Baylie's journey through Chiari Malformation and Psuedotumor Cerebri/LP Shunt

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Journal

Sunday, July 6, 2008 12:03 AM CDT

I am so sorry that I have taken so long to update. Our summer has been so crazy. Baylie is doing her normal roller coaster thing. She has good days and then bad days. We have been swimming as much as possible because this seems to be the best for her pain. We were hoping to go to Texas a couple of weeks ago but with gas prices we decided to stay home instead.

My friend is trained in sacral-cranio (?) massage and has been doing it on Baylie once a week and it has been really helping. The night after the massage she is in horrible pain but the the next morning she wakes up great and lasts for 4-5 days feeling really good. Its actually pretty amazing, she can tell where Baylie has diminished flow or no flow at all and then she restores the flow to that area. The results have been AMAZING.

We have avoided making a trip to Chicago this summer. This is ALWAYS the time of year that Baylie seems to crash and so far she has done fairly well....knock on wood!

Thanks for checking up on her. We are all doing well.

Hospital Information:

University Of Chicago Childrens Hospital
5839 South Maryland Ave.
Chicago, IL 60637
773-702-1000

Links:

E-mail Author: tressieowen@hotmail.com

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