WELCOME TO JARED ( and KIRSTEN) STRAYER'S CARING BRIDGE PAGE

This page has been created to keep
friends and families updated on
Jared's battle with Neuroblastoma.


Jared is a 7 years old "little" guy.
On July 15, 2003 (one month after his
2nd birthday) Jared was diagnosed
with Stage IV Neuroblastoma.

Neuroblastoma is a childhood cancer
that has a high rate of relapse.
Jared was n-myc amplified with
unfavorable pathology.

Jared was treated at Children's
Hospital of Philadelphia and Hershey
Medical Center on CHP-667 (COG
ANBL00P1).

He went through 5 rounds of
chemotherapy, surgery, 2 stem cell
transplants, radiation and 6 months
of Accutane. Jared finished
Accutane in 10/2004.

Jared has been NED since 12/2003.

Jared is kicking NB butt. Jared is an
independant, strong willed and fun
loving energetic little guy that
keeps us on our toes.

We are thankful everyday at how well
Jared is doing after all he has been
through.

Jared and his 9 year old sister,
Kirsten, are a close knit pair and
can always be found together playing
or "planning something".

We are thankful for both our little ones.




Please view the guest book while
you are here and leave a message so
we know you were here checking in
on us.

Thank you for stopping by.

Connie








Jared had repeat scans (MIBG and CT of the abdomen) in March 2008
and we are thrilled that NED (No evidence of disease) status is
continued. Our next and last scans will not be for an entire year, which means March of 2009.





TO DOANTE TO THE DANCE A THON YOU MAY GO TO
http://www.thon.org


Lunch for life is an organization
that raises money for Neuroblastoma research.


PLEASE visit their site at

Lunch for Life

We are fully aware that relapse can happen at
any time and frequently does for
children with Neuroblastoma.

Therefore, we need to assist Children's
Neuroblastoma Cancer Foundation (CNCF)
with money to help find a cure.

You can help too, one Lunch at a time.

Jared's giving tree,

I thank you all for your donations to Lunch for Life
You can click on the above link and see Jared's tree,
how much money we have raised and who has donated.

FYI___ Since the guestbook can take along time to
load after you click on it, all you have to do is
click to go to the guestbook then click on stop
and it will bring it up for you to sign in a jiffy.

HOPE THIS HELPS!!

Journal

Saturday, July 19, 2008 11:35 AM CDT

It is hard to believe we are already about half way through July. Summer is flying by.

Jared started school last week. It is only two hours a day, two days a week. They are working on math and reading skills. I am not sure it is his favorite thing to do with his time, but so far, so good. He needs a lot of encouragement to go. At least he has the same reading teacher as he had last year, Mrs. Garman. He really likes her, but she still isn't enough to make him "want to go." He actually only has like 2 more weeks left of school.

Mike is about half way into his Speech class now. So far, so good for him too.

I have been in the "dumps" a little lately. You know I started running back in March. And literally have ran almost every single day. Well about a month a go, I started having some knee discomfort, so I bought myself a knee sleeve that I wore when i ran, end of story...............or so I wish. Well I started having some hip pain when I ran, but after I would be done running I took motrin/aleeve and it would fix me up again.

Well about 2 weeks ago, I had so much pain. It hurt to walk, let alone try to run. It is not constant pain. But interferes with my ability to walk. I can do only a short distance and then I need to rest. Last weekend I went to the grocery store for a few things and by the time I got home I was almost in tears from it hurting so bad. Since last weekend I have done basically nothing. I have laid on the couch, laid in bed or just sat around. The past week I have not even gone to work. The previous week I went to work, and by the time my 8 hours were up, I was ready to get off my leg. This week, I can not even walk long distances. I literally can walk a few minutes then I need to rest. Because it hurts to bare weight on my leg and then I stress my whole leg out, trying to move it as a unit.

Anyways, had an x-ray which was negative for a fracture. The doctor seems to think it is a muscle pull, gave me pain meds and sent me to physical therapy. Physical therapist thinks it is bursitis. I have an appointment with the orthopedic this coming week. We shall see what he thinks it is. I keep hoping that when I go to the orthopedic that he will somehow discover what it is and fix me. The PT thinks if I get a cortisone injection in my hip it will resolve it. But my family doc will not do it because he is not convinced it is bursitis, so I hope the Orthopedic doc will.

You know this really had me in the dumps, because I went from running 3 1/2 - 4 miles everyday and now I can't even walk more than a few minutes. I feel like I went from being in good shape to doing absolutely nothing. Oh it is driving me crazy!!! I quit smoking about 2 months ago (about time I finally kicked the bad habit) and really kicked into being active and getting fit and here I am sitting on my butt, doing nothing. Driving myself nuts. Anyways, I just hope they can figure out for sure what is wrong with my hip, I can get back to work and best of all, back to running. Well enough whining about me......................sorry, just needed to vent.

Please keep Janie Kashino's family in your prayers. Janie went to heaven this week. She had relapsed NB in December and past away on 7/16/2008. I never met them in person. Her mom, Colleen, and I use to e-mail back and forth after Janie's diagnosis. They were from NY and were treated at CHOP. http://www.caringbridge.org/visit/janie

God bless and take care,

Connie

Read Journal History

Hospital Information:

Boiling Springs, PA

717-422-6185 (CELL)

Links:

E-mail Author: cstrayer@embarqmail.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.