Devon Sundquist

Welcome to Devon's Web Page. It has been provided to keep people updated about his road to recovery and his cure from Cancer.

Journal

Thursday, April 23, 2009 12:35 AM CDT

OK. So one quarter of the year has already passed by and this is my first update for 2009. This is a good sign because it means, dare I say, that we are busy and doing well.

Devon is getting so grown up. Now that he's nine and in third grade, he isn't interested in having me come to have lunch with him at school. I asked him this morning if I could come in one day (this is a new program the school is offerring) and he said, "Mom, I'm in third grade now." Well OK I guess. Where did my little boy go? Isn't it funny how as parents, we teach our children to become independent and when they are, we are not ready for them to be so independent! At least that's how I feel. Anyhow, I'm very blessed to have such a confident and well rounded boy. Steve and I have worked diligently to teach our guys how to become productive and responsible little people and we're very proud of them.

Let me just recap what's been going on in the Sundquist household. Back in February, we went on a Disney Cruise with my parents and my brothers' family. We had such a fabulous time! The boys loved being with their cousins and scouting the boat. We played sports, went swimming, watched movies, saw fireworks, ate a lot and just had a lot of fun spending time together. The weather was cool but compared to the snow and cold in CT, we thought it was balmy.

For Easter, we had all of Steve's family down and over our house to stay for 4 days. It was so nice to spend time with everyone and the boys loved having all of their big cousins down. Jim and Karin brougt their Wii game and that was a huge hit since we don't have one (yes, it's me who is very against video games, tv, etc). The kids played outside in between all of the rain and cold we had and we shared a lot of laughter and good times together during their stay.

April 15th is over and I'm much more relaxed having tax season behind me. Now that I'm working 3 days a week, I have more time in the office to get the work done but it still was a very busy and crazy time for me. The boys like telling people that I work a lot and prepare taxes.

Baseball season is in full swing and both boys have moved up in the league. Devon is in AA and will have his first game on Saturday. Darren is in A and did very well at his first game on Tuesday. Steve is an assistant coach for both of the boys' teams. It's all about sports in our house and now that the Bruins have won the play-offs, we have high hopes for them to move on.

We went up to Boston a couple of weeks ago and Steve and the boys took Papa out to a Bruins game. The Bruins won and after the game, we met up with them in the Northend of Boston and had a great Italian dinner at one of the restaurants. I spent the day shopping with Evie and my niece, Kajsa, in Boston and we all had a great day.

Devon is still on his growth hormones and it does seem to be working. He is growing at a faster pace than before, and you can see how his legs have really grown. With the radiation treatment he had, his growth is a bit stunted but the doctors are hoping that with the growth hormone treatment, he will get up to 5'4'' or so. The palpadima he had about a year ago (the swelling of the optic nerve) seems to be controlled and our last two visits to the eye doctor went well. Whew!

Devon sees his oncologist, Dr. Hagstrom, once a year and we still go up to the Jimmy Fund once a year. We have an appointment with Dr. Rasalpour, Devon's nephrologist, next month and he sees his dentist 4 times a year because of his short roots (again, a side effect from the radiation). Despite the occassional doctor and dentist visits, we are in a much better place that we were 8 years ago and for that we are thankful and count our blessings.

On that note, Steve wil once again raise money for the Jimmy Fund and neuroblastoma Friends for Life fund with his PMC bike ride. This year, I will join him and together, we will raise money and awareness to help other children like Devon, get a fighting chance to beat cancer and experience the pleasure of life.

Thanks for checking in and keeping Devonin your prayers.

Hospital Information:

Home Sweet Home!!!
39 Pioneer Drive
New Hartford CT, 06057

Links:

E-mail Author: sundquist1@att.net

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