Neuro next week at Johns Hopkins for a checkup. Stay strong!
Angie Bowers <angietheaggie@hotmail.com>
Hedgesville, WV US - Tuesday, November 4, 2008 7:56 PM CST

Greetings Baylie from rainy Alaska. I'm very sorry to hear about you needing surgery again. It sounds like Dr. Frim is a awesome physician and cares greatly for you. I hope your shunt ajustment has helped with your pain. We love you and are praying for you daily.
Debbie K.
Juneau, AK - Monday, November 3, 2008 10:33 AM CST

Hey Baylie! Hang in there sweetie, I know the idea of exploratory surgery is the worst but Dr. Frim will take good care of you no matter what happens. I had a problem with scar tissue and Dr. Frim fixed it and I haven't had to worry about my Chiari for 5 years now ^-^. I'm sending prayers to you and your family and hope everything gets better for you.

luv, Samantha
Samantha Heap <yumechandesu@yahoo.com>
Shabbona, IL USA - Monday, November 3, 2008 7:39 AM CST

Hi Baylie, I'll be thinking about you!! U are amazing:) I'm going to see my neuro soon, because I'm going through some rough times myself.

*Hugs*
www.caringbridge.org/visit/stefbarber
Stef <stefbarber@shaw.ca>
Canada - Sunday, November 2, 2008 3:03 PM CST

Greetings Baylie from windy Alaska! HAPPY HALLOWEEN :>) I hope all goes well with your MRI and with your doctor's appointment.
Debbie K.
Juneau, AK - Friday, October 31, 2008 9:58 AM CDT

Good morning Baylie from rainy Alaska. We broke a record of having 34 consecutive days of rain - YAHOO! We've had over 14" our normal rainful for the year. I guess we can be thankful it isn't snow yet :>) I wanted to let you know we were thinking of you. I know you are in Chicago and have your MRI. Keep your faith - you are such a blessing to everyone around you. We love and are praying for you,
Debbie K. <debster2551@yahoo.com>
Juneau, AK - Thursday, October 30, 2008 10:10 AM CDT

Hi there. I was just wanting to tell you that I'm still thinking of you and hoping you are doing well. You are always in my thoughts honey. You are so special and precious. Jesus loves you so very much. His angels are all around you and those who take care of you.
Debra Quaco <debi_q@mail.com>
Rockford, Il USA - Tuesday, October 28, 2008 11:16 AM CDT

Perhaps you all remember us . . . "Nemo" and company from Louisville, KY. We made the paper bow-ties with you (you still have his picture posted on your website). Nehemiah is doing great and we are planning a check-up with Dr. Frim sometime after January. He has very few symptoms, but the last time we looked, the syringomyelia was still there. Anyway, we are planning on doing what we can to support your race to 1 million. Look for an order from us soon. We think of you often and Nehemiah has nearly worn out his "Brain surgery" shirt which garners comments everytime he wears it. God bless you and keep running the race! Nehemiah and his family (Don, Julia, Ezekiel, Grace, Aunt Jeannine, Aunt Daneta)
Julia Arndt <arndtfamily5@insightbb.com>
Louisville, ky USA - Monday, October 27, 2008 7:43 PM CDT

it is cool site http://gnosek.tripod.com/index.html
gary <yearight@hotmail.ccccccom>
chicago, il usa - Tuesday, October 21, 2008 11:16 PM CDT

Greetings Baylie from rainy Alaska. My family and I are so sorry to hear that you are in pain and have been praying for you daily. We hope that when you see the doctor next week you will be able to get some relief. Halloween is right around the corner - do you know what you are going to dress up as? Take care sweetie and know there are people out there that love and care for you.
Debbie K.
Juneau, AK - Monday, October 20, 2008 10:11 AM CDT

inspite of brain surgrey baylie is doing work for
others that is great we must be inspired by her mental
power god may bless her so that she can do more work
for others
mukesh parikh <anitamukesh1972@hotmail.com>
hasbrouck heights, nj usa - Thursday, October 16, 2008 11:17 AM CDT

Greetings Baylie from rainy/windy Alaska. I hope you are feeling better than your mom's last posting. Are you getting geared up for Halloween? What costume will you be wearing. Take care and have a super day.
Debbie K.
Juneau, AK - Monday, October 13, 2008 10:00 AM CDT

Wishing you well
Sara Musgrave
Waterloo, On Canada - Thursday, October 9, 2008 2:32 PM CDT

Thinkin' about you Baylie!!
www.caringbridge.org/visit/stefbarber
Stef
Canada - Sunday, October 5, 2008 2:25 PM CDT

Baylie! I just recently met your mom and we have become good friends! I can't wait to meet you!! You are so brave I hope I will be able to give you a big hug. I'm getting one of your new winter T-Shits too! They are awesome and you look great modeling it! I hope you're feeling better soon!!!
Tracey Herbert <traceyherbert@sbcglobal.net>
Yorktown, IN USA - Friday, October 3, 2008 2:05 PM CDT

Greetings Baylie from very rainy Alaksa! Hope you are feeling better since your mom's last posting. We are gearing up for winter. I got my snow studded tires put on yesterday. Do you use snow tires in your home town? Keep your chin up and know there are a lot of people thinking and holding loving prayers for you.
Debbie K. <debster2551@yahoo.com>
Juneau, AK - Wednesday, October 1, 2008 10:18 AM CDT

Hi Baylie,
Our town newspaper wrote an article about Cristina's church making a new bedroom for her earlier this summer. Cristina talked about you and the wonderful work you've done raising money to help people with chiari and how great it was you could do that. Now everybody in Yelm Washington knows your name! Quite a few people even ask about you.
I know you don't feel good, but you are a big star out here! I will send you a copy of the article once I find your address.
Say hi to your mom and sisters for us,
Kathy and Cristina
Kathy Slease
yelm, wa - Friday, September 26, 2008 6:08 PM CDT

Greetings Baylie from Sunny and slightly frosty Alaska! I hope you are feeling better since your mother's last posting. You are such a brave little girl and a blessing to all. Say hi to your sisters,
Debbie K. <debster2551@yahoo.com>
Juneau, AK - Friday, September 26, 2008 10:11 AM CDT

Hi Baylie!
I'm sorry that you've been feeling yuckier lately. Don't give up hope that it will get better, even when it seems that this is all there is. There IS more, and there WILL be better days. Good luck to you on surviving the hours of those very uncomfortable desks while taking your tests. Wishing you happy days ahead
Kat & Rhonda
- Tuesday, September 23, 2008 9:27 PM CDT

I am new and I was just told that I have chiari malformation. I am not sure what is going to happen next. My parents are worried. I am 3yrs old. I have an speech theraphist and a physical theraphist that comes 2 time a week. All we know right now is that I have low muscle tone in my arms and torso and high muscle tone in my calves and heels. My mom has no one that knows what is going on and I hope that she gets what she needs through this care page. Feel free to contact us with your story and your journey thourgh chiari. We all need someone to talk too and if we can help someone it help us too. GOD BLESS EVERYONE OF US on this journey.

Kyle and mom Trish <rtweeks05@yahoo.com>
buffalo, ny usa - Monday, September 22, 2008 8:22 PM CDT

sorry you are having such a hard time.Wish I could take away the pain you are in.
I`ll keep you in my prayers.
take care,jane
janemartin <janemartin02@comcast.net>
berwyn, IL usa - Wednesday, September 17, 2008 8:57 PM CDT

Hey Baylie! We just came from Chicago and seeing Dr. Frim, it's not so bad up there and he can probably make you feel better. Remember the last little surgery wasn't so bad, you were in and out quick! AND you might not even need more surgery just a simple fix. We miss you and will be praying for you to feel better.
Love, Janet & Daniel
Janet Hutcheson <gator@duo-county.com>
Columbia, KY - Wednesday, September 17, 2008 4:48 PM CDT

Hey Miss. Baylie! You missed one heck of a storm this weekend. Be glad you are up north. Most of the village got power back last night, but we still have to boil water for another day or so. The girls and I are headed to Denver to visit a friend for the weekend, since we don't have school. Speaking of school you certainly wouldn't recognize it. From the cafeteria to the First/Third grade rooms is all gone. It is probably a giant mud hole right now, too. The building is gone from construction, not the storm. Hang in there!!!
Cherri
Houston, tx usa - Wednesday, September 17, 2008 12:25 AM CDT

Greetings Baylie from wet and soggy Alaska! Sorry to hear that you are not feeling well. I am continuing to keep you and your family in my prayers. I hope you take comfort in knowing that. Good luck on your testing - sitting still for too long can make one feel like they have ants in their pants :>)
Debbie K.
Juneau, AK - Wednesday, September 17, 2008 10:04 AM CDT

Baylie,
Hope you are better. Miss chatting with you.
Norm
Muncie, IN 47304 - Monday, September 15, 2008 7:41 PM CDT

Hoping you are feeling better later today and that you had a great day at school! I wish I could take the pain away from all of our kiddos that live with so much pain everyday. We are considering taking our little Mylee to see Dr. Frim in Chicago. I am awaiting to hear back from him via email. We will visit again soon!

Lots of hugs,
Mylee & Sara (Mylee's mommy)
http://myleegrace2006.blogspot.com/

http://www.caringbridge.org/visit/mylee
Mylee Eaton <eatonfam1@msn.com>
- Monday, September 15, 2008 4:15 PM CDT

Hey Baylie-
it's your mom's ol' choir teacher Meri sending you some hugs, and good wishes from California. Your Mom was always laughing... :) Maybe you inherited that too. You are a brave little girl. I hope to meet you someday and see your Mom again..... Hang in there..... You will get through.

Hugs
Meri
Meri Pezzoni <Warbler44@aol.com>
Aptos, Ca. USA - Monday, September 15, 2008 10:24 AM CDT

HI BAYLIE,
SORRY TO HEAR YOU ARE HAVING A ROUGHT TIME RIGHT NOW. BUT I AM SURE YOU WILL BOUNCE BACK VERY QUICKLY. I WILL KEEP YOU IN MY PRAYERS EVERY SINGLE DAY. TAKE CARE.
ROXANNA <roxannasanford@hotmail.com>
HOUSTON, TX USA - Monday, September 15, 2008 10:23 AM CDT

HI BAYLIE!

This is Jill Zarin and Ally! We just want you to know how proud we are of you and what you have done to try to find a cure. Ally loves to wear your bracelet and thinks of you often. We hope you are feeling better soon.
Love, Jill and Ally
Jill Zarin
New York, NY USA - Monday, September 15, 2008 8:53 AM CDT

Hey Baylie, We are sorry to hear you are having a rough time. We continue to pray for you and send good thoughts your way.
Love, Megan, Peter, Julian, Chris and Stephanie
The Clines <stephanie.cline@gmail.com>
Carmel, IN USA - Monday, September 15, 2008 7:06 AM CDT

Hi Baylie,
I'm so sorry you are feeling bad. I so want you to feel better. I have Chiari too, but I don't have a shunt and have had two surgeries for it. There is hope and a lot of research. You have made a lot of that research happen. I owe you big time! By the way, everybody up here in Madison (at least the people I call MY friends) totally loves the Obama shirt!! Everybody asks about it. So, give Dr. Frim another chance because he is really smart and he really cares about you! I know how frustrating it is. I'm not totally fixed either, but I'm fixed enough to go to work and give my students a lot of homework! Jeanne in Madison, WI
Jeanne Swack <jswack@wisc.edu>
Madison, WI 53711 - Monday, September 15, 2008 0:08 AM CDT

Hi Baylie!

I hope you feel better today and I'm praying that every day will be better than the one before.

I don't know what part of Texas you live in, so I thought I'd check in to see if you were near the hurricane.

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Saturday, September 13, 2008 11:22 AM CDT

Greetings Baylie from rainy Alaska! Glad to hear school is going ok. It started on Tuesday for my oldest. We were in Washington State last week where we were able to be on my parents tugboat while it was participating in a race - it was SO much fun! Have you ever been on a tugboat? Tell you sister I am proud of her for riding her bike without training wheels. She has great courage. Take care,
Debbie K. <debster2551@yahoo.com>
Juneau, AK - Thursday, September 4, 2008 10:12 AM CDT

I`m glad you are excited about school.Hope you have a great year!!
My daughter is nervous about starting middle school next week.
take care,jane martin
janemartin <janemartin02@comcast.net>
Berwyn, IL usa - Thursday, August 21, 2008 8:21 PM CDT

Greetings from sunny Alaska! Today is my youngest first day of school. My oldest doesn't begin until 09/02/08. How has your second week of school going? You must be having fun seeing your friends everyday that you weren't able to see this summer. I hope you are feeling good. Have fun with your mom and your sisters. DKK
Debbie K.
Juneau, AK - Wednesday, August 20, 2008 10:00 AM CDT

hey hope you are doing great the shirts are great the kids love them. my daughter had her surgery tuesday she may get out of the hospital sunday if she is still improving. the boys seemed to get better faster when they had all their surgeries. well hope bailey is good.
patricia self <selfpatricia@aol.com>
leland, nc usa - Saturday, August 16, 2008 3:21 PM CDT

Greetings from rainy Alaska and happy second day of school! My youngest will begin school next week on Wednesday and his older brother will begin on 09/02. The beginning of school is always an exciting time. I hope your pain is getting better. Sorry I've been slacking on signing your guest book - Debbie
Debbie K
Juneau, AK - Thursday, August 14, 2008 10:10 AM CDT

Hi we just found your site and loved it. So happy to see you getting the word out. My daughter Katie is 4 yrs old and has a Chiari Malformation and has has 2 surgies this year. Thank you and God Bless, Darlene and Katie
Darlene and Katie Prusa <prusa4@comcast.net>
Orland Park , Il - Thursday, August 7, 2008 1:21 PM CDT

Glad you`ve been doing good this summer.
I`m sure you`ll have a great school year.
take care,jane
jane <janemartin02@comcast.net>
berwyn, Il usa - Wednesday, August 6, 2008 10:08 PM CDT

HEY BABE JUST WANTED TO KNOW HOW YA DOIN HOPE I SEE YA SOON WE ALL MISS YA HOPE U HAVIN FUN love lauren,jeff,wendy,and robert
lauren <jeffandwendy702@sbcglobal.net>
chicago, il usa - Wednesday, August 6, 2008 9:15 PM CDT

This is bailey. you know the kid that raised more then $3000. If you forgot I have the same thing as you. Chairi Malformation. If you dont remember me, ask your mom because my mom and your mom email each other. I just wanted to say hi because i never spoke to you.I hope you do good, and i hope you reach your million dollar goal soon.
bye!!!!!!!!!!!!!!!!1
Bailey Gribben <baileygrib@aol.com>
levittown, ny united states - Wednesday, July 30, 2008 11:01 PM CDT

Hi Baylie, It was so nice talking to you yesterday. You are so grown up on the phone. I love it when you tell me you are doing OK. Have fun swimming I know you love too. I hope to see you @ Christmas. I love you.
GRANNY <willoughby44@hotmail.com>
Houston, TX - Monday, July 28, 2008 12:19 AM CDT

Hey girls!!!
I FINALLY have a computer! YEA!!!! I'm so glad that Baylie is feeling ok, summer is when Whitney usually feels worse too. We sure missed you girls at camp, hope everything is OK. Talk to you soon...
Rebekah Wagenbach
www.caringbridge.org/visit/whitneyryanwagenbach
www.chiaribracelets.com
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Tuesday, July 22, 2008 8:28 PM CDT

Good luck with all your endevours. I hope you acheieve your goals
Helena Samons <h_youngy12@hotmail.com>
Wabash, IN USA - Tuesday, July 15, 2008 10:43 PM CDT

Hi Baylie,
I have checked your web site a couple of times. My daughter Rylee, who is four years old, was diagnosed with Chiari Malformation in April of 2008. She will be having surgery in Chicago at the end of this month. We are happy that some one is raising awareness about this disease. We are doing our part in east Tennessee.
Good Luck with your adventures. Rylee will be wearing her T-shirt proudly after surgery.

Beth Brady <brady7177@hotmail.com>
Dandridge, TN USA - Tuesday, July 15, 2008 2:33 PM CDT

Hi Baylie,

I hope you are enjoying your summer break.

Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Monday, July 14, 2008 1:02 PM CDT

Woo Hoo! Weekly massages and swimming sound like a great way to spend the summer. We miss you!

We are currently fostering an 18 month Newfie and she loves to give kisses. I hope you'll get to meet her.

We have another friend with his own website. CHeck out lugohouston.com Maybe your mom has some good ideas for his parents, too.

The Paluch Girls
Cherri Paluch
Houston, TX - Sunday, July 13, 2008 6:47 PM CDT

HAPPY 4TH !HOPE YOU`RE ENJOYING YOUR SUMMER BREAK.
TAKE CARE,JANE
JANE MARTIN <janemartin02@comcast.net>
BERWYN, IL USA - Thursday, July 3, 2008 10:16 PM CDT

Hi Baylie,
Wishing you the very best - always.

Lane Scott, PhD
Hyperbaric Medicine for Neurological Conditions
Lane Scott, PhD <drlanescott@yahoo.com >
- Tuesday, July 1, 2008 6:21 PM CDT

great service
Eileen Flynn <flynn122653@yahoo.com>
South Windsor, Ct USA - Monday, June 30, 2008 8:10 PM CDT

Have a good week!

www.caringbridge.org/visit/quiltsofhope
Jaime <aquiltofhope@aol.com>
- Monday, June 23, 2008 1:19 PM CDT

Hi Baylie,
I believe I have introduced myself a while ago. My 22 month old daughter also has Chiari and we are being honored at a fundraising event this weekend for Mylee. All proceeds are going to both ASAP and Miracle wish for Chiari. We have several other kiddos who sent me pictures of them to share with a large crowd at a car racing event in our home town in Arizona. I have a picture of you with your friend Christina S. I would also love to have a picture of by yourself. I hope you don't mind but I have copied the one of you wearing your shirt that is for sale. I am hoping this might bring you some more sales too....Let me know immediately if this is not something you would like for me to use. The event will be held on Saturday, June 21st. I will be posting the "faces of Chiari poster I am putting together hopefully on Friday.

Hoping you are doing well at the moment and PAIN FREE!!

Thank you in advance!!

Sara Eaton (Mylee's mommy)
http://myleegrace2006.blogspot.com/

http://www.caringbridge.org/visit/mylee
Sara Eaton <eatonfam1@msn.com>
- Wednesday, June 18, 2008 8:23 PM CDT

Hi Baylie,
I hope you'll feel better soon sweetie!
Di
Australia - Friday, June 6, 2008 7:05 PM CDT

Hey! You must be really excited that Obama got the nomination. Are you ready to join the campaign trail?

Thinking of Ya'll!
Paluch Girls
Houston, Tx - Friday, June 6, 2008 9:23 AM CDT

Baylie,
Hi sweetie!! I have been thinking about you and all of your classmates this week. I hope everyone has enjoyed their first official week of summer. Hopefully the hot-hot weather will stay away and you will feel great. Take care of yourself!!
Love,
Mrs. Jacobs
Lacey Jacobs <dandljacobs@hoosierbroadband.com>
Frankfort, IN USA - Thursday, June 5, 2008 9:01 PM CDT

Hi Baylie, hope you are doing well. Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Thursday, June 5, 2008 4:54 PM CDT

Hi Baylie! You are such an inspiration! My son, Garrett, was diagnosed with pseudotumor when he was 6 months old. He is now 8 years old. You are an angel to be doing all you do for awareness! God Bless, Sharon Cothern
Sharon Cothern <kelshar@tx.rr.com>
Mesquite, TX USA - Wednesday, June 4, 2008 9:38 PM CDT

Dear Baylie, I'm so proud of what you are trying to do. I'm 44 years old and about to reach my 10 year mark since my surgeries. You have really inspired me with what you are doing to help make a difference for all us with Chiari, it's important that others know and have an understanding of what we deal with each day. Thanks for all your hard work and I pray you meet your goal.
Darlene Harbour <harb280@bellsouth.net>
Reidsville, NC USA - Monday, June 2, 2008 7:44 PM CDT

HAPPY BIRTHDAY ABBEY!!!!
HAVE A GOOD ONE.
HI!TO BAYLIE!!
JANE
JANE MARTIN <janemartin02@comcast.net>
BERWYN, IL USA - Sunday, June 1, 2008 6:35 PM CDT

hey baylie do u remember me lauren i have been praying for u and i hope your surgeries went well!!!!I hope to see u soon your friend Lauren PS.GET WELL SOON!!!!!!!!!!
Lauren <lucyandbuddy@sbcglobal.net>
chicago, ill us - Friday, May 30, 2008 1:36 PM CDT

Dear Baylie,
I had a great time making bracelets with you today. I hope that the bracelet party will help you and your illness. We're praying for you.
colin smith
carmel, IN - Thursday, May 22, 2008 3:17 PM CDT

Hi Baylie . You are such a brave little champ and you are a true inspiration. I just think your bracelet idea is awesome and I have ordered a couple and can't wait to wear them with pride. keep fighting and love to you and your family.
Love Leesa
Leesa Keppel <adslbef2@tpg.com.au>
Frankston, Vic Australia - Monday, May 19, 2008 1:38 AM CDT

Hi Baylie
My name is Melisa & my daughter Josie has Chiari she had decompression surgery in Nov.07 at Kosair Hospital in Louisville Ky. We live in Southern Indiana. This is May & so far she is doing very good with everything. I just want you to know that I have visited your website offer though everything & Josie has seen your pictures, we have braclets & Josie has a T-Shirt that she loves to wear. I think you are a wonderful girl & the things you are doing to raise money is great. I wish you & your family much Happiness. Also I am putting you on my list of the Bravest Girls in the whole world! That is Josie's favorite list ! Take care & please know that in Southern Indiana our Family is praying for you to raise a million. Keep up the good work & I hope you are feeling better.
Melisa Biddle <Mbbutterfly8@aol.com>
Leavenworth , In - Sunday, May 18, 2008 0:38 AM CDT

Hi, Baylie. I'm Taylor's grandfather,Bob Cole. Taylor told me all about you. You really are an interesting and brave little girl! I'm facinated about how brave you are. I am going to pray and donate for you. Also, I want to wear your bracelet. I will share your testimony with other people. Let me know if there's anything I can do to help.
Bob Cole
Carmel, IN USA - Saturday, May 17, 2008 9:51 PM CDT

Baylie, Just passing by your site everyone in Kingwood is praying for you and we want to see you dancing with us again. Love the Kingwood Strutters, Jami Underwood
Jami Underwood <sru22@msn.com>
Kingwood, tx usa - Friday, May 16, 2008 11:07 AM CDT

Bailey, Just passing by your site everyone in Kingwood is praying for you and we want to see you dancing with us again. Love the Kingwood Strutters, Jami Underwood
Jami Underwood <sru22@msn.com>
Kingwood, tx usa - Friday, May 16, 2008 11:06 AM CDT

Hi Baylie,
You are climbing the mountain!!! Keep up the good work and I hope you feel better soon. My daughter is 15, Kate, and she had her shunt installed in December. We live in North Carolina. I came across your site while doing research on pseudo tumor.
Karen Hall <karen.j.hall@ncmail.net>
Colfax, NC USA - Thursday, May 15, 2008 9:38 AM CDT

Hi Baylie,

Just wanted you to know I'm thinking of you.

Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Wednesday, May 7, 2008 3:25 PM CDT

STOPPED BY TO SAY HI!!
TAKE CARE,JANE
JANE <janemartin02@comcast.net>
BERWYN, IL USA - Thursday, May 1, 2008 10:25 PM CDT

hi Baylie!
I had a blast at the party. i cant believe how many bracelets we made! I know that soon you'll reach you're goal. See ya soon!
Madisyn
Indy, IN U.S - Monday, April 28, 2008 3:11 PM CDT

Hi Bayle,
I'm sending you lots of hugs and well wishes!
Di
Australia - Sunday, April 27, 2008 6:58 PM CDT

Just a quick message to say I am thinking of you and checking up on you heaps. Lots of Hugs and prayer, Kira
www.caringbridge.org/visit/kiram
Australia - Sunday, April 27, 2008 11:21 AM CDT

Hi ladies......I love ya! Hope you keep feeling better Bay! My love to you, momma, Abbey and Ce- Ce!

Take care, Ann

caringbridge.org/visit/annbanfield
Ann Banfield <ann_banfield@glenbard.org>
- Friday, April 25, 2008 8:35 PM CDT

You are an amazing little girl with a Big disease but a bigger heart and dreams. Don't ever give up because you are making all of your dreams come true! I have had VP, LP, shunts, decompression surgery, IH, Chiari and optic nerve surgery. IT isn't fun but it makes us special and we see the world different than most people, even though we have the pain and suffering we have those good days we pray for. I pray that you have a life full of painfree day's and that your efforts continue to grow. I shall keep you in my prayers and am totally amazed at how many wonderful ideas you have for fund raising. You are a beautiful person inside and out and a brave little girl. Your family is very brave too and I am glad you enjoyed your vacation and hope you continue to improve. I am going to keep checking on this website to see how your doing and will make a purchase. I am going to send it along to my friends hoping they do the same! Keep Smiling and Keep up the Amazing work! It is a labor of love! I am so proud of your efforts! A friend, Susan
Susan C. <susanvanduzen@aol.com>
Taunton, MA 02780 - Friday, April 25, 2008 5:45 PM CDT

Wow ~ what a brave little girl you are! I don't even know you personally and I am very proud of you for everything that you have done here on your site.

I have a 9 yr old son, Dominick, who has Pseudo tumor of the brain and is also a patient of Dr David Frim. He had his VP Shunt placed in June of 2002 and hasn't had any real problems. The last six weeks we have been experiencing some problems and are again back at the University of Chicago to visit Dr. Frim.

This has been a hard thing for my husband and I to comprehend at times. We didn't realize all the information ~ it helps now that we have internet service. I look forward to popping back in.

I read that you had a revision done and we pray that you are doing well. Wishing you a speedy recovery!!

Hugs, The Ortega Family
Rosalie, Jesse, Lil' Jesse and Dominick

Rosalie Ortega <rjjdo@sbcglobal.net>
Chicago, IL USA - Wednesday, April 23, 2008 5:35 PM CDT

Hi Baylie,
We have been thinking about you... Our Emily had her third Chiari surgery in three years in January, and unfortunately was then hospitalized for a shunt infection and her 10th, 11th, 12th and 13th brain surgeries. We hope you are feeling better, enjoy the spring!! God bless you and your family!!
Flynn Family <kcflynn1773@msn.com>
Levittown, PA 19056 - Monday, April 21, 2008 7:26 AM CDT

Hi Baylie!
My name is Kristin and I am 39 yrs old. I have Chiari and I had surgery 4 yrs ago...I still have pain every now and then...But I keep fighting it!!! Your story touched me more then you can know...you really gave me hope Baylie!
Thank you
Kristin Cassano
Kristin Cassano <Lindseymom2000@aol.com>
Farmingdale, NY USA - Saturday, April 19, 2008 10:10 AM CDT

Hi Baylie
it's Bailey from NY.I'm so happy that you finally got the money from the fundraiser I had at my school. All my friends and family we're so generous with their donations and I'm excited that I got to help you with your goal to raise a million dollars.Keep up the great work. Glad to hear you're out of hospital and feeling better - me too :)
Bailey Gribben
Levittown, ny - Saturday, April 19, 2008 8:41 AM CDT

STOPPED BY TO SAY HI!!!!
JANE
JANE MARTIN <janemartin02@comcast.net>
BERWYN, IL USA - Thursday, April 17, 2008 10:04 PM CDT

Greetings Super Girl from Snowy Alaska! It's April 17th and we got around 7 inches of snow from last night until this morning and it is suppose to keep on - so much for April showers bring May flowers :>) Sounds like your spring break was fun, my family loves to go fishing. Hope all is well. Take care, Debbie K.
Debbie K.
Juneau, AK - Thursday, April 17, 2008 10:21 AM CDT

Hi Baylie! I have Psuedotumor Cerebri also. I am an adult 25 years old but I still understand your pain. Just try your best everyday and there are days that will really suck and you will cry but there are days of that you will be so happy so just keep on going.
Emily <estockard1231@hotmail.com>
- Tuesday, April 15, 2008 10:06 AM CDT

Hi Tressie, Bailey, and girls,
I am soooo sorry to hear you had to have another surgery.But I am glad you are feeling better now. Things have been crazy here with Alex. his headaches and behavior has been out of control. I took him out of school after lots of fighting.(long story) He is being homeschooled for now. I quit my job and am working around the clock to take care of him. The docs went ahead and diagnosed him with Autism too. The diamox and elavil are not working. So, I will be on the phone with his doc again tom. Wish us luck...take care of yourself and each other. I'll keep you in my prayers as usual. Talk to ya soon. Anna and Alex
Anna Smith <txmommy2four@aol.com>
LaPorte, TX USA - Monday, April 14, 2008 1:02 AM CDT

You are an amazing young lady to have gone through, what you and your family have gone through. I have had a journey the past 10 years I don't like to talk about but I do to help others. Your story really inspires me to be as strong as you are. There are three words I wanna share with you that are still part of my healing. Those words are Faith, Hope, Dreams. You can conquore them. Remember day by day. You are in my prayers. I HOPE the best for you and your family. It is teamwork. God Bless you and your family.
Michele <golfmr@aol.com>
Painted Post, NY USA - Friday, April 11, 2008 0:21 AM CDT

Hi Baylie,
I am glad to hear that you are having a good Spring Break. I have been wondering about you this week. Ella and Kye have both been sick so I guess it is good that I have been home this week with them. Kye is sitting on my lap while I type your message and he gets very excited to hear the music!! Can you believe he is 5 months old already today!! Enjoy the rest of your break sweetie with your family, you all definitely deserve it! I will see you next week in class.
Love,
Mrs. Jacobs
Lacey Jacobs <dandljacobs@hoosierbroadband.com>
Frankfort, IN USA - Wednesday, April 9, 2008 6:15 PM CDT

HAVE A GREAT VACATION.
YOU DO DESERVE IT.
HAVE FUN!!!!!
JANE

JANE <janemartin02@comcast.net>
BERWYN, IL USA - Wednesday, April 9, 2008 4:48 PM CDT

Hi Baylie,

Great to hear your shunt is working well for you and you are enjoying spring break!! yahoo:)
I agree that it's great to see friends outside of the hospital, doctor appts, therapy etc etc.

Enjoy the rest of your spring break!!
www.carinbridge.org/visit/stefbarber
Stef
Victoria, BC Canada - Tuesday, April 8, 2008 7:19 PM CDT

Hi Baylie
My name is Jenna and I came across your page. You are an inspiration and a brave, courageous fighter. You will be in my thoughts and prayers.
caringbridge.org/visit/champ291
Jenna <nevergiveup301@aol.com>
Kamloops, BC Canada - Tuesday, April 8, 2008 12:17 AM CDT

My son has recently been diagnosed with Chairi 1 and a syrinx.. he will under go surgery .. just waiting for a date.. at first I was really scared about it all .. but its nice to a have a forum to read other peoples journeys with Chairi and all has been well as I know he will be too.. Thanks Bailey for your fundraising efforts to make awareness for Chairi paitents.. I have just ordered 10 braclets to hand out to our family :) .. thanks again
N
- Monday, April 7, 2008 6:49 PM CDT

Hi Bayle,
great to hear you're doing better!
Di
Australia - Saturday, April 5, 2008 5:46 PM CDT

GREAT SITE! My wife had two surgeries in Nov and Dec of '06 and is doing much better thanks to a wonderful and very smart doctor who finally figured out what all the GI's had no clue about. We just ordered ribbons, bracelets and shirts! Thanks Baylie! You are very brave (and cute)! And good luck everyone.
John Hughes
Cartersville, GA United States - Saturday, April 5, 2008 1:55 PM CDT

Hi Baylie!
So glad that you are feeling better! You are always in our thoughts and prayers. Keep smiling :)

Big Hugs!
~Samantha and Drew Mulcahy
www.caringbridg.org/visit/drewmulcahy

Samantha Mulcahy <smulcahy@twcny.rr.com>
Kirkville, NY - Thursday, April 3, 2008 12:40 AM CDT

I don't know if Dr. Frim called you guys but read my latest journal entry you will find it extremely interesting if he didn't contact you! Hope everyone is doing good :)
Love,
Caty
Caty Farwick <cathryn.farwick@thomasmore.edu>
Cincinnati, OH - Monday, March 31, 2008 6:33 PM CDT

Greetings "Super Girl" from snow Alaska! Glad to hear you are doing so well. Today is a holiday for Alaska called "Seward's Day". This is the day when Secretary of State William Seward purchased Alaska. Does Illinois have a day? Keep on keeping on :>) Debbie K
Debbie K
Juneau, AK - Monday, March 31, 2008 9:54 AM CDT

Hi Baylie,
Hope you feel better.I'll be praying for you.God bless you and keep you safe. Good luck with those braclets.It's how much you sold.Be safe and be careful.Bye for now.
Caroline Crater, one of Rachael Coleman's friends <carolinec1@triad.rr.com>
Greensboro, NC USA - Saturday, March 29, 2008 2:03 PM CDT

Dear Baylie, Hi...it's Liz, Anderson's Mom! I have been checking up on you and I was sad to read you were back in Chicago and missing school. I hope you had a great Easter and you are feeling better now!! It was such a pleasure to meet you and your Mom. Pls give your Mom a hug from me and tell her I think she is terrific...and email me, I would love to chat!
HUGS to you from Anderson!!
Love,
Liz, Charlie and Anderson
PS - Anderson LOVES his puppy blanket that you gave him!!
Liz Mescher <clmescher@socal.rr.com>
Orange, CA - Friday, March 28, 2008 10:55 PM CDT

Dear Baylie thanks for coming to my party I had so much fun with you there. you are a great friend love, Taylor
Taylor <Taylorg324@hotmail.com>
Carmel, IN USA - Friday, March 28, 2008 10:33 PM CDT

HAVE A GREAT WEEK-END.SOUNDS LIKE YOU`RE GONNA HAVE A FUN ONE.ENJOY YOU DESERVE IT.\
JANE
JANE <janemartin02@comcast.net>
BERWYN, IL USA - Friday, March 28, 2008 9:59 PM CDT

Hi Baylie! Just wanted to drop you a quick note to let you know I was thinking of you. You are such an awesome strong girl! Hopefully next time you're in Chicago it will be for a FUN reason and we can hang out! Hugs from Chicago!
Tessa Burke
Chicago, IL USA - Friday, March 28, 2008 11:17 AM CDT

Baylie, Glad to hear everything is going well. I hope you can go back to school. Keep going as long as it takes.
Connie Banfield <cbanf51748@aol.com>
Decatur, IL USA - Thursday, March 27, 2008 5:01 PM CDT

Hi Baylie
Darn shunts! I hope the adjustment does the trick.
Lydia
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore <lydiablackmore@blueyonder.co.uk>
- Thursday, March 27, 2008 5:10 AM CDT

Hi Baylie,
How is your shunt doing after the adjustment?

www.caringbridge.org/visit/stefbarber
Stef
- Wednesday, March 26, 2008 8:08 PM CDT

hope things work out for you and the shunt is under control.
jane <janemartin02@comcast.net>
Berwyn, IL usa - Wednesday, March 26, 2008 7:46 PM CDT

Hi Baylie,

We hope you are feeling better and that you got to go back to school today!

Love,
Megan, Peter, Baby Julian, Stephanie and Chris
The Clines <stephanie.cline@gmail.com>
Carmel, IN USA - Wednesday, March 26, 2008 8:21 AM CDT

Hi Baylie!
I'm glad the shunt decided to program again. Hopefully it will behave itself. Have you given it a stern lecture on proper behavior? :-)
Hope you have a fun day at school soon!
Hugs,
Kathy S
kathy s
yelm, WA - Tuesday, March 25, 2008 8:21 PM CDT

Hi Baylie,

I'm sorry you had to go back to the hospital. They are no fun. I hope you feel better soon and can get back to school. Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Tuesday, March 25, 2008 6:53 PM CDT

Hi Baylie,
Hope you are feeling better real soon! We are thinking of you.

Avery Maty <d.maty@comcast.net>
Lockport, IL - Tuesday, March 25, 2008 3:47 PM CDT

Hi Baylie,

This is a note for you and your Mom. A week + after my shunt revision in Nov 06, I started getting adbmoninal pain too. I went through a battle of tests, one extra surgery and then ended up on pain meds, till 8 months after my family doctor figured it was nerve type related pain due to have so many surgeries. The pain is underneath my right ribs, along near where my shunt is. It's called Complex Pain Syndrome (Reflex Sympthedic Dysthropy)if worst comes to worst searching it out.

I really hope though for Baylie and everyone's sake, that it goes away!!! Though you can always contact me if you need more information.

*Hugz*
www.caringbridge.org/visit/stefbarber
Stef
victoria, BC Canada - Tuesday, March 25, 2008 2:33 PM CDT

Hey Baylie! I just wrote you a whole note and then accidentally erased it! lol Anyway, shunts are a pain in the rear aren't they? I hope that they can get yours to reprogram under fluroscopy! I will go on
glitter-graphics.com
.com sometime today and see if you are there too! Maybe you could sign my guestbook when you are going to go on and then I will try and go at the same time too. That'd be fun! I'm thinking about you and praying for you! Give your Mom a hug for me, ok? Oh, and I love me Ipod!!! It is so cool!

Hugs,
Cristina

Cristina <teenygurl88@hotmail.com>
Yelm, WA USA - Tuesday, March 25, 2008 2:05 PM CDT

Hi Baylie,
Programable shunts are a P-A-I-N!! I'm thinking about you!! Hope you get some answers soon, because you don't deserve another shunt surgery 3 weeks apart.

*Sunny friendly hugs from Canada*
www.caringbridge.org/visit/stefbarber
Stef <stefbarber@shaw.ca>
- Tuesday, March 25, 2008 1:37 PM CDT

Hi Baylie,
We are all thinking of you here at school. You are a remarkable young lady and we are all wishing you well. My class sends hugs and warm thoughts!
Mrs. Gerth
Stacy Gerth <sgerth@ccs.k12.in.us>
Carmel, IN USA - Tuesday, March 25, 2008 8:09 AM CDT

Dear Baylie,
I'm very sorry that you have to go back to Chicago. We will all be thinking of you. You are the nicest friend! Get well very soon.
Love,
Alexandra
Alexandra
Carmel, IN USA - Tuesday, March 25, 2008 7:59 AM CDT

Dear Baylie,
I hope you had a great Easter!
Sincerely,
Geoffrey
Geoffrey
Carmel, IN USA - Tuesday, March 25, 2008 7:58 AM CDT

Dear Baylie,
I hope you get well soon. I will be thinking about you. From, Cam
Cam J. Walsh
Carmel, IN USA - Tuesday, March 25, 2008 7:57 AM CDT

Dear Baylie,
I hope you enjoy my poem...
Brave
Artistic
You sure are nice
Likes to laugh
Intelligent
Excellent
Love,
Morgan Stumbo
Morgan Stumbo
Carmel, IN USA - Tuesday, March 25, 2008 7:56 AM CDT

Hi Baylie,
I hope you don't have to have more surgery but if you do I hopeit goes well. I know you'll feel better after reading this poem...

S so painful
U u will be ok
R remember your class is here for you
G get well and come back soon
E entertain us with your smile
R rest well
Y yes surgery can be tough
Love,
Shiva

Shiva
Carmel, IN USA - Tuesday, March 25, 2008 7:54 AM CDT

Baylie,
How are you doing? Everything is going fine at school. We were all thinking of you today and hope you come back soon! WE ALL MISS YOU!!!!!!!!!!!!!

Your friend,
Grant
Grant
Carmel, IN USA - Tuesday, March 25, 2008 7:52 AM CDT

Baylie,
Sorry you may need to get another surgery. I feel so bad for you. I hope you come back to class soon. I also hope you reach to a million dollars soon.
Your classmate,
Taylor
Taylor Goldberg
Carmel, IN USA - Tuesday, March 25, 2008 7:51 AM CDT

Dear Baylie,
I hope you don't have to have another surgery! We are really missing you at school. I hope you can be at school on Monday and you will feel better very soon!
Your classmate,
Rachel
Rachel Kasper
Carmel, IN USA - Tuesday, March 25, 2008 7:49 AM CDT

Dear Baylie,
I hope you don't have to get surgery again. I hope you just have to get fixed up. I hope you will feel fine very soon.
From,
Ben
Ben
Carmel, IN USA - Tuesday, March 25, 2008 7:48 AM CDT

Dear Baylie,
I hope you are ok. I can not believe you might have to have another surgery. I hope to see you back in school soon. We will be thinking of you.
Your friend,
Mylene Laughlin
Mylene Laughlin
Carmel, IN USA - Tuesday, March 25, 2008 7:47 AM CDT

Dear Baylie,
I just heard you are in Chicago. I'm sorry you may need surgery again. I hope you will be o.k. very soon. Wait, I take that back, I know you will feel better very soon!!

Your friend,
Devynn
Devynn
Carmel, IN U.S.A. - Tuesday, March 25, 2008 7:45 AM CDT

Baylie,
I hope you are going to get well soon.
I hope it goes well.

Your friend,
Luke P.
Luke Paige
Carmel, IN USA - Tuesday, March 25, 2008 7:43 AM CDT

Dear Baylie,

I hope you are feeling well very soon, and will not have to go to surgery again.

Your friend,
Alex

Alex Phoebus
Carmel, IN USA - Tuesday, March 25, 2008 7:42 AM CDT

Hi Baylie,
How are you doing? I hope you don`t have to go into surgery again.
See you later!
Sincerely,
Jonathon
Jonathan Roth
Carmel, IN USA - Tuesday, March 25, 2008 7:41 AM CDT

Dear Baylie,
We all miss you and we're signing the guest book right now. I hope you come back soon!!!!!!!!!!!!!!!!!!! Get well soon!

Love,
Colin
Colin smith
Carmel, IN U.S.A - Tuesday, March 25, 2008 7:40 AM CDT

Dear Baylie,
I miss you so much. I hope you come back soon. You are such a good friend. I wish you were here right now. Hopefully you don't have to get surgery again!

From Your friend,
Gabrielle

Gabrielle
Carmel, IN U.S.A - Tuesday, March 25, 2008 7:39 AM CDT

Dear Baylie,
We miss you so much and we hope you are okay. We are so sad you had to leave us again. We are all thankful you are in our class. I hope you do not have to have more surgery.
Your Friend,
Tanner
Tanner
Carmel, IN USA - Tuesday, March 25, 2008 7:38 AM CDT

Dear Baylie,
It's a bummer your surgery didn't work out, but I am wishing you lots of luck!!!!!!!!!!
Love,
Jenny
Jenny
Carmel, IN USA - Tuesday, March 25, 2008 7:37 AM CDT

Dear Baylie,
I hope you had a fun Easter and I hope you get
well soon.
From,
Sara

Sara Dill
Carmel, IN USA - Tuesday, March 25, 2008 7:36 AM CDT

Dear Baylie,
I hope you had a HAPPY EASTER! We just found out that you might have to have surgery and I will be praying for you!!!GET WELL SOON!!!!!!!!!!!!
Your friend,
Kathryn

kathryn dillon
Carmel , IN USA - Tuesday, March 25, 2008 7:34 AM CDT

Dear Baylie,
I really hope you get better soon!!!! I really hope you come back soon!!!! I really really miss you Baylie!

Love, Your friend,
Sammi (Samantha)

Sammi (Samantha)
Carmel, IN USA - Tuesday, March 25, 2008 7:32 AM CDT

Dear Baylie,
If you get surgery I hope it goes well. Hope you get well soon !!
From Matthew
Matthew
Carmel, IN U.S. - Tuesday, March 25, 2008 7:31 AM CDT

Baylie...we will be praying that Dr Frim can re-set you real quick. Sam always has a lot of problems getting her valve reset. Once it reset itself?!?! Then they have to take about 20 x-rays because her valve is all twisted around. We hope you feel better soon and get back to school....
Ellen and Sammi Robertson www.caringbridge.org/mi/sammijean yahoo PBT <Scanmom@hotmail.com>
Wyandotte, MI - Tuesday, March 25, 2008 7:17 AM CDT

Baylie,
I have been wondering about you sweetie!! I know you wouldn't miss school unless you were really feeling terrible. I miss you and so do your 3rd grade friends!! I am sorry to hear that you are on your way back to Chicago, but I do hope that Dr. Frim can help you start to feel better very soon. You are the bravest little girl I know!!! We will be thinking of you today and praying that everything goes well and can be repaired without further surgery!
Love,
Mrs. Jacobs
Lacey Jacobs <ljacobs@ccs.k12.in.us>
Carmel, IN USA - Tuesday, March 25, 2008 6:56 AM CDT

Dear Baylie, I'm praying that everything will be OK with you today! Hope you had a Happy Easter and fun with your family! Thinking of you and praying for you every day!
Love, Nurse Gwen
Mrs. Gwen Knipstein <gknipste@ccs.k12.in.us>
Carmel, IN USA - Monday, March 24, 2008 2:45 PM CDT

Peace and healing,
Annie
Annie <penguini1982@yahoo.com>
Rochester, MA - Sunday, March 23, 2008 1:12 PM CDT

Hi Baylie, Happy Easter! I hope this week will be better for you. Have fun today with your sisters and your Easter Bunny goodies. Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Sunday, March 23, 2008 9:10 AM CDT

Hi Baylie,
I hope that you'll have a great Easter! God bless you sweetie!
Di
Australia - Friday, March 21, 2008 8:19 PM CDT

HOPE YOU HAD A BETTER WEEK!HAPPY EASTER!!
JANE
JANE <janemartin02@comcast.net>
BERWYN, IL USA - Friday, March 21, 2008 7:08 PM CDT

Baylie,

You are such a strong and brave little girl. I wish that I had as much courage as you. I used to think that Rock Stars and Movie Stars were my heros...but it's actually people like you! Thank you for the inspiration!
Frankie B. <fadams@bsu.edu>
Muncie, IN USA - Friday, March 21, 2008 3:39 PM CDT

Greetings Baylie from Snowy Alaska! Hope you are feeling better and are still recovering quickly our "Super Girl"! This weekend is Easter - we still need to color our Easter Eggs. We can't tell if we will do our Easter Egg hunt in the snow or not, the weather cannot make up it's mind. Have you ever Easter Egg hunted in the snow before? It sure makes it challenging to find the eggs. Take care sweetie,
Debbie K
Juneau, AK - Friday, March 21, 2008 10:07 AM CDT

Hi Baylie, Happy St Patrick's Day!..I'm sorry you had a bad week and I hope this week is better. I am praying for you...Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Monday, March 17, 2008 7:35 PM CDT

Hi Baylie,
I hope this note finds you feeling better after having your shunt adjusted. Take it easy girl, you just had surgery, LOL! :-) Have a nice St. Paddy's Day!
Kathy
www.caringbridge.org/visit/kathydykstra
Kathy Dykstra <dykstras@mtco.com>
Marseilles, IL - Monday, March 17, 2008 5:48 AM CDT

SORRY YOU HAD A ROUGH WEEK-END.HOPE NEXT WEEK IS BETTER. HANG IN THERE.
JANE
JANE <janemartin02@comcast.net>
BERWYN, IL USA - Sunday, March 16, 2008 9:49 PM CDT

Hi BAYLIE JUST WANTED TO SAY HI AND THAT I AM GLAD TO HAVE YOU BACK IN CLASS!
Taylor
Carmel, IN USA - Thursday, March 13, 2008 5:09 PM CDT

Greetings Super Girl from Semi-frosty, no wind, but cloudy Alaska! We are so happy to hear that you are home and that things went well. My children begin spring break next week so we are trying to decide what we will be doing. Did you know that it is St. Patrick's Day on Monday? Don't forget to wear green!
Debbie K.
Juneau, AK - Thursday, March 13, 2008 12:17 AM CDT

LOOK HOW HAPPY WE ARE THAT YOU ARE HOME!!!!!

glitter-graphics.com
Praying for a complete recovery! We love you!
The Wagenbach's~Jon, Rebekah, Nichole, Whitney, Jordan, & Ryan www.caringbridge.org/visit/whitneyryanwagenbach
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Tuesday, March 11, 2008 9:43 PM CDT

GLAD YOU`RE HOME.
TAKE CARE,
JANE
JANE <janemartin02@comcast.net>
BERWYN, IL USA - Tuesday, March 11, 2008 2:45 PM CDT

I AM SO GLAD YOU FEEL BETTER. I LOVE YOU. TELL MOMMY TO GIVE YOU A GREAT BIG HUG FOR ME.I HOPE YOU GOT A BIG GLASS OF CHOCOLATE MILK FOR BEING SO BRAVE.
GRANNY <willoughby44@hotmail.com>
Jersey Village, TX USA - Tuesday, March 11, 2008 12:31 AM CDT

Hey Baylie! I'm soo glad your feeling so great! I just had to get my valve setting changed because there is some fluid in my head. Shunts are not fun!

Love, Sammi Jean www.caringbridge.org/mi/sammijean
Samantha Robertson <NeuroGirl716@hotmail.com>
Wyandotte, Michigan United States - Monday, March 10, 2008 4:54 PM CDT

Hi Baylie, I'm so glad you are home now. I'm praying that you feel better everyday

Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Monday, March 10, 2008 3:46 PM CDT

Hey Baylie! Sorry I didn't get to say good-bye this morning! I miss having you here at the RMH but am sooo glad your home! Have fun and keep feeling good!

Hugs,
Cristina

PS You're a
glitter-graphics.com
Cristina <teenygurl88@hotmail.com>
Yelm, WA USA - Saturday, March 8, 2008 5:27 PM CST

Hi Baylie,
I'm so glad that your surgery went so well and that you recuperated so quickly and were able to get out and go to the RMH to rest. WTG!!! I'm glad that you are feeling better and laughing again and that it doesn't hurt. Take care and keep feeling better!!!
Kathy
www.Caringbridge.org/visit/kathydykstra
Kathy Dykstra <dykstras@mtco.com>
Marseilles, IL - Friday, March 7, 2008 8:59 PM CST

Ok, it didn't work last timeso I'm trying again! Now I've signed your guestbook tiwce. :-)

glitter-graphics.com
Cristina <teenygurl88@hotmail.com>
Yelm, WA USA - Friday, March 7, 2008 6:23 PM CST

Hi Baylie! I hope you're feeling well too!! I'm glad we're both at the RMH at the same time so we get to hang out! I'm SOOOO glad you don't have a headache!! I hope what I tried to do worked right!!

Love,
Cristina

[url=http://www.glitter-graphics.com][img]http://dl5.glitter-graphics.net/pub/4/4255kjemm9xqov.gif[/img][/url]
Cristina <teenygurl88@hotmail.com>
Yelm, WA USA - Friday, March 7, 2008 6:19 PM CST

Hi Baylie,
just passing by to wish you all the best, God bless you now and always!
Di
Australia - Friday, March 7, 2008 6:12 PM CST

Hi Baylie, I'm glad you got to leave the hospital and I hope you continue to feel better so you can go home and back to school. Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Friday, March 7, 2008 2:52 PM CST

Hi Baylie!!
I am so happy to hear that things are going so well. I talked to your dad last night at Open House and he said you were already feeling much better!! Everyone misses you in class and they hope to see your smiling face Monday morning. I would love to see you too, but don't push yourself too much. You have to give yourself time to recover!! I'll pray that things continue to go well this weekend. You and your mom have a safe trip back to Carmel, we will see you very soon!
Love,
Mrs. Jacobs
**P.S. We have been playing the Famous American games this week in class and eveyrone loved your Barack O'Bama game!!!!
Lacey Jacobs <ljacobs@ccs.k12.in.us>
Frankfort, IN USA - Friday, March 7, 2008 12:30 AM CST

Greetings "Super Girl" from rainy Alaska! Wow, see I told you that you were amazing - out of the hospital within days of your surgery, that's great. Hope you continue to recovery quickly and can be home with your sisters and your friends in no time. Love and Prayers,
Debbie K
Juneau, AK - Friday, March 7, 2008 10:06 AM CST

Hi, We are so happy to hear that you are doing well. We will see you when you get home. Love, The Clines
Megan Cline and Family <stephanie.cline@gmail.com>
Carmel, IN - Friday, March 7, 2008 8:04 AM CST

hello

Rafe de la Gueronniere <Rafe@newprov.com>
- Friday, March 7, 2008 2:07 AM CST

Hey Baylie, I am so happy to hear that your surgery was a success!!! I hope and pray that you feel better and that you can return home on Saturday. You are so strong!!!

God Bless You!!
Take Good Care!!!
All My LO
VE and PRAYERS ALWAYS,
Chantelle
XOXOXOXOXOXOXO

www.caringbridge.org/visit/chantelle
Chantelle Gavin <double_trouble_80@hotmail.com>
Oshawa, On Canada - Thursday, March 6, 2008 8:40 PM CST

YAY!!!!!! You ecasped from the hospital, let's hope you'll stay out of there for a while:) Always a nice feeling. Keep getting better and hope your insicions start giving you a break soon. Take care and have fun at RMH!!
www.caringbridge.org/visit/stefbarber
Stef
- Thursday, March 6, 2008 8:24 PM CST

hope your back in school soon!your friend,alaina

alaina
Carmel, IN USA - Thursday, March 6, 2008 7:45 PM CST

Dear Baylie,
We are all rooting for you here at Smoky Row! We can't wait to see your smiling face again! Hurry up and come home soon.
Mrs. Sanders
Crickett Sanders <csanders@ccs.k12.in.us>
Carmel, IN USA - Thursday, March 6, 2008 3:18 PM CST

Hey Baylie,
We got a little update on how you were doing and were doing and are very happy that you are alright and that the surjery went fine. We are still going to keep you in our prayers until you return to class and all very muchly miss you .

Morgan Stumbo <bkbmm18@aol.com>
Carmel, IN USA - Thursday, March 6, 2008 2:59 PM CST

Baylie,
Glad to hear you are doing so well, little Miss Sunshine! We are all so happy to get the news that you are up and walking and having a "power breakfast"! Keep up the good work, Baylie! We will see you very soon! Love you!
Nurse Gwen
Mrs. Gwen Knipstein <gknipste@ccs.k12.in.us>
Carmel, IN USA - Thursday, March 6, 2008 2:10 PM CST

Hi Baylie,
I'm glad surgery went well and that you are eating and walking....even better wanting to play!!! I hope that you can rest up and let those incisions heal while you are at RMH!! Hope thing countine to go well and that you are back at school soon!!!

Stef
- Thursday, March 6, 2008 1:32 PM CST

Hi Baylie, I'm so happy to hear your surgery went well and that you are up and walking to the playroom. I hope you get to go home soon and back to school to be with your friends....Hugs, Tracey
Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Thursday, March 6, 2008 12:23 AM CST

Baylie,
Sorry Lish spelled your name wrong...but she was thinking of you this morning before school and wanted to do something "pretty" for you, plus that how our Bailey spells her name!

glitter-graphics.com
Hope your doing better and want you to know Lish has done the tape thing and cell thing to her shunt too! You guys are partners in crime...LOL
Get better girlie!
Patty N Lish
- Thursday, March 6, 2008 10:35 AM CST

Greetings Baylie from Rainy Alaska! Glad to hear your surgery went well, sorry to hear about your reaction to the surgical tape. I had that once a long time ago, it isn't fun but luckily it does get better. You must have a "SG" on your chest for "Super Girl" - you are amazing to be up and walking just a day after surgery!!! Our prayers are with you and your family. Love to you and a speedy receovery blessing Super Girl,
Debbie K
Juneau, AK - Thursday, March 6, 2008 10:06 AM CST

Baylie,
The class read your update from mom this morning. We are sorry that you had a rough night, but so thankful you are feeling better today. Lucky you getting ready to hit the play room for some fun!!! We are getting ready to get out dictionaries and practice spelling words for tomorrow's test!!!! You take care and get plenty of rest. We want to see you healthy, feeling better and back in class next week!!
Love, Mrs. Jacobs and Your 3rd grade friends
Lacey Jacobs
Carmel, IN USA - Thursday, March 6, 2008 8:54 AM CST

glitter-graphics.com

Im glad surgery is over and I kmow you will be feeling better soon! LOVE,

glitter-graphics.com

Alisha Van Fosson <christliebnews@aol.com>
- Thursday, March 6, 2008 8:16 AM CST

glad surgery went well.hope for a short hospital stay.jane
jane <janemartin02@comcast.net>
berwyn, Il usa - Thursday, March 6, 2008 8:07 AM CST

I'm hoping your surgery went well. I'm thinking of you and hope you come back soon!
Rachael Coleman
Carmel, IN USA - Thursday, March 6, 2008 6:39 AM CST

Hi Baylie. We miss you at Smoky Row. Get well soon.

Your friend, Sammi
Samantha Frye
Carmel, IN USA - Thursday, March 6, 2008 5:56 AM CST

*Baylie*,
SO glad that your surgery went well! Hope you are up and going soon!

glitter-graphics.com
Love, The Wagenbachs~Jon, Rebekah, Nichole, Whitney, Jordan, & Ryan www.caringbridge.org/visit/whitneyryanwagenbach
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Wednesday, March 5, 2008 10:47 PM CST

Baylie - I am sooooo glad to hear your surgery is done and went well. I am thinking of you often. I look forward to seeing your smile soon. We all send our love!!
Judi Bounsall <judiweb@aol.com>
Carmel, IN - Wednesday, March 5, 2008 9:50 PM CST

glitter-graphics.com
Karen, Michael, MATT, and Kalani
- Wednesday, March 5, 2008 8:43 PM CST

glitter-graphics.com
Karen
- Wednesday, March 5, 2008 8:39 PM CST

Hope you are doing alot better really soon. I know that your side will be sore....so remember the ice bags will help! Hugs Bay!
Your Mom has a GREAT chicken recipe for you to try when you get home and put on that chef hat!

glitter-graphics.com
Karen, Michael, Matt and Kalani
- Wednesday, March 5, 2008 8:34 PM CST

Hey Baylie,
Glad to hear you are out of surgery...and that you got some cheese sticks...that makes me smile...we have ALL been praying for you....and want you to be able to go home soon, rest...heal....and take care baby!
love ya!
Karen, Michael, Matt and Kalani

glitter-graphics.com
Karen <handymanforhire@comcast.net>
- Wednesday, March 5, 2008 8:32 PM CST

Hey Baylie, I am so happy that your surgery went very well. I hope and pray that you rest comfortablely. You are always in my troughts and prayers. I will keep on checking on you soon!!! Feel better soon!!

God Bless You!!
Take Good Care!!!
All My LOVE and PRAYERS,
Chantelle
XOXOXOXOXOXZOXOXO

www.caringbridge.org/visit/chantelle
Chantelle Gavin <double_trouble_80@hotmail.com>
Oshawa, On Canada - Wednesday, March 5, 2008 7:33 PM CST

Dear Baylie,
I think you are a very kind,nice,and great friend.
So I will always be there for you if you need it.
Love,
Gabrielle
Gabrielle
Carmel, IN U.S.A - Wednesday, March 5, 2008 7:28 PM CST

I'm glad to hear your surgery went well. Hope your back soon Baylie!
Looooooooooooooovvvvvvvvvvvvvvvveeeeeeee
Meredith,
Meredith Noss <noss@ameritech.net>
Carmel, IN United States - Wednesday, March 5, 2008 7:20 PM CST

Hi Baylie,I hope your surgery went well.We miss you sooooooooooooooooooooooooooooooooooooooooooooooooooo much!Your friend,Alaina.
Alaina
Carmel, IN USA - Wednesday, March 5, 2008 7:09 PM CST

Hi Baylie and Tressie,
We have been thinking about you today. We hope that everything went well. Please keep us updated.
Love, Stephanie, Chris, Megan, Peter and Baby Julian
The Clines <stephanie.cline@gmail.com>
Carmel, IN - Wednesday, March 5, 2008 6:20 PM CST

Baylie, I really miss you. I hope you get better soon. You are a very special friend to me. Love, Megan

Megan Cline <stephanie.cline@gmail.com>
Carmel, IN - Wednesday, March 5, 2008 6:15 PM CST

Hi Baylie: I'm so sad that you were so upset before your revision, yet I can relate. I hope that once you have it, your shunt will behave and you can put this all behind you!! I'm cheering you on:)

www.caringbridge.org/visit/stefbarber
Stef
- Wednesday, March 5, 2008 4:13 PM CST

Brave
Artistic
Yeah she's nice
Loving spirit
Incouraging
Exelent

Morgan Stumbo <bkbmm18@aol.com>
Carmel, IN USA - Wednesday, March 5, 2008 3:29 PM CST

Hi Baylie!
We are all thinking of you! We miss you! We are keeping you close in our thoughts.

See you when you get back! You are a Champion! Love, Mrs. Davis
Kelly Davis <kdavis1@ccs.k12.in.us>
Carmel, IN US - Wednesday, March 5, 2008 2:36 PM CST

Hope you feel better soon.
Bella DiMaggio <busybee98@sbcglobal.net>
Carmel, IN 46032 - Wednesday, March 5, 2008 2:27 PM CST

Hi Baylie -
We are thinking of you and hope all is well. You are in our prayers. Say "Hi" to Chicago for us...we miss the city! :)
David, Lynda, Bella & Joey DiMaggio <lynda@dci.org>
Carmel, IN 46032 - Wednesday, March 5, 2008 2:14 PM CST

Baylie,
I hope you enjoy reading all of your messages from your classmates today. We have all been thinking of you and praying that your surgery goes well. You are such a brave little girl and I am honored to be your teacher. I know the next few days may be a little tough, but I hope this surgery makes you feel much better very soon!! I look forward to having you back in class again. Take care of yourself!!
God Bless You,
Mrs. Jacobs
Lacey Jacobs
Carmel, IN USA - Wednesday, March 5, 2008 2:04 PM CST

Dear Baylie,
What a beautiful day it is here with the sun shining on the icy trees! The sun is shining for you, Baylie! I hope you are doing OK after your surgery! I'm sending lots of smiles and hugs from Smoky Row! See you very soon!
Love, Nurse Gwen
Mrs. Gwen Knipstein <gknipste@ccs.k12.in.us>
Carmel, IN USA - Wednesday, March 5, 2008 1:37 PM CST

Dear Baylie,
I hope you do well on your surgery. I miss you so much. I can't wait for you to come back to class. I really like your website. I am wearing your bracelet and button and they are really cool!
Your friend,
Taylor
Taylor Goldberg
Carmel, IN USA - Wednesday, March 5, 2008 12:42 AM CST

Dear Baylie,
I am really missing you alot!! Hope your sugery went well! I can't wait till you are back!
Your firend,
Rachel Kasper
Rachel Kasper
Carmel, IN USA - Wednesday, March 5, 2008 12:41 AM CST

I hope you are ok. We wore your buttons and bracelets today at school. I can't wait to see you back at school next week.
Love,
Mylene
Mylene
Carmel, IN USA - Wednesday, March 5, 2008 12:41 AM CST

Baylie you are my best friend. You are kind and have a great sense of humor.
Your friend, Alexandra
Alexandra
Carmel, IN U.S.A - Wednesday, March 5, 2008 12:40 AM CST

Dear Baylie,
I hope you are feeling beter. Did your surgery go well? I am wearing your bracelet and button today. Congratulations on the first place trophy. I hope you don't have to have surgery again. Your friend,
Cameron
Cameron
Carmel, IN USA - Wednesday, March 5, 2008 12:39 AM CST

Dear Baylie,
Hope you get well soon. We will be thinking of you. Your braclets are so cool. Hope you will recover soon.

love,
Ben
Ben Kiley
Carmel, IN USA - Wednesday, March 5, 2008 12:38 AM CST

Dear Baylie,
I hope you are feeling better. You have always been a great friend to me! Also CONGRATULATIONS on your first place trophy!
Your friend,
Geoffrey Wozniak

Geoffrey Wozniak
Carmel, IN USA - Wednesday, March 5, 2008 12:37 AM CST

Hi Baylie,
I'm just checking in on you. I hope it's going well. You are so brave dealing with your Chiari.

Your friend,
Luke Paige

Luke Paige
Carmel , IN USA - Wednesday, March 5, 2008 12:36 AM CST

Hey Baylie,
I hope every thing goes well today and you feel better soon. We can't wait for you to come back to school.
Your friend,
Alex

Alex Phoebus
Carmel, IN USA - Wednesday, March 5, 2008 12:35 AM CST

Hey Baylie,
Hope your doing ok. Just wanted to say hi and goodluck with your surgery today. Hope you can come back soon.
Sincerely,
Jonathan
Jonathan Roth
Carmel, IN USA - Wednesday, March 5, 2008 12:33 AM CST

Hey Baylie,
We are all on your website right now. I love it! We miss you and we also have been thinking of you today. I hope everything goes well.
Love,
Colin
Colin Smith
Carmel, IN USA - Wednesday, March 5, 2008 12:32 AM CST

Dear Baylie,
I hope you are doing well. I think you are brave to do all of this stuff. I also think you are a kind and nice friend. I'm very impressed with your website it's really cool. I miss you so much!
Love,
Gabrielle
Gabrielle Stoebick
Carmel, IN U.S.A - Wednesday, March 5, 2008 12:31 AM CST

Hellooooo Baylie,
We are all on your website right now and all writeing you letters and are wearing your bracelets, and pins. Hope you feelbetter soon and have a great day in your surgery. I also hope that your surjery goes very well for you today!!!You are a great friend and are always consiteate for others!!!!!!!!!!
Love your friend and frends,
Morgan Stumbo
Morgan Stumbo
Carmel, IN USA - Wednesday, March 5, 2008 12:31 AM CST

Dear Baylie,
I hope your surgery goes well. I am so glad your surgery got moved up and I hope you will be back because everybody is missing you!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Your friend,
Tanner

Tanner Bender
Carmel, IN USA - Wednesday, March 5, 2008 12:30 AM CST

Hello Baylie,
I hope you come back to school.Here is a poem.

B brave
A a good friend
Y ye nice person
L love all your friends
I in pain
E everybody is waiting for you to come back

Please come back soon and we'll all be waiting for you to come back.I mean really come back quick!!!!!!!!!!!!!!!!!!
your friend,
Shiva
Shiva
Carmel, IN USA - Wednesday, March 5, 2008 12:30 AM CST

Dear Baylie,
I feel very sorry that you have to have more surgery. I hope to see you soon!!!!!
Your friend,
Jenny
Jenny
Carmel, IN USA - Wednesday, March 5, 2008 12:29 AM CST

Dear Baylie,
Hope your surgery goes well. Sorry that you have to have surgery again. Hope you raise a million. We'll see you soon.
From,
Matthew
Matthew Craig
Carmel, IN U.S.A - Wednesday, March 5, 2008 12:28 AM CST

Dear Baylie,
Baylie goodluck with your surgery today. I hope you get well soon. I hope you raise a millon dollars soon. We'll see you soon.
Your friend,
Sara
Sara Dill
Carmel, IN U.S.A - Wednesday, March 5, 2008 12:27 AM CST

Dear Baylie,
I want to wish you goodluck. You are so brave. I couldn't do that! You should be so proud of yourself! I hope you have a good time seeing all of your friends again at the hospital. You'll be in my prayers! You'll do great because you always do!
Love,
Katrhyn Dillon
Kathryn Dillon
Carmel, IN USA - Wednesday, March 5, 2008 12:26 AM CST

Dear Baylie,
I am glad you won the singing contest. Good luck getting one million dollors for doctors all over. Get well soon. Your friend, Max

Max
Carmel, IN USA - Wednesday, March 5, 2008 12:23 AM CST

dear Baylie,right now we are in school checking out your website.We all miss you veryyyyyyyyyyyyyyyyyyyyyy much. Mrs.Jacobs bought us braclets and pins to wear today.Your friend,Alaina.
Alaina
Carmel, IN USA - Wednesday, March 5, 2008 12:23 AM CST

Dear Baylie,
I am really thinking about you. You are an amazing friend and I miss you so much. As a friend you are really great. You are so nice and I am thankful to have you as a friend. Hope you come back soon.

Love your friend,
Sammi Frye (Samantha)
Samantha Frye
Carmel, IN USA - Wednesday, March 5, 2008 12:22 AM CST

Baylie we are thinking of you right now. Your bracelets and buttons are really awesome. Hope to see you in class soon.

Your friend,
Luke G
Luke
Carmel, IN USA - Wednesday, March 5, 2008 12:20 AM CST

Baylie, we all were thinking of you today I hope you come back to class soon!
love,
grant
grant gold
Carmel, IN USA - Wednesday, March 5, 2008 12:18 AM CST

Dear Baylie,
I hope you will feel better today. I miss you so much and I hope that you will come back soon to school. I love your website, it's so cool. You are so kind to try to raise a millon dollars for the cure of you Chiari.
Love your friend,
Devynn
Devynn
Carmel, IN USA - Wednesday, March 5, 2008 12:18 AM CST

Praying for you today as you have surgery. I had the same surgery in October so I know how you have been feeling. I hope you start feeling better soon

Tracey <beavers_tracey@yahoo.com>
Montrose, MI USA - Wednesday, March 5, 2008 11:47 AM CST

Good luck for today Baylie. I'll be back later to check for an update. I hope you feel better soon.
Lydia
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore <lydiablackmore@blueyonder.co.uk>
- Wednesday, March 5, 2008 9:06 AM CST

I hope that you feelbetter soon. And don't forget to eat alotof ice-cream at the hospital!!!!
From your 3rd grade friend Morgan!!!!
Morgan Stumbo <bkbmm18@aol.com>
Carmel, IN USA - Wednesday, March 5, 2008 6:22 AM CST

Praying for you as you have your surgery today! Praying that it will bring the much needed relief from pain, will have a fast recovery and will be back to feeling great in a flash!
David Daniel <rhondavid@yahoo.com>
- Wednesday, March 5, 2008 5:53 AM CST

Hi Baylie and Tressie,
I'm so glad that your surgery is almost here. I know you're probably afraid, but you are in a LOT of people's prayers! I won't be able to come up and see you as I leave for Baltimore on the 6th. I'll keep tabs through your journal and see how you are doing! I hope that this will soon have you feeling better!!! Take care and listen to Dr. Frim. ;-)
Kathy
www.caringbridge.org/visit/kathydykstra
Kathy Dykstra <dykstras@mtco.com>
Marseilles, IL - Tuesday, March 4, 2008 10:31 PM CST

I'm so glad they moved up her surgery, I was a little worried when you said you had to wait til next week! She'll feel better soon!!!
Ellen and Sammi Robertson www.caringbridge.org/mi/sammijean <Scanmom@hotmail.com>
Wyandotte, MI - Tuesday, March 4, 2008 8:05 PM CST

Hi Baylie,
I will keep you in my prayers and I miss you so much!
Sitha Vallabhaneni <svallb@hotmail.com>
Carmel, IN us - Tuesday, March 4, 2008 7:07 PM CST

Hi Baylie,
I hope the surgery goes well and I'll miss you.
Shiva Vallbhaneni
Carmel, IN USA - Tuesday, March 4, 2008 7:01 PM CST

dear Bailye i hope that you will be ok after tomorrow .i love your bracelets and buttons too.good luck.
devynn <ndonnell@sbcglobal.net>
carmel, in usa - Tuesday, March 4, 2008 6:46 PM CST

Dear Baylie,
I will be missing you tommrow. I hope your surgery goes well tommrow!!
Your friend,Rachel
Rachel Kasper
Carmel, IN USA - Tuesday, March 4, 2008 6:45 PM CST

hi baylie hope everything goes well
love,
grant gold
grant gold
carmel, IN USA - Tuesday, March 4, 2008 6:37 PM CST

Dear Baylie:

I hope everything goes well tomorrow. I will be thinking about you. I can't wait to see you when you get back to school.

Love,
Tanner
Tanner Bender <gregbender@berryplastics.com>
Carmel, IN USA - Tuesday, March 4, 2008 6:28 PM CST

dear Baylie,good luck on your surgery tomorow.I will be thinking and praying for you.Your friend Alaina.
Alaina
Carmle, IN USA - Tuesday, March 4, 2008 6:04 PM CST

Dear Baylie,I am wishing you the best of luck!

Jenny
- Tuesday, March 4, 2008 5:16 PM CST

Dear Baylie,
We were checking out your website this afternoon in class. Everyone was very impressed!!! We wish you the best tomorrow, we will all be thinking of you. We are all going to wear one of your buttons and bracelets tomorrow to show you our support. We will miss you and hope to see you back in class soon!! Love, Mrs. Jacobs and your 3rd grade friends!!!!
Lacey Jacobs <ljacobs@ccs.k12.in.us>
Carmel, IN USA - Tuesday, March 4, 2008 12:44 AM CST

Baylie,
Congratulations on your first place award in your singing competition for the Carmel Arts Society! Wow, I am so proud of you! You are our Smoky Row Star! You rock!
You will be in our thoughts and prayers tomorrow! Please heal quickly so you can be back with us at school with us!
Love, Nurse Gwen
Mrs. Gwen Knipstein <gknipste@ccs.k12.in.us>
Carmel, IN USA - Tuesday, March 4, 2008 10:54 AM CST

Hi Baylie and Family, We are thinking and praying for you especially this week. Years ago my Dad had a shunt put in and I remember the feelings of nervousness etc. Try to keep a positive attitude. Watch lots of funny TV shows and movies. Isn't LAUGHTER the BEST MEDICINE?
Lots of Love from the Brownies
and Elizabeth and Mrs. Schumacher
Elizabeth and Mrs. Schumacher
Carmel, IN USA - Tuesday, March 4, 2008 10:38 AM CST

Hi Guys-
Bailey- Hang in there honey. Emily knows how you feel. You can do this- We will pray for a short stay and a quick trip then back home.
Tressie- stay strong.
Karen and Emily Cullen
Karen Cullen <briccull@yahoo.com>
- Tuesday, March 4, 2008 9:31 AM CST

Miss Baylie,
We will miss you terribly at school! You are such a brave and amazing young lady. And you always make me laugh. Get well soon so we can see your smiling face!
Mrs. Elliott
Elizabeth Elliott
Carmel, IN USA - Tuesday, March 4, 2008 8:31 AM CST

Dear Baylie,
we're thinking of you and offering all our prayers and best wishes for your surgery on Wed and beyond. Your strength and determination are an inspiration to us all. Big hugs to you from up in the Yukon,
Elsabe
Elsabe Kloppers
Haines Junction, YT Canada - Tuesday, March 4, 2008 1:52 AM CST

Hi Baylie,
I hope we see you at Comer. Cristina and I flew in to Chicago today and will be going to the RMH tomorrow morning. Then it's off to Comer to find out why Cristina's shunt isn't working.
Let us kow what room you are in so we can say hi!
Hugs,
Kathy and Cristina S
Kathy S
Yelm, WA - Tuesday, March 4, 2008 1:42 AM CST

Hi Baylie: Good luck with your revision on Wednesday. I'll be thinking about you, and hope that it goes well and that your recovery is a smooth one, with no complications! With the all important, the shunt behaving for a while so you can have a break!! U deserve it:)

www.caringbridge.org/visit/stefbarber
Hugz, from Canada
Stef
- Tuesday, March 4, 2008 0:01 AM CST

Hi Baylie,
I hope that surgery on Wed makes you feel better. I will be checking in to see how it went. You can beat this, you are very strong. BIG HUGS to you. Tracy
Tracy O
Winthrop Harbor, IL - Monday, March 3, 2008 10:44 PM CST

Good Luck with surgery on Wednesday!!!

Congrats on your 1st place in the singing contest! Gabe and Lindsay say HI! They sure did have a fun time playing with you!

HUGS!
The Hartman
www.caringbridge.org/visit/gabehartman
Michelle Wilson-Hartman <twinsmommy@mchsi.com>
DeMotte, IN - Monday, March 3, 2008 9:52 PM CST

Hi Baylie,
I'm glad that you are able to have the surgery sooner, but sad that you have to have surgery at all. I hope that it all works out wonderfully for you - I will be thinking of you and your family come Wednesday.

There is a website, www.asherandjacobsfriends.com that lists children's caringbridge sites as well as prayer requests and support for the families listed. If you would like your site listed, please visit and send in a registration form.

Good luck on Wednesday!
Ashley
Canada - Monday, March 3, 2008 9:42 PM CST

Hey Shuggie,
So you are off to Chicago! Please give Daniel a hug for me when you get there...I know you are not looking forward to another surgery....I am sorry baby....we all send you hugs....and hope ....that your headaches will not be so bad once you get the new shunt! We are all praying for you...and missig you...and wishing we could have seen you singing! I bet you were just AWESOME! You go girl! Our little star...when you get famous....don't forget me! I want tickets to all your concerts! :) Hugs Bay....we love ya...and hang tough ok!

glitter-graphics.com
Karen
- Monday, March 3, 2008 6:25 PM CST

CONGRATULATIONS ON THE TROPHY-GO GIRL!!!
GOOD LUCK WITH YOUR SURGERY,YOU`LL BE FEELING BETTER SOON.
TAKE CARE,JANE
JANE <janemartin02@comcast.net>
BERWYN, IL USA - Monday, March 3, 2008 5:56 PM CST

OK, I'm not computer savvy....Here's the pictures! Tressie, No laughing! :)

glitter-graphics.com

glitter-graphics.com

Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Monday, March 3, 2008 5:14 PM CST

Baylie,
We're so glad that you could get into surgery sooner...that means you'll get to feel better sooner!!! We'll keep praying for you and hope things are uneventful :)
[url=http://www.glitter-graphics.com][img]http://dl5.glitter-graphics.net/pub/4/4255kjemm9xqov.gif[/img][/url]
Whitney said nothing like a little Sponge Bob to help lift your spirits.
[url=http://www.glitter-graphics.com][img]http://dl2.glitter-graphics.net/pub/860/860422gdbmr6gn7x.gif[/img][/url]
The Wagenbach's~Jon, Rebekah, Nichole, Whitney, Jordan, & Ryan www.caringbridge.org/visit/whitneyryanwagenbach
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Monday, March 3, 2008 5:07 PM CST

Hi Baylie, I am so happy that you took first place in your singing competition!!! I am so sorry that you need another surgery. I am hoping and praying that your surgery goes well on Wednesday and that you feel better soon!!!

God Bless You!!
Take Good Care!!!
Good Luck!!!
All My LOVE and PRAYERS,
Chantelle
XOXOXOXOXOXOXO

www.caringbridge.org/visit/chantelle
Chantelle Gavin <double_trouble_80@hotmail.com>
Oshawa, On Canada - Monday, March 3, 2008 4:53 PM CST

We are so sorry that you are going to have to have another surgery. I know it has to be hard I watch cassidy as she feels like she isnt normal either...but all of you are normal just sometimes things dont go the way we would like for them to and know please that you are in our thoughts and prayers
www.caringbridge.org/visit/cassidythorn

Stacey Thorn <tinkerbell9726@yahoo.com>
gilbertsville, ky United States - Monday, March 3, 2008 10:18 AM CST

Hi, Baylie!

I'm sorry that you have to have surgery, and I'm especially sorry that it makes you so sad. I'm praying that it will go well and you won't have to stay in the hospital very long this time. Try to remember that so many people you have never met are thinking of you and wishing you happiness.

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Sunday, March 2, 2008 9:13 PM CST

Baylie - Thanks for playing with me on Thursday. It was great to meet someone just like me and I had a lot of fun. Good luck with your surgery, I know you pull through with flying colors. Please keep in touch with me.

Kaitlyn
CP: kailtyn
Kaitlyn Caraynoff <erkellyc@yahoo.com>
Minooka, IL USA - Sunday, March 2, 2008 8:26 PM CST

good luck with your upcoming surgery.it should make you feel better.hope the hospital stay is short and you get out of there quick.
hugs!!
jane
jane <janemartin02@comcast.net>
berwyn, IL usa - Sunday, March 2, 2008 11:38 AM CST

Baylie,
Sending you lots of prayers, hugs and kisses! :)

Love~The Wagenbach's~Jon, Rebekah, Nichole, Whitney, Jordan, & Ryan www.caringbridge.org/visit/whitneyryanwagenbach
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Saturday, March 1, 2008 11:03 PM CST

Dear Baylie, What a strong and powerful young lady you are. I can only imagine what you are going through. I know you will feel better once your surgery is over. I know the loss of your special nurse makes you sad, but I also know that your doctor will find someone special to replace her. And that person is someone you will be able to trust too. Your doctor cares too much about you not to get someone good and special for you.
Christy
Scotts Valley, CA United States - Saturday, March 1, 2008 11:10 AM CST

Hi Baylie! I'm sorry that you have to have surgery to fix your shunt, but I'm glad that Dr. frim figured out what was causing you to feel so bad. I know that surgery is NOT fun, but after you are home and feeling well you will be able to do so much more and be more 'normal' again. Baylie I think you are an amazing girl. Even though you have chiari and hate it, you have stepped up to raise money for research and instead of just being worried about yourself you are always worried about your friends too! You are one special girl, not many girls your age would do what you have. I'm praying for you and I know you will be just fine when the surgery time comes because God is with you and is watching over you! Here's a big cyber hug!

Hugs,
Cristina
www.caringbridge.org/visit/cristinas
Cristina <teenygurl88@hotmail.com>
Yelm, WA USA - Friday, February 29, 2008 10:47 PM CST

Baylie,
I'm so sorry that you have to have your shunt fixed! I know that is scary and frustrating!!! The bright spot to it, is that you at least have the WONDERFUL Dr. Frim to do it. We are not all that lucky! But still, it is a big surgery and I'm so sorry. Maybe I'll be able to come up and see you if you are feeling up to it! It would be nice to meet you!

Oh, I hate ERs too! I always get the migraine paper too. I'm like this is SO not a migraine! Last time I was 7 days post op and had to wait in the waiting room for 2 1/2 hours before they took me back. That was the longest I had been out of bed since my surgery -- needless to say I was miserable by then. They took a kid needing a drug test before me! Oi, they just don't get it. Then I had to show the nurse how my shunt tubing ran from where to where. Now that is scary! They do need some more education on these conditions.

You'll ALL be in my thoughts and prayers! I'm hoping and praying that this will be what makes a huge difference for how Baylie feels! Here's to feeling "normal" again!
Kathy
www.caringbridge.org/visit/kathydykstra

Kathy Dykstra <dykstras@mtco.com>
Marseilles, IL USA - Friday, February 29, 2008 10:29 PM CST

Hi Baylie! We are sorry to hear that you have to have yet another surgery for your shunt.... but we know that you will feel better and we look forward to your next trip to to Houston. We can play guitar hero! Much love!
Clare and Ben
Houston , Tx - Friday, February 29, 2008 5:24 PM CST

Dear Baylie,
I love your new music on your website! It is very cool! Who is the singer/group?
I'm sorry to hear about your upcoming surgery, but you will feel better afterwards and not have so much pain! I'll be praying for you and your family and Dr. Frimm! He is the best! I have March 12 circled on my calendar and will send prayers your way, hugs and love too!
I'll see you next week at school. "Safe travel" back home to Carmel!
Love you! Nurse Gwen
Mrs. Gwen Knipstein <gknipste@ccs.k12.in.us>
Carmel, IN USA - Friday, February 29, 2008 3:20 PM CST

Hope you get your new boyfriend Jack O'hara
Lovvvvvvvvvvvvvvveeeeeeeeeeeeeeeeee
Meredith,
Meredith Noss <noss@ameritech.net>
Carmel, IN United states - Friday, February 29, 2008 3:20 PM CST

I think that baylie is the best friend ever in the whole entire universe. P.S. Hope you get your new boyfriend Jack O'hara.
Meredith Noss <noss@ameritech.net>
Carmel, IN United states - Friday, February 29, 2008 2:53 PM CST

Hey Girl! I've never been to your webpage with the speakers on before. You have music that is just too cool! I'm sorry about your surgery, but stay focus on what happens afterwards. The proper shunt has helped you sooo much. You can get through it!!! You are the toughest girl in the whole world!

I wish I knew how to do the cute graphics additions, so I could find somwthing to make you smile. Please let us know if we can send you something special from TX. It is Go Texan day you know.

Hang in there (You too Tressie!)
The Paluchs
Houston, TX USA - Friday, February 29, 2008 12:22 AM CST

Baylie,
know that you are loved and a VERY special girl. I know it's hard to understand why things in your life happen like they do, like your illness, but if it wasn't for you, Chiari wouldn't be on the research path it is with all you have done to raise money for a cure. You have started something around the world and a great thing for others that have Chiari. Keep your head up high and remember that you are VERY VERY LOVED!!!!!!!!!!
Lori, Chris, Kayla, Nicholas and baby #3 <lori@miraclekayla.com>
Westville, IN USA - Friday, February 29, 2008 10:51 AM CST

Greetings Baylie from foggy Alaska. I am sorry to hear that you have to have another surgery. While surgery can be scary, try to focus on the end result - you will feel better! I've had two surgeries on both knees, the most recent one being the day after Christmas. I think sometimes when you know what to expect, it can make the surgery less desirable. You are a brave little girl and are loved by so many people. You are like a angel on earth and have done so much good for mankind. We love you and will be thinking about you on the day of your surgery. PS. My grandma turns 91 next week. She lives in Washington State with my parents on their 100 ft. tugboat. Can you imagine what it would be like and how much you have seen in 91 years!! xoxo Debbie K.
Debbie K.
Juneau, AK - Friday, February 29, 2008 10:18 AM CST

Hey Baylie,
I will be praying your shunt surgery goes well. I know what its like to loose a nurse that you love, I had a hard time when I was younger letting anybody tap my shunt other than one or two people.
www.caringbridge.org/visit/ashleyreber
Ashley Reber <alrhm@dnet.net>
Cullowhee, NC USA - Friday, February 29, 2008 9:34 AM CST

Hi Baylie -
I am sad to hear that you will need to endure another surgery to repair your broken stunt - But, I'm happy to know that when it is over you will be feeling better again soon. Good luck and hang in there! You are the bravest girl that I know!
Nicole
Nicole
- Friday, February 29, 2008 8:27 AM CST

Baylie -
I just learned of your upcoming surgery. Please know that we will be thinking of you and praying for you on March 12th. You are a wonderful girl with a such a great love of life. I hope your hospital stay goes quickly and you'll be back home ASAP! We all love you! Take one day at a time.
Judi, Phil, Lauren and Michael <judiweb@aol.com>
Carmel, IN - Friday, February 29, 2008 8:16 AM CST

Hi Baylie,
We are thinking about you and praying for you.
Love, Megan, Peter, Baby Julian, Stephanie and Chris
The Clines
Carmel, IN - Friday, February 29, 2008 7:22 AM CST

Hey Baylie,
Sorry to hear you have to have another surgery. Alex, Mr. Mike, Michael and I will all keep you in our prayers. You always have to remember that YOU are helping to find a cure!
Love,
Mrs. Renee, Mr. Mike, Alex and Michael
Renee Harrington <renee_harrington@sbcglobal.net>
Cypress, TX USA - Friday, February 29, 2008 5:58 AM CST

Hi Baylie
I'm so sorry that you've got to have yet another surgery. Just think, it wont be too much longer and you will be feeling much better.
Hang in there!
Lydia
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore <lydiablackmore@blueyonder.co.uk>
- Friday, February 29, 2008 5:00 AM CST

Hi Baylie: That sux you have to have another shunt revison. I know how you feel!!! I'm thinking about you and sending you huge understanding comforting hugs!!
www.caringbridge.org/visit/stefbarber
Stef
Victoria, bc Canada - Thursday, February 28, 2008 11:56 PM CST

Hi Baylie,
I'm so sorry about the bad news and the surgery! You're a very special girl and this is bad news but it will be okay! I didn't know Sheri was leaving either and I'll miss her too.
I wore your new "special edition" Obama shirt to work today under my sweater (so it wouldn't look like I was campaigning at the university) and showed it to some selected folks, who totally loved it! I love it too (and it was much admired during a choir rehearsal Monday evening). Hang in there honey--everything will get better. Love, Jeanne
Jeanne Swack <jswack@wisc.edu>
Madison, WI 53711 - Thursday, February 28, 2008 11:10 PM CST

Sorry you got a double dose of bad news Bay. I am sad you are hurting and sad about Sheri too! We will survive both, it will just take some getting used to. I will come check on you at Comer, ok? Maybe you can order me some cheese sticks since I never get them at the big people's hospital! I love you babe!

Love, Ann

caringbridge.org/visit/annbanfield
Ann <ann_banfield@glenbard.org>
- Thursday, February 28, 2008 9:09 PM CST

Hey there girls! Hang in there and Baylie remember it is not always going to be a long stay. Lishs last few revisions were pop in and pop out! Altho we have done the extended stays too, there's always hope for the shorter ones..Just one ? kiddo, Why did you have to wait excatly 1 month after Lish was in the hospital to break..UGH! LoL.. You guys could have been in the hospital togeather and could have had a slumber party :) or at least a blast in the playroom like many times before. Many hugs and lots of positive thoughts!
Love ya's
Patty N Lish
- Thursday, February 28, 2008 8:57 PM CST

Hey Baylie! I think you are such an amazing little person and you have definately inspired me to help raise money for the IHRF and other organizations to find a cure for PTC. I hope everything gets better for you and that you can make an impact on more people. Thank You and good luck sweetie!
Abby McCall <an.mccall@yahoo.com>
Lenoir , NC USA - Thursday, February 28, 2008 5:24 PM CST

Hey Baylie! This is Alex's Nana from Houston, Tx. Sending you Texas size hugs and love. Alex has been having a rough time lately. Thanks to your Mom (HI TRESSIE) we were able to get thru Alex's last ordeal a little smoother.
Hope you are doing well. Come back to Texas soon and give us a call. Take care!
Nana Sue <RAADVP@AOL.COM >
La Porte, TX USA - Wednesday, February 27, 2008 2:51 PM CST

Greetings Baylie from rainy Alaska! You can tell spring is hear as it is getting lighter earlier in the morning and staying lighter later every evening. Did you know in the summer time it only gets dark between the hours of midnight-4:00 a.m. - crazy huh. Sorry you are in such pain, I will pray that Dr. Frim is able to help you - you are a tough girl but also extremely sensitive. You are definately a gift from God. Take care and give your sisters a hug, God Bless, Debbie K.
Debbie K.
Juneau, AK - Wednesday, February 27, 2008 9:47 AM CST

You have been on my mind for the last few days & honsetley it must be just God making sure you get extra hugs & loves coming your way. About a year ago I came across your site and ordered of course. But God has lead me back to you to let you know that we include you in our daily Blessing! You are a strong gift from God don't forget the love you have & help you have given to others,If I thought thier was something I could do to change any of your hurts I would! God bless Tina
Tina VanDerVeer <snowfallen67@yahoo.com>
Vancouver, Wa usa - Wednesday, February 27, 2008 0:52 AM CST

sorry you are feeling so bad!!
love jane
jane <janemartin02@comcast.net>
berwyn, Il usa - Sunday, February 24, 2008 6:18 PM CST

Hey Baylie! we're thinking of you. Take care this week..hope all goes well with Dr Frim. Come see us soon, I got guitar hero!
Clare and Ben
Houston, Tx USA - Sunday, February 24, 2008 2:14 PM CST

Dear Miss. Baylie, we'll pray extra for you this week. I know Dr. Frim will work his magic for you. Hang in there girlie.

Tressie, maybe you have found your new job - educating ER personnel in their jobs!
Cherri, Amy & Jackie
Houston, TX USA - Sunday, February 24, 2008 8:29 AM CST

Baylie,
Sorry your not feeling well. Sure glad that your mom knows so much about your shunt...more than the ER docs anyway :) Praying that Dr. Frim will be able to give you some relief! Love Ya!
The Wagenbachs~Jon, Rebekah, Nichole, Whitney, Jordan, & Ryan www.caringbridge.org/visit/whitneyryanwagenbach
www.chiaribracelets.com
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Saturday, February 23, 2008 10:33 PM CST

Hi Baylie...My daughter has an LA shunt, even more rare than the LP. Luckily for us, our hospital does a ton of shunts, but they even look at us crazy when we say LA. We saw Dr Frim for a second opinion about 4 years ago, we live in Detroit but took the train to Chicago. We thought he was great. Take care and I hope your headaches go away soon. Sam has them every day too and they're not migraines...ARGH..
Ellen and Sammi Robertson www.caringbridge.org/mi/sammijean <Scanmom@hotmail.com>
Wyandotte, MI - Saturday, February 23, 2008 6:50 PM CST

Hi Tressie and Baylie! I'm glad you are at home again and pray you are able to make it until Thursday when you can see Dr. Frim. I hate going to the ER, especially when they have no idea what an LP shunt is! I had an x-ray tech tell me there was something very wrong and was all upset because he couldn't find the tubing in my brain either! He wouldn't believe Mom and I that I didn't have a VP shunt and had to call the doctor. I laugh about it now but at the time it sure was frustrating! I'm praying for you guys!

Hugs,
Cristina
www.caringbridge.org/visit/cristinas
Cristina <teenygurl88@hotmail.com>
Yelm, WA USA - Saturday, February 23, 2008 6:24 PM CST

Hi Baylie
I'm sorry to hear that you are struggling with pain. I hope your appt gooes well next week and that your shunt is working okay. feel better soon!
Lydia
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore
- Friday, February 22, 2008 10:34 AM CST

Hi Baylie,
My daughter went to a bracelet making party last night in Indianapolis to help your campaign. I had her purchase 5 of the bracelets for me. She thinks there might be another party in the future and I'm sure I will get more then also. You are an inspiration to so many! I will keep you in my prayers. God bless you and your family.

Debbie Hoffman
Evansville, IN USA - Friday, February 22, 2008 7:27 AM CST

Hi Baylie,
My name is Avery. I am 6 yrs old and also have chiari. Dr. Frim is my doctor too! He did my decompression surgery on December 5th 2007. I am sorry to hear that you are not feeling great right now. I hope Dr. Frim can make you feel better real soon. My mom talked to your mom and told her that my sister and I would like to help you out by making some bracelets. Let me know if there is anything special you want us to put on the bracelets...we know you like blue beads. My mom is going to take us shopping to get the beads and we will get working on them real soon.
We ordered a tshirt and I am going to send you a picture of me in it real soon. Good luck next week, we will be thinking of you!

Avery <d.maty@comcast.net>
- Thursday, February 21, 2008 7:47 PM CST

glitter-graphics.com
mom <tressieowen@hotmail.com>
- Tuesday, February 19, 2008 7:53 PM CST

Just wondering how it's going? Hope the Trip to Dr. Frim provides some relief for Baylie! Hugs to all...me

glitter-graphics.com
Karen
Fayetteville, ga USA - Monday, February 18, 2008 2:28 PM CST

glitter-graphics.com
Karen
Fayetteville, GA USA - Monday, February 18, 2008 2:26 PM CST

jadzm wesrs tsio
disas uhsj
cixzo fests mdzer
m0ri0g7m1hw@yahoo.co.uk

maru star <m0ri0g7m1hw@yahoo.co.uk>
gj, tx uk - Monday, February 18, 2008 3:01 AM CST

I hope you had a great Valentine's Baylie!!! I am very sorry that you are not feeling well. You are so strong and brave!! I hope that Dr. Firm can help you!! You are in my thoughts and prayers!!

God Bless You!!
Take Good Car7e!!
All My LOVE and PRAYERS,
Chantelle
XOXOXOXOXOXOXO

www.carringbridge.org/visit/chantelle
Chantelle Gavin <double_trouble_80@hotmail.com>
Oshawa, On Canada - Saturday, February 16, 2008 12:22 AM CST

HAPPY VALENTINE`S DAY!HOPE YOU GOT LOTS OF VALENTINE`S
TAKE CARE,JANE
JANE <janemartin02@comcast.net>
BERWYN, IL USA - Thursday, February 14, 2008 9:36 PM CST

Happy Valentines Day Baliey!!!!!!!!!!!! You need to come and visit the Kingwood Strutters again!! That was so much fun!!!! I hope you are doing well. We love and miss you alot!!

love you,
brittnee and victoria
Brittnee and Victoria
Kingwood, TX United States - Thursday, February 14, 2008 10:48 AM CST

Hey Baylie!! Happy Valentines Day!! I am a 9th grader at Kingwood High and my speech class and I are proud to dedicate a project to your foundation! You're such an inspiration.
Emily
Kingwood, Tx USA - Thursday, February 14, 2008 10:10 AM CST

Happy Valentines Day! Hope you are doing well! :)

Melissa Boice <leapingmnky1987@yahoo.com>
Kingwood, TX USA - Thursday, February 14, 2008 10:06 AM CST

Happy Valentines Day!
hope you feel ok!

Love Amy
Kingwood Strutter
Amy
Kingwood, tx U.S. - Thursday, February 14, 2008 10:05 AM CST

Greetings Baylie from rainy and VERY icy Alaska! Just a short note to wish you, your sisters, and your mom a happy Valentines Day! Don't eat too much chocolate :>)
Debbie K.
Juneau, AK - Thursday, February 14, 2008 9:57 AM CST

Happy Valentine's Day! I love you ladies! Hope you are hanging in there!

LOve, Ann

caringbridge.org/visit/annbanfield
Ann <ann_banfield@glenbard.org>
- Wednesday, February 13, 2008 6:44 PM CST

Hey Baylie....
I know you have been feeling kinda yucky....I am soooo sorry for that....but I am so grateful you continue to get out there and do things to bring awareness to Chiari! Thanks Bay! For doing the shoot and I know you were feeling really bad! You are one tough cookie little one! :)
Hugs to all....and soon is mama's birthday right??? What are you going to do to celebrate her birthday??? :)
Love you all!
Karen, Michael, Matt and Kalani
Karen
Fayetteville, GA USA - Wednesday, February 13, 2008 7:07 AM CST

Hi Baylie! This is your new friend Connie from the Ronald McDonald House. It was so nice to meet you and your mom on Saturday. I hope you had an exciting afternoon of filming! It was fun to see your picture on the back of the Tribune magazine this Sunday, and I will keep my eye on your Web site so I can get one of your special edition t-shirts as soon as they arrive.
Connie <cfritsche@gmail.com>
Chicago, IL USA - Monday, February 11, 2008 10:59 AM CST

Sorry your having such a hard time, Baylie. Headaches really suck big time! Mine have been bad too because of the cold fronts coming through...but I live in Michigan so what are you gonna do? Hope things start to look up for you soon,

Love and Prayers, Sammi Jean www.caringbridge.org/mi/sammijean
Sammi Jean Robertson <NeuroGirl716@hotmail.com>
Wyandotte, Michigan United Statesd - Sunday, February 10, 2008 9:29 PM CST

HI!JUST SAW THE ARTICLE IN TODAY`S TRIBUNE MAGAZINE.(ON THE BACK PG)WITH THE ARTICLE OF BAYLIE.
STAY WARM!
TAKE CARE,JANE
JANE MARTIN <janemartin02@comcast.net>
BERWYN, IL USA - Sunday, February 10, 2008 11:43 AM CST

just stopping in to say hi!
im sorry to hear about your pain-ive been bad too lately. no fun.
i just want you to know that you are in my prayers & you are such an inspiration to so many people! i loved the candles-i got them last year-and one of them i didnt burn correctly so i have a lot of the wax left over-so i am going to get a wic (sp?) and re-make the candle. :)

hugs,
shannon :) www.caringbridge.org/shmurray2
Shannon Murray <love80s2@hotmail.com>
East Stroudsburg, pa - Sunday, February 10, 2008 6:20 AM CST

Hello, Baylie!
I'm 28 years old and also dealing with pseudotumor cerebri. I think you're a remarkable young lady for trying so hard to make a difference while dealing with such a terrible condition. Thank you, from the bottom of my heart, for making such donations, and getting us all closer to a cure. I wish you the very best!
Jennifer Bailey <southern_comfort7926@yahoo.com>
Pine Knot, KY. USA - Saturday, February 9, 2008 10:49 PM CST

Greetings Baylie from cold and very, very windy Alaska! It has been so windy here that the windchill is 30 below zerow - YIKES! I'm ready to move to Florida. Hope you all are feeling better and can resume to your regular activities. Stay safe and warm.
Debbie K
Juneau, AK - Friday, February 8, 2008 10:10 AM CST

HOPE YOU ALL FEEL BETTER SOON.
TAKE CARE,JANE
JANE <janemartin02@comcast.net>
BERWYN, IL USA - Wednesday, February 6, 2008 9:56 PM CST

Greetings Baylie from Snowy and very cold Alaska (brrr)! Sorry to hear your family has been sick. Our house too was struct will illness - yuck! Stay warm, sleep and eat lots of chicken soup...oh yeah, don't forget to get caught up on some good funny movies. Take care!
Debbie K.
Juneau, AK - Wednesday, February 6, 2008 10:42 AM CST

mom <tressieowen@hotmail.com>
- Monday, February 4, 2008 1:45 PM CST

take care
Roz from ASAP
- Monday, February 4, 2008 10:56 AM CST

she is wiser beyond her years that is for sure! she is an amazing little girl! well, not so little now that she is 9 huh! wow-how the years go by!
well, i just wanted to check in on her & say hey! i hope she is doing well. you are all in my prayers!!
big gentle hugs,

shannon :) www.caringbridge.org/shmurray2

Shannon Murray <love80s2@hotmail.com>
East Stroudsburg, pa - Sunday, February 3, 2008 10:41 AM CST

Hi Baylie! I saw some pictures of you and it looks as though you're doing GREAT! You just keep smilin'. I still have my bracelet and think of you when I wear it.
Take care!!!
Mrs. Cabrera
Cypress, TX USA - Wednesday, January 30, 2008 4:27 PM CST

Hi Baylie, Today in the mail.....I had a really special surprise!! My shirt arrived:) THANK YOU SO MUCH!! It's just PERFECT, just totally me, my color!!! I know we rather not be a proud owner of a shirt saying we had brain surgery, but this shirt shows and proved how much we have gone through with our fight for our lives. Thank you also for the amazing blue perfect braclet!!

*Hugz*
www.caribgbridge.org/visit/stefbarber
stef <stefbarber@shaw.ca>
victoria, bc canada - Wednesday, January 30, 2008 3:57 PM CST

Hey Bay! HAPPY BIRHTDAY! I hope it was the best one yet! And you know what sweetie....being sick all your life doesn't make you different in a bad way, it makes you special. God made each of us different and as sad as I am that wonderful people like you hurt everyday, I am thankful that it brought you and me together as friends. I love you kiddo!

Love Always, Ann

caringbridge.org/visit/annbanfield
Ann <ann_banfield@glenbard.org>
- Wednesday, January 30, 2008 3:52 PM CST

Happy Birthday! We hope you have a great day ~ pain free too!
Kaci, Madi & Austin King <kaciking@hotmail.com>
Bellefontaine, OH - Wednesday, January 30, 2008 9:32 AM CST

Happy! Happy!! Happy!!! Birthday!!!! We'll make a cake here for you. If you don't mind, Bullit will share it too. His birthday is Friday. Woof. Woof.
Have a Fabulous Day!
Jackie, Amy, & Cherri
Houston, TX USA - Wednesday, January 30, 2008 7:26 AM CST

Happy Birthday Baylie!! Wow only one more year and you'll be in double digits! I hope that you had a great birthday party with your friends earlier and that today was a great day! I hope you got everything you wished for and then some! I'm praying for you and think about you all the time!

Hugs,
Cristina
www.caringbridge.og/visit/cristinas
Cristina <teenygurl88@hotmail.com>
Yelm, WA USA - Tuesday, January 29, 2008 10:22 PM CST

Happy Birthday Baylie!!!
Alyse
Chicago , IL - Tuesday, January 29, 2008 9:03 PM CST

Happy Birthday to you, Happy Birthday to you, you live in zoo, you look like a monkey aaaaaannnnnndddd you smell like one too!!!! LOL ..For real, Baylie we love you and hope you have the best Birthday!!
Good going Mom for helping her get down this long and winding road! You both enjoy today

Love ya both!
Patty N Lish
- Tuesday, January 29, 2008 8:48 PM CST

HAPPY BIRTHDAY BAYLIE!!!!!! We hope you had a wonderful day filled with lots of fun. It is sad that you have been sick since you were little, but because you are sick you have been such an inspiration to so many other children and adults. You have accomplished great things in your 9 years, and we're glad to know you!!! Keep up the good work! P.S. Whitney LOVES the new shirt! :)
Love~Jon, Rebekah, Nichole, Whitney, Jordan, & Ryan
www.caringbridge.org/visit/whitneyryanwagenbach
www.chiaribracelets.com
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Tuesday, January 29, 2008 8:40 PM CST

Happy Birthday Baylie!!!

hugs!
Michelle, Gabe, Lindsay, Hannah and Fayeth =)
www.caringbridge.org/visit/gabehartman
Michelle <twinsmommy@mchsi.com>
- Tuesday, January 29, 2008 8:09 PM CST

Hi Baylie!
HAPPY BIRTHDAY! I hope you have a great day!
Celebrate and enjoy,
Nicole
Nicole
New York, NY USA - Tuesday, January 29, 2008 4:55 PM CST

HAPPY BIRTHDAY BAYLIE!!!! AND HAVE A PAINFREE DAY WITH LOTS OF PRESENTS AND CAKE!!! Love, Jeanne and Mel the Cat in Madison, Wisconsin
Jeanne Swack <jswack@wisc.edu>
Madison, WI USA - Tuesday, January 29, 2008 4:38 PM CST

Happy Birthday Baylie!!!!!!! I hope you have a great day:)
I know how you feel, because I've had Spina Bifida, Hydrocephalus, and Chiari all my life too. Somewhere inside of us we just have to learn to fight the tough fight put in our lives:)

Keep up your amazing work!!!!!

www.caringbridge.org/visit/stefbarber
Stef <stefbarber@shaw.ca>
Victoria, BC Canada - Tuesday, January 29, 2008 4:14 PM CST

Happy Birthday Baylie!

Your BFF--Meredith

Meredith Noss <noss@ameritech.net>
Carmel, IN United States - Tuesday, January 29, 2008 3:59 PM CST

glitter-graphics.com
mom <tressieowen@hotmail.com>
- Tuesday, January 29, 2008 3:54 PM CST

glitter-graphics.com
mom <tressieowen@hotmail.com>
- Tuesday, January 29, 2008 3:50 PM CST

glitter-graphics.com
Mom <tressieowen@hotmail.com>
- Tuesday, January 29, 2008 3:47 PM CST

Mommy, Abbey and Cidney
Tressie <tressieowen@hotmail.com>
- Tuesday, January 29, 2008 3:40 PM CST

Happy Happy Birthday Baylie hope your Birthday is a great one. Love you Mimi & Hiram
Margarita Ortiz
Chicago, IL USA - Tuesday, January 29, 2008 3:19 PM CST

Happy Birthday...it's your birthday....happy happy BIRTHDAY TO YOU....love you bay!!! Karen, Michael, Matt and Kalani...

Karen <handymanforhire@comcast.net>
Fayetteville, ga - Tuesday, January 29, 2008 1:06 PM CST

Happy Birthday Baylie!!! I'm glad to hear that you were able to enjy your party. I hope you are feeling better.
Lydia
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore <lydiablackmore@blueyonder.co.uk>
United Kingdom - Tuesday, January 29, 2008 1:05 PM CST

Happy Birthday...it's your birthday....happy happy BIRTHDAY TO YOU....love you bay!!! Karen, Michael, Matt and Kalani...

glitter-graphics.com
Karen <handymanforhire@comcast.net>
Fayetteville, ga - Tuesday, January 29, 2008 9:52 AM CST

Greetings Baylie from VERY cold and windy Alaska! I understand it is your birthday today. Sounds like you had a awesome party over the weekend. We don't have Embassy Suits in Alaska but I have stayed in them before and they are luxurious! Have a very special day and know there are a lot of people who love and are praying for you.
Debbie K.
Juneau, AK - Tuesday, January 29, 2008 9:51 AM CST

HAPPY BIRTHDAY BAYLIE!!!
YOUR PARTY SOUNDED AWESOME.
TAKE CARE,JANE
JANE <janemartin02@comcast.net>
BERWYN, iL USA - Monday, January 28, 2008 2:35 PM CST

Happy Birthday Baylie! I hope you're feeling good!
Kimi Sorensen
Lake Forest, Il 60045 - Monday, January 28, 2008 9:53 AM CST

Hi Baylie!! I'm glad you had a good birthday party with your friends:) Sounds like it was A LOT of fun:) I hope you have a great birthday and have a great year ahead. Keep up your amazing work!!!

www.caringbridge.org/visit/stefbarber
Stef
Victoria, BC Canada - Sunday, January 27, 2008 2:23 PM CST

Happy Belated Birthday Baylie!!!!! I am so glad you enjoyed your birthday. You are such a strong and brave young girl. I hope that you feel better soon!

God Bless You!!!
Take Good Care!!
ALL MY LOVE AND PRAYERS ALWAYS!!!!
Chantelle
XOXOXOXOXOXOXOXO

www.caringbridge.org/visit/chantelle
Chantelle Gavin <double_trouble_80@hotmail.com>
Oshawa, On Canada - Sunday, January 27, 2008 12:05 AM CST

you are such a brave girl and i
will always remember you and how
much you do for yourself i hope
you get well soon
Lauren and Jami Underwood KIngwood Strutters <lilmisminey1017@aol.com>
kingwood, texas u.s.a. - Friday, January 25, 2008 9:51 PM CST

hey baylie i just wanted to say i will always put you in my prayers and neber forget to tell people to pray! I hope god will help you fight off your sickness
Jami Underwood KIngwood Strutters <jlustar1017@aol.com>
kingwood, Texas u.s. - Thursday, January 24, 2008 10:14 PM CST

Hey Baylie,
Hope you had a good holiday. You are such a brave girl! I am so proud of you!
Love,
Lindsey and Hailey
Kingwood Strutters
Lindsey and Hailey <duckigrl707@aim.com>
Kingwood, Texas United States - Thursday, January 24, 2008 9:27 PM CST

someone has a Birthday coming up. So proud of you Baylie.

mom
Tressie <tressieowen@hotmail.com>
- Thursday, January 24, 2008 2:33 PM CST

I was diganised with chiari malformation in December,2006 I had 1st surgert December 28,2006. I had to have 2nd surgery May,2007 due to spinalfluid leaking at the suter. I have stuggled allmy life and finally found a doctor that took me seriously and found the problem. I am somewhat better but I still stuggle each day with syptoms. I was very happy to see that someone is trying to get the word out about this condition. I want to get something started in my local area just not sure where to start.
Darlene Stone
Ramsey, IN US - Monday, January 21, 2008 8:25 AM CST

jimfd kmfao fdmo

kmio mintqz
maru star <m0gm0p6p7fx@yahoo.co.uk>
bz, kj uk - Monday, January 21, 2008 0:34 AM CST

Hi Baylie just wanted to show some love and support from a local Houstonian with Chiari. Thanks to you and your family for doing all you do to spread awareness. I didn't realize your family lived in Houston. You are so very lucky to have a great family to help with your fight. I will add your information to my awareness page I have on myspace.

Hugs of care your way,
Michelle aka "AChiariBabe"
Michelle Rock <faithhunt@aol.com>
Houston, Tx US - Saturday, January 19, 2008 7:23 PM CST

Hi Baylie, I can't tell you how proud I'm of you for all you do to help your friends, despite your pain and daily struggles. I have ordered a shirt resently and will wear it proudly, being that I have had at least 10 brain surgeries for Hydrocephalus. Baylie I know on a daily basic what pain is like too: I have Spina Bifida, Hydrocephalus, Slit Ventricle Syndrome, Arnold Chiari and chronic pain. I don't know of any other 8, almost 9 yr old that thinks about others before themselves, raising so much money, that you don't even realize how much it is making a difference even if your friends and you are still in pain. I know that life isn't fair, but somehow we have to find it in ourselve to keep fighting the courageous fight put in front of us.

You are amazing Baylie and I hope that you have a wonderful birthday, even if you have such bad pain. I was in the hospital for my last birthday having had brain surgery for my shunt and to put in a gravity valuve for my svs.

www.caringbridge.org/visit/stefbarber

*Hugs*
Your friend
Stef
Victoria, BC Canada - Friday, January 18, 2008 10:02 PM CST

Baylie! I have been looking at all the wonderful things you have done to help get what a Chiari Malformation is to the public! You have been through alot and I am there with you all the way! When I was little I always felt very dizzy when i would lie down on my back, all the doctors thought i was crazy, but I persisted and found out that I also had a Chiari. I hope you know that you are a very brave girl to be going through all the pain you must have, and I lend you my strength. Stay Strong Baylie, things will get better.
Brendan <Bigbadbagpiper@gmail.com>
NY USA - Thursday, January 17, 2008 10:25 PM CST

Dear Baylie
I can tell what a special little girl you are. I read your web page and orderd some bracelets...They look very pretty. My daughter who is 5 will be excited to wear them. Keep on fighting and don't give up. God is with you & your family. We do not always know what is in his plan but I know he loves you very much. You have done so much to help find a cure for your disease. You have accomplished more in you life than most adults ever dream of doing. I will pray for you and your family. You have lots of support and prayrs here in Knigwood and all over the world! God Bless~

Carmen Bezner <cbezner@wt.net>
Kingwood, TX USA - Wednesday, January 16, 2008 10:12 PM CST

Hello!
Hang in there Baylie! I am so proud of you! I wish that i could help as many people as you have helped! You are such an inspiration!
Love, Merideth (Kingwood Strutter)
Merideth Seiler <mer.seiler@hotmail.com>
- Wednesday, January 16, 2008 4:58 PM CST

SORRY I SPELLED YOUR NAME WRONG.I`M SO SORRY.DOING HOMEWORK WITH MY DAUGHTER AND SENDING THE EMAIL.
SO SORRY
.TAKE CARE,JANE
JANEMARTIN02@COMCAST.NET <janemartin02@comcast.net>
BERWYN, iL USA - Wednesday, January 16, 2008 4:08 PM CST

BAILEY,YOU ARE 1 SPECIAL GIRL AND YOU DO MAKE A DIFFERENCE TO MANY CHILDREN OUT THERE.I WISH MORE WOULD BE DONE TO HELP YOU.
TAKE CARE, THE MARTIN`S
JANEMARTIN <janemartin02@comcast.net>
BERWYN, IL USA - Wednesday, January 16, 2008 4:05 PM CST

Hi Baylie - Stacey's Dance studio let us know about your site and about you. You are in our thoughts and prayers and thank you for being an inspiration to all of us.
Julie Staus
Kingwood, TX USA - Wednesday, January 16, 2008 11:58 AM CST

Hi Baylie -
It's been awhile since I've been to your website. boo to me! I hope you and your sister's are doing well. :-)

I'm so proud of you for all the work you do to help find a cure for Chairi. You go Girl!!

Big Hugs and Hearts,
Nicole
Nicole
New Y ork, NY - Wednesday, January 16, 2008 8:30 AM CST

Hi Tressie and Baylie

It has been a long time!!! I think about you all often and wanted to send my love and prayers. Baylie, hang in there kiddo you are a determined little girl who has made an impact on so many people.
Andi <danenberga@hotmail.com>
Kingwood, Tx - Tuesday, January 15, 2008 6:45 PM CST

Noticed that the Ellen show had a little girl that made bracelets for Autism on today . Is Baylie still going to be on Ellen ? Also do you know it takes a long time for your site to load . I do have DSL. tAKE CARE
razzle from ASAP
- Monday, January 14, 2008 4:40 PM CST

Hi Tressie and Baylie,
This weather sure isn't doing us any favors. Here I am writing this to you in the middle of the night, because the pain is so bad, I can't sleep either. Ugh! I so hope that Baylie feels better soon and you can avoid a trip to Chicago. Tressie, if you want you can email me, I'd love to talk with you.

I'm not sure if it's new, or if I just missed it before, but how cool that Baylie's bracelets are now at Once Upon a Child! That is so neat!!! What a GREAT job you are all doing to raise awareness! Keep up the great work. You guys are awesome!

Take care and I'm praying for better days for all of you!
Kathy
www.caringbridge.org/visit/kathydykstra
Kathy Dykstra <dykstras@mtco.com>
Marseilles, IL - Sunday, January 13, 2008 5:06 AM CST

Hi, just popping by to check up on you and send you many hugs for some great pain free fun days.
Hugs, Kira
www.caringbridge.org/visit/kiram
Kira <sapphire_violet@hotmail.com>
Australia - Saturday, January 12, 2008 3:18 PM CST

Hello Tristan we hope that you are getting on ok.We have been trying to reach your grandma but have had no reply.Tell her to send us an email.Love and kisses uncle peter and auntie thelma .xxxx
Peter Scott <peterjs37@googlemail.com>
Thetford, norfolk United Kingdom - Saturday, January 12, 2008 3:10 PM CST

Hi Baylie! I am sorry you are not feeling well. I haven't stopped by in a while but I want you to know that you are always in my thoughts and prayers. I hope you feel better soon. I too have Chiari Malformation and I can relate to how you are feeling. I am 62 and was diagnosed in 1989. God bless you Baylie! You are such an inspiration to all of us.
mary <xenabee@aol.com>
albany, ny usa - Saturday, January 12, 2008 1:38 PM CST

I Just would like to say you all are in my Prayers. God gives us these things for a reason and he will heal you. When you grow up youll look back at your childhood and see what God has done for you. Dont lose Hope God does Miracle in your life. My Prayers are with you. God Bless
Jason Richard <JasonRichard473932@hotmail.com>
Mount Joy , Pa Us - Tuesday, January 8, 2008 1:16 PM CST

Remembering the rest of the family is really needed. I missed much of my son's summer after high school and sending him off to college because Cristina was in the hospital in Chicago. I thought I was going to miss him again, but got lucky. Cristina went into an adrenal crisis wednesday after getting a little stomach virus. Cristina was discharged today so I will be able to take him to the airport tomorrow morning. I thought I was going to miss that again.....He would not have appreciatesd it at all either.
The good part was that he got to see how sick she gets and maybe will understand a little more why he had to be shortchanged some of the time. Needing 3 men to carry his baby sister to the car since she had no control of her arms or legs opened his eyes a little.
I hope all the girls hve a good weekend.
Kathy S
kathy <sfyelm@hotmail.com>
yelm, w - Saturday, January 5, 2008 2:49 AM CST

Hi Baylie! Sorry your tubing has been bothering you on top of everything else! My shunt is an LA shunt(lumbar-atrial, it's kinda rare)so sometimes it gives me bad cramps when it rubs against my ribs too. I'll pray for 2008 to be a great year for you, and for it to be the year that you begin to experience life pain-free!

Love, Samantha www.caringbridge.org/mi/sammijean
Samantha Robertson <NeuroGirl716@hotmail.com>
Wyandotte, Michigan United States - Friday, January 4, 2008 4:02 PM CST

Hi Baylie and Tressie,
Thank you so much for stopping by and signing my guestbook. Sorry to hear that Baylie isn't feeling that well. It really does seem to be a rough month for all of us. Not sure why, since it's not hot, lol, but the weather keeps changing, so maybe that's it.
I'm hoping you all have a wonderful and healthy year!
Kathy

http://www.caringbridge.org/visit/kathydykstra
Kathy Dykstra <dykstras@mtco.com>
Marseilles, IL - Wednesday, January 2, 2008 6:50 PM CST

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