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Baylie's journey through Chiari Malformation and Psuedotumor Cerebri/LP Shunt

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Journal

Thursday, July 2, 2009 8:25 PM CDT

Baylie's Make-A-Wish trip was awesome....when I asked Baylie how was it she said it was much better than she ever imagined!!!

We were so busy the whole time, we went to Discovery Cove, Seaworld, Animal Kingdom, Magic Kingdom and Aquatica.

Bayie is hanging in there, she has had alot of headaches lately and has been taking more and more medicine. We have had alot of bad weather so I'm hoping that is what the problem is.

Thanks for checking up on her.

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Hospital Information:

University Of Chicago Childrens Hospital
5839 South Maryland Ave.
Chicago, IL 60637
773-702-1000

Links:

http://www.asap.org    Mission: To improve the lives of persons affected by syringomyelia, chiari malformation and related disorders while we find a cure
http://www.ronaldmcdonaldhouseuc.org    Our home away from home - send all mail to Baylie Owen c/o Ronald McDonald House, where we stay in Chicago is located now at 845 E 57th St. Chicago, IL 60637 the phone number is (773) 324-kids or (773) 324-5437
http://http://www.uchicagokidshospital.org    Parents from across the country and around the world bring their children to Chicago Comer Children's Hospital for treatment of the most challenging neurological problems

E-mail Author: tressieowen@hotmail.com

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