Hi all, So far work is great! I am still getting used to using the hoyer lift on my patient but we are getting there it maked me sweat bullets when I use it.He is a sweet man, And I hope I will be a great nurse for him. He seems to be doing well with me too. I hope it works out for me to stay there a very long time.It is just a few min from my house and very good money as well.I love the other nurses too they are very kind to me and give me tips and even swap schedules.So thats about it for now, talk to you all soon.
Friday, June 26, 2009 10:38 PM CDT
Hi all, I got my first job and started on Weds.I worked my first 8 hours shift today bymyself and it went fairly smooth.I am a private nurse in a patients house.I have a hangup with the hoyer lift to get him up and down from his chair and bed. As soon as I get sure of it I will be just fine.I gave himall of jis care today and meds, bath,etc. I am beat and will work all weekend too.Take care im off to bed. Keep your fingers crossed I will do GREAT!! Until next time..
Tuesday, June 23, 2009 3:44 PM CDT
Hello everyone, I got the phone call I wanted today. Yes thats correct I GOT THE JOB!! I go tomorrow to do my paperwork you know taxes and stuff, then I start thurs. She said I got the job because I told her that I wanted spend one on one time with my patients and she liked that alot.I also got the job because I wated to work with hospice and end of life patients and she liked that about me too.So i will meet my patient tomorrow and I know he lives somewhewre very near my house and he is 90 years old!! Im sure I will love him like my own grandfather.Well I got to go do some paperwork for tomorrow. Until next time!!
Monday, June 22, 2009 7:36 PM CDT
Hey all, I hope I dont jinx myself by telling you all I had a interview today. The lady called me back tonight and asked if I would still like the job if she switched my shift and I said yes. So I will know tomorrow if I got it or not. She has one more interview in the am. I live only a min from the job which is a elderly man in his own home. I would love the one one interaction. I love to give time to my patients.So this is a great stepping stone for me.I had my offical graduation fri night it was so much fun. Tim had me a party on sat. It was so nice and the cake was so good. He got me too big ballonns and yep you guessed it Tyler took them to heaven with him.So i didnt get them for very long .Anyhow I will let you all know what happenes with the job. Oh yes Justin moved out and we have Tims son Zack here now. So I really still have two boys here lol.Zack and Nick are both 18 YEA!!!! Ok until next time....
Friday, June 12, 2009 11:10 AM CDT
Today is the 12th once again another month that Tyler has been gone.I have cried for three days straight.My head is punding and my eyes hurt.But I finally got Tylers room all cleared out .It was very emotional.I just clung to Tylers big old Tiger and cried for what seemed like forever.Tim just held me.And talked to me and told me he loves me.I hate feeling like this andI hate to cry so damn hard.I will never be better I know this now.The pain does NOT get better or easier.When reality sets in your in big trouble.And if you are like me and try to not deal with your emotions too bad they sneak up on you and you deal with them anyhow.Well I got to go .Until next time...
Monday, June 1, 2009 1:45 PM CDT
Hey everyone, Boy the boys have now earned their G.E.D!!!so Tues is the day that they both walk together to graduate.They get to have a cap and gown and tassel with 2009 on it.We are very happy for them.one more hurdle gone. I graduate with my cap and gown and pin, tassel on the 19th of this month.I still have not landed a job I put out some more resumes last fri.I am tired of not working yet It makes me afraid I will forget everything I learned.Tyler`s hospital has a posting for the heart center and I applyed rt away to it.Hopefully something will pan out.I started to take Tylers room apart this weekend. My sister helped me and it almost killed me to do it.I have to get it finished before the 10th of June because Tims son will be living with us. I know I can do it it just hurts really bad.It feels like I am getting rid of the last piece of Tyler. I know im not but it just feels like that.It really hurt to take his clothes out of his dresser so my sister did it for me.She said she will come over to help me get his closet cleaned out too.God this really stinks having to pack up your childs things.It just isnt right that you bury your baby before yourself.I have been having a hard time with it again.I get in spells I guess.Well anyhow I got to go get out the wrinkles in Nicks gown for graduation. Until next time...
Thursday, May 28, 2009 11:40 PM CDT
Hi all, Tyler`s hospital has an opening for the heart care center and I applyed tonight, please pray I will get it. I really want to work there. I am going to another place tommorow and to clevlend clinic next week.Keep me in your thoughts I really need to work as a nurse. Thx God bless.
Sunday, May 24, 2009 8:47 PM CDT
Hello , I am very thankful for those who fought for me and my country.I am very thankful for my husband who served his country for 22 years. He deployed and will again.I will remember all who served and gave all or some for us to be free and choose to go to church or what career we want.I will also remember my baby boy on this day to remember. I love you and miss you Tyler.Fly happy and free until we meet again.
Monday, May 11, 2009 6:39 PM CDT
Hello to all, On May 12,2006 At 1:05 am I lost my my eleven year old son Tyler Shane Gardiner to acute lymphoblastic leukemia (ALL).It was the worst day of my life and will always be I will never get over it.I will never be the same person I once was.I miss himevery min of every day.I go to be thinknig of him and some nights I have to sedate my self to sleep.I wake up thinknig of him.I have so many memories in this house of him.He died here he decorated his room here.And he fought to stay alive here.I am a lost empy shell wandering this earth without him.To most of you im fine and I want you to think that. But really I hurt all of the time I breathe I hurt.I am a shell excisting here, floating around just excisting.I became a nurse for Tyler and yet I still dont have a job.I still cant help others as he wanted me too.Without my family I dont know how I would make it.If I sound depressed I am , my son is dead.It sucks Im mad , I hate it and there is nothing I can do about it.I guess I just need to vent to you.I hope that is alright. So tomorrw I will go to his grave with balloons, and spend some time there as I did on mothers day.With the rest of my day I dont know how to spend it , To bad I couldnt sleep through it.So to my sweet baby boy I love you and miss you and will never forget you ever just like mommy told you before you died, you are my heart and soul and you taught me alot.Have fun in heaven baby and come to me in my dreams tonight. I love you bumble bee.
Love mommy
Saturday, May 2, 2009 1:15 AM CDT
Hello, Well its the dreaded month of May. Tim is away and Tyler is on my mind so much im not able to sleep and im just crying and crying.I hate feeling like this, I just cannot stop it.I try so hard to hide my pain away somewhere deep where even I cannot find it. Most days it seems to work, but not tonight.No tonight im alone thinkngi and missing him so much.I just saw a new video by rascal flatts called here comes goodbye. Well it triggered me to cry my heart out as it is about a young mom who lossed her small son and now lost her dad and the boy has come to get his grandpa to take him to heaven.So its not bad enough that this is the month that Tyler died or that the dreaded 1:05 am has passed. NOOOOOOO I got to watch a video that is going to trigger me to cry half of the night.Oh how I hate to feel emotions now days.Tim is working for the weekend and I hate to be without him, so im sure that helps to compile my emotions.I think im gonig to take something to help me sleep and hold Tylers bear until I do.Until next time...
Wednesday, April 22, 2009 6:29 PM CDT
Hello all, Well Easter came and went as I wanted it too.Tim was very good about me not wanting to do much. We had dinner with my mom and dad at Denny`s my boys had dinner with their dad ,so I didnt have to feel bad for not cooking for them.I just couldnt do it this year. I was planing to go to church but couldnt even do that.Its very sad.These past few weeks I have been dreaming about Tyler almost nightly but...He is always small like a infant or toddler. They are good dreams so far, I think I dream of him that way because those were happier family times when there was no illness or divorce.Anyhow still no job for me I hate how that makes me look and feel.I feel like a real looser but what am I going to do my heart is with the kids with cancer and I cant work there unless im an RN .So you know I will have to go do it ,but its not that easy you see.... RN school has alot of extra classes I have to take before I can do the RN school .This will take me about three years!!! I dont WANT to go to school that long I want to make a difference now!!!!! But I know I dont always get what I want or Tyler would still be here and I wouldnt be dealing with Tims crazy Ex all of the time HAHA. Everyone here is doing ok Tim had his surgery and is doing great! Mom and grandpa had a bad car accident but are doing better!!And the boys are plugging along on there job searches and GEDs.Well thats about it, Except for I miss Tyler more than ever.Take care and God bless you all.
Saturday, April 11, 2009 9:00 PM CDT
HEllo all Happy Easter to you.I have been crying at the worst of times today in the grocery store ect..I dont want to be without my baby on Easter Sun. I hae so many memories of his last one with me.It hurts so bad. Im just too sad.Tim as always is wonderful with me.He just stops in the middle of the grocery and holds me .I also started changing some stuff in his room and I feel really sick about that,Im only doing it bacause Tim`s oldest son may move in with us and we have no where else to put him. Justin took the bed down and it is in his room now.So now there is a big old empy space where Tyler slept.I have alot of work to do in there to empty the roon I hate to do it.But what else can we do.I knew the day would come and I just didnt want to do it.I hate this I really do. It will take another piece of Ty away forever.I dont have much of hime left as it is.So tomoorw will also mark another month that Tyler has been gone from us.Thirty five months can you beleive that I sure cant. It sucks big time.Well im a big old mess of tears so im gonna go Happy Easter to you all. Until next time...
Monday, April 6, 2009 8:27 PM CDT
Hello all, well still no job for me!!I keep trying and Tim fixed my resume up.I am so dreading this Sun I just dont want to think about the twelth.I want to run away and hide under something until the next day.I know Tim wont allow me to do that .He will hold me and let me cry.This sucks really bad.I still have the last egg Tyler had and he put a message in it for me.It kills me to decorate his grave with Easter stuff.I hope his spirit will be with me along with Jesus on this hard day. I know how Mary felt wjen she knew her son would die one day.I also knew how she felt to watc h him die. A mother should never have to watch that.It is a pain that is with you forever and always.Well that is enough from me Until next time...
Wednesday, March 25, 2009 7:23 PM CDT
Hello, I just found out that yet another child I knew about passed away.It never ends does it ? We just keep loosing them.I hate cancer !!!Of course you all know that already. I have been out to tyler`s grave several days in a row.I just feel the need to be near him.As I have told you before Easter was his last holiday with us,and it is also on the twelthThis year which makes it even more unbearable to me.I just want to run away this year.With that said I have asked Tim not to plan anything with family this year .I just dont want to feel pressured to talk and eat and be cheery.I dont want to fake it again.I miss Tyler so much and its so hard to beleive that it is almost three years.Where has the time gone.His room is mostly the same and I recently looked at some of his clothes and they were so small he was in a 10 to 11 but the hung off of him.I dont want to cry to im gonig to change the subject. I am still Jobless!!! What the heck is up with that.I am being too picky I guess.Tim is changing up my resume a bit to see if that helps.I am very close to just going on to RN school if something doesnt give soon.Justin got his GED this week!! I am very proud and Nick takes his on the first week of April.Whoo hoo. Justin wants to go on to college now can I get a AMAN!! Finally my boys are going in the rt direction.Well I guess I will go for now. Until next time...
Monday, March 9, 2009 7:13 PM CDT
Hello I guess I am not getting the job that I interviewed for last week.I haven`t heard a thing and was under the impression that it was a job that needed to be filled rt away.I guess I said or did something that she didnt like.I am very sad about it I really wanted to get it.I feel like a failure rt now I went to school and got a degree and a license and NO job.I hope something pans out soon. Until next time...
Monday, March 2, 2009 6:11 PM CST
Hello all, I just got my first interview today! I got a call about eleven am today and was interviewed at one thirty today.I hope I get it .The job is at a pediatric office about ten min for the house.It is actually the doc my kids went too and so did I as a child.I will know something in a few days she has to take a few days off for her hubby to have a surgery and check out my refrences. Kepp your fingers crossed for me.I will work about 32 to 40 hours a week mon through fri.I will worl 8-5:30. I am pretty excited about it its not hard work either. I need something to get my feet wet .And I love that its with the little kids.I will update when I hear something. Until next time...
Sunday, March 1, 2009 11:13 AM CST
Hello, Today I got up for the first time in church and spoke to the people.I noticed that some were very sad and even crying about things that happened to them recently.I knew I needed to say something to them and I kept sqirming in my seat and I finally got up and went to the pulpit and spoke. I wanted to first tell them all thnak you for the times they were there for us when Tyler was really bad sick at the end.I also wanted them to know how special they are to me.I wanted Tim to know how much I love and need him and how I know he was sent to me to keep me here and help me get through life without my baby boy.I wanted the church to know that we can get through anything with the help of God and then the help of each other!I made many people cry today including my dear sweet husband, I didnt mean too but it needed to be said.We all have a purpose here on earth and we have to love each other and help each other.I know one thing about our church and that is they are very kind and loving people and they are there in a moments notice to hepl someone.That is how my husband is and one of the biggest reasons I love him so much!I am very happy I went up today I hope I touched someones heart and helped them.Its all about giving back!! I have alot of giving back to do. Until next time...
Tuesday, February 10, 2009 1:22 PM CST
Hi everyone, I am still job searching the rt one has not found me and I have not found it yet. This weeek finds me being a bit challenged with my feelings.Thurs is yet another month that Tyler has been gone from our earth, and home and it breaks my heart.its been two years and nine months. It seems like yesterday to me.I have been welling up in tears the past few days and I kkep holding them back. today we went out to eat with my sister and her hubby and they were selling paper hot air balloons for Tylers hospital. I asked Tim to buy one in memory of Ty and so did my brother in law.I had Tim sign it cause I knew I would cry and I was holding it in.I miss him to much Nick andi decorated his grave for Valentines day and I always remeber Tyler telling me on each Valentines day how he wanted to be my valentine.THe precous memories I have of him.His brother tried to beat someone up the other day for talking bad about Tyler.I hate when grown men act so disrespectful about a loved one dieing.I see now that we are all still hurting in our own way over him.I know the pain will never go away neither will the memories thank God.At church Sun we talked about Hope. I have Hope that one day I will be with Tyler again and he will be able to explain to me why he had this trial on earth.I dont understand it rt now I sure hope he got it explained to him in Heaven. Until next time....
Saturday, January 24, 2009 3:00 PM CST
Hello all, I am still trying to find a job but most important I want THE JOB! I want to work with kids not older adults which seems to be where the jobs are rt now.I wanted to ask you all to pray for my moms side of the family once again we have lost a family member.Her name is Tammie and She is my cousin.My moms sister. She was found in her bed this morning .Its very sad as I know what my aunt will go through loosing a child and I know how your mind will play back regrets and memories over and over .I hope that she and her family can draw strengh from your prayers.Take care and God bless you all.
Monday, January 12, 2009 1:31 PM CST
Hello, Today marks yet another month that Tyler has been gone from this world.I went to his grave today and spent quite a bit of time there by myself.I need that time with him I almost always never speak but for a min as I approach his stone. after that I stand next to it and wipe everything down and fix his things just so. After that I usually go back to my car and listen to music that reminds me of him. some are songs that he liked and some are songs that we both liked.I miss him so much .I recently took down his memory corner in the dining room, we wanted a new table and we needed the room.I can tell you that it felt like I was loosing my heart all over again as I looked at his things and wiped them off and put them in a box. I left a few things out.I still have to leave his room as was .I cannot change it yet I need that bit of him still there.Slowly ever so slowly I change something.But boy it really hurts when I do.I still havent found a job yet I am going to hit that hard this week.I dont want to work in a nursing home and that is where most of the jobs are.I had my fill of that in nursing school.Well i guess I will be gonig now the couch is calling my name again to come and sit and read.Until next time...
Tuesday, January 6, 2009 1:44 PM CST
Hello all, I got the best news for you all. I PASSED my test!! I am a A LPN nurse with IV certification.I am so very happy rt now. I cant beleive I did this! Tim came upstairs today and told me the good news.We went out to my fav place to eat.We had the Olive garden for lunch. My friend went with us and it was good.I am in shock and elated all at the same time. I want to thank you all for praying for me and sticking it out with reading my complaints and my joys!!I know you were all rooting for me. Thanks again. Until next time.
Friday, January 2, 2009 6:45 PM CST
Hi all, well this mon is the big day. I have my test for ohio boards of nursing. I am very nervous and scared. I know that this stuff is in my brain after all I been training for this day for 18 months. I know that God and Tyler didnt bring me this far to bomb out now right? So I am asking you all to please pray for me to pass my boards.I have to be there on mon morninng at 7 :30 am. I also have another little issue. I am not allowed to wear my necklace to the test. Those of you that know me know that I have worn a necklace of Tyler since it was given to me as a gift for over two years now. I have never ever taken it off.I am having a big issue with this.I dont know why we cant wear a becklace but that is one of the very many rules they have. I feel like somehow im letting Tyler down if I take it off.I hope I can do this. I will know my results in a day or two and I will let you all know as soon as I can. Tim and I have been very busy with the Holidays. Our new mission has been to redecorate the house we got a new living room set and a new dinig room table and new curtains.we really missed eating at the table with the boys and each other so we bought a beautyful table and have spent more time at it talking and such than we have in the living room.Well thats about it until next time....
Wednesday, December 24, 2008 8:35 AM CST
Merry Christmas all, I hope you have a happy day with your loved ones. I will have a full house.I hope it all turns out well. im a little worried about all the seating here.I am very happy to have Tim home for the Holidays.I am also as you know sad that we dont have Tyler with us. I miss him so much.I just feel lopst without him here.My poor baby I hope he has a good Christmas with God.I have got to go get ready for the day.Please keep me in mind that on the 5th of Jan. I am going to take my boards. Merry Christmas baby boy Mommy loves and misses you so very much.
Thursday, December 11, 2008 9:11 PM CST
Hello, Well guess what? I got my testing day scheduled. I go on Jan.5 at 8 am. I could have gone as early as tomorrow. I said forget that! Plus tomorrow is another month that Tyler has been gone. I sure dont want to test on that day.Well I got to go. Until next time...
Sunday, December 7, 2008 3:32 PM CST
Hello, Tim will be home tomorrow. Whoo hooo!! I have been crazy getting things ready for him. I am having a birthday /welcome home party for him. His birthday was sat.I have signs a cakse and a present. Im ready to go!! This is my last night to spend alone without him. I am very happy and nervous and have alot of anxiety.It will be nice to have him back without knowing in the back of my mind that he is leaving me again.I am still waiting for my att number for the ohio boards of nursing.I am also waiting on my test results for my ultrasound to come back.I hope I dont need any kind of surgery. Well thats all for now I got alot of things to go over in my head for tomorrow until next time...
Thursday, December 4, 2008 2:03 PM CST
Hey all, I just wanted to tell you that Tim IS in te USA. I cant go get him as of yet but he is on our soil. Take care.
Tuesday, December 2, 2008 5:59 PM CST
Hey all, I just wanted to let you know that Tim will be home very soon. I cant sy when just yet but I wanted to let you know at least tthat much. I have ben busy preparing for his retun so that he knows how much he was missed and loved.Im still waiting for my paperwork to be done for me to take my state boards test.Im still studing and waiting.Thats all for now until next time...
Thursday, November 27, 2008 8:19 PM CST
Hello , I hope today finds you all full and happy and grateful.I started out with a tearful day but it ended up so far to be nice.I had my first ever Thanksgiving with both of my parents. I really liked that and they thought it was pretty fun too.I had to go to Tylers grave before I could even start my Thanksgiving day.I had to tell him I loved him and missed him and of course we honored him at the table,like we do every year. This time I got my mom a very special gift and it has Tylers pic on it with a verse I made up.It was perfect for the dinner table. Turkey grandpa got to eat with us and he had a very good time he stayed donstairs with us all day long. As soon as I said I was going he said well then im gonig on up to bed. He was worn out.I am very thankful for this day with him. Mom made a great meal we all ate some much and loved every bite.It was nice. I got to talk To Tim for a while today and tell him how much I miss him.He will be home very soon. But never soon enough for me as you know.He said they fed him well over there and even decorated alot.He said the food was good but not as good as mine.He is a smart man isnt he hehe. Well I guess that is about it. Until next time...
Monday, November 24, 2008 12:48 AM CST
Hi all, I want to wish you all a Happy Thanksgiving.I Am hoping ours will be ok. with Tyler being gone and Tim not home its not something im looking forward too. But I do have one thing im happy about and that is my grandpa. He got good news so far from his docs. I was so happy to hear that good news. Our family sure does need some good news.im still waiting to hear from the state to take my boards test.I went to the doc today to dicuss my halth issues and we are going to do a test and then go from there. I seem to be more worried about my health than he is.Well I guess that is about it. Intil next time...
Monday, November 17, 2008 2:49 PM CST
Hello all, I am still trying to prepare for my state boards exam. So far I have heard from one of them saying im all set.I am also preparing for the arrival of my husband soon. I cant say when until I know he is safe in the states. But you will know when its safe to say.I know you have been keeping him in your prayers.He is the best thing after having my boys that has ever happened to me. I tell him that alot. I donnot know what I would do without his support and love and caring words.He is my soul. I hope you are all preparing for the Holidays. I am struggling with this. I am still not sleeping good at all ,last night I was awake until 4:30 am. I just stay awake and think about Tyler. It is just not normal for me but I cant help it and I dont want to rely on meds to help me. I am having some health issues that I am going to talk to my doc about at the beginnig of the month . Im sure that has nothing to do with my sleep pattern.The boys are doing well. They are job hunting YEA!!!! They are both still going to school. Grandp has to go to the doc weds to please kkep him in your prayers that he will have only good news to share.He is so cute I look and him and I just giggle.I tell him he is handsome and he gets this big old grin on his face.Im proud that he is my grandpa.Until next time...
Tuesday, November 11, 2008 4:58 PM CST
Hello all, My sweet baby boy has been gone yet another month.I had the twelth of every month. I nags me and I just hate to see it on papaer or hear someone say it is the twelth. I just want to scream YES ITS THE TWELTH MY SON DIED ON THE TWELTH, but I dont I swallow hard and try to get through it the best I can.I had a very hard night last night I cried for a very long time while holding Tylers teddy bear that I sleep with every single night. Tim knows how I feell about this bear and how Tyler felt abvout him. He just goes with the flow for my sake.Tyler is buried with the exact bear . Thoses were his wishes and he told me to keep this one for myself. He named him and fed and dressed him and the bear wears a legband on it from the hospital.I love this bear just as Tyler did.It was a part of my son and everyone knew that.Its name is Ronde after Tylers fav NFL player that he went to meet in Florida.I miss my son so much. I feel like a part of me died with him and I just feel like I will never be better. Tim says I have done very well with my pain but I dont see it. Since I have been done with school I find I have all the time in the world to grieve now.I hope I get alot of it out beofre Tim comes home.I guess I feel like I have to hide it form you all or else you will think im weak or not normal in some way. But just know this if you never lost a child you can never understand my pain. My son is gone and life is never going to be the same. He is in everything I do and everthing I think of. He is in me.Tyler I love you so much and I miss you more than anyone can imagine. You are my baby and always will be just like mommy told you beofre you died. Nothing or nobody will ever take your place.I hope you are proud of me I did just what you wanted me to do baby. I love you bumble bee with every piece of my heart I love you.
Sunday, November 9, 2008 11:54 AM CST
Hello, I have had a terrible time sleeping this week im up until 3 or 4 am. Last night I had nightmares about tyler and so Im not in the best mood today.I hate when i have bad dreams about him. I feel all of that bad stuff come back up and It takes so long to make it go away again.I will alsways have a broken heart and I come to the c onclusion that i will never get better.I must figure out a way to live with this pain and take it whereever I go. I must deal with it inside of me no matter what i do to try and escape it , it always finds a way to find me.I hate grief it really do.It steals away the tinniest bit of happiness you make be lucky enough to find and it shreds it.I have to deal with it but i dont want to .I can be very butit seems to win .I have sent in all of my paperwork and got my fingerprint check done so when I hear from the boards of nursing I will let you all know.I really got to start studing again for this.Well im gonig to go please keep Turkey grandpa in your prayers. I worry he will need them he goes to the doc soon.Take care...
Friday, October 31, 2008 5:16 PM CDT
Hello all, I wanted to tell you that I got my final grade. I got a B+ I am very happy. I am done with school!! Yea! I finished my clinicals thurs. I was so glad about that. Thank you for all of your support. I went to Ty1s grave to tell him the good news and thank him for making me strong and giving me the drive to stick with it. He is my inspiration.I love you bumlbe bee.
Wednesday, October 29, 2008 5:16 PM CDT
Hello all, I have my very last day at the hospital tomorrow. I will then be offically done with school. I will have graduated!! I am very happy that this is finally over.Tim will be home in Early Dec and I will be so happy to have school done and my husband back home safe where he belongs in my arms again and in our home.I am worried about Turkey Grandpa he has a few thigs gonig on so please pray for him that they resolve on there own in a good way.I hope I can go on healing over loosing Tyler. I finally let it out really good on his birthday ,and Justin helped me too. We finally cried together over Tyler .We havent done that since his funeral.I know my boys hurt too I try and do things with them that helps to celebrate their brothers life. I hope we can all heal to some degree one day but im not sure how to do that a part of our life was ripped away by cancer.A little boy died that was full of life and had a lifetime to live. He lived his lifetime in 11 short years. I hope he is happy in Heaven and wants for nothing . I love you Tyler and I hope you are proud of mommy, I am doing what you told me to do helping little kids like you. Until next time.
Friday, October 24, 2008 3:08 PM CDT
Happy Bithday Tyler!! You are my baby and always will be even if you are 14 today.I love you and miss you so much and I know that you are happy and no longer in pain. Mommy`s heart sure does hurt today.I love you so much bumble bee.Happy Birthday baby.
Love mommy
Monday, October 20, 2008 9:48 PM CDT
Hello everyone, I have great news. I PASSED MY BIG TEST I NEEDED TO GRADUATE! I can`t beleive I finally did it!!I cried in front of my whole class at my computer when I seen it. All I got to do now is finish my rotation at the hospital which I am working at again tomorrow for twelve hours.I have five more days of it and thten I got a mock interview with my instructor on mon morning with my resume. And then I am off to turn in my paperwork to the state with two hundred and seventy five dollars for my appointment to take my state boards test to get my licence. Can you all beleive it I am in shock still.Thanks for all of your support and love. I had a long talk with God today and with tyler before my test and now I have to live up to being a better person and show my love to God. I am going to work on my anger and hopfully I can understand things that have happened in my life better.My family is very excited and of course I went to Tylers grave after school. I hope he was proud.Well I got to go Im still wating on Tim to come on line and tell him the good news. Until next time..
Friday, October 10, 2008 12:29 AM CDT
Hello all, I did my first twelve hours at Tylers hosptial on his oncology floor.His fav nurse is now in charge of the unit. She asked me to step into her office and told me that she had a plan B for me if it got to be to hard for me.She said all I have to do is sat plan B to her or another lady and I would be wisked off the unit. I thought that was very thoughtful. I made it through but... I had a difficult time with one patient . He was Tylers age and was very sick and grumpy and it took me wway back where I didnt want to go again. About four times that day I had to take deep breathes and turn away from him due to me tearing up .I wanted to just hold him I felt so bad for him.He was so hungry and had to wait for tests and then he didnt want to eat when he could. It was just terrible for him.I knew all too well about his emotions. I ended up with a bad headache around 6 pm and when I got home I took apain pill and cried myself to sleep.I just had to let it out.I still have more in there .I think im gonig to Tylers grave and talk to him for a bit. I may feel better after that I hope anyhow. My big test is coming up this Mon. I want to pass it so bad and be done with that part of school. Next weekend I have to work the whole weekend. It is going to kill my feet.That is my other biggest problem my feet hurt so bad by the 9th hour of work.Well im going to go vitit Tylers grave. Until next time....
Sunday, October 5, 2008 10:51 PM CDT
Hello all, i wanted to update on my schooling. I startmy final class Mon. I have to pass a big test with an 80, and do 80 hours of work at the hosptial, plus write two papers all in four weeks.I am very happy to tell you that I am going to Tyler`s hospital, and im working with a nurse that had him for a patient.I am very scared and yet very excited about getting my preceptor at this hosptial on the wing we spent so many days and years at.I can finally give back and finally do what my baby wanted for his mommy .I am going to help kids like my son. i am going to help families like mine.I hope I can get through those doors for the first time and hold it in .I start this week.I hope, no I know that Tyler will be with me every step of the way.Until next time....
Wednesday, October 1, 2008 2:58 PM CDT
Hello, I have good news I got in at the oncology dept, at Tyler`s hospital for my preceptor.I am so happy and emotional rt now. I had a very bad day as I woke up crying missing my baby. So this helped me feel alot better.I am studing like a crazy women for my big test I have to pass. I am at the end of the tunnel.I am almost there. Until next time...
Saturday, September 27, 2008 12:25 AM CDT
Hey everyone, My wonderful husband had to leave me this morning to go back to the world of war.My heart is so heavy with missing him.I am going to try to focus on some things I need to get done today but I keep stoping and crying.I really hated to send him back there.Tim has kept me sane through Tyler being sick and dealing with Tyler dying.I wouldnt be here if it werent for Tim.He and my boys are my world.My boys have kept me sane while Tim is gone.If they were not here to sometimes drive me nuts I would be so lonly.The only other good note is that I passed my class of peds yesterday. So I am done with classes but now comes the biggest one of all.I have to take a test that is like a state board test and I have 5 chances to do it.THen I also have to work 80 hours at childrens hosptial and write two papaers all in four weeks time.Can you say WOW!!! So I am about to start studing for that test again in a few hours.When I pass all of that I can then graguate and pay my money for me to sit at boards and take my state test.Then I will be a licenced LPN once that test is passed.Rt now I am a pratical nurse.So that is about it or now wait. THe biggest news of all the only shine in my clous today is this... TURKEY GRANDPA IS CANCER FREE!!!! Yep you read it correctly.Thank goodness.We are all so very happy.Ok I got to go until next time...
Wednesday, September 24, 2008 9:27 PM CDT
Hello all, I have my final this fri I really need a good grade to make me fel better. Tim is leaving thia weekend and I just dont know how I will deal with that. We only have a few more months of this deployment but it is so hard on us to be apart.He really surprised me I never knew he was coming home this early. he just showed up at the house. I will never ever forget that feeling and I dont think I have ever been so surprised and dumbfounded.It was great , our visit is wonderful. Mom finally got moved in besdie me with Turkey grandpa. Tommorw grandpa finds out if his cancer is gone. We have faith that it is, He had Tim pray for him and we all held hands around Granpa even the boys and prayed for a fully healing.Please keep him in your prayers.Take care...
Thursday, September 18, 2008 6:25 AM CDT
Hi everyone, Good news! TIM IS HOME FOR A VISIT!!!!!!!!!!
Thursday, September 11, 2008 9:49 PM CDT
Hello, Another month has passed oh how I hate the 12th of every month.Tyler has been gone 28 months now.It seems like yesterday.I hope i can get through and pass this test .i have been very moody and weepy these past few days.It happens every month.I love you Bumble bee Mommy misses you so much.
Monday, September 8, 2008 11:20 AM CDT
Hello, So far I dont like peds class at all. I am starting my second week on Tues. I have a big test Tues,and the math is the worst. I am having a time with it.I failed my first test by one question.The instrucotr is something else.I wonder sometimes about a few of my instrutors. I really dont know how they became a nurse. I really think something is missing in the head department.Then I think if they did it than surly I can. We will see.Things are a bit enotional for me the stress is bad. I am really studing for two classes ant once .Then we got the fact that my Tim is coming home soon for a vivt and im trying to manage my time wisly and then stress with the boys here. Nick got his first car ans we been buying tis and that for it.Turkey grandpa is in the hosptial again with infections.Poor guy I had a bad breakdown over him sat. Take care I got to study.Until next time...
Thursday, August 28, 2008 9:18 PM CDT
Hello everyone, I am pleased to tell you all that I once again passed another class. I made it through maturnity and now its on to my love Peds. I have to find my strengh within my once again to step into those doors i used to call home. I will be doing a 12 hour rotation there on the 15 of Sept. Odly enough Sept is National Childhood Cancer Awareness month. Please think about how you can help these families in the worst time of there lives.I know my baby is with me and he will be at that hosptial when I take care of these sick little babies that need my help. I will be on the infants floor.I hope to have the strengh to do this.The time is drwing near for all of my memories to flash by me as it is nearing fall Tylers fav time of year. football season started and Tylers birthday is coimng in Oct. Then on to the Holidays without my baby yet once again.That is enough for now I just wanted to share my news. Im almost there guys Im almost there. This is my last class before I go out into the nursing world and do what my baby said he wanted me to do!!!Until next time...
Friday, August 22, 2008 9:07 PM CDT
Hello all, I have had a day of fighting my feelings.Today was the first Massillon game of the season. As everyone knows Tyler would have been at that game standing on the sidelines with the team cheerring them on and telling them jokes.I went to his grave and looked at all of his tiger stuff at his grave , you can always tell when it is football season because that is all you see on his grave.I miss him so much I cant describe it.The game is almost over we have just a few min left and yes we are winning. Tyler wopuld be so happy .I am so close to reaching my goal with nursing I can see it standing before me.I hope Tyler is proud of his mommy and his Tigers.I spent the day with my two year old nephew today and my sisters and Everyone kept calling Kyle Tyler.I see so much of my boys in him. Tyler told my sister he ordered her a boy when she was pregnant. He was so weak when Kyle was born but he knew and he seen him a few times. He has a picutre on his wall that he put up there of Kyle in a Massillon Tigers outfit.I am finished with my clnicals for this month but I have my last week on maturnity this week.Then its off to peds for me.This is the same hosptial Tyler was at and that I want to work at. The only problem is that I never have been back there since Tyler left us.I know I will need my friends support from school to walk through those doors.Well the game is over and we won. GO Tigers Go Tyler!! That is something we used to say to him. Until next time...
Sunday, August 17, 2008 11:18 AM CDT
Hi everyone, Have you ever just wanted to cry for every animal and human on earth that is mistreated or hurt ?That is how I feel .Tim allowerd me to take in the most wonderful cat from my sisters friend due to the fact she was seriously ill .I took her to the hosptial and she has had mutlile surgerys and is still in there ,its been about a month.Si i totlally love this cat she is the best. She sleeps on my back I mean her whole body on my back how funny is that. She loves to nuzle my hair and she waits for me by the door to come home.On to the people part.My sister has had to recenty go from no children to four due to so bad things that happened to her step children and neice Step neice and nephew.I have done everything I can for my sister and these kids!! I have come home and cried for these babies.What is wrong with people in this world. I can`t go into any details as the parents are in biggggggg trouble, But I just want to go and get evey animal and kid and even adult that is negleted or abused. Of course I cannot do that which breaks my heart into pieces.I sure can let this big old world weigh my heart down ,I question everthing anymore.WHy does these things happen to innocent souls????And why does God let me have such a big open heart to feel so deelply that I hurt from it way too much.I wish I could not care as much as I do , maybe just maybe that will set me apart from other nures and make me the best one my patients could want or have.I hope my patients all have seen how much I want them to be well.In two weeks I will be on to peds at Tylers hospital. I know I can do it but it will take my breath away at first.I have not been there since he died.I know there are little people there just waiting on me to give them some time and love and just want to hold my hand or talk about what they are going through.Speaking of that Turkey grandpa is done with his treatments and went home to tend to his garden. We dont know what effect the treatments had on his tumor yet.Please keep him in your thoughts. Until next time.....
Wednesday, August 13, 2008 9:52 PM CDT
Hi, I got to see a c section delivery today. It was a healthy baby boy.I was so excited ,I got to help two doctors in the operating room. One i gave pain meds to in a syringe. The other assir=ted me in incerting a cath in the mom. That was the last thing on my list to get a cath!! I was not prepared to do it , I was very surprised when they asked me to do the procedure.I got to take care of mom and baby all day and give him his first bath.Life was new and good today.I needed to see a miracle happen rt before my eyes.It was great!!!Until next time....
Monday, August 11, 2008 1:45 PM CDT
Hello, I start my maternity clinicals this weds. I sure hope I get to see a new baby come into this world.I have a test on newborns tomorrow my first test I got a 96 on. I hope to do just as well on this one as it means more in terms of points.I am getting so close I can see the light at the end of a long tunnelr for my nursing school.I have three more months and off I go to the state boards of nursing for my licence. Whoo hooo.Then comes more school if I go on to RN . I really want to but I am afraid I cant do the chemistry.I know im always afraid of something.Thats what Tim says anyhow.It is true I am very afraid of the unknown.I want to know every detail or I dont want to even try it or see it .Thats just me.Anhow Tim will be home for a visit in a few months and I cant wait.He will be with me for several blissful days!!Can I get another whoo hoo. The boys are still working and doing fine.And tommorrow is twenty seven months that my angel Tyler has been gone.I hope to pass my test for him tommorow.It is very hard for me to pass tests on the twelth of any month. Please keep me in your thoughts tomorrow.. Until next time....
Friday, August 1, 2008 9:53 PM CDT
Hello all, I made it! I passed my class today. I am on to materity now whoo hooo!!I cant describe how happy this makes me .This was such a hard class and I went in there telling myself I will NOT fail it I will do this!!I did it and I am giddy about it. I also aquired a new pet a ten year old black and white cat.She is very lovable and needy, and just what I need someone to love and cuddle with.I just wanted to share my good news . Until next time.....
Sunday, July 27, 2008 5:19 PM CDT
Hello everyone, I was just thinknig about this.... I want to figure out who I am mad at since Tyler pased away. I really don`t know that answer and it baffels me.I say I`m not mad at God but yet I stopped going to church.I think I`m afraid to say I could be mad at him becasue I know that I should not be.God had Tyler beofre he gave him to me that is why I had the poem put into his funeral about lending me a child for a while. I know that Tyler was lent to me ,but ohhhh how hard it is to let that child go back.Its like a tug of war.My heart tells me one thing but my motherly feelings tell me something else.I hope I can find my answers before I graduate because what if some poor mother or father ask me this same question one day? I want to have an honest answer for them.Are we mad at our Heavenly father, or at the parents out there who have healthy kids and hurt or kill them. Or mad at ourselves for not being able to save our child, or mad at the doctors for not being able to save that child. I just don`t know.It may be a question I may never get an answer to I sure hope that is not the case. On to other news I have a test tomorrow on HIV/ Aids, and then I have three days off to study and study I shall be doing. I have a quiz and a final on Fri.I insist I will pass this class. Tim is fine and my boys are good as well. Grandpa is is starting his fourth week of therapy. Take care everyone....
Saturday, July 26, 2008 2:40 PM CDT
Hi everyone, I have one wekk left of this clas ans then I1m on my way to maternity ,very cool huh. I think so. I can`t wait.Things are puttering along here and turkey grandpa is doing as good as he can they put a feeding tube into him this week on his birthday of all days to do it. I aslo have a friend from school that is newly dignosed with cancer so please pray for her ok. I am deeply disturbed about this happening to my friend.Im so sick of cancer!! The boys are well and so is Tim I cant wait to see him in Oct. I miss him alot he keeps me going.Well I got to go study for yet another test. Until next time...
Sunday, July 20, 2008 8:10 PM CDT
HEllo everyone, My mom brought something to my attention today. The 13 of this month would have been Tyler`s three year bonr marrow birthday. And of course I got so caught up in my grief for the 12th that I totally forgot about it. We wanted his BMT birthdays to be just as special as his first birthdays. It was supposed to be a new life for tyler A cancer free one and instead he went through all of it for nothing. The Bone marrow didnt work for him. He never grafted from his donors cells in fact he absorbed them and there was no proof of a BMT except lots of bills and many bad memories and side effects. But it was alone time with Tyler for me and many good memories many pics and things good and bad that I will never forget. I get so busy with school that sometimes I forget the special days good and bad.I dont know if that is a good thing for me or not, I feel so bad about it when I realize I missed a special day ,but yet I try so hard not to look at a calender that is one of the reasons the days slip by me. I kinda do it on purpose.Anyhow I just wanted to share that if anyone thinks Im crazy I dont care if you loose a child you do get a bit crazy in some ways it helps you cope.Well i got another test tomorrow got to get back to it .Until next time...
Friday, July 18, 2008 7:55 PM CDT
Hello all, I have been very busy with school. I just finished my second week in this new class and so far so good. I do study most of my time at home due to the many fill in the blanks my instructor likes to use. YUK!!! I dont like those at all. Today we went over cancer yet once again. I did very well with it but when I got home I cashed out for a long while. I think I needed to shut down for a bit.Now I got to go find all of my answers for the test on Mon. If I find them tonight then I can study all weekend.THe boys are doing fine both are working study. Tim is doing fine as well I havent talked to him in 24 hours which I dont like much ,but he had something he had to do and couldnt tell me about it until after.I miss him he will be home in Dec.Thats all I can say about that. Turkey Grandpa is still getting his treatments and he semms to be holding his opwn through it.god love him. He is the cutest grandpa and im not being biased.The way he laughs makes me laugh. Anyhow I better go study. Until next time...
Saturday, July 12, 2008 5:04 PM CDT
Hello, Today marks 26 months that my son died.I try so hard not to think about the 12th of the month but yet it always comes around. This time I started getting grumpy around 1 am last night which is very close tho the time Tyler died. I still didnt know why I was acting so hateful and annoyed with life and today I woke up in the same mood and nobody seemed to understand My mood including me. Now I know why its the 12th. I went and bought him a sunflower plant, he and I loved the sunflowers and we loved to plant them in our garden and around the fences. So that is what his mommy got him today .I miss him so much and it seems just like yesterday that he died the pain is the same and the empynedd is always there.I dont think I will ever ever be the same again or be better I feel like Im sick and im never going to get better.Until next time...
Saturday, July 5, 2008 10:55 PM CDT
Hello, mon begins a new month of school for me.The teacher is the same one that I failed my first class with. So wish me luck on this one. i am very nervous about her class I even called her last week and left her a message asking her what chapter we will begin with but to no avail ,she never returned my call.Just my luck with that .The boys are both working and Tim is doing good. We are growing tired of being apart but what can we do.Grandpa is doing well with his treatments so far ,I got to go to one of each with him last week.I was so sad to see him get chemo and so sad for all of the other patients especially one guy who wasnt much oloder than me, oh how he broke my heart .He told the nurse he was teminal ,and that he just had to get a car fixed he was working on for one of his five kids.Then he started crying and the nurse told him to hang in there.He put his blanket on his head after showing the nurse a pic of his family.I was so sad and tears were welling up in my eyes and my moms i just wanted to hug him and listen to him. He just needed to talk thats all he wanted. I was torn between running out of the room or running to him to hug him.Cancer is so sad , so very sad. until next time...
Saturday, June 28, 2008 7:39 PM CDT
Hello, Things here are calm because im on break until next week.Im not getting as much time with Tim anymore as I want to and its really getting to me.I hate this deployment and this war!!I feel angry about all of it.I am tired people being stupid and hating each other and keeping our soldiers over there.Grandpa is doing ok so far he has had one chemo treatment and starts radiation this week.I love him so much he is the cutest grandpa, I love to see him smile.It always makes me laugh. He is the only grnadpa I got left.My dad surprised me by stopping over today , he lives out of town.I spent the biggest part of my day with my sister and her hubby we went to a big fleamarket and I bought everyone alot of stuff.The boys are both working now and Nick is trying to save for a car.I guess that is about it for now my tailbone is hurting .Until next time...
Monday, June 23, 2008 9:30 PM CDT
HEllo, Things here are ok, I am very much enjoying my summer break from school.It feels so good not to have to stress over studing and clinicals and paperwork.I still am so excited that I passed this class. I really pulled that one out of left field. My final is what made me.And it barley did it.Anyhow I now understand how strong the final plays on my grade.Very cool.The boys are both working now and I really enjoy that as well. I have been having truoble with my computer it has been in the shop two times in two weeks.I still have one bug to work out on it .Tim is great he misses me and home really bad these days.I feel so bad for him I dont know how to make him feel less homesick. I did mail him two boxes today so I hope that helps him. He needed more vitamins and shampoo and things.I try to send him things he used at home it helps with being gone.I am doing our bedroom in a India theme and Tim has helped me in doing this by sending me some very nice gifts.I bought us a new frame that is a canapy and then ordered the fabric for it, I then bought a authentic India bedspread with pillowcases from a lady in India I cant wait to get it .I am just a few months away from graduation andI cant wait had I not falied a few times I would be graduating next Friday.That really makes me sad when i think about it. I want to go up to the hospital and do four hours up there shadowing a nurse to see if I can handle it in the oncology floor.I sure hope I can do it I already put in for my preceptorship at the hospital that Tyler was at.Grandpa starts his treatments this Thurs.He has agreed to stay with mom during this time.I have bought him a few things to help him along and I very much want to go to at least one treatment while Im off school.Well I guess that is it for now. Until next time...
Thursday, June 19, 2008 2:39 PM CDT
Hello all, I had a great time at the OR yesterday I went to four surgerys.I loved it ,I have a final and a quiz tommorrow and I really need t opas them both to make it through this class.I also have bad news to share.My grandpa has stage three cancer in the larynex he needs raiation and chemo twice a day for six weeks.I am so tired of cancer hitting my family .I hate it with everything I got.I got two tests to try and study for ..Please keep grandpa in your prayers.Until next time... Update: I passed my class!!!
Saturday, June 14, 2008 1:29 PM CDT
Hello all, The twelveth came and went and now its been 25 months I can`t beieve it it feels like yesterday Tyler left us.I was on the radion riaisng money for wishes can happen on the 12th.It was very emotional for me I was so wrapped up in the raiothon and crying over Tyler and thinknig about his good memeories that I didn`t even realize it was the twelth because I try so hard not to know what the dates are .I feel like the worst mom now that I finally realized wat day it was No wonder I was so emotional about tyler .I know I dont have to go to his grave on the 12th evey month but there has only been like two times in two years that I haven`t.This month being one of them. I have some bad news as well , Turkey grandpa has cancer in his throat and needs radiation 5 days a week for six weeks.I went to see him last night .I just learned about it yesterday and it was weird that after I got home from school I learned of this bad news.I am really very tired today my tailbone has really been bothering me and I took a pill for it lat night and it seems to be lingering in my system today.The boys are doing fine Justin still neds to get a grownup life and nick is working wirh his dad and even started a bank account.Tim is doing fine as well he bought me some great presents and I cant wait til they get here.I am going to go lay down for a bit and wait on my hubby to get a hold of me until next time....
Wednesday, June 11, 2008 9:57 PM CDT
Hello , I got good news!! I got my first iv started today on a patient. I was so tickled about it i only had to poke him one time.He was happy too hehe. I also have more good news!!I get to go to the operating room .It will be the best experience for me next week!! I cant wait I wanted to go all month. i had a really good day in clnicals today I am very tired .I had a patient just diagnosed with cancer today I spent alot of time with him talking to him about some of the meds and what he can to to help eleviate some of the bad side effects.I found him in his room crying too it broke my heart.He is a older man in his early seventies but it still broke my heart.i felt I really need to work with these people it just felt so right. I struggled a bit with school this week so I have to hit the books hard this week.I want to keep on keeping on and graduate.I just wanted to let you all know about all of that. i een got more good news today!! We have a local mall that a radio station is using to raise money for Wishes can happen.It gives wishes to local sick kids. Well someone went there today and donated a 400 dollar check in Tyler and his friend Raythenia. I was so touched by this that i called in and donated some money as well. I am so proud to be Tylers mom and Raythena`s friend. If you are the doner of that wonderful gift Thank you from the bottom of my heart . Bless you!! Until next time..
Thursday, June 5, 2008 4:16 PM CDT
Hey everyone, I just wanted to tell you all that I paa\ssed both of my tests on mon on the blood. i have one on the heart fri so I got to get bust. I successfully passed all my meds to my patients all day long at clnicals so im very happy about that. My teacher is not so nice and I did very well with her.It is very hot here so my mom and my friend came over and helped me get my aircondioners in the house.Tim is doing well we were both off today so that was good.Well I better go study. Until next time...
Tuesday, June 3, 2008 9:58 AM CDT
Gap by Michael Crenlinsten The Gap by Michael Crenlinsten
The gap between those who have lost children and those who have not is profoundly difficult to bridge. No one, whose children are well and intact can be expected to understand what parents who have lost children have absorbed and what they bear. Our children come to us through every blade of grass, every crack in the sidewalk, every bowl of breakfast cereal. We seek contact with their atoms, their hairbrush, their toothbrush, their clothing. We reach for what was integrally woven into the fabric of our lives, now torn and shredded. A black hole has been blown through our souls and, indeed, it often does not allow the light to escape. It is a difficult place. For us to enter there is to be cut deeply, and torn anew, each time we go there, by the jagged edges of our loss. Yet we return, again and again, for that is where our children now reside. This will be so for years to come and it will change us profoundly. At some point in the distant future, the edges of that hole will have tempered and softened but the empty space will remain – a life sentence.
Our friends will change through this. There is no avoiding it. We grieve for our children, in part, through talking about them and our feelings for having lost them. Some go there with us, others cannot and through their denial add a further measure, however unwittingly, to an already heavy burden. Assuming that we may be feeling "better" six months later is simply "to not get it." The excruciating and isolating reality that bereaved parents feel is hermetically sealed from the nature of any other human experience. Thus it is a trap – those whose compassion and insight we most need are those for whom we abhor the experience that would allow them that sensitivity and capacity. And yet, somehow there are those, each in their own fashion, who have found a way to reach us and stay, to our comfort. They have understood, again each in their own way, that our children remain our children through our memory of them. Their memory is sustained through speaking about them and our feelings about their death. Deny this and you deny their life. Deny their life and you no longer have a place in ours.
We recognize that we have moved to an emotional place where it is often very difficult to reach us. Our attempts to be normal are painful and the day to day carries a silent, screaming anguish that accompanies us, sometimes from moment to moment. Were we to give it its own voice we fear we would become truly unreachable, and so we remain "strong" for a host of reasons even as the strength saps our energy and drains our will. Were we to act out our true feelings we would be impossible to be with. We resent having to act normal, yet we dare not do otherwise. People who understand this dynamic are our gold standard. Working our way through this over the years will change us as does every experience – and extreme experience changes one extremely. We know we will have recovered when, as we have read, it is no longer painful to be normal. We do not know who we will be at that point or who will still be with us.
We have read that the gap is so difficult that, often, bereaved parents must attempt to reach out to friends and relatives or risk losing them.
This is our attempt. For those untarnished by such events, who wish to know in some way what they, thankfully, do not know, read this. It may provide a window that is helpful for both sides of the gap.
Thursday, May 29, 2008 5:23 PM CDT
Hello, I had my clnical yesterday and It was a nightmare.My instuctor is the meansest teacher I have yet to meet. She is going to make the next three weeks living hell for us all. I went hime with a migrane and slept all night as soon as I hit the pillow from stress. i found out today at school I was not the only one who got sick from the stress of her yesterday.I think passing meds with her will be a horrifying experience as well.Thisis the first time I have met a nurse that seems to want to crush us students not help us.I have two make a trip up there every Tues to get my care plan infor for my patients then spend all day writing them for Weds morning plus study the meds dfor Weds because she will not tell us who is passing them.We have to park miles away and take a shuttle bus than can make us late. It is a nightmare Im telling you all I hate that facility!! The only good news is that my theory teacher is a dream!! What a nicelady for us after dealing with the nightmare one. This teacher has done oncology so I love that rt away I know she has compassion. You should have seen her face when she reflected back on her experiences in oncology.We studied the blood today and leukemia she asked me if I wanted to talk about Tyler so I did until I choked up then I stopped.I have got to be able to study these things and do ok with it. I figet alot and hold back tears but I seem to make it through most of the time.I wanted to teach the students myself about Leukemia, I wanted them to know every detail But of course I told them just a few things.The hairloss is a big thing for me to want everyone to know that is really when it hits you that you have cancer and it is very very emotional.It is gut wrentching to see you loved one in a heap crying from it.Anyhow I just wanted to update and telkl you all how school is going.Until next time...
Sunday, May 25, 2008 9:13 PM CDT
Hello , since Mon. is memorial Day I wanted to take a few min to remember and reflect.I want to remeber all of the fallen soldiers who gave their lives for our freedom, so that we may choose what we want to do for a living and choose our spouses and choose how many kids we want and our religin and all of the things we take for granted.I want to take a min to remember that my husband and his battle buddies are all in Kuwait fighting for our freedom. And I want to remember my son Tyler who also was a tremedous fighter and lost his battle.Rest in peace to all that we lost no matter how we lost them. And Tim if you read this I love you baby sorry we can`t be together today. Happy Memorial day to all until next time...
Thursday, May 22, 2008 9:55 PM CDT
Hello everyone, I have great news I passed my class!!! I`m now on to a new one I will study the blood , heart and lungs this month.I am very happy to be moving on. My second piece of news is this... My 17 year old son Saved a older women`s life tonight. He saw our old house on fire and ran in and pulled her out of her lazy chair to safty then he got her dog out too. I am very proud of him he just ran rt in there and saved her she was afraid and just heard the alarms going off as he ran in.Thank God she and my son are ok .I couldnt bear it if something happened to another one of my boys!!! I always have told Nick that he was my hero now he may be someone elses. I am lucky to say that I have boys that I think are truly brave , sometimes when they really stress me out I can look back and see that the morals I tought them truly did pay off.Until next time....
Monday, May 19, 2008 7:25 AM CDT
Hello, I have a big week starting Tues. I have a test Tues, and two of them on Tues one is my final wish me luck.I really need this I have got to pass this class. My new little friend Katherine is doing a bit better she got to go home.Please keep her in your prayers.Tim is doing ok we are talking off and on online now he keeps going offline.Ok the boys are doing well Justin is going this morning to meet a retired doctor to do things around his house and yerd for him. Justin has worked for a retired person beofre and he did a great job I think he worked for him two or three years four hours a day and the man lived to be 103 years old. We all really miss him, he was so brokenhearted when he learned of Tyler being sick.I hope this works out for Justin.Nick has been working for his dad in his new venture of landscaping. I think Nick does pretty well with that. I am doing as good as I can being that I lost a child ,am a studnet nurse and have A husband deployed in the war. I need mercy for sure to keep me going.I do have my breakling points you all just dont know about most of them. I am very tired this morning but I got to get a showere pick up Nick and study and still find time to get to the grocery store today so my boys dont starve while im in school this week.My lawyer called my money is in but I didnt want to go today to get it it is out of town so Im going Fri instead. I got to pay off all of my docotr bills with it. it really sucks I wont even have enough to pay off my Escape when its all said and done.I really am still angry with that lady that hit me.Well anyway I got to run hugs to all.Until next time...
Sunday, May 11, 2008 8:56 PM CDT
Tyler Shane Gardiner
October 24, 1994
May 12, 2006 Im memory of Tyler Shane Gardiner May 12, 2006 not a day goes by that I don`t feel the pain, of you my precious baby boy not coming home again: You`ll never walk through the door, or hug me tight again: Or say "Mom I`m just messing with you'" or softly touch my skin: I miss you more than words can say, my heart still breaks for you every day: It seems you just left us yeasterday, but we all know you could not stay: We love and miss you bumblebee. Sadly missed by Mommy, Tim, Justin, Nick ,and Grandma L
Friday, May 9, 2008 5:40 PM CDT
Hello, Monday is the dreaded day for me.Tyler will be gone two years. I went to the newspaper today and I had wrote Tyler a poem and took down a pic of him to be put in on Mon.It was over 60 dollars to put that in the paper.I couldn't believe it!! Anyhow I am trying to rack my brain to figure out how I want to spend the day can you get that I am trying to figure out how I want to grieve for my child it just sounds to crazy for even me to understand.I know I am having my counsler come in the a.m, and I know I am going to his grave with my monthly balloons.But after that I just don't know.I have a test the next day I hope I can pass it with all of this going on. I have been so moody and I know its from dreading this day.I still dont know if I have grieved because knowbody grieves the same way for one thing.I know I understand he is gone and not coming back. I know I will Not change his room yet I have no need to do it yet. I have a jernal and in it there is a place to say goodbye and I have not done that yet either.And yet through it all I have done many things to honor Tyler and I feel good about those thigs,there are just those few thigs I want to hang on to thigs that mean so much to me.You see Tyler put things on his walls and on his bed and in his drawers and I do not want to mess that up !!His little hands that were so cute touched those thigs and put them where he wanted and I love it that way.I can go and look at it and it makes me feel close to him.So I guess in some ways I have not moved on and in some ways I have and that is the essence of grief. In susan `s words that is.And if some people dont agree to bad.He was my son not there son! Until you live in my shoes you cant judge or know how it feels.I have a new mom who found me on this web page and her little girl is just a baby of three years old and has excactly what Tyler had, please pray for her Daughter her name is Katherine. She has a great Mommy and I know they will get through this and I will do what I can to help them.I want to help as many little kids as I can because I am honoring Tyler everytime I can help another family make it through another day or min or sec. I am still angry that these kids get sick and I may forever be angry but they have a fire in them that fights through hell and back and they find a smile in their little bodys even through the pain and puke and mouthsores and iv`s. They are the ones who have taught me what it is to fight and to love like I have never faught and loved before.And with that I will close until next time.... Update: I figured out how to honor Tyler in a special way, I went and got a tatoo fo a bumblebee with angel wings that has tyler`s name below it. I love it!! it hurts real bad but I love it. I know Tyler would think its cool.
Saturday, May 3, 2008 1:38 PM CDT
Hello, Things are ok here, I hear from Tim every day.I miss him so much I cant wait until he gets home.I passed my quiz on tues I missed two questions. I am very happy with it.I have a big exam ontues that I need to get busy studing for. The boys are doing good as well. Justin may start back to his old job at the tire company on mon night.Nick has this month to finish up with school and then he will be done for the year. I have a headache today that I woke up with not feeing to nice today.Im sure it is a sinus headahe they are the ones that wont go away for me.Only if I take a sinus pill.I guess that is about it I got to run until next time....
Monday, April 28, 2008 2:16 PM CDT
Hello, I start back to school Tues.I have school Tues, clinicals weds , school thurs. I have got to get a good grade this time. I just got to.Tim is fine and we talk onlnie everyday we can talk for free on yahoo on the computers like a phone it is really cool.We both bought cams too so we can see each other when we want to.I miss him so much. My boys miss him too. Nothing seems normal without him here with us.He is the love of my life and I wouldnt be here without him.He truly is my rock.My boys are doing good too.Justin is celebrating a year today with his girlfriend.nick is finishing up his last month of school for the year.My tailbone is really hurting me today I took a pain pill so now im sleepy.I have so many things to do before the day ends.So I dont want to give in to sleep just yet.My mom is offically divorced now. She seems to be doing ok.We been spending alot of time together I think she may be lost when I go back to school this week.Well that is about it for now take care...Until next time....
Tuesday, April 22, 2008 8:28 AM CDT
Hello all, My class and I have a meeting with the Dean at 2:30 today I dont know how that will help but I am going to it.Things are a bit better here as far as all of my problems go Tim is talking to me alot more, that helps alot.My councler comes tomorrow and I can`t wait to talk her ears off about everthing that has happened .She is so sweet and drives over an hour to visit with me. I sure am going to miss her. I really want to work with Hospice now that I know all about them.But it has to blend in with what Tyler wanted me to do.I cannot wait until school is done, I wanted to go straight to RN but Im getting burned out.I will need a break first.My mom is here with me rt now she has been vivisting me a couple times a day which is nice.My sister and I are gonig to take her out for a surprise today after our meeting.It will be nice ,mom knows she is going somewhere but she doesn`t know where. HEHE.THe boys are doing fine as well as Tim.I bettter go I got to go get Nick from school. Until next time....
Sunday, April 20, 2008 5:34 PM CDT
Hello, My life is falling down around me. I have failed yet another class ,and my huband and I are apart in more ways than I would like ,by body seems to be falling apart as well.I am so depressed I would just like to curl up in a ball and sleep and never come out.Tim doesn`t want me to take my depression meds ,he made me promise him not too.I am so sad and lonly I can`t stand myself. May is coming and we all know that Tyler will be gone two years. Where has the time gone.I still hurt as if it were yesterday.Will I ever be better, will I ever graduate as a nurse? And most of all will Tim and I make it through this deployment? I don`t know the answers to any of it anymore.Life is sad at the Gantzler house.I thnak you all for reading about my gripes. I am so tired of holding this all in, I want to explode.Ok I guess I complained enough ...until next time...
Thursday, April 17, 2008 2:53 PM CDT
Hello, I just wanted to update to you really fast.I failed this class so I am taking off the remainder of the class which is next week and I will start over the following Tues.I had a very hard time with this class as did my sister she will be joined me in retaking this one.This class was on the endocrine system and some other things.It was not a easy class they say it may be the hardest one.Who knows as this point I am thinking that I seem to like to pay double for my classes and take them twice HAHA. Not really.Anyhow the boys are working with their dad and they are finding out how the blue collar man does things, I had to take them poweraid and sunburn medicine today.Gewiz a moms work is never done is it.Tim is doing fine although I have not got to personally talk with him today and I problally will not now since he is 8 hrs ahead of us.Everyone take care.Hugs until next time...
Monday, April 14, 2008 12:26 AM CDT
Hello everyone, I have a big test tomorrow and I have just got to pass it!!I am getting ready to study for it again in a few min.I just wanted to tell you all that I went to the doc today to get another TB test done for school and to have him check out my tailbone.Well as you all know I fell on ice well over a month ago and it still is no better.I found out through xrays that I broke it in two spots.It is actually protruded in the opposite direction than it should be.The doc gave me a med for thte pain and you know the rest I got to do whatever I can to keep pressure off my bum.I don`t know how long it will take to heal but it sure needs to hurry up.I sit on my legs not on my bum to keep pressure off but when i have to drive it is really bad. i had my sister drive my car on fri for me.That way I can keep moving around to find a good spot to releive pressure.Every since Dec I have been on a downward skid.Tim is doing well he called me this AM I miss him and he is sad there as well.He says the weather is mid 90`s but not humid .it is always very windy there too that hepls except for the sand blowing in their eyes.Well I better go I got studing to do .Until next time...
Saturday, April 12, 2008 3:00 PM CDT
Hello, today is a terrible day for me.I hope I am all cried out.Is there such a thing as being out of tears?? I hope so.My friend had called me in the middle of my madness and she too was crying because they layed her daughters stone today.Oh my was it the most gorgeous thing. THe day has not gotton any better yet.My eyes are sore and there are teenagers all over my house.UGGGGG!! I am needing to study too and so far I have failed three out of three tests.I study and she gives us a horrible test.Well I better go Im tired of typing. Until next time...
Wednesday, April 9, 2008 3:36 PM CDT
Hello, Well once again I am frustrated with my school and myself.I am not doing good in this class, the good news is most of us are not.My teacher is not good in the class room.NOWAY!! She was my clinical teacher twice but in class forget about it. She takes forever to teach and our tests are NOT what she teaches us.I have gotton so upset that I have left twice now.I never do that.If I fail my test tomorrow I will really have a meltdown.I am testing on spinal accisdents and some other neuro disorders.This stuff is not hard but the tests ARE!!! I hate tests......Tim is doing fine and he is at his base now ,he doesn`t like his room way to blahhh and small.I sent him out a package today and a calling card. He really goes through those. If any of you know of a good place to get them for overseas calls let me know .I got this one at walmart for 40 bucks yikes!!THey charge him tons of min just to make the call. crazy huh..The boys are ok too Justin is a bit bummed out rt now and Nick hit my car into a pole today needless to say I made him get out of the drivers seat and I was very upset.My new car I only had it three months.It hurt the bumper a bit.Justin lost his job today as well so one hour after I droped him off i had to get back up and get him.See what kind of day I am having??? Yea!! Ok better get back to studing and don`t forget Sat is 23 months that I lost my sweet Angel boy.At least I can go sit by him for a while and not worry about school. Well until next time...
Thursday, April 3, 2008 8:11 PM CDT
Hey everyone, I had my first test today and I am sure I failed it most of the class did, I left before I got the results. The instructer is way to slow in her lectures.Tim made it safely to kuwait.I am very upset this the pbs channel they made a show on the war and it was exactly about Tims job and where he will syay at.I wrote to the producer and told them they jeoperdized the soldiers.I have my first day of 12 hour clinicals tomorrow. EWWW.Well I better go .Until next time...
Saturday, March 29, 2008 2:51 PM CDT
Hello everyone, I put on a new video I liked you have to stop the eye of the tiger song and then you can hear the video it is very pretty. It is a song about heaven.I passed my class with a B.I start clnicals on Fridays for twelve and a half hours this month.I will be beat.I will work at a rehab center for people who got hurt and are in wheelchairs or got paralized.I want to ask you all to pray for my husband because he will be deploying very soon.I can`t say when due to the bad guys but I will not hear from him for a few days and that will hurt me alot.I miss him so much.He sent me a letter today it was so sad.I really hate this war and I don`t approve of it.Just my bit of two cents.I will have a somewhat lighter schedule now I am looking forward to it.I don`t go back until Tues.YEA!!!! I spent the day with Nick yesterday and today I called it Nick and Mom day.Justin is at work today for most of the day.Well I got to run. Until next time....
Wednesday, March 26, 2008 5:15 PM CDT
Hello everyone, I am home now.I took three test today and I know I passed one for sure the other two she didn`t grade before I left.I was supposed to hear from her no later than 6 pm if I failed and it is now 6:17 so far nothing I didn`t fail a test this month as of yet. But my final was a bit rough on me in some parts.My trip with Tim was the best!! We took so many pics and went to all parts of Texas. We went on a river boat and traveled alot in mon in San Antonio Texas. It is the cleanest and most mannered place we have ever been .The weather was very nice too I even got a bit pink.We made so many memories we just love to be together and we laugh so much.We both cried we I had to get on the plane to leave.It didn`t help any when he called me and my call in song is about airplanes leaving.Sorry honey!!I am still very tired but I have one more clnical tomorrrow yet.I just finished all of my papaerwork for that. Now I got to get dinner and find me some Dr. Pepper.It was nice to get away at Easter but I still mamaged to shed some tears with Tim talking about Tyler1s last easter with us.I also missed the boys and felt bad about not being here to cook them a dinner can you beleive as old as there are they wanted a basket???Tim will be leaving soon but of course I can`t say more than that. Just please keep him in your prayers to be safe and come home to me asap.Thank you all.Until next time....
Wednesday, March 19, 2008 5:34 PM CDT
Hey all , I will be leaving for my trip to see Tim this Fri. Here is a poem I just received in the mail. It is perfect for Easter and missing my Baby Bumble Bee.
The Jelly Bean Poem For Grieving Families Red is for my love for you that will never sever;For love is not measured by the time we had together, but what`s in our heart forever. Green is for the memories that I always will treasure; although time may pass, our memories wil last for ever and ever. Yellow is for the sunshine that you have given to me; you brightened up my life and made my world shineand will continue to shine brillantly for thte rest of time. Orange is for the candle flame that glows so bright as I speak your name in prayer as God to hold you close until I can join you there. Black is for the greif from my broken shattered heart; taking each day at a time as I keep your memory alive. Life is different; I am differnet but I Can and Will survive. Purple is for tears i shed as I remember you; precious memories you left behind preserved deep inside. You will always live through our family forever by our side. White is for the hope and faith in God aboce; the promise of resurrection knowing we will reunite above the clouds over the rainbow in His everlasting light. Pink is for the signs you send me from Heaven above; lighting my path whereever I go and whatever I do. My precious child I will always love and always remember you on Easter as always.
I thought this was wonderful and wanted to share it with you all.Easter was oue last holiday with Tyler.I also has some other news. I got a call fro makron childrens hospital and they are willing to let me shadow at the 5600 unit. That is oncology. Tyler wanted me rt there. I hope to do this and get them to let me to my month rotation after I graduate.I also got a 96 on my test today. I only missed 1 question. I have made a huge improvement this month I hope I can keep it up I have to make up two test and do my final all in one day the day after I get back ,YUK!!! I hope I can do it, So far so good no failed tests this month.I have a clinical tomorrow.So I am gonig to make dinner and rest for the night.Take care and keep me in your thougts as I have alot on my plate, Telling my husband goodbye and taking all of these tests is alot on me.I have just got to get through it!!!I got to for my Tyler shane(AKA) Baby Bumb Bee. Happy Easter all. Untiul next time..
Thursday, March 13, 2008 6:03 PM CDT
Hello, I have been doing well so far on my tests. I got a 92,88,84 so far. I had a clnincal today and i have my make up one tommorrow. I also fought long enough to win my battle about loosing my ten points on my test because of going to see Tim. So I am not looking any points!!!!!!! I am so happy about that. Do you see how easy it is to make me happy? My butt is still so sore from my fall on the ice. I hit my tailbone and I am sure it is at least cracked. i bought one of those donuts to sit on but it hurts to bad to even use it. At school i have to sit all the way up on my chair for six hours and I love clinicals rt now because I can walk around and not sit.I am in so much pain at home I lay on the couch on my side to keep pressure offf the bum.I feel even more empathy for my patients now , you know the ones with the bad hips and the sores on the bottom. I was telling God that he didn`t have to teach me in this way lol.I had the best dream aout Tyler on the 12th.He was hiding under my bed and kept putting his bears clothes on it , I kept telling my mom that things of Tylers were piling up on my bed, then I looked under it and there he was!! I said Tyler what are you doing under there you are not supposed to be here.He said "I wanted to see you mommy I tricked you". I was so happy I kept kissing him and hugging him and telling him how much I missed him.He wanted to talk to grandma then and ask her whats up!! It was the best feeling to hold him again.What a great gift that was on the 12th at that!!!I truly feel that those are vivits from Tyler to me and it is so real, I truly wake up feeling like we were together.I missed how he felt now I remember so well again.Well I don`t want to cry so I better stop that.Tim is doing well and I can`t wait to see him he is finishing up his trianing in Texas and then we all know he goes on to war from there. I can`t even go there in my mind.Please keep him in your prayers he is the best man I have ever known, the most honoest and brave and true and caring. I love him so very much I am truly not the same without him by my side.Well take care and as always until next time...
Monday, March 10, 2008 6:32 PM CDT
Hello, My teacher said nobody failed the test but she didn`t give us any results yet.I just wanted to update and say I fell again on the ice at my house I hurt my tailbone bad.I am so sick of falling is winter over yet??? Thats about it I got to go study. Until next time..
Thursday, March 6, 2008 9:20 PM CST
Hello , I had a good day at clinicals today.I passed my patients meds twice today.She is a very interesting lady.I am going to do my papaer on her.I told my clinical teacher that I am leaning twards being a hospice nurse. Guess what she gave me a hospice patient for next week.I hope I can make her comfortable and do my best to make her stay pain free.She is also blind , poor lady.I met her today because I helped my friend turn her today, (turn means that we turn the patient every two hours to prevent bedsores.) Anyhow I thought I would share that with you all about her. Now Tonight I have been trying to get my care plans started on my patients but somehow I got on this pc and seen some videos on kids with cancer, well I am sure you know that I have been sitting here crying my crazy head off.I know I got to let it out but I hate doing it.I went traight to Tylers grave today after I left the nursing home and I have got to take off his grave blanket so I can put Easter stuff on it.I been so bad the last few months with not puting decorations on it. He loved when I decorated. I hate Easter because it was our last Holiday with him.It really hurts down to my core. I have him all aorund me everywhere Oh what I wouldn`t give to have him home with me again.To hear him ask me to hide him some Easter eggs again. to hear his Get Er Done jokes again. Man am I a ball bag tonight.(crybaby) for those of you that don`t know what that ment.I wish there was a magic pill to take so I could skip my pain and hurt. Grief stinks big time..Tim is doing well he can`t wait to see me.I miss him so much.He is the best thing that God could have done for me since he took Tyler.I don`t know what I would do without him.He and my kids are my world. Well I better go my hubby is on the phone.Until next time...
Wednesday, March 5, 2008 5:17 PM CST
Just a update.. I got a 92 on my quiz today!! I was very tickled. They are however giving me a time about leaving to go see Tim. I arranged to make up my clinical but they want to deducy ten points off my exam that I will also take before I leave.I don`t think that is rt because I never miss and I have a good reason my husband is leaving for a year!! Come on how whad they feel ? So I am not letting that go.I will figure out a way aroound it nobody can afford to miss ten points rt off the top. Well got to go study my meds I have to pass to my patient tommorrow.
Monday, March 3, 2008 8:42 PM CST
Hello, Well I am off to another month of the older adult. You would think God was giving me a hint or something having me repeat this class for the third time.But the older adult is not what I want to work with no offence to anyone but Tyler wanted me to work with kids like him. So be it that is my goal.The bad news is that I didn`t win my fight to contest my grade so I am now in the class yet again.But .. I did get to go to my clinical that I wanted which is rt here in my town. That I am very excited about. One whole month of not leaving the area for a clinical.Awww the smallest things can make a girl happy huh.For this girl anyhow. I get to go on Goof fri to see my hubby for four days. I am very happy I even get to go on a few planes to get there. I like planes and I know I will feel closer to Tyler while I am up in the sky. He loved to fly too. He often thought about heaven and his friends that passed before him.Tyler had the wisdonm of an older adult.How many 11 year olds have you heard of that had such grace in dying and also planeed his own funeral.I am so grateful for that gift from him he made his wishes known not only verbal but in writing.Now you tell me how wise my boy was. He was much wiser than I for sure.I hope God gave him his four wheeler up in heaven or I know Tyler will be making some noise.I sure hope I can make him proud of me.On to other news... I had some more tests done today due to pain in my left hip. I have degenertive arthritis in my hip as well as my knee. I am on a med for it for two months and if it doesn`t work I have to get steriod shots in my thigh.YIKES!!!! I already told the Doc NOWAY!!!!!I need to give these shots first to see how bad it is. I know I am a bad patient. Sorry but I hate needles.The boys are doing fine and both still have a steady girl.Poor me . I got to deal with girls in my house Joy Joy.Well I better go I have all my clincal stuff ready but need to study some more. Take care... Until next time..
Friday, February 29, 2008 6:31 PM CST
Hello all, I have bad news yet again.I falied this class again. Can you believe it because I can`t.I am behond upset. mon I am going in and challenging my grade because today I looked at one of my tests and she marked two rt answers wrong.I had her fix them so maybe she did that on other tests as well.Wishful thinking anyhow. My sister failed it too an so did a few of my friends so I at least wont be alone. But come on I want to graduate already. Each time i fail I pass 15oo more dollars.I am beyond frustrated.Anyhow I am going on for the night with my friends Until next time...
Saturday, February 23, 2008 5:51 PM CST
Hello, I thought I would make a quick update.School is ok I am still having some issues with tests.Passing is still possible but one never knows until the final which is next fri. I got to do a TB test and lots of insulin shots thurs, I was tickled to get to do them.My patient was very sick with several diseases HIV, and a few others. I treated him with great care and he said I could give him an injesction any time as I was very gentle and caring to him. My teacher patted my back for his compliment and I teared up.I finally felt like this was all worth it just for these small moments when you can make a diff in someones life.They just need someone to give them time and attention and kindness.And it helped me to overcome another fear. He is the second person I know with HIV and He thought he was going to die a few days ago and even though he was not my patient I stayed with him and told him he would be ok.I did my best to get him the air he needed, IE* oxygen, A fan, A open window things like that and a kind face.I only want to be the kind of nurse that Tyler had ,he sure had a couple of special ones in both hospitals, the ones who went the extra mile.I want to be just like that.Enough about me my boys are doing well. Nick ran me around today to do errands.My grandpa came back home from Florida so we went to see him and my uncle.Tim is doing well and is finishing up his training.I can`t waitt o go see him. Next month is when I go. We are both so excited! It will be bittersweet as we know when I leave so does he for his tour of duty.I hope God will protect him.I try so hard to make him happy and let him know how much of a good man he is,I am so head over heals for him. I only wish we met years ago.I couldn`t have asked God for a better husband.He is my soul my exact other half.We know sometimes what the other is thinknig , I know it sounds crazy but its true.THe other night we were both looking at the moon and he called me and said "guess what I am doing?" I said hmmm looking at the moon. He laughed and said how did you know that ...Funny huh.Anyhow without Tim I know I wouldn`t be here.I couldn`t make it without him.I hope my mom meets someone as sweet.She is doing well and is gettting ready to sell her house any takers??? Let me know.Well I got lots of homework to do and patient charts to do for Tues. Until next time....
Sunday, February 17, 2008 8:32 PM CST
Hello , I have a big test tomorrow I hope to pass it with a really good grade.I am so tired today .I miss my husband so much I can`t wait to see him next month.I will worry about him alot after we have our visit becasuse I know he will be going overseas.The boys are doing good ,well Nick is sick rt now ,Justin is getting more hours at work and bringing home more and more fish...I really worry about my mom these days I am now mothering her in stead of the other way around.Tyler`s dealth is really taking a toll on me nowadays too.It is really setting in and I can`t stand it sometimes. There are days where I can`t talk about him and I can`t beleive that I am doing that I just cry so hard I can`t do it.Then I get angry I am really mad alot anymore.I don`t really know at who or what but if I had to guess I would say God since I don`t go to church as much or pray like I used to .I feel like a monster by feeling like this but I can`t control my feelings. That is another issue Feelings boy do they stink.I hate being able to feel.I would like to be numb again.I can do numb.Anyhow I better scoot I got studing to do.Until next time...
Friday, February 15, 2008 10:45 AM CST
Hello everyone, I am not as stressed this month with school.I am still not doing as well As I want or need to but I do have a big improvement since last month.My clnicals are not stressful as I have had this instuctor and been at this facility three times now.I know the patients and I have a connection with them.I check in on the ones I have had in the past just to say hi ans talk to them for a min or so.There is one special one there that was a patient at Tylers hospital and he also is a big steelers fan like me HAHA!! I love taking care of him he is so sweet and it sadends me so much that cancer did this to him. The boys are still ok but are agitating me alike these days ,I seem to have a short fuse and blow easily nowdays.Tim is still in training and I miss him way too much.Valentines day was a sad one.Well I got to go lots of things to do today .Until next time...
Friday, February 8, 2008 10:16 PM CST
Hello, I had my first test today and I failed it yet again. The only reason I am not fired up abput it is that this time most of my class failed it. Therefore it was the teacher who did not make things clear enough for us.I have another test on Mon.I hope I do well this time.I will not fail this class again.My look surely can`t be that bad could it? Ohhh ya it is... Haha any how that it about school.Mom is doing good she worries me alot but is holding her own in the divorce department.The boys are doing well too Justin likes the amimals he works with and now proudly owns a 75 gallon fish tank.Tim is continueing to do well in his training. I miss him so much .THe 12th is coming up soon and then you all know I will be torn up . I still can`t beleive my baby boy is in the ground it just doesn`t seem real when I go there.Last year It would make me sick with worry when it snowed on his grave I hated it.Anyhow enough about that.Until next time....
Saturday, February 2, 2008 8:17 PM CST
Hi everyone, I am a mess I fell on the ice in my driveway today and I am hurting bad in my leg that is already injured from my accident.I am using heat and plenty of pain meds.What a disaster I am.I have got to feel better by tues, i have a clinical then and need my body to work good for my patients.Tim is ok the boys are good too.Justin got a huge fish tank and so you can imagine all the fussing he is doing with that.I want to get a puffer fish they are cool.Well Justin just called me to come pick him up from work.Until next time......
Thursday, January 31, 2008 9:20 AM CST
Hello, Well I start back to school on Mon.I really have enjoyed my time off this past two weeks I am dreading going back, But to achieve my goal I have too.I have to make Tyler`s dream for me come true.He wanted tohis mommy to be a nurse that helps kids like him and I cannot let him down.Noway I have got to make it I just have to.I walk around this earth a wounded soul. I want to pretend I am ok but I am so not ok.I have a pain that is so deep I feel like I have been ripped apart by a animal.My loss is undescribable to you.I went in Tyler`s room last night and opened his dresser drawers and looked at his close and things he put in them I was surprised I didn`t cry ,but I was sligtly shocked at how small his clothes seemed to be.My tiny baby boy so frail and yet so strong.He is the strongest person I knew and will ever know.He truly beleived he would be healed and then it came back and he was so heartbroken and angry.I just was lost for words I just held him and let him tear at me when he was angry.I miss him and Tim so much !!! Life will never be the same for me.The doc says I am drepressed so he gave me a pill that I can take when I feel bad not daily. Tim doesn`t want me to take it at all because I don`t do well the those kinds of meds.So I am trying to get by on my own. Maybe just knowing I have something if needed will help me get by.My leg is still giving me problems from the accident I had my MRI but don`t know the results yet.I know I told you all that I start my class over, the good part is I will be with my sister again.I the bad part is I am not with my friend Sheila anymore and I have to pay more money for school to take this class again.Tim is doing fine and I can`t say much about him due to the bad guys reading families and soldiers blogs and targeting us.So now I have to be careful what I say. My boys are doing good too.Not much to report on them same ole same ole.I guess that is about it .Take care...Until next time...
Sunday, January 27, 2008 5:50 PM CST
Hello, Things here are calm for a bit.I love being off of school.One more week of freedom then its on again.Tim is doing fine he has been gone three weeks now.I feel better now that I had a blessing from my church members.Things are a little less tense,at least until school starts again.I miss my hubby so much I am very proud of him I never really new what military families go through until now.Anyhow the boys are fine as well and things are good for them rt now as well.I will update later as to how things are going.Until next time....
Tuesday, January 22, 2008 2:31 PM CST
Hello everyone, I have to get an MRI on my leg. It is reallly bothering me and the doc says something may be torn in there.So more tests for me great huh? I got a lawyer to take care of those things for me I am tired of the stress from it .I talked to my school today and I am going to post attendence every three days until the new class starts on Feb 4.I will miss my friends greatly but there is nothing I could have done diff, I just had to much on my plate.I hope I will be refreshed when I go back and aslo a bit more healed from the wreck.Tim is doing fine and missing me alot as I am him.I am going to send him another box with some nice little things in it for him.I miss him so much. I sure don`t know why I keep being tested like this in my life.Valentines day is bad for me as well not only because Tim is away but Tyler loved it too.He used to tell me I was his valentine only he called it "Balentime", My poor little man He had the ornery smile to go with his little lisp.My mom always said how cute his mouth was and then I always replied "not what comes out of it"!! She would always laugh at me.Tyler was so cute.I hope he has fun in Heaven with Jesus.I wonder if he got his four wheeler there.I sure hope so.He was looking forward to it in heaven since he didn`t have one here on Earth.I guess I will go for now .Until next time.....
Friday, January 18, 2008 3:32 PM CST
Hello, Just wanted to let you all know that due to all of my stress from my life I failed my class so I am taking two weeks off and trying to get a grip on my life.I am so tired and I am starting to have a lot of pain from the accident as well. I cry almost everyday from stress.So it all caught up with me.I will be back with my sister in class now when the new one starts again.It is also a big class which is stressful to me as well.I have 10 now and the new one has 31. Well that is about it for now .Until next time...
Tuesday, January 15, 2008 6:41 PM CST
Hello, Just a quick update school is not going well this month.I have failed two out of two so far I have another test tomorrow and another on Fri.With Tim being gone my life seems to be spiraling down.Things are so sad here and I cry at the drop of a hat now days over Tim and Tyler.I am stressed to the highest.Take care and wish me luck please.Until next time...
Friday, January 11, 2008 9:52 PM CST
Hello, Tommorrow is twenty months that my angel boy passed away.Where has the time gone?It feels as fresh as yesterday.I went to his grave today and talked to him more than I ususally do.I will go with the boys tomorrow and let off balloons like we doing on the twelth of every month.I am so down any more it seems like nothing wants to go my way. School is getting to be a burden instead of something I want to do.I am so agrivated with everthing now days.I miss Tyler and Tim more than I could ever explain to you all.It is a pain do deep I cannot see a ending too like a black hole I fell in and I am waiting to wake up. My body hurts alot still from my accident as well, but my face has cleared up now it is just red in the affected spot.I got Tim and my pictures back we had taken before he left they are so nice.I put them up on the walls tonight.I sent Tim his first package today It was just some things he forgot and a card from me.The boys are well they were working on filling in the tatoos tonight.YIKES. I keep checking to mkae sure the guy doing it is using clean needles and supplies. I don`t know if that is the monther in me or the nurse.Well I better go I got a care plan to do for my new patient and it takes about three hours if I don`t take a break.Please pray for me to get through my trials take care... until next time.....
Wednesday, January 9, 2008 9:59 PM CST
Hello all, I failed my first quiz today.I was not happy but it happens.I went to the doc for my face and he gave me a shot.I like giving them not getting them.I got bream for my face too.I like my new clinical site it is like a big hotel very fancy ,my teacher is nice too.I go tomorrow and it takes about an hour.I am so tired these days and I seem to be really depressed today I had to leave class and run to the bathroom to cry because we were talking about death and mourning and stuff .When we got to loosing a child it was too much for me. I had to escape for a bit.I saw a pic this morning of a boy from my town who is only 9 with kidney cancer and it tore me up he is all I have thought about today and I am so sad.He looks like Tyler rt before Ty passed.I lost three pounds in a couple of days and I just feel lost.Tim will be gone a week tomorow, I am wondering around like a lost soul. I am having nightmares and not sleeping well.Sat will be another month that Tyler left us.You all know how I get around that time.The boys are doing good and Tim is well.Mom is sad rt now she is lost too.Well I got to get some sleep.Until next time.
Sunday, January 6, 2008 8:22 PM CST
Hey all, School starts back up for me tomorrow so back to the crazyness.I had to go to stat care today I have a big sore on my face that led into my lymph node to swell and I thought I was bitten by a spider. I have an abcess that hopefully my two new meds will take care of or else I have to have my fave lanced open.NOT!!!!!!!!! The doc don`t know that yet HEHE.Anhow I lokk like a weirdo ,(like I needed any help there), and I hate that I have to start school like this.Tim is doing fine I misss him like crazy too bad I couldn`t clone him before he left.Well I guess I will go take more meds for the booboo. Until next time...
Saturday, January 5, 2008 7:40 PM CST
Hello , Just a fast update.I start back to school Mon yuk..This teacher isn`t playing either I got a rough road to go with her.I got bite by a spider on my face and it is swollen and so is my lymph node in my neck. If it looks worse tommorrow I will go to stat care and get something for it.Just what I needed rt before school huh.Tim is safe in Texas and all the rest of the soldiers will be there Sun.When they get there I have the duty to call some of the family to let them know they made it safe.I am part of the FRG froup (Family readiness group). I can`t do alot to help because of school but I can make phone calls.Well I got some things to do until next time....
Thursday, January 3, 2008 5:40 PM CST
Well I did it, I took Tim to the airport and it about tore me apart I have cried alot of the day.He is safe in Texas he made it there around three pm our time.I am a lost soul wondering around without him.I just don`t know how I will make it a year.I am being tested for something big but I sure don`t know what it is yet.I really love Tim with everything I have and I am not complete without him near me.I really hate this war.Watching him get ready to board the plane was allmost too much I had to leave fast.When I got home i go in bed and was crying and when I lifted my side of the shhet there was a card there with my name on it.Of course my wonderful husband hid it there for me and it was so pretty he wanted me to try to smile through my tears.Of course I cried even more then.But what he didn`t know is tht I wrote him a letter and snuck it in his computer bag plus I wrote him two letters on his pc that he will find HEHE.I guess I trined him well , As I always send him off with a letter sprinkled with my perfume.I hope he stays safe and comes home as fast as he can .As for my acident I am hurting alot in the neck and my leg and hip. I start theropy on mon two times a week for a month.As for my friend she has a new break in her collarbone and she huerts alot.I feel so bad for her.I still have my rental car until sat I love it .My new Ford is very nice I am decking it out in pittsburg steelers!!Cool huh! I go back to school on Mon. I am liking being on Holiday way too much.I set up my fish tank today too. I can`t wait to get some fish in it.Maybe my blood pressure will go down.The boys are doing well too they were there for me today and both got up at 4 am to take Tim to the airport. Nick drove me back home because I was too upset.Mom is doing ok too She has a date now and then but nothing serious.Well I got to go cook dinner. Until next time...
Wednesday, January 2, 2008 9:59 PM CST
Hello, I just wanted to say that Tim is leaving for texas in the early am he will be there for three months and then I will fly out to be with him for a few days at Easter time. He will then fky on to Kuwait for another 9 months.please pray for his safty and my sanity I can`t even imagine my husband my best friend being away for so long.How I will even get though is a mystory to me.Until next time....
Saturday, December 29, 2007 2:24 PM CST
Hello all, I got a new car!! It is a 2001 ford escape.I ham happy with it it is black and gray. Tim will be deploying Jan 3. I need lots of prayers because the thought of him leaving makes me so sad.I can`t beleive I found a wonderful man to love and he has to leave me a whole year.Please pray for my friend Nora as she just lost her mother and its only been afew montyhs since the loss of her daughter. I feel so bad for her. my body is recovering from the accident and I have to get therapy three times a week. YUK!! I DONOT like being a patient.My friend is still in pain from her clavicle being broke. She loves the new car . Take care and bless you all.
Monday, December 24, 2007 9:43 PM CST
Merry Christmas all, Merry Christmas Tyler mommy misses you so very much!It is now my second chritmas without you and my heart is still ripping out of my chest at the thought of you being gone.I will never see you grow up and get married and be a father.I already missed out on you becoming a teenager.I hurt so badly for my loss of you on this earth.I don`t tell people the truth of the pain and the depth of it.I can`t explain it to them.Some days I feel like I am a hollow shell just walking the earth searching for the piece of me that I lost ,that piece is you Tyler, I will never ever be the same Susan I once was.You tought be to be brave and take the punches but I can never be as brave as you bumble bee never.I will forever miss you and your teasing and your mood swings and your ever so soft hands the way they touched my arm and my hair the way your qivering little voice said "I`m just teasing mom". I hope you left this earth in piece and I hope you are happy in heaven with your fourwheeler.Be good baby I love you forever and ever.P.S I hope you didn`t run over God`s foot with the fourwheeler like you said you would. Fly high angel!!!
Friday, December 21, 2007 6:24 PM CST
Hello all, First let me tell you I passed another class! It was a close call but I made it.And now onto the bad news... I was on my way to school this morning with my friend and the next thing I know I woke up and my car was mangled.My friend has a broken collarbone and I am in a leg braise and on three pain meds. A lady who only lives down the road from me hit us ans another car as well in canton.I now have no car at all it is totaled and it ment so much to me and Tyler. He was all over that car I feel like I lost another piece of him.I cried so hard when I saw it what a mess and what a good car it was always getting Tyler to his treatments.I can`t get a rental either until we prove she had insurance.I was really mad when they told me that.I feel so bad for my friend being hurt.I know it wasn`t my fault but still she could have died.Life can end in a sec.I saw it with my own eyes today.Always tell the ones you love how much they mean to you cause you never know. Take care and Merry Christmas.
Monday, December 10, 2007 5:27 PM CST
Hello all, School is very busy but yet a bit more relaxing for me. I have two clinicals a week and school two days a week so far I have passed my tests. I have another one tomorrow wish me luck.Yesterday we had a memorial service for kids that we lost.I cried so hard that for the first time I could not speak about Tyler. My friend had to do it for me.I have so much grieving to do yet it seems.The day was very special we hung angel ornaments on a tree and then told who it was for but like I said I couldn`t speak at all.It sure does help to be with people that know what I am going through.I miss my baby so much I cannot even tell you how much. The boys are doing fine and so is Tim. i got to go study now take care...
Tuesday, December 4, 2007 2:58 PM CST
Hello all, School is long and boring this month.I have it two days a week but it is tedious and six hours at a time.I have clinicals two days a week as well.This week im at Arbers in canton.It has a lot of trach care.I gave a shot yesterday it was cool. tommorw my goal is to suction a trach and give food through a tube in the stomach.I am passing meds this month too.Tim will be deploying way too soon.I can`t bear the thought of us being apart for a year.I have been through so much and he is my rock.I need my rock here beside me.I have 8 more months of school left. The boys are doing good .Justin got a job and taked his G.E.D test this month.I know he can do it.I am very tired these days.I got a grave blanket for Tyler it is very nice I put a santa hat on it too he loved santa hats and had asked for one for his last Christmas.Tim had got him one that year.I couldn`t put it on his grave so I bought a cheaper one and put that one on the blanket.Well everone take care.Until next time..
Thursday, November 22, 2007 8:12 PM CST
Happy Thanksgiving everyone! First let me say that I passed my class with a solid B. I am proud of that.I will have two clinicals a week now and school two days a week as well.We had dinner at my moms this year ans we again had Tyler`s pic on the table with us.It was a very nice dinner mom did a great job. Tommorw is her birthday. We got her a present and a cake.We all felt the terrible loss of Tyler at dinner. It really hurts bad and I know I need to have a good cry I keep feeling it coming on.I will be making dinner tomorrow here with My boys and Tims family and Tim and I and mom and maybe my dad too.I am thnakful for my family and so very thankful for Tim in my life. I love my friends and I am thnakful for them all as well.I just wish I knew what to do with this deep hurt that seems to follow me everywhere.I ofen wonder if this feeling of dread or pain will always be a part of me now.I don`t like the new me, the me that has suffered a unimaginable loss.I met a woman who is 96 at the nursing home and she told my friend that she lost her daughter at age 12.I thought to myself ohh my as old as she is she still remembers her loss and exactly how it happened.That may be me someday. So I guess my pain will always hang over me like a big black cloud. Tim if you read tis I love you and I am very greatful for God puting you in my life without you I would not be on this earth rt now I know that.Thnak you for taking such great care of me and my boys.Thnak you for giving us a home and taking us in and loving us. you are the best baby.Happy Thanksgiving Tim. Until next time....
Monday, November 19, 2007 4:27 PM CST
Hey everyone! I finally got through my long three months of skills and procedures. I finished today giving injections.It was so scary for me to remember all of the bones and muscles and do the procedure too.I am sooooo glad it is over.I have a terrible headache from it.I passed my math quiz too I can`t beleive that one.Thank God for he and Tyler watching over me .I pray to them to help me do this if it is thy will. So far so good.As long as I pass my final this Weds I will be starting a new class next week. I will have clinicals two times a week and school two days a week as well. Time is going fast for school. I like it this way I never dreamed I could be a nurse in 15 months. Wow!! I think I will go on to RN after this because I cannnot do all of the things I want to do for my patients as a LPN. I canncot give chemo either. We all know too well that if I work on peds oncology like Tyler wanted me too that I need to be able to give chemo.So off to more school for me.The boys are doing fine Nick got his certificite for driving school. Justin has a job interview tomorrow. Tim is finaaly back home for the holidays. He is supposed to go to the war in Jan.I hope it gets postponed again.Well I got to go do paperwork on a new patient. Until next time....
Monday, November 19, 2007 4:27 PM CST
Hey everyone! I finally got through my long three months of skills and procedures. I finished today giving injections.It was so scary for me to remember all of the bones and muscles and so the procedure too.I am sooooo glad it is over.I have a terrible headache from it.I passed my math qiuz too I can`t beleive that one.THank god for he and Tyler watching over me .I pray to them to help me do this if it is thy will. so far so good.As long as I pass my final this weds I will be starting a new class next week. I will have clinicals two times a week and school two days a week as well. Time is going fast for school. I like it this way I never dreamed I could be a nurse in 15 months. Wow!! I think I will go on to Rn after this becasue I cannnot do all of the things I want to do for my patients as a LPN. I canncot give chemo either. We all know too well that if I work on peds oncology like Tyler wanted me too that I need to be able to give chemo.So off to more school for me.The boys are doing fine Nick got his certificte for driving school. Justin has a job interview tomorrow. Tim is finaaly back home for the holidays. He is supposed to go to the war in Jan.I hope it gets postponed again.Well I got to go do paperwork on a new patient. Until next time....
Saturday, November 10, 2007 8:20 PM CST
Hello, Monday will be another month added to my baby being gone from this world.he has been gone almost a year and a half and it still kills me .Tonight I had another bad breakdown. i ws in my room and I saw his ipod so i plugged it in and for some reason the eighty something song on it was a song that Tyler has told me in the pat reminded him of me.Besdie that song was a picture he put with it of me.I cried so hard and I want to try not to cry rt now telling you all this.I realized with a blow to my gut how much he really loved me.Oh god how the pain of him leaving me hurts me through my soul.I want to make him proud of me and I try so hard bur I have a test on mon and its his anniversary and I seem to always fail if I test on that day no matter how hard I try.Please pray for me to pass and get through yet another day of gut wrenching pain as I know another month has passed me by without my baby.Cancer sucks and I hate it and I am still mad as hell about it.I don`t know why kids get it!! There is no reason ever for a child to suffer like that it is just sick!!! I want to be sick when I think of what Tyler and other kids went through.Someone please help me understand it. I got my midterm and I have a 93%, so I was ok with that. Nick and I spent most of the day together today I got himm a new hoodie and a new winter coat.Well I got to go back to study and do care plans on my patient. Talk to you soon. Until next time...
Thursday, November 1, 2007 9:27 AM CDT
Hello, Today I need good luck. I have to do some procedures with an RN and get my check off points for them.I have to put in a ng tube ,clean it feed through it and remove it. I also have to pass meds.I am nervous about that one. I have to give many diff oral meds and a inhaler and eye drops and document the procedures.I also have a test today at three thirty. Plus on top of all of that Turkey grandpa is in the hospital. He is in the heart center he fell last night and his vitals were not good after the fall. They may put a pacemaker in today.So I got a long day ahead of me .please keep turley grandpa in your thoughts. My mom is a worried mess and That leaves me to handle her and grandpa.I need to keep those nurses in check up there with my grandpa lol.I better go get my stuff together for school. Until next time...
Saturday, October 27, 2007 5:55 PM CDT
Hello, First a word to my angel boy ..Tyler your precious Massillon Tigers beat the bulldogs!!! I know you were watching that game and cheering them on in heaven little man.Mommy just didn`t want to go without you but daddy went and so did aunt Crystal.I miss you so much this month has been extra rough with your birthday and the game today.Thank you for watching over me like I know that you do.I love you bumble bee. Now for my news I passed my classes with a B!! I though I had a A but I guess I didn`t. I go on Mon to my new classes THank goodness no more pharmacology!!Wheww HOO!! Ok got to go watch a movie with my best friend my hubby!! Talk to you all soon.
Wednesday, October 24, 2007 4:24 PM CDT
Happy 13th birthday Tyler Shane Gardiner.... Tyler was born at 3:01 a.m October 24,1994.He was a healthy 8 pound baby. I miss him so much it really physically hurts.I cried alot yesterday and went to metting with Rathynias mom it helped alot to be able to cry with other parents who are hurting too.I haven`t let loose yet today but I bet I will at some point.I had clinicals today and a teen there that had a brain tumor that was a patient at Akron told me that he wasn`t afraid. I couldn`t figure out what he ment but he held my hand and told me that twice.I sure hope he didn`t mean he wasn`t afraid to let go. I told him that I knew all about him and that he was a very brave young man and I was very proud of him and proud to take care of him.When I went to leave he grabed my hand again and held it for a bit and then we said our goodbyes today was my last day there after being there for two months.Well I got to go take Nick to drivers ed and study for a quiz .Please pray for ou to be able to get through all of these bad days ahead. Take care...
Saturday, October 20, 2007 11:26 AM CDT
I have something on my mind, I am really upset that Childrens cancer isn`t reconized like breast cancer seems to be. I was at the growsery and even the soup cans are pink .I like the show deal or no deal well last night th cases were pink the woman playing the gave a was survivor and even ford was giving away pink mustangs.Don`t get me wrong I am glad to have funding and awareness for any cancer.I just want children`s cancer to be reconized too! We can`t even get a stamp for these kids.I bet you all didn`t even know that Sept is national childhood cancer month.But we all know about the pink ribbon don`t we. See what I mean. I did run against a site last night called www.parents against cancer.com I hope you all check into it , It was thought of 5 years ago by a parent who has a child with cancer.Please be aware that we have kids diagnosed and dying everyday of this. Not a few kids many!!! I want to make a differnece I want Tyler and his friends that fought like hell to live to br remembered and help others who are fighting. Thanks for listening to my cause and don`t for get this weds is Tyler`s 13th birthday. Take care...
Monday, October 15, 2007 9:19 PM CDT
Hey everyone, I am still plugging away at school. I had a test today but don`t know what I got yet. I am afraid to know on this one.It had mathin it dosage calculations YUK!!! I have clinicals weds, I got a new patient he seems very nice.He was excited to have me for his nurse because I have his wifes name isn`t that cute? i will still check on my other patients I had in the past while I am there.I got all of his paperwork done tonight there was 6 pages of it he has a lot of meds.Tim has another week before he comes home.Justin got a job YEA!!And Nick is still plugging away at driver`s ed. He drives me around alot now.He is getting better.Anthing is better than the forst day he drove, Golly I wanted to get out and walk!!But we survived it.Momis doing ok too she has he good days and bad just like me.I bought orange and black ballons for Tyler and Nick and I let them off and we always het him a heart balloon.I been crying so much lalty I hate it but I can`t make it stop.I am afraid my blocking out days may be gone. I am still mad for Tyler having to die.I may be forever I don`t know.I have no control of myself these days. Someone burnt down the garage this weekend at my old house.I told the police I know who did it.I hope they get them for that they could have killed a neighbor.Stupid drunking kids is what they were. Well I guess that is about it I haven`t felt good today I got a bad pain in my side. I am going to go rest a bit.Take care all....
Friday, October 12, 2007 8:30 AM CDT
Hello, Today marks 17 months that We lost Tyler. I have been crying so much this month.I hate this.It still hurts so bad I know it will never feel better The only thing that will make it better is if Tyler came back and I know that is not possible.I cry alot and everywhere it sems.I can`t stop it the nurses at school notice that I seem different too.I just can`t tell them how it feels to loose your child this is not supposed to happen it it??? How do i go on with such a big hole in my heart and such a big empty space in my life.nothing is as it was nothing can ever be the same again.My happiness if I get a bit of it al;ways has a big black cloud hanging over it. When Nick gets out of school he and I are gonig to do our usual thing and buy A balloon that say I love you and take it to Tyler. I am so glad I dodnnot have a test to day I always seem to fail them in the 12th. I also have the empending doom of Tyler`s 13th b- day looming ahead. I just can`t beleive he is never coiming back to us. This sucks really bad.I hate CANCER!!!!!! I guess I better get going to pick up Nick.
Tuesday, October 9, 2007 9:32 PM CDT
Hello, I start my new month of clinicals tomorrow at 6:45 am. I like clinicals it is a great learning experience.My nre client has 24 meds i have to chart all of them tomight and do all of my paperwork on her before I go to bed.This month is supposed to be the hardest month we will have.So far I passed two out of two tests Yippee!!I hope my baby boy is proud. You know his birthday is on the 24 and he would be 13 a teen can you beleive that.I tried to go to sleep last night and I started crying instead.It is still really tough to deal with. i miss him so much The boys are doing fine Nick is in drivers ed and Justin is having some problems with some village idiots here in town.I went looking for a few of thim this sun night.They won`t like it if i find them. I will do anything to protect my boys.I don`t care how old they are.Tim has about ten more days to go before he comes home. I miss him so much , I hate to be apart.My mom is doing well the divorse is moving along.She keeps busy with friends. At my clinical site i have a boy there that had a brain tumer and I took a likeing to him rt away well here at home I saw him on the tv for Akron childrens hosptial .I was so sad that on tv he walked and talked and now he is in a wheel chair and not very verbal. God how I HATE CANCER!!! Well until next time....
Saturday, September 29, 2007 5:17 PM CDT
Hello I got a B+ in my class so I passed!!My next class is pharmacology not one of my favs for sure. I also still have my skills class and have to learn how to do all of the things that nurses do to thier patients. I go to my clinicals on weds for this months rotations. I am staying in Louisville again for the month. I like the facility but not the community.IMy team had a very bad experience in a resteraunt yesterday. I am still quite upset by how one of my classmates was treated because of her race.I never experienced racism before and I am shocked and hurt for my friend. It was terrible.That is all I am going to say about the ordeal.Nick is driving now and oh my heart!!! He has taken some years off of me for sure these last few days but he is trying hard so I will too.He is the first one of my kids to get his driving permit.So this is new for me. Tim left for most of the month and I am so sad and lonly I hate when he is gone.I feel like another hunk of my heart is gone.I am not a truly whole or happy person when he is away from home.I start my new classes on Mon. I go Mon through Fri. It is alot of schooling and alot of studing.Well I guess that is about it take care....
Saturday, September 29, 2007 5:17 PM CDT
Hello I got a B+ in my class so I passed!!My next class is pharmacology not one of my favs for sure. I also still have my skills class and have to learn how to do all of the things that nurses do to thier patients. I go to my clincals on weds for this months rotations. I am staying in Louisville again for the month. I like the facility but not the community.IMy team had a very bad experience in a resteraunt yesterday. I am still quite upset by how one of my classmates was treated because of her race.I never experienced racism before and I am shocked and hurt for my friend. It was terrible.That is all I am going to say about the ordeal.Nick is driving now and oh my heart!!! He has taken some years off of me for sure these last few days but he is trying hard so I will too.He is the first one of my kids to get his driving permit.So this is new for me. Tim left for most of the month and I am so sad and lonly I hate when he is gone.I feel like another hunk of my heart is gone.I am not a truly whole or happy person when he is away from home.I start my new classes on Mon. I go Mon through Fri. It is alot of schooling and alot of studing.Well I guess that is about it take care....
Thursday, September 27, 2007 4:20 PM CDT
Hello, I took my final today and I just finished my check offs for the labs. I will know something by tomorrow.I did really well taking thte blood for a sugar level and I passed all of my vitals.I hope to have good news to shaare tomorrow. I have clinicals tomorrow as well so i won`t know anything until after 3:30. Hope for the best for me to move on to the next class I hear it is really tough.Talk to you all soon ....
Sunday, September 23, 2007 7:57 PM CDT
Hello, I have been a very busy girl this month.I have finals this week so I will be on edge. I have done two clinicals now and I love it.I really like the site I go to now.I did my first finger poke this week I was calm and did my job and it really felt great! It was my first stick on a human WHOO HOOO!! She never even knew I never did it before.I am fighting a cold because both of my kids have one.THe last thing my patients need is me to make them sicker.I have one more week to go to my current site and then I go to a new one for a month.I went to Tyler`s grave today and when I started to leave i had a mini meltdown I don`t know why but I just started crying and so my sweet hubby held me until I stoped.Well I got to go study for a test..
Thursday, September 13, 2007 9:30 PM CDT
HI, I go Fri to my first clinical. I am pretty excited about it. school is hard this month for me. I passed two tests and failed one. I have to be at my clinical at 6:45 am. YUKKKK!!!! I am preety tired now already.nick is sick he has a abcessed tooth .He is on pain meds and antibiotics for it. Poor guy was so sick and hurting alot. The good thing is now he is willing to go get all of his teeth fixed now so it doesn`t happen again.Justin is joining the national gurd with Tim. He passed his test from the army already and tommorow he signs the dotted line. He gets sworn in on Tues in clevland. Tim is due to deploy in Nov.I don`t want to even think about that.And my mom is getting a divorce. I guess that is about it for now take care.
Thursday, September 6, 2007 8:21 PM CDT
Hi everyone,
I passed my first test today in my new class.I have school 6 hours a day now and five days a week. it is very tuff. i start my rotaions next friday.i am excited. Today is the first day that I had to wear my uniform. it was pretty cool I felt like a real medical proffesional.As you can see I can`t spell lol. Sorry.I miss Tyler so much I hope he is proud.Well I have some more studing to do got to run....
Thursday, August 30, 2007 4:03 PM CDT
I got my results back. I did it!!! I got a B in my class and a 89 on my final!!!!! I am so excited I just can`t believe I did it!!! Take care...
Wednesday, August 29, 2007 7:47 PM CDT
Hello, I have my final tommorw for this class. Wish me lots of luck it is a bigggg important test!! I also get all of the rest of my books that will take me to graduation tommorow.I am really excited about that I love getting my books and checking them all out. I get all of my nursing kit stuff too my scissors and stethoscope and tape all of the good stuff that lets you know that you really are a student nurse!! Finally it is here and I am READY for it. I wish Tyler could see me now.I sure hope I make it all the way through for him and me and all of the little kids waiting for me to take care of them.I hope I have it in me to take care of them like I did Tyler.I know it will be a tender spot in my heart for sure.Any how I got to go study again.Talk to you all soon.
Friday, August 24, 2007 3:07 PM CDT
Hello, tonight is the first Massilon Tigers game of the season.We are going to go.Nick and I went to Tyler`s grave and put his tiger statue on it. Nick wanted a new tiger shirt so while we were waiting we saw a pic of our family in the store.It was strange but yet nice.You see we were just at the baber before that and Tyler`s picture is there as well and they have a helmet with his TG on it.I guess I was reminded today even in my pain of what this day would have ment to Tyler that he is with me still and with our community.The ladys at the Tiger store were asking how we were doing and patted my shoulder and said " I know it must me tough for you". That is the truth for sure.I am really trying to deal with it but it is hard for us.THe next thing to deal with is fall Tyler and I loved the fall so much and now the Halloween stuff is out and I think of how much he would have wanted to buy something to spook me with.Please keep us in mind tonight because I know seeing the game will make me cry and think of how many times my baby was out there on that field. Take care... And GO TIGERS!!!!
Wednesday, August 22, 2007 3:16 PM CDT
Hello, I wanted to tell you that i pased my quiz today with a big old 100% !!!!I have never got a 100 before in nursing school.I was so happy that my teacher said that she would copy it for me so I could frame it. I said ok to that hehe.I have been so worried about passing this class I got off to a bad start when Rathynia died. All of my old bad memories came back flooding back I had nightmares for days.So now I hope I am back on track. Talk to you all soon.
Monday, August 20, 2007 9:53 PM CDT
Hello, I passed my exam today with an 88%. I am so happy.Now it starts again weds.Yuk!!Tyler has been honored by a sweet friend of ours with a donation in Tyler`s name to the hospital.I was so blowed away by the letter I cried for a while.I just keep realizing that he touched many lives.It makes my heart swell with pride to know that.This new program is clled denim and diamonds and it is to raise monet for Tyler`s hospital and I beleive they are trying to build a new lab for recearch.I am so very honored to know that our friend Stan donoated in Tyler`s honor.thank you again Stan we love you!!!The boys are doing well nick is about to go back to school.Tim is about to be deployed for a year as of November.i just don`t know how to deal with that.I guess that is about it, oh yes my meds seem to be going ok except I go to the bathroom alot at night now so I don`t sleep well. Until next time...
Monday, August 13, 2007 2:36 PM CDT
Hello, Well so far I have failed two out of two.I am not doing so hot.I study alot so I don`t know what my problem is.Anyhow I just wanted to tel you all that and also tell you that yesterday marked 15 months that we lost Tyler to this monster.I miss him so much and I will never understand why this happened to him.Take care...
Monday, August 6, 2007 7:19 PM CDT
Hello, The funeral was so nice.It brought back alot of bad stuff for me and the boys.Tyler was talked about a few times.I am very stressed today and even have a bad headache.I almost missed my doctor appointment today and now I wish I did. The doc said I had high blood pressure and a very rapid heartbeat.So now I got to go back in and have my pb checked again and if it is high I got to take meds.That is not all, I have to go in next week and get a heart monitor put on me for 24 hours.I also got to get blld work done.I guess it is safe to say that i am a mess.The doc did take today into consideration ,that is why I got back for the bp check. But i can`t get away with the heart. So I am going to be hanging around the doc for a bit next week.I will admit I am a bit scared I don`t want cut on!!!!!If you have any advice on rapid heartbeats please tell me.I will let you all go now I got dinner to cook and a hubby to cry on talk to you all soon.
Sunday, August 5, 2007 11:43 AM CDT
To my sweet angel boy, Please with your help and God`s help Mommy needs to be strong today and tomorrow for Rathynia`s mommy.I have been asked to do things to help with this and it will be very hard for me to do.I want to be strong for her and the family and for your brothers too.You would be proud of your brothers for going through this again.It brings up some bad stuff when you left us.We know that she is with God and you and that you probably came down to get her along with her baby sister.We love you bubby and we miss you so terribly.We are all still so raw inside of our hearts and missing you so much.Help us like you always do .Mommy loves you.Until next time baby....
Thursday, August 2, 2007 7:06 PM CDT
Hello, I wanted to update and tell you all that even though I was so upset about loosing another child in our community to cancer, I somehow managed to pass my final! I am now on to my next class my fourth month of nursing school. When my instructor told me I passed I just stood there and then I said I really passed? She said yes!! Then she hugged me becasue I was crying like a big baby. I was so happy.I had prayed to God and Tler and Rathynia to pleases help me pass if it was what I was ment to do.I guess I know know don`t I? I have to go now hugs to all. And plese keep Rathynia`s family in your prayers.
Wednesday, August 1, 2007 8:40 AM CDT
I need to tell you all that our dear sweet Raythenia passed this morning .She was so special to our family.I know she is with my angel Tyler.We love you babies!!!
Monday, July 30, 2007 8:43 AM CDT
Hello, I have a quick update then I have got to get back to my studies, I have an exam today of four chapters.I also have a oral presentation today so I have to wear a skirt Yuk!! I am talking about Leukemia today and my sweet Tyler. I made a big poster of him with lots of pictures from all the diff treatments.My class asked the teacher if I could di my presentation at the end of the day because they know they would be crying and wanted a fast getaway out the door.I hope I can do this I cried many tears this weekend pulling out these pics.It opened a hurt I was trying to hide from.THe worst part is that there is a girl in my class who has a 19 year old son with the same thing.I`m sure you know we are quicly becoming friends.Anyhow I did go all day yeaterday and get my CPR cirtification done so that is out of the way.Now I tease my kids and Tim and tell them I am going to pratice on them HEHE! Thats ok because Tim is taking a 5 week course on it and he said he will get me back.Well I got to go study.Hugs to you all.Wish me lots of luck today pleaseeeeeeeeeeeeeeee... UPDATE* I falied the test as did several others in my class.Oh boy but I did well in my presentation.
Tuesday, July 24, 2007 9:38 AM CDT
Hello , Is anyone out there? I haven`t heard from you all hmmmmm.Well maybe I am talking to myself.Anyhow I know Leslie will want to know that I passed my exam yesterday with an 80. I also got my mid term and it got a 85%. That is a B yea!!! I am still struggling with this class it is very hard.I have three girls dropping out this week.Another is transferring and another is failing out.By next month if i make it there will only be maybe 6 or so students in my class .We started out with 25 in the begining.Anyhow the boys are great Tim is great and life is the same I get by min to min.Take care ....
Sunday, July 22, 2007 10:24 AM CDT
Hello, I am struggling through this class pretty bad. I got a 88 on my quiz weds but I have a exam on Mon. Wish me luck I sure do need it.The boys are doing well they are taking on Tyler`s role to scare me with things I hate like FISH!!!!THey caught a big cat fish today and just had to bring it in and scare the life out of me with it.I am sure my neighbors heard me scream. Did I tell you that I hate FISH!!! UGGGGGGGGGGGGGGGG.Well I got to go study hugs to all...
Monday, July 16, 2007 5:02 PM CDT
Hello all, I just wanted to do a quick update. For one I failed my exam today as well as the quiz last weds.I just don`t know what is wrong with me I studied all weekend.I am so not happy about this.Please pray for our dear friend Raythenia. She has cancer and is only 15 the docotrs just told her there isn`t any cure and the cancer just keeps spreading.I am trying hard to help her family as best as I can it is so hard on everyone.I HATE CANCER!!!!!!! Until next time...
Tuesday, July 10, 2007 6:16 PM CDT
Hey everyone, *update* I failed my quiz
I have a request.Will you all please send prayers up for me to pass this quiz I have tomorrow.It is very scary to me I have two chapters in side of one quiz.I got all of the body parts and then chemistry with adoms and ohhh yuk!! Also while you are praying can ytou keep me in mind to get through tis week.Tyler will be gone 14 months on thursday and one fri he would have had his sencond birthday for the bone marrow transplant.My poor poor baby I miss him so much and I had a hard time in school yesterday. We talked about spines and I kept thinking about him getting his spinal taps and how bad they hurt him.I almost had to get up and leave.I strugle daily with memories I don`t want to have.I know you all think I am doing well but sometimes I just feel like I can`t handle the day or min.I hate feeling bad and I want it ti go away but it won`t.Anyhow thanks for being in my corner.Takecare.... And wish me luck.
Saturday, July 7, 2007 2:45 PM CDT
Hello everyone, I start my new class on Monday.I have to take anatomy and physiology. I already went over my first chapter and it is sooooooo hard! I am not excited now that seen the book yikes! Justin is waitng to move into his new apartment and Nick took in his friend can you say going crazy here I can. Anyhow things will simmer down in a few days here. My councler comes Monday morning I am glad too we missed last month.I am going to miss her when my time is up.I jusy got insurance from the army so I might find me a shrink to chat too.I like to sound off to someone about my feelings when I am dealing with Tyler`s death. I got too things in the mail to walk in memory of Tyler but i just hurt too much doing things like that rt now.I have so many things I cannot do yet or talk about I got to block it until I am ready to deal with it.The good part of that is I know what I can handle and can not.Tim is home and we are happy it looks like he will go to war in Nov.I cannot even begin to think about him leaving.i really need a shrink for that one.Well That is about it take care...Until next time
Tuesday, July 3, 2007 1:41 PM CDT
Happy 4th to everyone! I thought I would start out by reminding everyone about our men fighting and giving their lives so we can be free and celabrate tomorrow.If you didn`t already know I have a very heavy burden knowing that my husband will be going to Iraq much sooner than we had hoped for.We have only a few months left and he will leave me for a year.It is families like ours that take on such a burden when our loved ones leave us for such a dangerous job.Please keep us in your hearts and prayers for Tim to be safe and to come home as soon as he can all in one piece.If I didn`t have Tim I would willer away and I am having such a great heartache with his approaching leave.I just don`t see me being as strong as he thinks I am.I would at this point do anything to keep him home with me and my boys.I don`t know anyone who doesn`t regard my husband with the uppmost respect.I love him so much.So tpmorrow enjoy your day with your families and remeber the familes that lost theirs or the ones who have a solier away at war.On another not my Tyler loved the fireworks and I miss him so much at times like these.I was telling Tim the other day that I am having such a time with dealing with Tyler being gone.The summer is bad because I see kids playing and know that Ty should be playing too.Then the fall is really bad becuse of football and his birthday.Then the Holidays are next it just never gets easier ever.I guess that is about it for now take care.Until next time...
Friday, June 29, 2007 2:59 PM CDT
Hello everyone,
TIM IS COMING HOME TODAY!!!!!!!
Tuesday, June 26, 2007 10:22 PM CDT
Hello, I started today out good.I got to spend time with my Jacie girl.If you don`t know who Jacie is let me tell you about her.Jacie is a 10 year old little girl from our area who has AML leukemia.Tyler met her in the hospital and wanted to be her friend.And that is how we met her and her wonderful family.Jacie has taken a liking to me and she loves to visit me and bring me special gifts that remind her of my sweet Tyler.I hold such a special place in my heart for her and and Rathynia my other special girl who is battling cancer for the fourth time.I give them support and they give me love and support as well.I love these kids as if they were mine.When I become a nurse and I work with kids like these I will treat them as my own as well.This was my baby`s dream for his mama and I will not let anything stop me from getting there.Akron Children make way for Tyler`s mommmy.Anyhow after I had a wonderful lunch with my girl I found out that Tim may be going to Iraq soon and I just cannot bare that.He has been gone for a month now and I need him so badly here to hold me while I cry and tell me everything will be ok.I don`t know where I would be without him.Well yes I do and it wouldn`t be here typing rt now.Tim and my kids are my world and I can`t have my world tore apart again.I am so afraid for him to go.We lost two men last week from here.It is unbarable to drive by and see the flags blowing and know a mother lost her son to this stupid war.I hate the war and it is needless and I do not want my husband to go.If there was a way to hide him I would.I remember thinking the same thing about Tyler I wanted to hide him from the cancer and the hospital and the world.Cancer sucks!!!!!!!!!!And so does this war!!!Justin is moving out of his apartment and I worry about him constantly now days.When your kids grow up it doesn not get better.Trust me on that.Nick is ok He is just as ornery as Tyler.I see so much of Tyler in him.Justin made me a shrek at build a bear it was so cute he talks too.I love it.My school got a hold of me today and I told them all about theirselves.They tried to say I had money due when I proved I payed it then i got home and they called me and another person said the same thing so I told her about herself too.Now tomorrw I am calling the dean and telling her about her workers.They need to not ever contact me and threaten me about money when I payed it!!Shame on them.I come to find out they did the same thing to my sister.I am willing to bet thet contacted my class as well.If they can`t count then they need to find a new job because this is my money and it isn`t cheap to go to school.With all of that said I will go for now.Until next time....
Saturday, June 23, 2007 8:24 PM CDT
Hello, I finally got my grades.Here it goes.
Psych= B
Intro to computer= A- Thanks for the support now it is time for the scary stuff Anatomy Yikes!! Until next time...
Thursday, June 21, 2007 9:53 PM CDT
Hello, As you can see the jerks are still leaving ads on my baby`s web site.My good news is I passed Psych YEA!!!!I will have my final grade on the computer class tomorrow but he claims we all passed.I went out and spent too much money on books to help me with my next class.It is anatomy and pyhsiology can we say ewww.Oh boy I am in for it this time huh.I am actually scared of this class.At least I get two weeks to recoup before get started.we are on break and when we go back we move into a brand new school.We even have a surgical lap cool huh!!My boys are doing good Justin wants to move to a diff apartment.Nick didn`t do well in school this year so he needs a big kick in the but to get him a head start. Tim is still away until the end of the month.He is in the army and is training I miss him so much once again I found out with him being gone that I am stronger than I thought I was.Please keep my sister in your prayers as she is having alot of personal problems I only want her to be happy.I guess that is about it for now I will let you know how my grades are tomorrow. Take care....
Monday, June 18, 2007 5:13 PM CDT
Hello, I jsut wanted to say thanks for supporting me through all of the hell I been going through.This is a busy and tough week for me. I got finals for psych and computer this Thursday.I hope I make it through I don`t want to fail any class that would be so embarrasing.I have made friends now in school and I want to continue with them.As for as the spammers I wish they would take a drop off of something and somewhere expect on Tyler`s site.I will for sure let you all know how I did on finals when I get them.Take care...
Sunday, June 17, 2007 2:56 PM CDT
Well as some of you seen I tried to use a password for a few days to make the junk spammers leave Tyler`s site. But when I got up today to check ir As you can see tey got in somehow so I just plain give up.I am so pissed rt now.Anyhow I am done...
Thursday, June 14, 2007 9:03 AM CDT
Please be aware of the spammer on Tyler`s guestbook I try to check it mutiple times a day to delete it and I used a security but then you all cannot ever read the jernal this has really got me upset. I have to go study.Take care...
Tuesday, June 12, 2007 8:08 PM CDT
Today marks another month that I lost my baby.It has been 13 months now and it hurts just as bad.I am having a bad night, with everything from loosing Tyler to school.I got a few papers to write and don`t have a clue how to do it.I am just going to give in to my pain and tears ans just maybe I will feel a bit better.Life is so hard going on without your loved ones and let me tell you it really bites.I try so hard to control myself and then all at once I get ganged up on by my emotions.And on another note if Tyler`s page keeps getting spammed by pornbots and ads I will have to use a password for people to write to me for a bit.I think that if I wait it out with a password the damn things might move on to another poor soul who has a web site.Can you tell I am Agravated yet?Well I got to get back to studing bye for now....
Sunday, June 10, 2007 2:34 PM CDT
Hello, School has beeny crazy we got a new teacher in the mist of it all.I wanted to warn you all that Tyler`s page is getting spammed about twent a day and I have been deleting thme all week but I have had enough so I may have to put his guestbook on private for a week or so so the spammer will go elsewhere.So if you try to leave me a message and you can`t it is only temp I hope anyways.I will update more later I got two exams on Mon.Until next time....
Wednesday, June 6, 2007 3:54 PM CDT
Hey everyone, I graduated from my G.E.D last night.We got a cap and gown and hat ,and tassal. We even had a sit down buffet dinner.I had alot of my family there but not Tim because he is gone for the month.We had a good time.I tried really hard not to cry.I did pretty weel with that hehe.Anyhow there has been such a mess with my psych class that they gave us a new teacher in the middle of our class.Help me!!!Anyhow I guess that is about it. until next time...
Friday, June 1, 2007 11:34 AM CDT
Hello, I have finished my first week of psych and computer.I have two exams on mon .YUK!!!I have papers to write this month and haven`t a clue how to do them yet.SOMEBODY HELP!!!Anyhow the two boys are doing good Justin has a study girlfriend and Nick pretends he doesn`t lol.We all still miss Tyler so badly.I had a small meltdown on memorial day missing him so much.Tim is doing good as well he has alot od military this month so I will miss him greatly.He is still plugging away at school as well.I wish I could get Nick to do better in school .I guess that is about it for now take care...
Monday, May 28, 2007 8:58 PM CDT
Tyler, I am heavy hearted today as I remember you and miss you so much.I went through some things of yuor today and it just opened my wounds up again.I let it all out ofr a good while but the pain is still there.I will always carry around this empty hole in my heart where you were and are.I miss you so much my baby boy.I am trying so hard to make it through this but it is a daily struggle to just get by.I start school again tomorrow two new classes and much more learning for me to make your dream and wishes for me to come true.Fourteen months to go and counting my sweet boy.I know you will lead the way for mommy.I bring things to school on very important days to represent you and give me good luck.I miss you angel boy and love you very much.Sleep sweet...
Love your mommy...
Friday, May 25, 2007 11:58 AM CDT
Ok I got the big news for you all, I passed my final YEA!!!!!I stuck around and waited so after I found out a few of the girls and I went out to eat to celebrate.When I found out I cried so my one friend thought I failed.But thank goodness I didn`t.My new schedule will be more vigerous.I have school for 6 hours aday because I have psychology and then computer. Take care ....
Thursday, May 24, 2007 7:27 PM CDT
Hello, I really did a bad job on my quiz this week I am so upset about it .I need luck tomorrow for my final this grade will make or break me.If I pass it I move on two my new classes tues.If I fail it I have to repeat this class.I DONOT want to repeat this class.Wish me luck, I have my final at9 am tomorrow.The boys are both doing wellsame ole same ole around here.Take care....
Thursday, May 17, 2007 4:49 PM CDT
Hi, Well here I am going on my last week of this class.I have finals next fri.I am so sad and missing my Tyler more and more these days.I truly think you are numb for the first year.I hate feeling so sad but I get get around it only through it.I just came back form his grave.I played a few songs that reminded me of him, and I had a good cry.I will update more on my school as I get info on my grades.Take care...
Friday, May 11, 2007 9:26 PM CDT
Tyler Shane Gardiner Oct.24,1994-May12,2006
To My Angel Boy: Tyler my sweet little boy.I hope you are pain free and running through Heaven so happy and carefree.I hope you can see me here on Earth trying so hard to make another wish of your`s happen.I want to make you proud of me.I can`t believe you have been gone for a year.My pain is still so fresh as if you left just yesterday.I miss your jokes and the way your little hands felt when you touched my shoulder and said"I`m just kidding with you mom."I miss all of your little demanding ways.I miss how you would come to my bedroom so many times everynight to tell me something you saw on tv that was funny. I miss you telling how much you love me.You were and always will be my baby bumble bee. I just can`t imagine my life here without you.It just doesn`t seem real somehow.Your room is just as you left it.I treasure everything of yours in this house.God I miss you baby.I hope you are happy there with God and Turkey Grandma.Mommy needs you to watch over me.Be happy my Angel boy I love you and ache for you forever.
Love mommy
Thursday, May 10, 2007 6:48 PM CDT
Hello, As you know Sat will be a year that our baby went to heaven.I am trying really hard rt now to avoid my feelings.I feel it boiling in me and I am afaraid to let it run out.As far as school goes i just finshed my second week.I had two quizes and got a B and a C the C is not allowed in nursing so I am really upset.I got aBon my exam.This mon I have another exam so I will be busy studing all weekend.Tommmorw my instuctor is going to tutor me .I hope it helps. My boys are thinking about Tyler alot too these days.Nick was quite upset when he couldn`t get Tyler`s video on his new webpage.Justin wears Tyler`s medical braclet all the time and never takes it off. I guess I will update later.Take care.
Friday, May 4, 2007 2:08 PM CDT
Hello, I know you are wanting a update about school.I got through my first week.I had a quiz on Weds.I got a B.I was not really happy about that either.I wanted to start out with a strong A.I have a big test on Mon.I am studying for that one all weekend.I am taking a ten min break from studing now.I have to get lots of shots and all kinds of medical stuff done for this program YUK.As you should know The Bug 12 is fast approaching.I can`t believe my baby will be gone a year.I am just glad it is on a sat and not a school day because that would be really bad for me.My boys are still doing ok and Tyler so is Tim.THe boys dad got married yesterday and I am keeping the dog for them while they are on their honeymoon.I know it sounds funny but I am having a lot of fun with the dog.I am the one who got her in the first place.She is actually Justin`s dog but he can`t have her in the apartment.Anyhow it is fun having a doggie for a few days.Tim and I took her for a long walk and I took her to Ty`s grave today.Tim and I are really busy now days.I will continue to update on my school process.Hugs to all...
Friday, April 27, 2007 1:43 PM CDT
Hello, I just wanted to update. I start nursing school on Monday.I got my books and dictonary and I am all set to go.I hope I can do this.There is so much to learn.I go four days aweek and each class is over in a month.So it is a 15 month program and it is very fast.I will keep you all updated on how it goes.Take care.
Friday, April 27, 2007 1:43 PM CDT
Hello, I just wanted to update. I start lpn school on Monday.I got my books and dictonary and I am all set to go.I hope I can do this.There is so much to learn.I go four days aweek and each class is over in a month.So it is a 15 month program and it is very fast.I will keep you all updated on how it goes.Take care.
Monday, April 23, 2007 6:47 PM CDT
HEllo all, I know you have all been waiting for my test results.I got a call tonight and here it goes.I PASSED!!!!!!! YEA!! YIPPEE!!! I passed with flying colors on top of that.I went rt away to Tyler`s bedroom and told him thank you for being there with me and guiding me.I am now off to my next goal.Yep you guessed it college.I am off to be a nurse.I want to finalize Tyler`s wishes for me.Wish me luck I hope to start April 30.Thanks for all of your support.Take care ....
Sunday, April 15, 2007 6:57 PM CDT
Hello I`m back!! I had a getaway this wekend in Columbus.It was asctually Miltary meetings all weekend but it was fun and Tim and I needed a getaway.The hotel was the nicest one I ever been in.The staff was very dotting as well.I learned alot and I got fed well too.I got to meet the Generals for Ohio and also Governor was there as well.We were all pretty inpressed.THere were about 750 people there all for our army guard soliders and the air guard.I enjoyed my classes and enjoyed spending time with my husband and some of his work friends and their wives.They even had a camp for the kids to go two but Nick didn`t want to go.We got home and Justin called and took us out to dinner.So that was very nice as well.Wish me luck Tues and Weds pleaseeeeeeeeeeeeeeee!!!!I Take the BIG Test then.Five hours a day!!!YIKES!!!!!!I just have to pass this thing so i Can go on and fry my bigger fish.That is called Nursing school. CAn you say GO SUSAN!!Tyler wanted this for me and I will give it my all to do that for him as well as please myself.Anyhow I will let you all know when I get my results.Take care...
Thursday, April 5, 2007 3:20 PM CDT
Hello all, Well we are aproaching two dates this month.The first being the dreaded Easter.I say this because Easter was my last Holiday with Tyler.It just kills me to think about him not being here this year and all of the details I remember about last year.I still have the egg that he put a note in for me and gave to me saying "thank you mom and Ilove you."I miss him so much I have changed so much in the last almost eleven months.I am so angry and sad and I want to do what I want and nothing more or less.It`s terrible to feel like this.I have snapped off on a few people latly it was pretty bad too.I won`t go into details on that one.THe other important date is of course the dreaded 12TH.Tyler will be gone 11 months on this dreary day.I hate it so bad.We also just lost a wonderful lady that made all of our grave statues for Tyler .She was like a grandmother to my oldest he worked for her and she was his best friends grandma, she passed from cancer and will be buried rt down by Tyler below his grave.I hate this disease!!!!!!I am still mad about the star wars stamp and I am not the only mom who is very disappointed by this.THe boys are doing ok and so is Tim and you already know how I am mean and grumpy says it pretty well.My car took a poo today as well.Tim is working on it now poor guy.It is too cold out to be messing with a car but he knows how much I need it.I take my G.E.D this 17th and 18th.I need lots of luck on this.I have alot riding on me passing it.I want to start LPN school on the 30 of April if all goes well.Hopefully my bumblebee would be proud.I guess that is about it take care......
Wednesday, March 28, 2007 10:47 AM CDT
*update* I just wanted to add that in today`s newspaper there will be a new stamp released.It is so stupid it is a starwars stamp.We can`t get a childhood cancer stamp approved but yet they will sell a star wars stamp and hope it does well with sells.I am so mad about it.I thought I would share that will you all.
Hello, We decorated Tyler`s grave for Easter.I bought two really big eggs for it and I have a basket on it too.His dad put new maulch down and planted a rose bush.I had another meltdown last night and Tim just held me while I cried and had anger spewing out of me.I try so hard to hold my emotions in and then they come out of me anyway.Tim told me to just let them out not to hold them in anymore.I was trying for a couple of hours last night put Tyler`s videos on a cd and it wouldn`t work So with that stress and also hearing and seeing Tyler on the pc I did me in.I am getting nervous about taking my big GED test this april.But I am also excited because I have looked into nusring school.I think I may go with one in Canton.I sure hope my baby boy is proud.I am trying so hard for him.Justin is doing wellWith work and his apartment and Nick is doing great here with us and ok with school.Tim is trying really hard to get through a class that is giving him trouble.We got a letter for Tim the other day from Scott Oelslager telling Tim he was happy for him doing so well in school.I am going to frame it for him.He is so smart.I guess that is a good enough update for now take care...
Sunday, March 11, 2007 6:16 PM CDT
Hello, We are again at another month for my baby being gone.Mon the 12th it will be 10 months that Tyler left us to be whole again.I went to his grave today with his brother and Tim and we took off the grave blanket and then later on his brother went back with his dad and bought some shepards hooks for his night lights.We don`t want it to be dark out there at night time.I want it to be spring and yet I am filled with sadness because spring means new life and Tyler is not here.His life has ended here as we know it.It makes me so sad that Easter is near too.It was the last Holiday we had with Tyler.He was so sick that day and he never ate a thing he slept through it all.And then that night he said "He mom aren`t you gonna hide me some eggs to find?"So I said yes if you feel like looking and he said well ya!!So he went up to his room and Tim and I hid the eggs and we put out real ones that Tyler made and toy ones with candy and money in them.Tyler was so happy and I took picures of him holding up one that he put Tim`s name on.I had that one made into a necklace for His dad and I.Then Tyler made a not for me and hid it in an egg that I still have on my fireplace.It said hnaks mom and I love you!!A few weeks later he died.Two days befor mothers day.Ohh god how I hurt for my baby.I miss him so much and It hurts so bad that I hide it very well from everyone even myself.I cannot deal with most tthigs that concern Tyler`s death.I just am not ready.I don`t know if I ever will be ready.I look at his room every time I go upstairs but I only look in it for a sec.His little but print is still on his bed where he sat all of the time.To me it looks as if he just got up off of the bed.I sure do wosh that is true.If we wouldn`t have moved him downstairs the day that we did he would have passed in that bed.Somehow I think that is unbearable to be.I think somehow I am getting by but yet I also feel like I have froze time here.I won`t let anything be touched or changed if I know he touched it last.I feel as if we would be taking another piece of him away.This is all I got, his things and his room.I can`t bare to change it yet.I am letting alot out rt now I know but I have held it in for a long while now.I guess it needs to come out.I guess i will go get myself together before I have to take Justin to work.Take care and please think of Tyler tomorrow.
Monday, March 5, 2007 9:00 PM CST
Hello all, I finally got some good news to share.I finally passed my last test in order to go take the big G.E.D test.I am so Happy!!!I will go next month for two days to test it will be about five hours for the first day,and five and a half for the send day.Wish me luck I am finally getting where Tyler wanted me.After I pass my G.E.d then I am offf to college.I am getting excited about that idea.THe boys are doing great. Tim is doing great as well.I sure hope my boys will be proud of me. I would say God bless you all but I am still mad rt now at him.Take care.
Monday, February 19, 2007 3:00 PM CST
Hello, I thought I would tell you that last week was by far a really bad time for me.I had three events going on all without my Tyler.First the twelth was nine months since Tyler passed.I cried the night before and had to take a sleep aid.Then I woke up and cried most of the day.My councler came on that day and i had forgotton all about her .She said she never saw me in such a state.I think she was shocked.Everone thinks I am doing so well so surprise !!! I have my days.THen onto the second bad day which would bring us to Valentines day.I made Tyler a very special card and wanted to take it to his grave but....I was snowed out of the cematary due to the snow storm we had.I still haven`t got to go out to it.Tyler always said he was my valentine.He was so sweet.Then sat was my birthday. Tim made it so nice for me and spent the whole day doing what I wanted to do.He said i was being to quiet.I couldn`t help it I kept thinking about Tyler not being with us.Justin took me out on Sun for lunch for my b-day.I thought that was sweet.Nick just called me old lol.I got my new plates, It looks really good.It says TYLER 11.It looks really good.I wanted to honor him in a good way with my car.He always wanted to drive it.Now his name is on it.I guess that is about it.The boys are doing well.Nick and I are struggling to get our math done.Take care and bless you.
Saturday, February 10, 2007 4:47 PM CST
Hello, I first wanted to tell you that mon is going to be 9 months since Tyler went to heaven.As you all know it really takes its toll on me a few days before.Maybe that is why I am so down and moody. Sometimes it takes me all day just to get dressed.Valentine`s day was always a special day for Ty and me.He always told me that he was my valentine.He was right, he is.He holds a big space in my heart forever.I made him a very special card and I will take it to his grave on valentine`s day.I wanted to share a special poem I got in the mail a few weeks ago from another surviving mom.Her it goes....
THE CORD
We are connected,Tyler Shane and I, By an invisible cord not seen by the eye. It`s not like the cord that connects us till birth. This cord can`t be seen by any on earth. This cord does it`s work right from the start, It binds us together, attached to my heart. I know that it`s there, though know one can see, this invisible cord from Tyler Shane to me. The strengh of this cord, its hard to describe, It can`t be destroyed, it can`t be denied It`s stronger than any man could create It withstands the test, can hold any weight.
And though you are gone Though your not here with me, The cord is still there but no one can see. It pulls at my heart, I am bruised I am sore. But this cord is my lifeline as never before. I am thankful that God connects us this way.
My love for Tyler Shane.... nothing can ever Take that away!
Tuesday, February 6, 2007 5:22 PM CST
Well I just made a new jernal and deleted it somehow. I am not in the best of moods tonight.I had a good cry which I don`t like to do.I just want to sit here in my house and not do anything or go anywhere.I feel So angry anymore I don`t want to go to church either.I just feel blahhh.I hate to be pushed to do something I don`t want to do.I am so opiniated anymore too I tell it how I feel and see it.I don`t mean to be this way but I am.I geuss the know it all docs that know all about grief would say I am in the anger stage.Well woohooo for them I bet they would be mad too if their child died a kid an 11 year old kid from CANCER.Well excuse me if I am wrong but Should we moms bewatching out kids die from cancer.That is just sick.It`s cruel.Some one has been really cruel to us.I can hardly go to Tyler`s grave rt now becasue of all of the snow it just makes me sick to see it on his grave.God how I hate that my baby is down there.I have been getting really bad hot flases on my face too .I think it is my blood pressure.I am burning up rt now.My grief is so deep that I cannot even begin to dig through it.There are so many things that remind me of Tyler and it is so very painful, so I avoid it.I hardly ever go in his bedroom.I hate to see kids about his age .So I guess i am a angry mama.So be it I can handle that for now.I guess I will close for now. Take care.
Wednesday, January 31, 2007 5:28 PM CST
Hello, I had my councling today.I guess it wore me out because when I went to school I started feeling sick.I got really hot in my face like my pressure was up.I guess i only let it all out once a month and it took its toll on me.I still feel hot but not as bad as being in class.I am really tired too like I could sleep for a week.I haven`t been sleeping well at night again.I have bad dreams at least a couple times a week.I can`t go To Tyler`s grave when we have all of this snow.It bothers me too much to think of all of that cold wet snow on him. I guess I said about enough I am tired.Take care.
Wednesday, January 24, 2007 1:25 PM CST
Hello, It`s snowy and cold here today.I always get upset on these days because I worry that Tyler is cold .It doesn`t matter how many of you tell me that he isn`t there and isn`t cold.I know better his body is there and it has to be cold.I hate it He has a robe on and his coat over him but still....Any how I had my meeting with the other parents who lost their child last night.My mom went with me.I have to tell you all a little story about last night.A lady from Massillon had a framed pice of nrews about a star that used to live here and he does concerts here every year.Well last year he did one for her daughter who passed away from a car accident.Well she was passing this frame around to see him and I saw something on the bottom.Here it was A artlie of Tyler from his trip to NewYork.I was so shocked I said look mom Tyler is on here.Everyone wanted to see it and read it.It was very moving.Anyhow its just another thing that popped out on me and makes me know that his memory is still alive .I miss him so bad.I try think about it or I wouldn`t be here I would be nuts.Another women there was very sweet to me and gave me her phone number.She lost her 13 year old to a infection he died rt on the counch she was sleeping below him on the floor.I just couldn`t imagine having that happen to me.What a terrible shock.Then this other dad lost his son from cancer like Tyler`s and he gave me a cd.I am listening to it now its so pretty.I wish we could have these meeting more then once a month.It helps to have others around you that understand what you are going through.One lady had to leave she just lost her 18 month old in Dec. They still don`t know how he died yet.She just wasn`t ready to talk yet.We are all going to send her a card.I felt really bad for her.We all have things happen to us that remind us of our loss.It is called triggers.Hers was toys in the room.She just couldn`t handle it.One of mine are 4 wheelers as soon as I see a kid on one I let loose.I just can`t beleive Tyler is gone .They told us last night that that the second christmas is worse.Because then you know they are really gone .I think next year I will sleep the day away.My next door neighbor has breast cancer so she had to move in with her kid.When does it stop.I had a dream about her last night Because I was so worked up aout it.Both of my boys are doing well.Justin is still working 12 hours shifts and has his apartment looking well.Nick is thriving here with me and Tim.He continues to do well in the at home program with school.I am still in school and tring hard to get through.Tim Is doing so well that he made the Dean`s list again .I hung it up and framed it againI am very proud of him.I guess that is about it .Until next time....
Sunday, January 14, 2007 4:06 PM CST
Hugs to you all, Mon is my uncle`s funeral.It is in the same place we had Tyler`s .I hope I can go back there again.After the funeral we are taking him to a suberb near Columbus where my grandparents are buried.I am so sick of cancer.On a good note my Jacey girl came to see me today.She even wanted me to go shopping with her and her mommy for clothes for her big trip to New York this week.She is going to be on The Dr.Keith show talking about her leukemia battle.I am so proud of her.All of these kids are so braveI just know I couldn`t go through what they have had to endure.It just makes me so mad that anyone let alone a child has cancer.Tyler thought so much of Jacey.We loved going to see her and bringing her things.She loved him too.I love her as if she were mine.She is so sweet and loving if any of you know anything about YOUTUBe she has many vidios on there check them out. There is also a hug for Jacey campain on YOUTUBE. Jacey has many hugs several hundred I believe.Anyhow I hope you are all as well as can be.Take care and please pray i can get through yet another day of burying my loved one.
Thursday, January 11, 2007 4:40 PM CST
UPDATE* My uncle passed this morning the same day as my baby.
My uncle is doing very poor rt now.My dad told me that he is on hospice now and is given three days.We are going up to see him soon.Please pray for us to get through this again.This is my father`s brother.I am so darn sick of cancer in my family .I am getting really angry about it.But what good does it do me We know by now we can`t stop it and we sure can`t cure it.We also lost A sweet girl named Michelle that went to Akron as well.Just like Tyler and the others she was so strong and brave.I think heaven should be about full by now.So God if you are out there and listening I think you have enough angels don`t you??I will let you all know about my Uncle Roy.Also tomorrow is eight months since my baby boy left us.Please remember him tomorrow.
Tuesday, January 2, 2007 12:03 AM CST
HEllo, Happy New Year To you.I spent time with family on New Year`s eve and day.I had a very hard time on New years Eve.I started not feeling well about 10:30 so Tim brought me home and I rested and drank some hot tea.Then I waited for the ball to fall.Tyler and I always watched the ball fall and then he would give me a kiss.Last year he ran over to be closer to be then Tim was so he could kiss me first.So that is all I could think about and I cried for what seemed like forever.Poor Tim was trying to soothe me and i was so upset and sad.Then I got a special phone call from Rathenia .She is Also battling cancer and is a friend of Tyler`s and our family`s.She told me she loves me and her mom talked to me for awhile.Every holiday they call me and talk to me while I cry.It`s like God sends her to me to speak for Tyler.On Tyler`s birthday Rathenia and her mom came over with a birthday cake.I was very touched by this.If any of you were at Tyler`s funeral Rathenia sang in it with Tyler`s friend Marissa, It was very pretty.Anyhow I guess I have jibbered enough.Take care...
Thursday, December 28, 2006 9:40 PM CST
Hello, I hope you all had a good Christmas.Ours was ok.I spent some time With Tyler at his resting place.Then my kids opened their gifts.Then we had dinner at my sisters.I just couldn`t cook here at the house.I miss my little man so much tonight that I have a lump in my throught.I just don`t want to break down.I know if I do I will have nightmares all night.I have a hard enough time getting to sleep.My uncle is back in the hospital with his cancer.And Turkey gradpa was having trouble with his health as well.I feel like screaming.I`m sick of all of this disease.I have been trying really hard on break to practice my math.They did a really nice article on Tyler in the paper this week.It feels good to know he is still thought of.My biggest fear now that he is gone is that he will be forgotten.We miss him so much.Nick got a new necklace that you can make say words.He put his brother`s name on it.I tool him to the store today and caught him telling the cashier about his brother passing.It broke my heart.Justin`s apartment has Things of Tyler`s in it and his pics all over the walls.Well I think I better go now I am about to well up again.Take care...
Thursday, December 21, 2006 10:07 AM CST
Hello, Christmas is almost on us.I am ready as far as presents go.I miss my Ty-Ty so much.I made his brother Nick a special pic of Tyler and him together.I think Nick liked it he found a special place for it rt away.We are going to be very busy this week.I will not cook here We will eat at my sisters.today we go to masfiled and visit Tim`s sister and neices. Tomorrow we go to youngstown to see Tim`s brother.Sat we have Tims three kids, Sun Tim and I go to the Cleveland Browns game against Tyler`s fav Team Tampa Bay.Then Monday is Christmas without my baby boy.I don`t know how We will do it but we must do it.I will tell you this it just isn`t rt to loose a child.It just isn`t right!!It`s not normal and I will never be the same again.I have a hole in my heart and in my house that nobody can ever fill again.On another bad note poor Turkey grandpa had his surgery it turned out ok, but he has to have some toes removed now due to no circulation in them and possibly loose a leg as well.This is the last thing we need for our family.When does it end.I think I told you all aboutMy uncle having cancer.He got his mediport put in a couple days ago and will soon start chemo and rads soon.Do you see what I mean about my family really gonig through it.On a good not both my boys are doing fine and My brother-in-law joined me in school.Tim is off school for break and got two A`s and three B`s. I am a proud wife!!!. Take care and God bless and love your babies more then ever. Have a good Christmas..
Friday, December 8, 2006 9:31 AM CST
Hello, A new month is here. Tyler loved Christmas so much and I miss him so bad.Nick and I put up the tree and it was very hard to do .We made special ornaments with our councler and we hung them on the tree.All of Tyler`s other ornaments are also on the tree. My mom got me a very special one from Tyler about being in heaven this year. It is on the very front of the tree.I had to do everything a little different this year. It is the only way I can handle it. So we have a diff tree and it is in a diff place this year.I do have Tyler`s stockings up.I just couldn`t leave them put away.I am going to write him a letter and put it in there.I am going to ask my family to do it as well.Si his stocking will be full this year but not of candy and gifts, it will be full of love from us all.My handsome sons are doing well.Nick is happy here with us and he is spoiled ,he loves to see how fast I will get up and cook for him when he says he is hungry.Tyler did the same thing. I can`t beleive how much Nick reminds me of Tyler.It is almost as if Tyler prods Nick to say or do something that Tyler would have done to me.Nick is very protective of me as well.Justin my oldest is doing so good. He has a full time job works 12 hour days five days a week. He is moving into his own apartment this weekend.I am aslo so happy that he is not a party boy anymore.Our family has been through so much and we still are.I am not spending Christimas here this year we are going to my sis`s house.Just too many memories here.Turkey grandpa is better but has to have surgery soon and without details mom has just gotton out of the hospital as well.She was just too stressed out.So like I said we are still going through it.Tim is doing well and is about to be out of school for the holidays and I am still plugging through in my class too.Well I guess that is about it.Take care and please remeber us on the 12th Tyler will have been gone for seven months.
Tuesday, November 28, 2006 8:23 PM CST
Hello, I had a very bad thing happen yesterday. I picked up the paper and they were doing a survey on the top ten stories of 2006. The problem is that one of the stories was about Tyler. Now that isn`t the problem. What upset me so bad is that they had his casket in the paper.I froze in my chair and then I starting the dreadful calls to my family to warn them of the picture. We are all so upset by this. We never gave permission to the paper to take this pic in the first place.The last thing We needed was to see Tyler`s casket in the front page almost seven months after he passed.On top of that it is so hard rt now because of the holidays. I has to go to school and see it there too because my school gets the paper for our students to read. So Tyler`s pic was around me there as well.I called my mom and she called the editor today and had him call me and say he was sorry he didn`t think about it when he gave the go ahead to print it.He is writing a new story tomorrow for our family and friends. I spent a good part of today crying.On a good not our dear friend Leslie was so sweet and had a grave blanket put on Tyler`s grave for us. So Leslie if you read this THANK YOU so much!!!It is so pretty and is in Tyler`s fav color Blue.Leslie has always been such a sweet friend to our family.Many timesShe has bought Tyler and my fav cookies and dropped them off with a sweet note.She would come every fri to make cookies at the hosptial with Tyler and the other kids.And many days she wouls come visit on any given day and bring Tyler his fav chips and dip and pop or a gift.Thank you for listening to me gripe Leslie .we love you. And thanks mom for sticking up for Tyler when my heart was too broken to speak. Love ya both. God bless...
Wednesday, November 22, 2006 1:52 PM CST
HAPPY THANKSGIVING TYLER MY ANGEL I woke up today sad and angry and so far I am in the same mood.I did a bit of shopping for my mom ans dad today and they were selling cards to sponser St. Jude so I bought one in Tyler`s memory.This is my first big holiday without him.I am so sad and angry at everything.I am not cooking this year at home and I wish I could sleep all day tomorrow.I guess that is about it.Take care
Saturday, November 18, 2006 3:29 PM CST
Hello, I am feeling a bit better on this entry.I guess I needed to vent.Things are about the same around here.I know if any of you saw the front page of the paper today ,that you would know Tyler would have loved it.for those of you that didn`t see it I will explain. you see tyler loved A player from Massillon Named Shawn crable. Well shawn did nice things for Tyler when he found out Tyler was first sick.Tyler got autographed pics and a football and a phone call and then he got to meet him. Then Sahawn went to Michigan. So that explains why Tyler loved Mich. Welll then another wonderful man comes along fro mOhio state named Kurt Barton. He came to cinnic to see Tyler and brough his best friend with himand A signed football and pics. From then on Kurt stayed in touch and even had us bring Tyler to see him practice and call some plays in Columbus. Kurt then gave Tyler his jersey and let him meet the couch.So in todays newwspaper they did a split story and pics on both of these wonderful guys who were the center of my boys life for the last three years.Kurt played for perry high school and Shawn played for the massillon tigers.We love them both and so did my little man.So it doesn`t matter to me who wins this game because they are both winners.I miss my little man so much especially on these days that I cannot share with him. My other two boys are doing grewat. Justin has an interview at a tire company and it looks really good. Nick is doing well in school and has adjusted well to living here with Tim and I. Until next time...
Friday, November 10, 2006 11:13 AM CST
anew month once again is here.On Sunday the dreaded day is once again on me. Tyler will have been gone for six months. Yes SIX months.It makes me sick and i finally gave in and told Tim that I am mad at God.That`s rt I said it.If you don`t agree with me then I know that you have never loset a child.I have books form my councler on this.It happens to us all.god has big shoulders and he is supposed to know me so I kbow he understands this part of my grief. And when I am done being made and my next stage comes he will still be there.My piships wife told me I am not suposed to blame God. Well once again she has never lost a child or grandchild has she?I have a rt to feel the way I do.The Holidays are coming and this year I will have to look at my family and say what we are grateful for.Hmmmmm Well I know I am not grateful tat my son is dead.I am glad he is not suffering don`t get me wrong. But I want him here with us healthy and a living happy kid.It sucks that he is dead and that all of the others are dead.It sucks he got cancer.And it really sucks that he will not be with us for Thanksgiving and Christmas and every doggone day thereafter.So I guess that I am mad. I am sure you can tell .On to other things Nick got his computer yesterday and the cable company is coming today to hook it up.He has not missed a day of school since he moved in with us. Today is a month he moved in.Justin is on the hard search for a job.He is doing ok as can be under all of his stress.Tim is fine as well very busy with school and the army and boyscouts.I am doing better in school but getting frustrated as well in some areas of my math.Nick and Tim helped me last night with it. I guess that is about it. Til next time.
Thursday, November 2, 2006 2:11 PM CST
Hello, Novemeber is now here and the dreadful holidays are coming soon.I decided after my group meeting that I am nnot going to have Thanksgiving here this year.I don`t really want anything to do with it. We are going to my sisters and my boys are gonig there with us.Last year I remember praying at the table for God to be with the family`s that are looking at a empty chair .Now we will be looking at a empty chair.I think that just plain stinks.Nick will finally be getting his school computer here at the house.I have given the paper work to the school for Justin to once again try for his GED.I hope everything works out.Justin is trying to get a job with his dad.Everyone is pretty much moved out of the old house we all lived in once up on a time.My rose that my councler got me for Tyler`s birthday is still alive. I have a funny story to tell... Tyler hated when /I filed my nails.It gave him the goosebumps and he would always yell at me.Well anyhow a few weeks ago my nail file went missing .I always keep it in the same place.Well anyhow Tim found it last night in Tyler`s closet.I just feel that Tyler moved it to let me know he is here and still ornery.I can`t beleive in a few days Tyler will have been gone for six months.It just makes me sick.I guess that is about it for now I have to go make my famous meatballs Just requested them and Tyler even knew how to make them. Until then....
Thursday, October 26, 2006 6:22 PM CDT
Hello all, We somehow managed to get through Tyler`s birthday.We had so many special people let us know that They remembered Tyler.I got cards from the hospital and even a phone call from his fav nurse.His friend and her mommy brough us a birthday cake it was so nice of them.We bought balloons and one came out of the car at his dad`s house and went up in the air.Then the other one that we let off at his grave went around my car real slow and then drifted off into the heavens really slow.I bought him two other ones that were to stay on his grave one from my mom and one from me well you guessed it mine blew away to heaven and I tied it to my mom`s.The one his dad bought him stayed there.Today we packed up his room at his dad`s and brought it over here.Nick met my counclor and talked to her a bit about Tyler and things.He also went with me to my compassinate friends group meeting and he really took it all in.He talked to them as well some.He also took the papers they gave us regarding how to get through the holidays.He is out working on his truck rt now.Justin is working and he is supposed to be moving in his new house soon.It is on the property where he works it is a farmhouse.He is trying to get in where his dad works.He will live in the farmhouse with his friend.i hope all works out for him.I took him to work today.We all miss Tyler so very much.I just seem to hord all of his things that I have here i can`t move it or part with it at all.Turkey grandpa is doing better.I guess that is about it for now.God bless....
Tuesday, October 24, 2006 7:44 AM CDT
HAPPY BIRTHDAY TO YOU TYLER!!! My baby would have been twelve today. I cried myself to sleep last night in Tim`s arms.I am so sad today.I have to do the little things like take Nick to school and pick him up but I am just in robot mode.I am going to spend the day with my boys and go to put ballons on Tyler`s grave. I am going to send one up to heaven as well.I can`t believe we won`t have presents or a cake this year.Instead all we have is tears and broken hearts and memories .The weather is so cold today as is my mood and my brokenheart.I got a rose yesterday from my counsler , it is very pretty.I also got a wonderful card from the hosptial with many wonderful messages on it about my beutiful son and his great smile.I hope i can get through this day.I stayed up until midnight to tell Tyler happy birthday as I do every year since he was born.I am going to try to go to the compassinate friends meeting tonight.Their topic is how to get through ther holidays.I like to know the answer to that myself.I have to take my Nick to school now .Goodbye...
Thursday, October 19, 2006 8:18 AM CDT
Hello, What a week we have had.we got Nick all moved in and that is working great.Nick is doing good in his new school and he really likes it.It is a very small group.As soon as I can get custody of him I can have the school computer sent here .We go back to the courts on Fri to try this again with the paperwork.It is a pain in the butt We have been there twice now.Nick is not feeling good today.I am almost in tears worring about him.He has sore legs and is really not with it.I can`t help but to worry that he too may be sick like Tyler.I am going to watch him today and if he still hurts we are going to the docs tomorrow.Nick was checked once before a couple of years ago for leukemia.I know God couldn`t do this to me again .I just couldn`t bear it.Please pray that he will be better and no more leg pain and that he will be ok.Justin is staying with a friend during the night and he comes here alot during the day.I feed him and he naps here.Both the boys have been sick and I have been nursing them back to health.Turkey grandpa is doing a bit better.He is staying with mom.I take him to the doctors when he has to go for the bladder.This Tues is Tylers 12 birthday.I just don`t know how to get through it.My councler is coming to see me on Mon because of Tyler`s birthday.My poor baby will spend his birthday in the cold ground.It just makes me sick.One of Tyler`s friends is again stricken with cancer for her third time.She goes to the doctor today to see what they can try to do for her this time.She lives in our town too.Please keep all of us in your prayers .our family is going through alot some things I am not writing in here but god knows what our needs are.Take care and God bless...
Friday, October 13, 2006 6:54 PM CDT
Hello, Well we got Nick all moved in.I am happy now.Justin had a really bad day today I won`t go into details but it was not good.Tyler`s b- day is fast approaching ,I am not looking forward to it.School is going fine for Tim Nick and I.The memoral service in Cleveland went really well.I cried most of the time.They gave us sachets of rosemary to remember our loved ones with.It was very nice.I took turkey grandpa to the doctors today and he had an infection so he has to go back this tues.Our family has been through so much and it still continues to be a strugle.I hope i can lavish my time and love on Nick and help Justin through his troubles.I guess that is all for now.God bless....
Thursday, October 5, 2006 2:24 PM CDT
Hello, Well it is Oct and you all know this is the month that I dread.I bought an angel today it is a October angel with Tyler`s birthstone on it.I have it besdie the angel Tyler bought me for mothers ,I got it rt after he passed away.Nick likes his new school he is still doing orintation but he likes it.Nick and I went to Tyler`s grave and then we went shopping and bought a few decorations for it for Halloween.yler loved this season so much.It will be a few more weeks before Nick moves in we are going to get things ready for his room this weekend.I want him to feel comfortable and as much at home as he can.He hasn`t moved for seven years so this is a big deal for him.The baby is not Justin`s but she was born is is doing well. Just got the job today with my brother-in law.Turkey grandpa got out of the hospital last night and still has a few problems but the docs are working to correct them. He is staying with mom for now.Tyler`s grandma Gardiner is home and doing well after her surgery.The cancer didn`t spread thank goodness.this Sun we are going to Cleveland for a memorial service for Tyler.Hospice is doing it for us.I will update more about that after we get home.God bless...
Friday, September 29, 2006 9:08 AM CDT
Our dear friend Hatti passed away weds night.Tyler and her were good friends in the hospital.I am so sad to loose yet another child to this monster.Hatti was a wonderful little girl who loved everyone and aslo butterflies horses and her little dog.She was so happy all of the time.Tyler and her would secretly put notes and things on each others doors at the hospital.It was so cute.Then after they got to know each other more they would play pool together.Hatti also sharded a birthday month with Tyler.This Oct I don`t know how her family or ours will get through it.I don`t know how we will ever get over it.We have lost almost everyone we knew there.It is a sad and scary thing to watch children die.I will never understand it or accept it.EVER!!!!It is a sick thing to happen to us parents and familys It is just not fare.I guess with that I will close.
Tuesday, September 26, 2006 3:22 PM CDT
Hello, Well let me tell you first that turkey grandpa DID NOT have a heart attack !!!!He had abnormal heartbeats due to the stress of him bleeding from the bottom half and from grandma passing in April and then loosing Tyler in May.I am hopeful that he will be released in a few days after some more tests.They are still getting to the bottom of his original hospital stay.Next... Nick IS going to move in with Tim and I.We are getting ready to get things in order for him to move his things in .I am happy to mother him again here at the house and FEED the boy! He met with the man who will help usget him homeschooled with the computers.He has to do 20 hours at the head office for the program and then he will do his work at home on the pc ,BUT he has to go to this office for tests at least two times a week.I will make sure he does it.So here at the gantzler/gardiner house we will all be in school!!! YEAH!!!Justin got a call today for his job interview working with my brother-in-law.Cross your fingers he really needs this job.I have a lady coming here at 7pm to get me for my first meeting with mothers and fathers who lost a child.This lady lost her daughter in a auto accident I think two years ago.Her daughter and Tyler both have a tree and plaque at the high school in their memorys. I did decorate for fall a little bit in honor of Tyler loving it so much.I hope Nick and I can get close again like we used to be.I missed my boys so much.I was so busy with Tyler being sick that they fell behind and I can never make up for that.It hurts me to think about it but I do daily.I want only the best for my boys they are each so special in my heart.I guess that is my update. Until next time....
Saturday, September 23, 2006 5:51 PM CDT
Hello, Things here are pretty much the same.I go to my compassinate friends meeting Tues. evening.My grandpa is in the hospital rt now and getting tests run on his belly.And Tyler`s grandma Gardiner had her surgery yesterday so she is in the hospital too for her cancer.We have been vivistinbg both of them this weekend.Tim and I have been fighting colds this week.I am still in school.We are still working on getting Nick in school here at home.I have a meeting this thurs with them.Nick will more thean likly move in here with Tim and I.I hope he doesso I can watch over him and cook for him.He is such a sweet kid.He just turned 16, We are still looking for a place to move too but if we don`t find one it is not the end of the world.Justin is trying to get a job with my brother-in-law.The boss is going to call him this week so it looks good.He would make about 8 dollars and something an hour.I still want him to get his GED.I am gonig to work on that this week as well when i go for Nicks meeting.I am still not sleeping very well I either take a pm pill over the counter or I toss and turn half the night.The Tigers lost this week But we still love them anyhow.They are winners to us because of all the love they gave my baby.We don`t know for sure if they did this for us or not, but when they got home on their charter buses fri night they passed our house and blew the horns and flashed the lights.It was only when they passed our house.Tim and I thought they might have done it bacause of Tyler. Anyhow it was cool.I guess that is about all for now I still ache for my boy, but that will never cease.God bless.... UPDATE: Grandma Gardiner is coming home today from the hospital, And Turkey grandpa has had a heart attack so We are gonig up to see him at 4 pm today.please pray for us and grandpa we cannot bear another loved one suffering in our family rt now.
Friday, September 15, 2006 3:34 PM CDT
The fourth month: The beginning of another month without my baby.I have had a terrible week.Today so far I am ok.I am not sleeping well I dream bad dreams nightmares to be exact.I had my monthy councling yesterday.That went well.I also contacted compassinate friends and I am going to that meeting this month.I am doing very well in school.I tested good this time I need a small amount of help in math again!!But all of the other subjects I am passing the pre GED tests for.I am very excited about that.I want to make Ty- Ty proud.I have been spending more time with my middle boy Nick.He will be 16 this Tues.I am making him a cake and I hope to spend some time with him.Justin My oldest is possibly going to be a daddy this Oct.The baby is a girl and Tyler knew about it.I hope it helps my greiving heart.I am still trying to get Justin to go to school with me but we hit a snag in the paperwork for him.Nick wants to be schooled at home on the pc so we are looking into that option for him.This Sun will be my one year ann for Tim and I. I can`t believe we been married a year already!Tim is away for the night at boyscouts so his mom is staying here with me tonight.Tyler`s grandma Gardiner is having her cancer surgery this month.Please pray for her We love her and she is a sweet woman.Oct 8 the hospice is having a memorial service for Tyler and other kids that passed.I am having a bad time dealing with the fall season because Tyler and I loved it.Then I have his birthday coming in Oct then the holidays.I told my family I just want to sleep away these next few months.It is not fare at all.My baby should be here and be healthy ,even trick or treating.I can`t even look at costumes or decorations.I guess I have updated enough.God bless...
Sunday, September 10, 2006 10:25 PM CDT
Well Tuesday will be 4 months since my baby passed.I am mad I am hurt and I miss him so bad I can physically feel pain from it. I think with all of this football going on and fall coming and his birthday and the holidays all coming that it is so much worse on me.I keep crying and crying tonight and it sucks!!!!I hate this I want to be better and I never will again!!I am checking on going to group therapy I need to do something.My councler only comes once a month and she comes this week thank God!!I think I make be cracking up or something.I heard a new song tonight which made it worse.Plus I watched Tyler`s fav football players tonight.God they were so good to him.And then the Tigers lost poor guys.It broke my heart.Let me tell you there isn`t much of my heart left to break.I think Tyler took it with him when he left me.The song that I heard is called precious child but you got to buy it from the compassinate friends I want it.It tore me up but I still want it.It sounds like I could have written it.The only good thing I can say is I did good in school and it looks like I will be taking my pre- GED tests this week!! Thank you Tyler for wanting mommy to do this.You know nothing is the same anymore without Tyler.It all hits me so fast and hard now too.Of course I like to have control of my life and I can`t control my emotions it makes me mad.Thank God I have a good husband to love me and hold me.We put fall decorations on the grave. Ty loved when I decorated.I miss him I think I will take something tonight to help me sleep.Take care and God bless.
Wednesday, September 6, 2006 9:27 AM CDT
Hello, Tues was my first day back to school. i have testing for three days.My teachers asked me how I was doing.They are sweet.I was ok until the teacher let us have a break. Well I don`t smoke but everyone in the class did.So this long haired guy yells out,"LETS ALL GO OUTSIDE AND SMOKE AND GET CANCER AND DIE!" I am sure you can imagine my pain and my anger agfter that comment.I skook my head at him and hung my head ,they all went out and smoked and after five min we took our test.If he says something today like that I am going to let him have it.I was so mad last night about it.I wanted to start fresh and nobody know about my tragidy yet ,but it may come out if he runs his face today.On another note I am going to clevleand in Oct because hopice sent me an invite yesterday for a memorial service with Tyler`s name in it.The Tigers won again and I talked to Tyler`s two favs and huged them and told them to win for Ty.So I was very happy when they won.Aslo someone made another brick for Tyler at the stadium. It says Tyler gardiner Always a Tiger Always in our Hearts.I was so happy this brick is up by the big M for Massillon.I am still having my bad days. Mon was another one.I seem to cry many times in a day when it hits me.We got Tylers grave ready for fall.We took most of the stuff off and rearranged things.Tyler shared my love for decorated for every holiday, So I had to put fall leaves on his grave.It looks nice.I am sure he would like it.I just can`t stand for the fall or holidays to come .I want to sleep on all of the holidays and his birthday so I don`t have to deal with it. I just don`t think I can.It is sure to break my heart in two I just know it will.I guess I better go I need to get ready for school.God bless...
Wednesday, August 30, 2006 11:16 AM CDT
Hello, The Tigers won the first game.The stickers with TG were on their helmets.And we just found out their is a new brick with Tyler`s name on it at the walk of pride!!I am again having a hard day.I am trying to clean my house and I moved a stand that had Tyler`s hat under it. I made sure since he passed it stayed there because he put it there.Well guess what I made it move and it broke my heart. I had a good cry with itand then i turned the tv channel and Tyler`s fav show when he was a todler is on. I am just leaving it on there too.I feel so alone today.I can`t stand him being gone.I want him back.I don`t want him to be sick or hurting I want him healthy.It is not right .I think it is too cruel to handle.Why ??? Aslo Sept is national childhood cancer month. We wear gold pins on our clothes that are ribbons and we have madnets on our cars. The hopsitals go all out for the kids that month.They get special guest in to see them and lots of foood and gifts.But this year Tyler won`t be included in it.He is gone.I will never see him here in my house again.The game was so empty without him there.I will tell you that at the end of the game they punted and my heard was maybe half inch from getting hit. Tim hit the ball away from me.We all had shirts made up special for Tyler`s memory at the game.Tyler`s fav show is over now i guess i will try and get my house done.I just don`t care anymore it seems.Take care and kiss your babies, you don`t know what you got till its gone.
Friday, August 25, 2006 10:59 AM CDT
Well today is the big day.Tyler lived for the football games and dreamed of them. Today is the first football game for 2006.I just hope we all feel Tyler with us.I am only going because of him.The team is supposed to put on their TG stickers tonight.I know we will all be in tears. I hope we can get through it in one piece.I had my councling yesterday.She loved Tyler`s stone.I took my friend Amy to see it yesterday too.She also was very impressed.I got a special shirt made up for the game in Tyler`s memory.hope to see alot of you there. God bless....
Tuesday, August 22, 2006 11:58 AM CDT
Tomorrow would have been a new school year and new school for Tyler. He would have been in the new middle school.As i took my middle son Nick shopping for school clotes last night I saw so many things Tyler would have liked.therre was even a shirt with his nick name on it. I think Nick might have even have got that one.I am going out to sit for a longgggg while at his grave today.I need some reflecting time with him.I have been away for awhile. I start back to school Sept 5.My oldest Justin is going to go with me.I so love the song that little Katia`s daddy made for our angels. When it got To Tyler`s pic I broke down for a long while and I think I needed that.I keep reading books on loosing your child.I know one thing I am only sane for short amount of times.At least that is how I feel. I don`t know what I am supposed to do with myself now? I am going to try hard to dive deep into school.Tyler really wanted me to be a nurse.I hope he can guide me.I guess I will go for now gos bless...
Sunday, August 20, 2006 1:34 PM CDT
Hello, We are back from Virginia.We took over 500 pics.I loved seeing the dolphins the most.Tim graduated from school (Army school). I am getting ready to go back to school this coming week as well. I had a great time away but I had my times of crying there too.Since I have gotten up today I have had two crying spells.This latest one ws pretty bad.I almost called up my mom to see if she would come over.This house is just not ever going to be the same.My life will never bee good again.My baby is gone forever.I have just got to become a nurse for him.He wantd me to do that and I was also given orders as to where I ws to work.Yes if you guessed akron children`s you are correct.And even better he wanted me to work on the hemoc-oncology floor.I guess he thought I had something to offer others.Rt now the only thing I can offer is my broken heart.I told Tim this morning that It hurts so bad i am not a whole person anymore.I am a mom who is lost and can`t find her way in this world.I hope that my other two boys can find their way through their heartache too. i am not sure if I told you all but Tyler`s father`s mother now has cancer as well.She is a great lady and I will be there for her anytime she needs me.She hasn`t started any treatments yet and she needs surgery as well.So please continue to pray for this family the Gardiner`s need it.Thank you Stan and your daughter for sending Tyler`s pic to Katia`s daddy. They are a family from Tampa and they put Tyler`s pic on a video that Katia`s daddy wrote the song for.It is so very sweet.I have so many good memories like these.The thing is how do i keep the bad memories away.Thank you to the ones who still sign Tylers book I look daily .god bless and i love you all.
Friday, August 11, 2006 12:44 AM CDT
Hello, I am still in Virginia. I was getting a great tan but the then the last two days it has rained and no sun. So I am stuck in my room all day.I can`t wait until Tim gets done today , because we will have the whole weekend to venture out and go to virginia beach and some other things I want to do.They sure keep the guys busy here.I got a bunch of bereavement books to read .I know you all seen Tyler`s stone isn`t it nice? I know he would love it.Tim got his laptop to work in the room last night so here I am.I am doing my check up on all of my other caringbridge kids.The 12th will be three months that we lost Tyler. It is really hard on us all.I hope God is taking good care of him up there.Well I guess that is it.God bless....
Thursday, August 3, 2006 10:06 PM CDT
Hello, Well the after almost three months in the making Tyler has his headstone in place.It was heart wrenching to see it.After a few mim of mom and i crying we got ourselves together and got out of the car to see it better. It is just what Tyler wanted and then some. I know he would be happy with it. My sister stopped while we were there and I called Ty`s daddy and he and Tyler`s biggest bro Justin came too and Ty`s dog Marylou. We all just stood around looked at it.It was well worth the wait.My poor little boy this should have never happened to him.It will soon be three months since my sweet boy went home with his original father.We all miss him so badly.I really faelt sad when I read a message from my oldest son Justin to Tyler, it was so sad. My middle boy Nick missed him so much last week that he rode his bike to visit his grave. It is several miles from their dad`s to Tyler. The wild flowers that the hospital gave me are growing very well. Which leads me to the next thing... As of Sun I will being going away with Tim for two weeks.We are going to Virgina for his army school.If I can`t get to a pc then I won`t be updating Until after the 18. Take care and God bless... *** UPDATE*** There are new pics in the album
Monday, July 31, 2006 2:08 PM CDT
Hello, My mom called me to say that thestone should be ready this week. My two older boys are having trouble ajusting to Tyler being gone too. Justin has trouble sleeping and Nick keeps seeing Tyler`s face as he looked at Nick as he died.We are all a mess I suppose.I keep taking Nick with me when he wants to go to Tyler`s grave. I guess he rode his bike all the way there last week. It broke my heart when my sister told me that.He said he sat there with Tyler about a half hour or more.I just don`t know how to help them or me for that matter.I hate being helpless. We all have to find a way to deal with it the best we can. I know how lonly it is with out Ty running around the house and asking for us to buy him something .Football will be starting soon and it breaks my heart. I know his dad will be heartbroken too.They loved to go to the games together. Well I guess that is my update God bless...
Saturday, July 22, 2006 5:38 PM CDT
Hello, Tyler`s stone should be done in two weeks.I miss my little guy so much.I have had a hard few days latly. I ran into one of my friends who also lost her child 15 years ago. She said that it still hurts her so much. She still has his shoes and clothes and a candycane in her freezer. Her little boy died in a fire.It is nice to have friends who understand our loss.I went to see my dad today and we went to some cheese factory`s and sampled them.It was nice to get out.I still see the white flasges of light around my eyes. I feel it is an angel. I had my eyes checked and they are heathy so that just makes mr believe more that it is angels.I love angels and have collected them for years.I guess now I have my very own real one to look after me.Take care and God bless....
Monday, July 17, 2006 9:24 AM CDT
Hello, We are still waiting on Tyler`s stone to come in. Someone bought him the cuttest bybmblebee for his grave. I am tickled about it. it stands about one and a half feet tall and has pipecleaner feet and arms and antenna.He has windsock materal for his body. I just love it and I know Tyler would too.On a sad note Tyler has two friends in truoble rt now. Please please pray for Hatti and Trisha. Tyler dearly loved them both and I still do.Please pray for these sweet young lady`s they are sick and need us to storm heaven for them.I got bad news three times yesterday!!!Hatti is not doing too well Our Trisha is having some illness and my uncle is waiting to see a oncologist to see if he has lymphomia. I am mad!!! When will this end.We need a darn cure.I am ready to have a meltdown!!!I have been short with Tim As he gently put it.I don`t know when or how or if my emotions get the best of me now days.We love you all. God bles....
Wednesday, July 12, 2006 11:15 AM CDT
Tomorrow is a special day for Tyler. He had his bone marrow transplant on July 12 .So this is what they call his new first birthday.I will take him a birthday ballon to his resting place tomorrow.I only wish I could hug him and celabrate this day with him like we had planed.I wish I could have known the donor and told him myself how much his special gift ment to us. Tyler did write to him via the cinnic hospital. He never got a responce from his donor.I had my baby not quite a year after that before he died. last night I had a hard time sleeping becasue the night light in our bathroom kept turning on and off. Tim threw the first one away becasue I was shaking and could not sleep.I hope the other one stays on tonight.This is the second night in a row I slept without something to help me rest. I was taking something for a few days in a row to sleep.It is just tylenol pm.I am sure it will be a long and lonly day today as Tim has alot to do for school he has left already.My sister is getting married tomorrow and Tyler wanted to see her do this so that makes me sad too.I hope God will let Tyler see it in sprit. I guess I will go for now God bless....
Friday, July 7, 2006 5:04 PM CDT
I ask everyone and anyone does this pain ever get better?My answer is always the same NO. They say I will learn to accept it and deal with it. I don`t want to accept it. I bought several books and a jernal for myself to work on. As you can tell it hurts to darn much to do it.I go to Tyler`s grave daily but it feels like I am in a robot mode.I know he is there but yet it feels like he isn`t.I still can`t be here at night by myself. In a while we are going to get my mother- in -law again to stay with me for the weekend becasue Tim has guard.I feel like a big baby.Today I called about a house that is nearby and when they answered the phone I almost frieked out. It was the funeral home Tyler was in that owns the house so they answered my call by saying their name. I was so floored I couldn`t talk at first. Needless to say I don`t want to see the house.I am so confused on what I want now days. Sometimes I want to talk about Tyler and then other times I don`t becasue I know I might loose it.His stone should be ready very very soon. I just know it will be hard on me to see it,but yet I will be glad Tyler got it too. Oh I am now helping to teach the nursery kids at church.I like that alot .God bless....
Saturday, July 1, 2006 6:55 PM CDT
Well I made it through my first night without my hubby since Tyler passed. But I did have my mother-in-law downstairs.I took a pill to help me sleep and then I read a book in bed until my eyes gave up on my brain and closed.update on Tyler`s grave... They poured the morter for his stone yesterday. It has to set for about a week and then they can call and see when his stone will be done.I know that I will cry but I want it to be done and be there for his memory.He picked it and the words he wanted on it too. Our church has asked me to work in the nursery so I said yes and now I get to take care of baies for two hours a week.I think I will like that. I am going to go for now we have the grill on .Until next time....
Tuesday, June 27, 2006 9:21 PM CDT
Hello, The memorial service for Tyler and Cassidy and the other kids we lost in the last three months was so pretty. i cried alot. It was so sad but yet so heartwarming for all of us to grieve. I don`t let it out to much.They called out Tyler`s name and then I got up and lit a candle in front of his pics and Ronde bear, Then they put a white rose in front of his pics. They also Gave us a butterfly that had seeds in it and we are to water them and it grows wildfloweres in our child`s honor. It was very nice. They prayed and said poems too. We got a flier that had the kid`s names on them too. One family lost four kids all at once.I think it must have been an accident. I guess that is about it I got to finish dinner it is late but we got home late too. God bless......
Friday, June 23, 2006 3:53 PM CDT
I can`t believe that today is six weeks that my baby died.I am so sad and angry that this happened.I watched the pbs show Lion in the house and it almost killed me. I cried alot let me tell you that.Three out of five kids died.It was at the hospital that Tyler had his bonemarrow transplant done. I had alot of flashbacks from it.We lost another child at akron a couple of days ago to cancer. it just doesn`t seem fare for all of these kids to keep suffering and dieng of cancer. I am sick of it I want a cure and a biggggggg answer as to WHY!!!!! Why does our babies that we wanted and loved with every thing we got have to die.How come the parents that kill their kids are adopt them out get to have a chioce. We wanted our babies.We didn`t want them to die. We kept them and fought like we never fought before to keep them alive. Well guess what it didn`t matter it didn`t work they left us anyhow.And now we are all alone, I don`t know what to do with myself now.My house is empty. No more Tyler, only his things to look at.Last night I thought I heard him call me. Then I knew that I was imagining it . A big black butterfly flew up at Tyler`s dad today ,he said it scared him becasue he was raking out the straw and it was on the straw.I laughed at him ,I thought it was sweet. I am sure Tyler sent it to his dad to say hi.Well I guess I will go now... bye
Wednesday, June 21, 2006 5:22 PM CDT
Hi Everyone, It rained pretty hard today for a bit.I waited patiently and it stopped so I went to sit at Tyler`s resting place. My oldest son Justin put some straw on it ,and he got it from the farm he works at.I was looking at the straw and I saw something in it ,it looked like a dead rodent. Anyone who knows me knows that I don`t like RODENTS!!!! Tyler loved that i was scared of them. Anyhow sure enough when I yelled about it my mother-in-law came to check out the situation .It was a dead eaten up rodent in the straw on Tyler`s grave!!! YIKESSS!!!! Tyler got me again. It was creepy and so my mother-in-law bless her heart got out a tissue and got rid of it for me. Thank god before I had trouble with my heart. Ihave enough trouble with that as is...For years I have had skipping beats and the docs don`t know why.There is just a few nwe pieces of grass sprouting on Tyler`s resting place.I need to clean up his dead flowers here but I just can`t yet.While writing this our smoke detector just went off and now that I am deaf I can say that nothing is wrong here I had to take the battery out. Maybe it needs replaced I don`t know. Maybe Tyler made it go off. I just came from his room I ususally don`t go in there.I was looking around for a few min.I miss him so much.Maybe he was telling me he is with me and misses me too. Until next time god bless...
Monday, June 19, 2006 9:59 AM CDT
Last night I went to Tyler`s grave and Tim and I read him a book.It was a book that I had wanted to reade to him and he got so bad that I didn`t and couldn`t. I had a nightmare this early am. I woke Tim up and myself I was crying so loudly and hard.I drempt that Tyler was telling me he didn`t want to leave me but he had too.My clothes and face were wet and Tyler`s Ronde bear was wet from my tears. It was terribly sad and upseting.I am still very upset by it. I pray every night to God and one of the things that I pray for is not to have bad dreams. I think I will take something tonight to help me sleep.Other then that I guess it is the same around here.I am still lonly and sad. I am going to the library today and get some books on bereavement.Until next time...
Friday, June 16, 2006 12:29 AM CDT
I got home today and I got a card from Tyler`s school. The school and students bought rose bushes and planted them in Tyler`s honor.I am touched and overwhelmed.I read the card and just cried.My poor little boy is gone. I just can`t believe it. I go to his grave daily but yet it just doesn`t feel right.I am a lost person wandering around ttrying to find myself again. I am no longer Tyler`s caregiver he doesn`t need me anymore. He is gone... I may have to wait years and years to see him again.I am so sad.This is so unfair it is cruel and mean. Nobody should have to bury their small children.I thought that divorse hurt, after this it don`t come close noway!! I am crushed , I can`t even be alone here in the house. I have my mother-in-law here with me for two weeks becasue Tim is working for the army and gonig to night school too.I just wanted to let you all know about Tyler`s roses. Untill next time...
Wednesday, June 14, 2006 6:16 AM CDT
Hello, Yesterday was a very hard day for me. I cried here and there but at the grave I cried many silent tears. All evening I was overwhelmed with pain. So last night as I was laying in bed I let it loose.I woke Tim up crying so hard I was sick. I couldn`t breath ,It was terrible.The only good thing that came out of it was that I finally snuggled up to Ronde bear and had a wonderful dream of Tyler. The strange thing is he was a baby again. The stranger thing was that he talked to me like he would not. So here he was in a walker as a infant but talking to me as an 11 year old.I was so happy and he talked away to Tim and I.He said he was sick and needed some cold meds.It felt so good to hold him in my arms.I didn`t want to let him go but then the alarm went off. This is the second time today I have cried and it is only 7 am. I am getting ready to go lay back down for awhile and snuggle Ronde bear some more.Maybe I will get lucky and have another dream. Yesterday I was online looking at bereavement sites. I copied alot of poems.I have had severe heartburn for days.Yesterday at Tyler`s grave I got a phonecall and the lady that helped Tyler go to New York had a present for me. So she met me there and it was so pretty. She had ordered a heart shaped pendent with Tyler`s pic on it, it is gold. It is so pretty.Tyler`s daddy and brother have the grave looking really nice it had mulch and borders around it. I believe the stone will be coming within the next month. Ok I am going back to bed now God bless...
Monday, June 12, 2006 9:43 AM CDT
Hello, Today is the one month mark.I just can`t believe he has been gone a month.I woke up today and told him how much I miss him and gave his bear a kiss.I am so fusst about his bear Ronde.I keep it wrapped in a blancket just like Ty did.I know without a doubt that I am still in sckock. I have to be. Somehow as soon as I think overwhelming things ,like Tyler is gone gor ever I can turn offf those thoughts real fast.I must be able to protect myself like that.I hope I can do this forever.If not I am in big trouble when it all comes down on me.I still can`t believe he is gone.It would be really nice if I was dreaming .I thought I heard him call my name last night.It really bothers me to hear smaller kids yell out MOM.I always want to jump rt away and run twards them.All I can say is this sucks.I guess that is about it. God bless.....
Saturday, June 10, 2006 5:12 PM CDT
Hello, yesteray I invited a few of my friends to attend the realy for life with my family and I. They came and we had such a sad but yet nice time.The team got introduced and Tyler was mentioned several times throughout the day and evening.I was very emtional at times. My worst moment was when they let the survivors walk the first lap. It just about killed me to know my baby would not be a survivor.He was and is gone.I cheered and clapped for the others don`t get me wrong.Our Girl Trisha was there walking that lap with her family and I was so very proud of her.I yelled her name and took pics and cried. We stopped to see her today too.It was a very nice realy. I only wish we could have filled up the stadium with more people who would donate for the cause. Tyler got four or five luminaried in his honor. Mom and I brought one home.Tyler`s dad and brother and grandma gardiner came too. Ty`s dad had a very hard time as well. I mean this was the place he and Tyler shared their best times together. It was so sad. I got to beat the crap out of the boxing bag I mean I hit it for the last four years of hell we have been through. I hit it for my pain I will have forever without my son. I hit that darn thing until I felt like I would fall down. And you know what it felt damn good.I am mad . I am so mad for cancer taking my son and I am mad for all of the people who have it.I think it sucksssssssssssssssssssssssssssssssssss!!!!!!!!!!!!! So I guess you can tell that I am mad huh.Anyhow I hope you all have a good weekend. My hubby is working for the army for the next two weeks so his mom is staying here with me. God bless you all...
Thursday, June 8, 2006 3:56 PM CDT
Hugs to all, I am geting ready to go to Tyler`s resting place. I still go daily and I really need that time every day.Yesterday I went there for the first time all my myself. It was ok I talked to him some ,but for the most part I seemed really quiet. I am not sure why but I was just taking everything in. His daddy came as I was leaving so I know he got more company. I watered his flowers. Tomorrow we are having the Massillon relay for life and I am walking in honor of Tyler. They are playing the EYE OF THE TIGER song and it was his favo. But they spliced it and put a piece of Tyler`s song of love in it. So now it is double cool. I know I will just loose it when I get there.It is all so emotional, and now that my baby lost his battle it is even more emotional for me.At nie pm we will light lumiaries in honor of him and all the other people who lost their battle or who are still fighting.I miss him so much.My house is so darn empty now. it is like a shell now with no body in it.Yesterday is the first time I spent any time here alone. I stayed here a little more then an hour and then my friend Terri came over and spent a few hours with me. I went to the grave after that and then to mom`s house.I saw the white lights again so I know Tyler was around me.The white lights were here at the house for about a week before he died. They are little white circles around me usually in the corner of my eye I see them.I am so afraid that I will forget every memory I have of Ty.I feel like I have to preserve every little thing.I think Tim thinks I am getting obsesive with little things. It is all I have left. I know that you parents that lost a child know what I mean.Well I have to go help put Turkey grandpa`s garden in. God bless....
Tuesday, June 6, 2006 1:30 PM CDT
Hello, Well it is the three week mark now since we buried my baby boy.I told him last night when I looked at his picutre that it is only a small matter of time before I break.I keep feeling it coming and somehow I manage to avoid it.I am scared to feel the total loss ofloosing Tyler. I know how empty I will be.He was and is my baby and I don`t know what to do with myself now that he is gone. I want to go to school to be a nurse and he knows that. He wanted me too as well. But that is for fall not now and I am not ready yet.For all of you out there that read this or if any one does anymore I hope that you never go through this. And for the ones that did or will I am so sorry for you. I know how much it hurts. God bless...
Sunday, June 4, 2006 5:25 PM CDT
Hugs all, Yesterday while visiting Tyler`s grave I saw a cloud... A (POOBREAR) cloud.I cried my heard off for a few min.Today when we went Tyler`s daddy had it multched and a brick border around it. We loved it.It was really pretty.Then my future brother-in law got me something really special,It was something I been wanting but he never new it!! He got me a memory tribute with Tyler`s name and date on it. Well I can tell you all that I treasure it. The funny part is that he didn`t know that I have been searching witth Tim to find that sort of thing.Now my baby will be part of my car too.I miss Tyler so much and I know all of you do too.Please pray for Cait, and Megan and Hatti,and Michelle.They so need your prayers. I also can`t forget my special other three girls.Trisha,Jacey and Rathyna.i saw Jacey last night and she is looking so good and happy.You are all my special kids. God bless....
Thursday, June 1, 2006 1:50 PM CDT
Hello, I miss Tyler so much. I go to his grave daily.I bought him a few things for it today and we took them to him before it rained again.Last night My mom and I were coming back from my grandpa`s house and one of Tyler`s songs came on the radio. I was ok but hen I started looking up in the sky and I saw a cloud that looked like an angel. I showed it to mom and then a little boy was on a fourwheeler with his helmet on and then I lost it. That was way too much for me to handle all at one.I had a bereavement councling session at the house with hospice yesterday too. It went well, she had me show her all of Tyler`s pics on the walls .Then I showed her his memeory wall in the room where he died at.She looked at my neclace with his pic ingraved on it.i also have a braclet someone made me with his name on it. I love it!!It was two weeks on tues that we buried Tyler and this fri will be three weeks that he died. Akron children`s called me too and we talked for awhile too. Th is sept they will have a memorial for Tyler and all of the kids that passed away around the same time frame as he did.Hospice advised me not to go to any groups until about three months after Tyler`s death. They think it would be too much to hear about all of the greiving parents stories. I still have truoble sleeping at night.I hate the nights so much now.I guess I went on enough God bless.......
Monday, May 29, 2006 9:10 AM CDT
Hello, Today is the first holiday without Tyler. We went to the parade and our marching band was playing and it made me cry. Tyler loved the band so much ,he said that they always got him in the mood for the game to start.So it made me miss him that much more.I think I am still in a robot mode. I do what I have to do and that is about it.Lat night I had a terrible time sleeping.I prayed and prayed to God to let me rest and not have nightmares. We still go to Tyler`s grave daily.He is so loved and so missed by us all. It sure isn`t fare I can tell you that much. Until next time....
Friday, May 26, 2006 3:55 PM CDT
Hugs all, Today is two weeks since my baby passed away and left me.I just can`t believe it has been two weeks already. I still think he will call me or walk in the door any min. I wish it would stop raining so I can spend a longer period at his grave.As you know his nickname from me is bumblebee.I have several things on his grave that are bumblebees.Well Tim and I went to his grave in between hard rains, I was talking to Tyler and a tiny little bumblebee landed rt in front of me on his grave . I just lost it. I cried out to Tim to look over where I was standing and I cried I was happy and so sad all at the same time. My baby sent me that bee I just know he did. He knew I was there and he sent me the bee to tell me that. At his funeral a bigger bee landed in my mom`s hair.So Yes Tyler baby mommy is watching for signs and mommy is seeing them. I love you baby baby bumblebee. I sure do miss his poobear too. God how I hate cancer.i want to fight it and I just don`t know how too.I am getting so mad at cancer taking away our babies from us.I guess I better go before I start ranting. God bless.....
Thursday, May 25, 2006 12:16 AM CDT
Hugs All, Well the last two days I woke up and cried before I even got out of bed. I guess maybe that is how my day wants to start out.I go to Tyler`s grave once a day. I like to bring him things with bumblebees on them. That is his nickname from me.He will have that on his stone too.The house is so darn lonly here. It is too quiet.I made a memorial in the corner of the dining room where he passed away.I have every card you all sent to us since he passed. I got pictures and his silly string and things like that all in his corner. It bothered me to have it bare since I made them take his hospital bed out of here rt away.I wouldn`t stay here if it stayed.I have alot of trouble sleeping at night. Around 11 pm I get really antsy and then I try to stay away from the clocks.I made Tim cover up the clock last night so I didn`t see it in bed. It really didn`t help much becasue around the time he died I sat straight up in bed at just knew it was around 1 am.So I guess that is my toughtest time of night.Iam getting through but it isn`t easy at all. I keep asking parents who lost a child if you ever get over it. Everyone one of them told me NO. They all said you learn to deal with it.I guess I am destined to be heartbroken forever.I have a big hole in my heart and nobody can fill it. Tyler`s dad bought the plot beside .Iwill update later god bless.
Monday, May 22, 2006 2:37 PM CDT
Hello, Today my heart is aching more then I care to explain. I cleaned up Tyler`s room today .It is the first time I touched it.Then if that wasn`t bad enough I found some poems he wrote me and I didn`t know about them. They are very simple and shoet. But God it killed me .My hubby told me that he hid them as surprises for me.I guess he did becasue I sure was surprised to see them. it is so nice but my heart is aching for him and poobear now.I don`t know How to move on.It was so hard to touch the pilloows he died on. I made his bed real nice for him. He liked his room clean.I also forgot to tell you all the on the day we buried him I came home and Kevin the fish was dead. Again I was heartbroken.I told Tim that Tyler was a stinker and took his fish with him to heaven. I got another fish but it isn`t the same. well I will post later. God bless....
Sunday, May 21, 2006 1:12 PM CDT
Hugs to all, I am still trying to get my thank you cards out to you all. I just want to say how much all of you mean to our family.You have all helped us in so many ways.I cannot begin to thnak you properly. Tyler has so many visitors at his grave already. And of course he has his grandma and grandpa and daddy and brothers and me his mommy.We love and miss him so very much. Some days are hard for me to get up. Other days I seem to be ok for a long period of time.I think I am doing pretty good with controlling myself so far. I know a major meltdown is coming sooner or later.I am not mad at God and I hope I never will be.I know he didn`t make my baby sick. I know he has Tyler with him now and holds him close when he misses me.Strange things keeping happening with everyone`s cars and the time that Tyler passed keeps popping up on radios and clocks when it isn`t that time yet.I know he watches over us.Sometimes I think my heart will truly break in half over missing him so much.We are still trying to get the rest of the funds for the stone.It is truly a wonderful stone. Tyler would have loved it.Well I will go for now. God bless you all.
Saturday, May 20, 2006 9:33 AM CDT
Hugs to all, My Tyler has been gone for a week already. I still think I am dreaming and he is really still here with me.I had a beakdown at 2 am this morning . I thought I was going to be sick I cried so hard.I just can`t believe my baby is gone forever.i know I will see him again one day but for rt now that is way too long.His dad and brothers are doing better for now. My mom and his daddy go out to his grave several times a day. I go once a day.I miss him so much.I am now in a new group of people the cancer land is now gone and I am in angel land now. All I can say is this really sucks!!! Tyler has so many things on his grave already, His dad even bought him solar lights so he is not in the dark.I hope he isn`t too cold either. His dad put his coat on him before we saw him for the last time.I guess I will go for now. God bless...
Thursday, May 18, 2006 5:57 PM CDT
Hugs to you all, Tyler`s service was beautiful.Thank you all for sending cards and coming to say goodbye to him. I know he was watching from heaven.His dad is having a really hard time with it. My boys are doing well so far.My son Nick held his hand as he passed away. Tyler`s dad and my mom have made his grave so pretty already. We are all waiting for the stone to be made it is so very pretty. Tyler would have loved it.I can`t stay in the house by myself yet. My husband is very good at keeping an eye on me.Things are hard rt now for everyone.We love you and i will be sending out thnak you cards to you when I can settle down a bit.Stan thank you so much for the card and basket.The docs and nurses came from Akron and hospice. They were always so good to us.Well i am going to go now God bless and thanks again for all of your support.
Friday, May 12, 2006 5:44 PM CDT
Our beautiful Tyler is in heaven. The calling hours will be Monday, 05/15/2006 at:
Heitger Funeral Home 639 1st Street NE Massillon, Ohio 44646
2:00 - 4:00 p.m. 6:00 - 9:00 p.m.
The funeral services will be Tuesday, 05/16/2006 at:
Emmanuel Christian Church 7641 Navarre Road SW Massillon, OH 44646
10:00 a.m. viewing for one hour 11:00 a.m. funeral
God bless our beautiful Tyler and his family,
Kevin Willis' Aunt Julie and Uncle Richard
Friday, May 12, 2006 0:58 AM CDT
My baby is a angel now
Thursday, May 11, 2006 5:41 PM CDT
Tyler's family has asked my husband and I to update his journal as he has taken a turn for the worse. Susan gave me the update below so I hope I say everything correctly. Susan and family, I apologize if I don't write this as you would, but I am struggling to update myself as Tyler and all of you have come to mean a great deal to my family.
Tyler is having a difficult time as his central nervous system is shutting down. As the central nervous system drives many of our functions, it is causing Tyler to lose his hearing and "talk out of his head". Tyler's vital signs are strong, but Hospice indicates that it will cause something to ultimately shut down. Tyler is very restless when he is sleeping and it hurts to touch him. He is also not eating or drinking any longer and they need to suction his mouth so he doesn't choke. The cancer is also in Tyler's lympth nodes which explains the lumps on his neck.
They were able to move Tyler from his bedroom to the hospital bed downstairs so he can be with his family and friends that are gathered around him.
Please, please pray for Tyler and his family. My heart is breaking for all of them, but I know it doesn't compare to what they are feeling. Tyler is surrounded by his family and close friends as they love him very much.
We love you all very much too and our prayers are with you,
Kevin Willis' Aunt Julie and Uncle Richard
Wednesday, May 10, 2006 7:40 PM CDT
Hugs all, Ty had a semi good day today. He is still verbally impaired by the stoke and now we found out he has a pinched nerve in the nervous system so he can hear sometimes and other times he can`t. He even asked me for q tips to clean his ears, he don`t understand that he is going deaf .He did eat jello today I was so happy I cried. He is on a few pumps a day for meds, and all the time for pain. He is drinking some. He told me he is his own soul and wants to know before I mlake decsions about him. bless his little heart. He is confused sometimes. Today he told me he wanted me to get his clothes together so he can go swimming. I said honey you can`t go swimming, he said I ment for my bath water.But he can`t take a bath because of his IV pumps. He is resting rt now.I cannot get him to come downstairs and rest at all yet.Well I have to go hook up his fluids . God bless you all...
Tuesday, May 9, 2006 8:42 PM CDT
Hugs All, Tyler is doing about the same as last night. He got his pain meds up a little higher.Now he is too sleepy and very shaky. I think he trusts me enuogh to yell for me to help him get to the bathroom.He will start another med tomorrow too. His face swelling is a tiny bit smaller. He still has trouble drinknig the fluids kinda fall back out. He did eat a small amout of a peanut butter milkshake.He still doesn`t want me to cry he says if I cry then he wants me to leave the room.I try real hard not too.His nurse will come again tomorrow.They are really nice to us. Our friend Julie helped us to get all of the pics that the private photographer took.She is so helpful. As a matter of fact rt now she is organizing my refrigerator.Tyler`s meds take up alot of space in there.Well I got to go check on him and I really need a bath. God bless you all. I check his mesages a few times a day .Thank you for your thoughts and prayers.Until next time.....
Monday, May 8, 2006 10:19 PM CDT
Hello, Tyler has had a semi rough day today as well. He gave me a bad scare earlier .I went in to check on him and there was blood everywhere on him on the blackets and in his line.I was so scared a Yelled for my hubby to call hospice. Well what happned was a clamp came loose and he bled from it.I was scared what a darn nightmare.Rt now he is resting . We got a hospital bed today and a oxygen machine and a potty chai. Rt now he is still in his room upstairs ,all of these things are in our dining room.It has been a very trying and emotional day. Hospice is coming back in the am.Tyler is still having trouble drinknig becasue of his rt side being impaired due to the stroke.I think they are doing a article on him tomorrow.We will update tomorrow. God bless
Sunday, May 7, 2006 9:30 PM CDT
UPDATE: My Tyler is not doing good tonight. He did get his pain meds and IV fluids.He bled from the bowels today and the mouth. Tyler also had a stroke today on the rt side. He has a swollen face and cannot talk as well or drink or eat now. Everything falls back out. His hospice nurse left and rt after I went to give him IV meds and his face looked swollen. Then he said he couldn`t feel and he was bleeding some from the eye and mouth.My mom is going to stay the night with us. I am very tired and scared. i will update later or have someone else do it. God bless..
Sunday, May 7, 2006 11:22 AM CDT
Tyoday is starting off bad too. Tyler was up all night vomiting and in pain because he cannot keep the meds down. He was also trying to pee all night.So I called pallitive care and hospice and I and Tyler agrees want a pain pump and IV fluids. Tyler is too weak to try rt now to drink and take meds. He just can`t do it. I am a mess here myself There was dried blood on his lips and the outside of his nose. He is bruised from head to toe.I feel so alone and scared.I don`t know how much more he can or will take before he gives up. I want him to stay with me but I do know that I would have never been as strong as he has been in the last four years.They tell me that he will most likly hemmorage rt before he goes. I don`t have to tell you how scared I am of that.He hates blood so I don`t know how to get through this.I am so mad really mad at this disease.I want to know WHY my baby.I am boiling inside and I am afraid of it all coming out. I might never be the same again if I loose it.I know I will not be a whole person again if Tyler leaves us.He is suffering so much and I am mad that I am helpless to help him.That is my biggest thing that I am mad about. Mommmy`s are supposed to protect our babies.I can`t anymore!!!!I got to close please pray Tyler gets his pump and IV fluids sooner then later .
Saturday, May 6, 2006 9:34 AM CDT
Good morning to all, So far Mt Tyler woke up with a bad headache and then he got sick. we waited a few min and tried all his meds again. I think he took about seven pills or so. then he ate some chocolate cream of wheats and drank some water. He is napping on the couch now and I am trying to drown out the neighbors with a fan and the tv.It has been a trying mornig already.Please pray that Tyler will feel better once the meds kick in and pray that they stay down too. He was up alot last night trying to go to the bathroom his bladder is acting up now so again he is on a pill for that.I guess it is a pain and muscle relaxer. So far I don`t think it is working that well.Now he worries about it so he is in the bathroom alot trying to go. He can never win with this darn monster.It is always rearing it`s ugly head at him.I am finally getting mad.It has taken alomost four long years but I am there now. Oh Tyler needs me to come rub his head for him God bless....
Friday, May 5, 2006 12:38 AM CDT
update: Tyler woke up with more bruises big puprle ones on his wrist and feet. I called the doc and told them that I think he needs platlets. They sent us to our local hosptial where the nurse there was a mean spirited women.I was very upset with her and so was Tyler. All he wanted was to have his finger poked instead of his arm which always blows a vein. She got mad and rolled her eyes.She said now I got to order sometubes for him . i will not say what I did behind her back but it wasn`t too nice. I am so tired of other people thinking they got it so bad. Well boohoo she had to work a few extra seconds on him. That is her JOB!If she doesn`t like it get another Job.Anyhow We are now waiting on the lab results and if he needs platlets we are off to Akron. He is sick today with a bad headache and weak.The last thing he wants to do is sit in a hosptial all day. I feel so bad for him. This is the first time in a long time that I am angry.Now he just vomited. This is not a good day. I will update later.......
Thursday, May 4, 2006 4:14 PM CDT
Hello, Tyler has had a eventful day. But he has also been very weak today as well. more then a few times his whole body shook like he was going to pass out. He needed me to hold him up.I got scared and then I in turn scared him.The nurse came out and called the doctor they think he is not drinking enough and with him being active and the warmer days it made him dehydrate some. So they want him to drink more and eat salt.Now on to the events for today.First we went to Chuckie cheese with grandma gardiner, Tyler used all of the 150 tokens grandma got him.He took a few pics too and gave one to me and his dad and took one with grandma. You sit in a seat and the machine sketches a pic of you.Pretty cool when we got home I bought frames and put them in it.Tyler wanted to go with me to buy the frames and that is when he almost fell again so my hubby took him outside and he got sick .I felt so bad for him. As soon as we got home four of the football players came over in their jerseys and then the photographer came and took some great pics of Tyler and his bears and Tyler and the players. We even went to the stadium and they went on the field and took pics.She took one of Tyler with his feet outside of his special brick that Bill and Julie got him too.He really wanted that brick in his session, I am so glad she did it.The guys were wonderful as always.They left school ealry to come here, and at one point Huffman was laughing so hard during the session that he was crying . It was very funny. She piled all four guys on my couch on top of each other then Tyler with them and you guessed it Huffman was on the bottom.Anyhow I can`t wait to see the pics.I get a freecd with music and the pics I can buy for half price.I hope I have the money becasue I want them all!!!! All i can say is we got the best football team in america!!! Go Tigers!!!! Go Tyler!!! Until next time....
Wednesday, May 3, 2006 1:15 PM CDT
Hello all, Tyler is doing well today!!! He got a great present yesterday. His friend Dave THe young family got him a moped.Tyler got to ride it today and he is so happy with it. I am going to go get him a lock for it later on. Right now he is having a session in the kitchen with a spiritial theripist. They are making a wooden car.We have two more appointments today then Tyler and i are off to the store for a new belt and a lock.Thank you Dave and Mary for the moped.Tyler even wears his helmet.He gets to get some special pictures taken tomorrow here at the house.He wants the football players to come and be with him. He is getting his bears and his moped in them too.These are special photographer`s ,usally they take pics of baies who didn`t make it so their families have memories. i made a special frame yesterday with me and my boys pic and a plaster imprint of Tyler`s hand. It is so nice. Well I got to go another member of hospice is here. God bless.Until next time....
Tuesday, May 2, 2006 12:04 AM CDT
Hello, Last night Tyler went four wheeling at his friend Trish`s house. I could see how much weeker he was this time then the last time that he was fourwheeling.When we got home he started getting sick on the porch. He was up all night until 3 am vomiting.I finally got him to stop at 3 so I could give him pain meds for his head. I called the doctor and she and I both think it was from him being off the steriods.The were out of his system for about twentyfour hours. I talked to Tyler about it and he agreed to go on them again if it stops his vomiting.He hates the steriods because If you are on them for a few weeks you get bloated and swollen. And it makes you very moody and mean.So once again we are robbing peter to pay paul.We need something to stop the nausea and for some reason even when he had his bmt transplant the only thing that works for him is steriods.I got in bed with him and rubbed his little head until 4 am. Then we both slept thank God.I woke up at 11 and he is still sleeping and it is 1 pm. I woke him and told him I had icewater by his bed and that his steriods were on the way to our house, it takes a few hours for them to arrive.I hope he can hold out until they get here.All night I prayed for him to stop vomiting and to sleep well.We are in a nightmare that never lets you wake up.I hate to cry because then I feel like I am loosing control. There is not alot of things that Tyler nor I can control anymore.He allowed us to take some pics of him on the fourwheeler and he was happy when I finally let him ride me around on it one time. I have to say he is a good driver. I was very impressed with him.My mom laughed at me becasue I was hanging on to him. There is not much to hang onto now days with tyler ,he is skin and bones.Thank you again to Cathy ,Kevin and Trisha for being so kind to Our family and my little man.They made his day!!!God bless .....
Sunday, April 30, 2006 10:25 AM CDT
God bless you all, Yesterday Tyler awoke with a horrible headache.He was crying today the same thing.This is the third day in a row that he wakes up like this. And we know why. I took him in to make sure that he didn`t need bloos as that will cause headaches too. But they say he didn`t. His little head is blood vessels that are full of leukemia. The docotor called me yesterday and told me that was why hisd head hurts. So he is on more pain meds I increased them for him. He did get to enjoy the drive in movies last night with his daddy.He wanted alone time with him. I waited up until 1 am and he came in and took more pain meds and we went to bed. He is in my bed rt now so I had to move around the baby monitor so I could hear him. He wanted me to snuggle with him this morning and I did but then I got a headache from being in bed too long so I had to get up after 11.Tyler got a nice visit yesterday. Our coach Stacy from the Massillon Tigers ,which you all know Tyler is a 1 fan of came by with his wife to see Tyler.You could see in their eyes they wanted to cry. They were amazed at his picures in my living room.I have to admit I got a shrine.Please pray for another angel that lost her battle yesterday. Angel Cassidy.I haven`t told Tyler becasue he is such a emotional mess rt now I am afraid he would really loss it on me.So I am keeping that to myself and my family.Tyler has his cancer spreading everywhere, I will leave it at that.I still don`t know why I guess I never will.But I can say one thing that I do know this sucks and my Tyler is the bravest fighter I have had the honor to be around.This is a child that the dentist used to have to restrain. and he will allow the hemoc docs to do spinal taps with no sedation.I am amazed every time, but in the same token It almost kills my heart everytime too. But there will be no more spinal taps for my baby those days are gone.No more invasive pokes or meds or docs.I guess I will end for now God bless.......
Friday, April 28, 2006 2:57 PM CDT
Hello everyone, Today I got a phone calle from tyler begging me to help him. I was scared and panicked, I finally understood what he was saying to me through his tears. He had woke up with a very bad headache and he said it hurt so bad he thought he was going to die. So i had his big brother get him his pain meds and I called hospice to get here sooner, then I went and got him. He is doing much better now but is sleepy and still has a bit of the headache. I took him to the community hospital to have his blood drwn in case he was low on blood. So far we have not heard from them. His nurse came and his pressures were normal, we gave him more pain meds while she was here too. He is now resting on the couch and seems much more happier and the pain level went way down.I hate when he goes to his dads these phone calls scare the daylights out of me. Please pray for Cassidy and her family as she is on hospice too and they don`t give her much more time.God bless them and be with them all.I feel that my grandma was here with me this morning becasue I turned off my fan and went back to bed and my fan turned back on full blast the highest level it runs. Needless to say I yelled for my hubby and made him stay with me until I was dressed and ready to flee to the downstairs.My fan has never acted up on me before.Anyhow I will update if there are any changes. By the way my mom was fine she was out shopping, that is why she didn`t answer her phone.God bless....Until next time.......
Thursday, April 27, 2006 6:51 PM CDT
Hello , Today was a very emotional day.We buried my our grandma , It was a wonderful service. Tyler is at his dad`s he wanted to spend some time with dad and his brothers. I took him over his air condioner that I bought him at a yard sale this week.Tyler has had alot of pain today ,so he got a little more pain meds today.His hospice nurse comes out tomorrow to see him before the weekend. I am hoping that he is not low on blood he seemed a bit pale today. His brother Nick had a bicycle accident yesterday and hot a good bit of blood loss and a hunk of skin off of his chin.So I worry alot with three boys. i sure don`t want to see another one of my boys hurt bad. I really wish I could stop the people that keep sending ads for casinos on Tyler`s page. this is the third time now and It really makes me mad. i will delete it again whwn I am done with this journal.You people know who you are so stop it!!!!!! If this keeps up I will contact the people who made this website.I don`t want to have a password . That would limit those of you that are so sweet to us in writing and supporting Tyler.The house feels so empty and alone today.I guess with Tyler at his dad`s and my hubby at school, and all that we went through today may be the reason. I tried to check on my mom but either she isn`t home or she is sleeping. The doc gave her some serious meds. I won`t take meds they mess me up and I can`t function. Any how I guess I will go. God bless....
Monday, April 24, 2006 2:57 PM CDT
Hugs everyone.. The doctor and the hospice nurse came to see Tyler today. Everything went well.Tyler told them what hurts and what works and so on. They are changing a pain med and a upset tummy med.They send a pharmacy delivery guy to the door for me now. That is one less thig that I have to worry about.On another down side our grandma passed away this morning.I was very close to her .When Tyler was born she was rt there and when he got cancer she again was there with me for several days in his room. I feel bad like I couldn`t be there for her ,I have to take care of Ty. i didn get to go see her rt before Easter.But this Sat. I couldn`t because I had Tyler and he wasn`t feeling well.I know she is not suffering anymore. I also know that she will be there for my baby when the time comes. Now I know he has someone to look after him. She was the best grandma , I was quite spoiled by her.There is no doubt that she is in heaven.I love you grandma! My kids used to call them Turkey grandma and grandpa because they saw them on Thanksgiving. The name kinda stuck.Tyler is sleeping now, this is the first time I broke down and cried over grandma, I was thinking something was wrong with me.Mom is having a hard time with it all. Our family sure is being tested for some reason.Last night tyler had a fever and was vomiting.I was up already worrying about him and he woke up and came downstairs feeling sick. So we didn`t get much rest last night.His fever has subsided for now. It is the leukemia.I hate it !!!It is not fair to tell your child he may die before he gets to live his life. I feel so bad and I am helpless.I think rt now I am no good to my family.I seem to not be able to help any of them. I don`t know how any one who looses a child copes . Well I think i bombarded you all with enough for now. Until next time God bless....
Saturday, April 22, 2006 9:39 PM CDT
Hello, Tyler had a fairly good day today. He wanted to go look for yard sales, but we went late so we didn`t see any. I got him his snowcone he wanted from the icecream man.He ate a few bites. I got him a slushy too. He felt kind of good most of the day.He got a reiki treatment from Anne tonight. She said he put off so much energy that her hands were burning hot. He really relaxes from thte reiki treatments. I talk to Tyler`s friends jacey`s mommy tonight. They want to come for a visit. jacey had been in akron for months and recently got to come home.Tyler liked to visit her when he could.Thank you to Angel Kevin`s family for the wonderful gifts. Tyler really treasures them. The teddy blanket he has usued constantly. And He folded up Kevin`s teeshirt so carefully to bring it home with him.I have been finding pennies in strange places latly. I know about the famous stories of pennies from heaven. I wonder if our Angel is trying to let me know he or she is here for us when we need him or her.Tyler didn`t eat anything until about 10 or so tonight he ate a few bites of cream of wheat. He is blocked up from the morphine so now he is afraid to take any. I keep giving him his meds to help him to to the bathroom but he doesn`t like to drink it all.I am noticeing now that after he has his bath he is in great pain. I think the hot water thins his blood and the leukemia acts up . After he cools down he feels better and the pain subsides and so does the throbing headache. The poor little guy he loves his hot baths. well I think I will close for now I am feeling sleepy. God bless you all. Until next time....
Friday, April 21, 2006 2:09 PM CDT
HEllo everyone, Tyler has slept most of the day. He has been in pain with his teeth coming in(twelve year molars). He won`t eat ,but he has drank some. I am so frustrated rt now because I know he needs fluids but he won`t take them in.Hospice says he will take in what his body needs.The neighbor boy is only three and he woke Tyler up so he is not happy.Thank you for all of the kind words for us.Tyler needs all the support he can get. My poor little guy is so angry and sad and in pain. He don`t know if he is coming or going .I do know that when I walk in his room he knows it even if he is sleeping.He wakes up and looks at me rt away.He senses me in the room.I feel helpless right now.I can`t make him better. If I had every the best of medicine in the world I can`t make him better. That makes me helpless.Hopsice broght me some things to make with Tyler. It is hand impressions and some pretty frames to put them in.They are looking into some other things too.Well good news Tyler is wide awake and wants hot cocoa!!!!! gotto go tend to my baby. God bless....
Thursday, April 20, 2006 2:26 PM CDT
Hello, Tyler had a so much fun last night!!He went to Trisha`s house(A friend who has battled cancer in Massillon and is doing great!!), And went four wheeling.He loved it and when I get our pics devloped I will have mom post them. He was on cloud nine and he cannot wait to do it again. The Turkall family is so good to Tyler. He has always warmed up to them. Trisha`s mommy gives good back rubs to Tyler ,he loves them. And he had so much fun riding with her and her daddy.I have to say I was very impressed with how well Tyler drove. Trisha`s mom and I took alot of pics.On the down side of yesterday , Tyler wouldn`t eat a thing. He drank some but never ate. So far today he had some fluids but not enough and a few bites of jello.Hospice doesn`t seemed too concerned with it. But as his mommy I sure am!! Hospice is great with him, but I would rather of never needed their services in a lifetime. I can`t figure out how and why my baby is sick like this. I never drank or did drugs or smoked I breastfed him for a year, so why???I was a stay at home mom to protect my kids and be with them and cook good meals for them. So again WHY???? Will I ever know the answer?Tyler is tired rt now I had him up early and also he got blood work done today at the local hospital. Of course I don`t know the results.On Mon, Dr. Friebert had to trap the results done.They uped his morphine again which worries me but they and the internet assure me that it is only becasue he gets used to it and them it is not as effective.Well I guess I will close . God bless
Tuesday, April 18, 2006 8:15 PM CDT
Hello, Tyler`s hospice nurse came today to see him. He was not having a good day today. His head hurts, back hip. He won`t eat a bite. He has a upset tummy and fevering off and on.I got him up only two times today ,and got him to sip a few drinks of gatorade and a whole pepsi.the docotors and the hosptice team met in akron today for a meeting about Tyler . I do not know what happened with that as of yet.Tyler got a special gift today and he loved it. He got to have a brick put in at the football stadium with his name on it and it was so special for us all. Thank you Julie and Bill . They are the ones who bought the brick and had it placed for my Tyler.His daddy made it in time to see the brick and Tyler was so proud to show him. Now he wants his daddy and me to buy one to put near his.He is now a offical part of the Tiger stadium.He is so tired and mad at the world right now.I just want to keep him with us forever and make him all better but I can`t help him.I am helpless now. My mom sent me a song about Angels.I listened to it over and over last night and cried so much. I love the song alot.Most songs now days I can`t listen to anymore.God bless the other kids suffering too.They sure do need your prayers.I just don`t know how I will make it without my little guy. I never thought this would happen to my family.I want to know why and how. well I got to go check on my baby .God Bless you all.......
Monday, April 17, 2006 10:55 AM CDT
Hello everyone, Well We met with hospice on Sat. She was very nice. Tyler didn`t want to meet with her at first.So he let her check his vitals then he left with his dad.He talked his dad into buying a bigger swimming pool. He really didn`t enjoy Easter because he got sick as soon as he woke up and it continued though he night. He didn`t eat at all and barely drank. He slept right through it all. Late last night I had to call the doctor and asked them if he could have more meds for upset stomache. My point is that the doctor helped me by getting a hold of hospice and within a twenty min time frame they had gotton Tyler another kind of med for nausea. So now he has two meds to switch back and forth between. It is nnon now and he is still sleeping. I have to get him up soon and take him to our local hospital for a finger poke. we had a great time and great dinner at my moms for easterI just wish Tyler could have felt good enough to eat.I hope today he will feel better.The hospice is going to send in people that take photos of Tyler, and make many momentoes with us all. They will also go to both houses his dads and mine.I cry at strange times but the books say that is normal.Tyler is getting mad about being sick .I hope that I delt with it ok. He felt good enough to ask me to hide eggs for him last night, so we put money in some and I took pictures of him finding them.Thanks for the prayers, and God bless Lord knows we need them all.
Friday, April 14, 2006 1:59 PM CDT
UPDATE ON TYLER... TY is very sick again. His palitive care doctor called me and told me the cancer is back. They cannot give anymore chemo becasue it could be fatal to him. His platlets and such cannot recover from the chemo. As of today Pediatric hospice is now involved with us in caring for Tyler at home.They will visit me and Tyler`s dad Sat.Tyler had fevers yesterday from the cancer. The doctor told me the best gift we can give Tyler is to let him die at home like he wants to. I want to do what he wants , I am just afraid I couldn`t live here after it happened. Exuse my spelling I had to wait a few hours before writing this to you all. Rt now there is no time frame, they are waiting to see how active the cells will get.Ty doesn`t have to go to akron now as much they transferred his blood counts to our local hospital.We can take him there as often as we think he shouls go for a finger poke and the results will be sent to akron.I don`t know what else to say ,but keep praying for us all. God knows we need it.Thanks you all.....
Thursday, April 13, 2006 6:52 PM CDT
Hello everyone, I had to run Tyler to the hospital tonight. He had a fever of 102.5. So they gave him iv fluids and IV antibiotics. His counts were good but on the high side so they think he make be fighting something. He has a bad headache again and when he walks his back hurts and pulses.They gave him IV morphine for the pain then that made his pressures drop too low then they were worried about that.But I know my son and I told them his pressures always drop when he gets morphine.He has to go back up to akron tomorrow for possible chemo and more Iv antibiotics.He is taking a nap rt now. Thank you to Stan and Donnette and anyone I forgot that sent him an Easter card.He loves to get mail.Tyler wants me to wake him up in a few minutes so he can have his bath.He got alot of nice Easter presents from Sue. She is the lady who hepled him get to New York.This Sunday we will go to my moms for Easter dinner. I was worried when tYler got sick today that he would spend Easter again this year in the hospital.I will tomorrow if anything changes. God bless and Happy Easter.
Monday, April 10, 2006 2:10 PM CDT
Hello everyone, Tyler went to the clinic today and he didn`t need blood after all. His anc fighting cells are up to 1600. His platlets were around 34 thousand. They say they say NO CANCER CELLS!!!He was feeling pretty good today. So good in fact he is playing at his dad`s with his brother and his dog Mary Lou.he goes back up to the hospital on Fri. morning.Please conitinue to pray for Tyler and all of his cancer friends.Since Tyler is at his dad`s I am gonig to go to school today.Special prayers for Cait who is having some tough decisions to make, nad for sweet Cassidy who is not feeling her best rt now.And for Derick who has Ewings sarcoma for the second time. He is 14 and goes up to Akron three times a week ,and let`s not forget about our sweet friend Jacey who is out of the ICU and back on the oncology floor.I pray for not just my boy but all of the kids That are fighting the BEAST.God BLess you all.
Friday, April 7, 2006 5:36 PM CDT
HELLO EVERYONE , TYLER HAS BEEN AT THE HOSPITAL ALL DAY TODAY. HE GOT BLOOD TRANSFUSIONS AND PLATLETS AGAIN. HE HAS TO WAIT FOR FOUR HOURS FOR THEM TO ORDER THEM AND GET THEM THEN THE BLOOD TAKES THREE HOURS TO TRANSFUSE AND THE PLATLETS ANOTHER HOUR . SO HE IS TIRED AND DID NOT GET TO ENJOY THE NICE DAY TODAY. HE IS JUST NOW GETTING HOME AND IT IS RAINING AND GONE TO THOUNDERSTORM... SO NO TYLER DID NOT HAVE A GOOD FRIDAY TODAY. HE GOES BACK MONDAY FOR MORE BLOOD WORK AND TRANSFUSIONS IF NEEDED .I DO NOT KNOW WHAT HIS CANCER CELL PERCENTAGE IS . SOME TIMES THEY TELL YOU SOME TIMES THEY DO NOT . MAYBE MONDAY WE WILL KNOW . WHAT IS SCARY IS TYLER WAS TAKEN OFF CHEMO A WHILE TO GIVE HIS BODY A REST . THAT IS WHEN THE CANCER CELLS COME OUT OF HIDEING AND GET AGGRESSIVE. SO PRAY THAT DOES NOT HAPPEN TO HIM. WE NEED YOU TO PRAY AND PRAY LIKE NEVER BEFORE FOR OUR FRIENDS ... CAITLIN WHO IS CANCER FREE BUT HAD SURGERY TO REMOVE HER THE CANCEROUS TUMOR FROM HER LEFT DISTAL FEMAR. SHE HAS HAD STAFF INFECTIONS AND NOTHING BUT PROBLEMS WITH HER LEG SINCE . SHE IS HAVING SURGERY AGAIN NEXT WEEK AND POSSABLE AMPUTATION . PLEASE PRAY FOR HER AND HER FAMILY AS THEY GO THRU BIG DECISIONS AND ANOTHER JOURNEY. ALSO PRAY FOR TRISHA THAT HER PLATLETS AND COUNTS COME UP AND STAY UP. AND CASSIDY WHO WAS GIVEN NEWS THERE IS NOTHING MORE THE DOCTORS CAN DO TO HELP HER . SO PLEASE ADD HER TO THE LIST OF MIRICLES WITH TYLER THAT GOD WILL HEAL THESE KIDS. ALSO PRAY FOR HATTI WHO NOW IS CANCER FREE THAT SHE WILL STAY THAT WAY AND PRAY FOR EMILY WHO IS STILL FIGHTING WITH HER COUNTS TO STAY UP WHERE THEY BELONG . AND PLEASE CONTINUE TO KEEP THE WILLIS FAMILY WHOM LOST THEIR ANGEL KEVIN APRIL 21ST 2005 AS THIS MONTH IS VERY HARD ON THEM. IT WILL BE ONE YEAR THAT GOD CALLED HIM HOME AND IT HAS NOT GOTTON ANY EASIER TODAY FOR THE FAMILY THEN IT WAS A YEAR AGO. PLEASE PRAY FOR PEACE FOR THEM .OUR HEARTS GO OUT TO THEM EVERY DAY . PLEASE IF YOU CAN WRITE THESE FAMILYS DOWN ON A PIECE OF PAPER AND ADD THEM TO ALL YOUR PRAYER CHAINS AND CHURCH BULLITINS . THANK YOU AND GOD BLESS .. TILL NEXT TIME DEBBIE , TYLER , SUSAN AND THE FAMILY
Wednesday, April 5, 2006 7:44 AM CDT
HELLO FRIENDS AND FAMILY, WELL TYLER IS DOING GREAT ! THANK YOU ALL FOR YOUR PRAYERS . KEEP PRAYING AS THEY ARE BEING ANSWERED. TYLER IS ENJOYING RIDING HIS NEW BIKE . HE WILL BE COMING TO VISIT GRANDMA TODAY AS HIS GREAT UNCLE IS IN FROM FLORIDA AND IS GONE BACK TODAY. THERE IS BEEN OTHER ILLNESS IN THE FAMILY SO HE CAME IN TO VISIT AND TO HELP WRAP UP SOME LEGAL STUFF. ALSO HE WILL GET TO SEE HIS NEW GREAT NEPHEW WHO IS SEVEN WEEKS OLD NOW . TYLER GOT PLATLETS YESTERDAY. HE WILL GO BACK FRIDAY TO SEE IF HE NEEDS MORE . HE HATES IT IF THEY HAVE TO ORDER THEM AS HE HAS TO STAY AT THE HOSPITAL FOR FOUR HOURS JUST WAITING ON THE PLATLETS TO GET THERE AND THEN ANOTHER HOUR TO GET THE TRANSFUSION. IT MAKES A WHOLE DAY OF IT . HE HATES BEING IN THAT HOPSPITAL AS SO DO ALL THE KIDS AND PARENTS . IF YOU DO NOT HAVE A CHILD WITH CANCER THEN YOU HAVE NO IDEA HOW THESE KIDS AND PARENTS AND FAMILY MEMBERS FEEL AS THEY ALMOST LIVE IN THE HOSPITAL THRU MOST OF THE TREATMENTS . THEY SLEEP ON A SMALL HARD AS A ROCK LITTLE COUCH AND TRUST ME I HAVE DONE IT AND IT IS NOT COMFORTABLE AT ALL!!! AND THESE KIDS HATE HAVING TO GO BACK FOR BLOOD CHECKS AND TRANSFUSIONS AND TEST. I FEEL BAD FOR ALL OF THEM AND THEIR FAMILYS .TYLER WANTS NO PART OF HAVING TO SPEND A NIGHT IN THAT HOSPITAL. HE WANTS EVERYTHING DONE PUT PATIENT OR AT HOME AND THAT IS WHAT PALLITIVE CARE DOCTORS ARE DOING . THEY ARE DOING WHAT TYLER WANTS .THEY FIGHT WITH HIS NORMAL DR. CAUSE HE WANTS TO ALWAYS ADMIT TYLER AND THE PALLITIVE CARE DOCTOR STEPS IN AND TALKS HIM OUT OF IT . SO YEAHHHHH! TYLER GETS TO DECIDE SOMETIMES WHAT IS BEST FOR HIM AND WHAT WOULD MAKE HIM THE MOST COMFORTABLE. AND IT SURE IS LESS STRESSFUL AND HELPS WITH TYLERS ATTITUDE TO GET BETTER . IT IS CALLED TEAM WORK AND TEAM WORK HAS THE BEST RESULTS IN THE END! TILL NEXT TIME GOD BLESS YOU ALL. PLEASE REMEMBER THE WILLIS FAMILY IN YOUR PRAYERS AS APRIL IS A ROUGH MONTH FOR THEM AS ANGEL KEVIN EARNED HIS ANGEL WINGS APRIL 21ST 2005 . SO PLEASE SAY A PRAYER OF COMFORT FOR THE FAMILY!
Monday, April 3, 2006 10:19 AM CDT
HELLO FRIENDS AND FAMILY, TYLER WENT TO THE CLINIC THIS MORNING HIS PLATLETS ARE LOW . THEY ARE 27,000 BUT IF THEY ORDERED THEM TODAY AND GAVE THEM TO HIM HE WOULD WAIT THERE ALL DAY LONG SO THEY SENT HIM HOME AND ARE ORDERING THEM TO DAY AND HE WILL GO BACK TOMORROW AND FRIDAY TO GET THEM. HIS ANC =ABILITY TO FIGHT INFECTION IS AT ZERO THO . SO HE CAN NOT BE AROUND ANY ONE WHO EVEN HAS A SNEEZE. HE IS NOT TO HUG ANY ONE OR SHAKE HANDS OR GO IN PUBLIC PLACES . NOW THE GOOD NEWS!!! TA DA!!!TYLER HAS NOT HAD ANY BLAST = CANCER CELLS IN HIS BLOOD SINCE MARCH 22ND . HE GOT A NEW BIKE YESTERDAY FROM HIS DADDY AND HE WENT TO HIS FRIEND HARRISONS HOUSE AND PLAYED VIDEO GAMES . HE IS FEELING PRETTY GOOD TODAY . KEEP THE PRAYERS COMING AS GOD IS LISTENING GOD BLESS TILL NEXT TIME . TYLER AND HIS FAMILY
Sunday, April 2, 2006 2:34 PM CDT
HELLO ALL OUR FRIENDS AND FAMILY, I AM SO SO SORRY I HAVE NOT UPDATED SINCE TUESDAY. I HAVE BEEN BABYSITTING MY NEWSEST ADDITION TO THE FAMILY A NEW BABY BOY KYLE DAVID. HE IS SIX WEEKS OLD NOW AND REQUIRES LOTS OF TENDER LOVING CARE . SO I HAVE NOT BEEN DOING A GREAT JOB OF KEEPING YOU UPDATED . WELL CONSIDER NO NEWS TO BE GOOD NEWS SOMETIMES . TYLER IS DOING GOOD . HE GOT PLATLETS THO WED AND FRIDAY! THEY SEEM TO BE HELPING HIM SO DID THE BLOOD OF COURSE. HE WENT SUNDAY TO COLUMBUS TO WATCH THE OHIO STATE BUCKEYES PRACTICE . HE WAS INVITED BY KURT BARTON AND HE HAD FUN . SO HE IS STILL FIGHTING WITH HIS TIGER SPIRIT. THANK YOU ALL FOR PRAYING FOR HIM . IT IS CAUSE OF ALL YOUR PRAYERS AND SUPPORT THAT TYLER KEEPS FIGHTING AND HE IS STILL KICKING CANCER OUT THE DOOR WERE IT BELONGS . HE WILL GO TOMORROW MONDAY FOR BLOOD CHECK AND PLATLETS . WE DO NOT KNOW WHAT HIS CANCER CELLS ARE RIGHT NOW CAUSE THEY HAVE NOT SAID . SO WE ARE ASSUMEING OK. OR AT LEAST LOW .AGAIN I AM SORRY I WORRIED ANY OF YOU WONDERFUL FRIENDS OR FAMILY BY NOT UPDATING EVERY DAY. PLEASE FOR GIVE ME .I WOULD NEVER WANT TO KEEP ANY OF YOU IN SUSPENCE OR WORRY ABOUT TYLER . I GOT SEVERAL EMAILS WONDERING IF HE WAS OK AND I FEEL BAD FOR NEGLECTING TO KEEP YOU UPDATED . I WILL BE BETTER OK? LOVE AND HUGS FROM OUR FAMILY TO YOURS . TILL NEXT TIME ..... GOD BLESS YOU!
Tuesday, March 28, 2006 10:20 AM CST
HELLO ALL.... TYLER IS FEELING MUCH BETTER TODAY .. YEAHHH! BUT HE GOT A NOSE BLEED. BUT IT IS CLOTTING SO THAT IS GOOD ,HE WILL GO BACK WED AND FRIDAY FOR BLOOD CHECKS . HOW EVER IF HE BLEEDS ANY MORE TODAY HIS MOMMY WILL BE TAKING HIM BACK TODAY CAUSE IT SCARES HER. TYLER SAYS NO!! HE DOES NOT WANT TO GO BACK TODAY! HE IS HUNGERY TODAY SO THAT IS GOOD NEWS . HE ATE CREAM OF WHEAT NOW HE IS LOOKING FOR OTHER THINGS HE EATS . NOW HE WANTS AN ENGLISH MUFFIN. THAT IS GOOD HE IS EATING . HE CHANGES FROM DAY TO DAY OR I SHOULD SAY HOUR TO HOUR. HE WAS NOT TAKEN OFF THE GLEEVIC CHEMO JUST THE METHROTRAXE. AND THE MT 16 CHEMO PILL . HE GOT VINCRISTINE CHEMO YESTERDAY THO. THEY ARE GIVING HIS BODY A BREAK FROM CHEMO CAUSE HE HAS NO COUNTS NOW . HE IS BACK TO ZERO ON HIS ANC ABILITY TO FIGHT INFECTION. IT WAS 700 FRIDAY NOW ZERO MONDAY. HE GOES UP AND DOWN LIKE A YO YO. POOR FELLA HE IS HAPPY THEN SAD . HIS NOSE BEED IS GONE NOW . PRAY HE WILL NOT GET ANOTHER ONE . HE HAD BLOOD COMING FROM TWO SPOTS ON HIS LEG AND HIS ROOF OF HIS MOUTH AND BLEEDING FROM HIS GUMS . HE WAS SPITTING BLOOD AND HAD BLOOD CLOTS BETWEEN HIS TEETH. HE HAS BRUISEING ON HIS EYE LIDS. ALL RELATED TO LOW PLALETES. SO PLEASE PRAY FOR HIM FOR HIS COUNTS TO COME UP ON THEIR OWN. GOD BLESS YOU ALL LOVE AND HUGGS FROM DEBBIE, TYLER AND SUSAN AND FAMILY
Monday, March 27, 2006 4:31 PM CST
HELLO EVERYONE, TYLER IS AT THE CLINIC, AND HAS BEEN THERE ALL DAY. HE WILL BE THERE TILL ABOUT 7.00 PM TONIGHT. HIS BLOOD IS VERY VERY LOW AND HE NEEDED TWO TRANSFUSIONS .HE IS BLEEDING IN THE ROOF OF HIS MOUTH AND HIS GUMS AND HIS LEG. IT IS BECAUSE HE IS LOW ON BLOOD . HE HAS HEADACHES AND THE CAUSE OF THEM ARE LOW OXIGEN LEVELS DUE TO LOW BLOOD COUNT AND HE ALSO HAS A SINUS INFECTION. HIS PLATLETS ARE LOW TOO AND HE WILL BE GETTING THOSE ALSO. HE WILL GET VINCRISTINE TODAY IN THE MEDIPORT BUT THE DOCTOR IS STOPPING HIS METHOTAXATE CHEMO PILLS AND GLEEVIC FOR NOW AS IT IS LOWERING TYLERS COUNTS TOO MUCH SO THEY ARE GIVING HIM A BREAK. THEY INCREASED HIS MORPHINE AGAIN FOR PAIN. THEY ALSO GAVE HIM SOMETHING DIFFERENT FOR PAIN TODAY AT THE CLINIC AND IT MADE HIM TALK OUT OF HIS HEAD. I ASK HIS MOMMY ABOUT HIS CANCER CELLS AND SHE DID NOT KNOW YET AND SAYS SHE IS SCARED TO FIND OUT SINCE EVERY THING ELSE IS GONE WRONG WITH HIM. A PRO YO YO MAN CAME TO SEE HIM YESTERDAY AND SHOWED HIM LOTS OF TRICKS AND GAVE HIM A COUPLE OF COOL YO YOS . HE ENJOYED IT ALOT. WELL I WILL UPDATE AS I FIND OUT MORE . KEEP PRAYING FOR TYLER AS HIS HEALTH IS A ROLLOR COASTER NOW . HE IS UP THEN DOWN AND WE JUST DO NOT KNOW WHAT ONE HOUR WILL BRING OR CHANGE WITH TYLER . WE TAKE EACH DAYAT A TIME AND EACH HOUR . AND WE THANK GOD FOR EVERY DAY WE HAVE WITH TYLER . PLEASE PRAY THAT HE WILL FEEL BETTER AFTER ALL THE BLOOD HE GETS . GOD BLESS YOU TILL NEXT TIME .... DEBBIE , SUSAN AND TYLER AND THE FAMILY
Friday, March 24, 2006 1:16 PM CST
HELLO , GREAT NEWS AGAIN!!! FIRST THANK YOU ALL FOR ALL YOUR PRAYING AND THANK YOU JESUS FOR LISTENING TO OUR PRAYERS!! TYLER WENT TO THE CLINIC TODAY. HIS CANCER CELL COUNTS ARE 0 % THANK GOD!! AND HIS PLATLETS ARE 34 THOUSAND LOW .... BUT WILL GET PLATLETS MONDAY. BUT HIS ANC IS ONLY 700. WHICH IS LOW SO HE HAS TO WATCH BEING AROUND GERMS . BUT 700 IS BETTER THEN O HUH? HE HAS BEEN AT 0 BEFORE SO AT LEAST HE HAS SOME ABILITY TO FIGHT INFECTION. HE WILL GET VINCRISTINE CHEMO MONDAY. I WAS MISTAKEN WHEN I SAID FRIDAY. HE STILL GETS VERY TIRED BUT WE FEEL THE CHEMO AND VINCRISTINE IS WORKING TO KILL HIS CANCER. AND OF COURSE BY ALL MEANS THE PRAYERS FROM ALL OF YOU AND EVERYONE WHO IS PRAYING FOR TYLER . TYLER SURE HAS A SUPPORT TEAM GONE FOR HIM. BUT I WILL ASUURE YOU HE LOVES YOU ALL AND HE IS FIGHTING WITH EVERY THING IN HIM TO BEAT CANCER. HE IS ONE TOUGH LITTLE FELLA. THE DOCTOR TOLD TYLER TO GO HOME AND ENJOY HIS WEEKEND !! WE ARE LIKE A YO YO WITH HIM UP AND DOWN BUT IF ALL OUR DOWNS COME BACK UP THEY WILL ALL BE WORTH IT . THANK YOU ALL FOR PRAYING FOR TYLER AND CONTINUE TO PRAY FOR ALL THE SICK CHILDREN CAUSE BY ALL MEANS THERE ARE LOTS AND LOTS OF THEM . AND DO NOT FOR GET OUR ANGEL KIDS WHO HAS EARNED THEIR WINGS WITH THEIR BATTLE OF THIS MONSTER ALSO. PRAY FOR THEIR FAMILYS EVERY DAY!!!! LOVE HUGS AND A HUGE THANK YOU FROM OUR FAMLIY TO YOURS ... TYLER LOVES YOU!!!! AND SO DO WE!!!
Wednesday, March 22, 2006 1:55 PM CST
HELLO EVERYONE, TYLER WENT TO THE CLINIC THIS MORNING , HIS CANCER CELLS ARE BACK FROM ZERO TO 3 % AGAIN. WE WILL NOT PANIC THO AS THREE PERCENT IS BETTER THEN 49 % OF HIS BODY BEING FILLED WITH CANCER CELLS . FRIDAY HE WILL GET VINCRISTINE CHEMO IN THE MEDIPORT AGAIN AND THAT MAY BRING THE NUMBER BACK TO ZERO . LETS PRAY IT DOES . TYLER IS FIGHTING WITH EVERY THING IN HIM TO BEAT THIS CANCER . HE WANTS TO SURVIVE. HE FIGHTS WITH THE TIGER SPIRIT. HE IS A TRUE MASSILLON TIGER. HE WILL NOT LOSE THIS BATTLE WITH OUT A GOOD FIGHTING WAR . HE HAS FOUGHT WITH EVERY THING IN HIM AND SO FAR HE HAS WON! KEEP TRUSTING AND BELIEVEING AND PRAYING TYLER CAN BEAT THIS . HE IS TIRED AND YESTERDAY HE WOKE UP SICK AND THREW UP THEN HE CAME DOWN STAIRS AND SMELLED ONIONS THAT HIS MOM HAD ON HER PIZZA AND HE DOES NOT LIKE ONION AND HE THREW UP AGAIN. SHE EVEN TRIED EATING IT AWAY FROM HIM. BUT HE STILL SMELLED THEM . THAT HAS TO BE TUFF SMELLING FOODS OR OTHER ODERS AND GETTING SICK BEING A CHILD . HE USE TO THROW UP SMELLING RUBBING ALCOHOL OR PEROXIDE OR BEDIDINE THEY USE TO SCUB HIS MEDIPORT WITH . HE IS REALLY SENSEITIVE TO SMELLS . POOR FELLA IS NOT A QUITTER. PLEASE CONTINUE TO KEEP HIM AND ALL THE OTHER CARINGBRIDGE KIDS IN YOUR PRAYERS . AND ALSO PRAY FOR ALL THE ANGEL KIDS WHO EARNED THEIR ANGEL WINGS ... PRAY FOR THE MOMS AND DADS AND SIBLINGS AND AUNTS AND UNCLES AND GRANDPARENTS AND ALL THEIR FAMILY AND FRIENDS TO FIND PEACE IN THEIR HEARTS FOR THEIR TERRIABLE LOSS. I AM HERE TO TELL YOU THAT I MYSELF FEEL FOR THOSE FAMILYS WITH ALL MY HEART AND SOUL CAUSE I HAVE BEEN A TOTAL WRECK SINCE TYLER HAS BEEN PUT ON PALLITIVE CARE. THERE ARE DAYS I FEEL LIKE I CAN NOT EVEN BREATH WITH OUT GONE OUTSIDE TO GET A BREATH OF FRESH AIR. NOONE KNOWS THE PAIN AND SUFFERING AND LOSS OF A CHILD TILL THEY HAVE WALKED IN THEIR SHOES AND I HEARTFULLY FEEL FOR ALL THOSE WHO HAVE LOST THEIR CHILD TO CANCER OR ANY SORT OF LOSS. THAT PAIN IS AND WILL BE WITH THEM TILL THE DAY THEY GET TO REUNITE WITH THAT CHILD . SO PLEASE DO NOT FORGET THESE PARENTS AND FAMILYS LEFT BEHIND , PLEASE CONTINUE TO SIGN THE CHILDS WEBPAGES AND LET THEIR FAMILY KNOW WE ARE ONE BIG FAMILY TOGATHER WE ALL ARE IN THIS FIGHT TO BEAT CANCER WITH THESE KIDS , WE ARE A TEAM!!!!! PLEASE LOOK CLOSELY TO THIS WEB PAGE AND NOTICE TYLERS NEW PICTURES TUESDAYS CHILD PUT UP OF TYLER AND THE BABY TIGER THANKS TO MADELYN FOR THAT VISIT ..... THANK YOU MADELYN!! AND SEE THE PICTURES OF TYLER AT THE CAVILERS GAME SUNDAY . THANK YOU CHRIS FROM TUESDAYS CHILD FOR THE WONDERFUL JOB YOU DO ON TYLERS CARINGBRIDGE AND TC WEB SITE OF POSTING HIS PICTURES AND NEWSPAPER ARTICLES. TILL NEXT TIME .... GOD BLESS YOU ALL HUGGS DEBBIE . SUSAN .. TYLER AND THE WHOLE ENTIRE FAMILY
Monday, March 20, 2006 5:28 PM CST
HELLO EVERY ONE , 1ST LET ME TELL YOU TYLER WENT TO THE CLINIC TODAY AND HE NEEDED BLOOD AND PLATLETS . NOW FOR THE GOOD NEWS ! WONDERFUL NEWS! HIS CANCER CELL COUNT WAS READY FOR THIS??? ZERO!!! A BIG 0 ! HE SAID HE PRAYED OUT LOUD THIS MORNING FOR THEM TO BE ZERO AND THEY WERE .THE DOCTOR SAID GOOD MEDICINE! HIS MOMMY SAID NO GOOD GOD!!! AND THE DOCTOR SAID YEA THAT TOO!! AND HIS MOMMY SAID NO!!! GOOD GOD!!! HE ANSWERED OUR PRAYERS EVERYONES PRAYERS!! HE IS SO HAPPY TO FINALLY GET SOME POSITIVE NEWS . THAT ALONE WILL KEEP HIS SPITITS HIGH AND MAKE HIM FIGHT MORE . HE GETS TIRED OUT ALOT BUT YOU FIGURE WHEN THE BLOOD COUNTS ARE LOW YOU HAVE NO ENERGY . BUT NOW WITH A TRANSFUSION HE SHOULD HAVE SOME ENERGY. THANK YOU JESUS FOR LISTENING TO OUR PRAYERS . EVERYONES PRAYERS . TYLER GOT TO GO SEE THE CAVILERS PLAY. AND THEY WON!!! TYLER FOT A CAVILER BASKET BALL AND LOTS OF GIFTS FROM THE JAMES LABBON FOUNDATION. AND JAMES MOM GAVE TYLER A FIGURE DOLL OF JAMES . THANK AYOU MARY ALBERT AND MARISSA AND CJ FOR ARRANGEING FOR TYLER TO MEET JAMES LABRON AND THANK YOU FOR TAKING HIM. AND I WANT TO THANK JULIE AND RICH SLONE ,,, ANGEL KEVIN WILLIS AUNT AND UNCLE FOR MAKING A PICTURE DVD AND MOVIE OF TYLER . AND OF KEVIN WITH TYLER DOING SOME OF THE ORNERY STUFF THEY BOTH DID. I WATCH IT OVER AND OVER AGAIN. IT IS AWESOME . RICH AND JULIE EVEN ADDED THE TAMPA BAY CLIP OF TYLER ON THE MOVIE AND THAT WAS A WONDERFUL PLUS SURPRISE AS WE WONDERED HOW WE COULD SAVE THAT CLIP FOREVER . I CAN NOT SAY ENOUGH HOW SPECIAL THAT CD IS AND HOW MUCH IT MEANS TO OUR FAMILY . KEVINS UNCLE PUT ALL OUR MEMORYS OF TYLER FROM NEWBORN TILL NOW ON THIS CD AND IT IS SO AWESOME AND BEAUTIFUL . RIGHT DOWN TO THE MUSIC , LIKE NEW YORK NEW YORK FOR HIS NEW YORK PICTURES . THAT WAS JULIES IDEA AND GREAT ONE THANK YOU JULIE!! NOT ENOUGH WORDS TO EXPRESS OUR GRADITUDE. YOU ARE ALL ANGELS AND WE COULD NOT GOT THIS FAR WITH OUT ALL THE ANGELS AT OUR SIDE . ANGEL KEVINS MOM EVEN THO THIS IS A DIFFICULT TIME OF YEAR FOR HER EMAILS ME WITH TIPS FOR TYLER TO DRINK OR EAT OR DO WHAT WILL HELP HIM. THANK YOU LISA... AS I DO UNDERSTAND HOW HARD IT IS . I ADMIRE YOUR STRENGTH AND COURAGE FOR SHARING YOUR KNOWLEGE WITH US .WE LOVE YOU ALL. PLEASE CONTINUE TO PRAY AS TYLER HAS A DIFFERENT REPORT FROM VISIT TO VISIT . BUT TODAY WE ARE JUST GONE TO REJOICE ON OUR GREAT FANTASTIC NEWS . GOD BLESS YOU ALL . WE LOVE YOU . LOVE DEBBIE , TYLER , SUSAN , AND THE WHOLE ENTIRE FAMILY
Friday, March 17, 2006 1:32 PM CST
GRANDMA DEBBIE HERE AGAIN, TYLER WENT TO THE CLINIC . DO TO THE VINCRISTINE CHEMO HE HAD MONDAY HIS CANCER CELLS FELL FROM 49% TO 9% AGAIN. TYLER IS A HAPPY BOY AND SO IS MOMMY AND GRANDMA AND ALL WHO LOVES HIM . HOW EVER IT IS ROB PETER TO PAY PAUL GAME . HIS PLATLETS AND ANC AND BLOOD COUNTS ARE LOW . HE WILL BE GETTING BLOOD AND PLATLETS MONDAY . ALSO HE WAS EIGHTY FOUR POUNDS AND NOW HIS IS ONLY SEVENTY POUNDS . HE IS SKINNY WAY TO SKINNY. HE ONLY EATS MAYBE 600 CALERIES A DAY IF THAT? THE MEDS MAKE EVERY THING TASTE NASTY AND THE MEDS MAKE HIM FEEL SICK SO HE WILL NOT EAT OR DRINK MUCH. BUT HE IS DRINKING GATORAIDE . PLEASE CONTINUE TO PRAY FOR HIM TO GAIN SOME WEIGHT BACK . I KNOW I COULD WRAP MY FINGERS AROUND TYLERS THIGH AND MY FINGERS WOULD MEET . HE IS SO SKINNY!! HE SCARES ME BEING SO LITTLE , HE LOOKS LIKE HE IS EIGHT AGAIN BUT TALLER AND HE WAS HEAVIER LOOKING EVEN AT EIGHT THEN ELEVEN NOW . HE WILL NOT TAKE ANY ENSURE OR KIDS NUTRITIONAL DRINKS . HE WILL NOT DRINK MILKSHAKES EITHER . NOTHING TASTE GOOD TO HIM NOT FOOD OR DRINK. I TOOK HIM A PACK OF DEER CHOPS LAST NIGHT AND HE SMILED AS HE ASK FOR THEM. I HOPE HE WILL EAT THEM . HIS MOM HAS TO LOVE HIM ALOT CAUSE SHE GAGS AT THE THOUGHT OF DEER MEAT AND SHE STILL COOKS IT FOR HIM THO. ANY THING TO GET FOOD IN HIM.NOW GREAT NEWS TO SHARE WITH EVERY ONE . HATTI A LITTLE GIRL WHO HAS EWINGS SARCOMA HAS HER TEST RESULTS AND SHE IS CANCER FREE NOW . WE ARE EXCITED FOR HER AS IT IS GREAT NEWS TO HEAR THAT ANY CHILD IS CANCER FREE AND HATTI IS A HUGE SUPPORTER FOR TYLER ALSO. SHE TOO IS ELEVEN. SO CONGRATS TO MISS HATTI AND HER FAMILY. PLEASE ALSO PRAY FOR ANGEL KEVIN AND HIS FAMILY AS IT WILL BE ONE YEAR APRIL 21ST HE EARNED HIS ANGEL WINGS AND THIS TIME OF YEAR LAST YEAR HE WAS FIGHTING HARD WITH HIS CANCER . SO PLEASE SAY A PRAYER FOR HIS FAMILY AS WELL . HIS ENTIRE FAMILY HAS BEEN HERE FOR TYLER AND OUR FAMILY AS MUCH AS THEY ARE HURTING OVER ANGEL KEVIN . TYLER BEING SO SICK THIS TIME OF YEAR IS SO VERY HARD ON KEVINS FAMILY WATCHING AND LOVING ANOTHER CHILD AND SEEING TYLER SO SICK RIGHT NOW . BUT THEY ARE VERY SPECIAL ANGELS TO US AS THEY STILL FIND THE STRENGTH TO CHEER TYLER ON TO KEEP FIGHTING ! GOD BLESS YOU ALL ANGEL KEVINS FAMILY! WE LOVE YOU! AND WE LOVE EACH AND EVERY ONE OF YOU OUT THERE WHOM PRAYS AND WRITES TO TYLER AND SEES TYLER AND SENDS HIM UPLIFTING MESSAGES AND GIFTS IN THE MAIL AND CARDS . GOD BLESS YOU ALL. LOVE ,DEBBIE AND TYLER AND SUSAN AND THE WHOLE ENTIRE TYLER FAMILY.....
PS TYLER IF HE FEELS UP TO IT WILL BE GONE TO A CLEVELAND CAVILERS BASKETBALL GAME AND WILL BE THEIR HONORED GUEST SUNDAY AFTERNOON. PRAY HE WILL FEEL UP TO IT , LABON JAMES IS DOING EVERY THING TO KEEP TYLER GERM FREE AND STILL BE ABLE TO ENJOY THE GAME AND WATCH LABRON JAMES PLAY BALL!
Monday, March 13, 2006 3:50 PM CST
HELLO EVERYONE, TYLER WENT TO CLINIC . THE DOCTORS HAD A MEETING AND TOOK MORE TEST AND TYLERS CANCER CELLS ARE 49 HRU HIS BODY NOW . THEY SAID IF THEY DO CHEMO IN THE HOSPITAL HE PRETTY MUCH WILL LIVE THERE . SO... THEY GAVE HIM VINCHRISTINE CHEMO THRU THE MEDAPORT AND HE WILL TAKE TEN METHOTRAXATE PILLS BY MOUTH EVERY DAY AND ONE 400 MG OF GLEEVIC CHEMO AND ZOFRAN FOR UPSET TUMMY AND PEPCID FOR HEART BURN AND ALL TOGATHER 20 MEDS A DAY. STEROIDS AGAIN TOO. HE SAID HE IS TIRED OF IT ALL AND HE SAID WHAT IS THE USE OF IT AS HE KEEPS GETTING WORSE AND THE DOCTOR SAYS HE WILL HEAVY DOSE HIM WITH CHEMO BUT ...IF HIS BODY CAN NOT TAKE IT THEY WILL HAVE TO BACK OFF . HIS PLATLETS DROPPED . HE WILL GO BACK FRIDAY FOR BLOOD WORK AND MAYBE PLATLETS . HE CLIMBED HIS HIS MOMS LAP LAST NIGHT AND ASK HER TO HOLD HIM TILL HIS CANCER FALLS ASLEEP. HE TOLD HER TODAY HE IS TIRED OF ALL OF THIS CAUSE NOTHING HELPS OR STOPS THE CANCER FROM COMING BACK. SHE JUST TRIED GIVING HIM HIS MEDS AND HE IS REFUSEING TO TAKE THEM AND TO EAT OR DRINK. I THINK HIS BODY IS WORN OUT AND TIRED . HE IS A FIGHTER AND HE WILL AND DOES FIGHT . BUT UNLESS YOU HAVE GONE THRU THIS YOU JUST CAN NOT KNOW WHAT THEY FEEL OR GO THRU. I KNOW SOME KIDS WRITE TO TYLER WHO HAVE CANCER AND THEY KNOW WHAT HE GOES THRU. I GUESS I AM TALKING OF MY SELF TOO. I DO NOT KNOW THE PAIN AND SUFFERING THEY FEEL . I ONLY CAN SEE THE PAIN AND SUFFERING THEY GO THRU . AND IT BREAKS MY HEART. I AM ON MY WAY TO HIS HOUSE NOW TO TRY AND HELP HIS MOM GET ALL HIS TWENTY MEDS IN HIM. BUT I NEED PRAYER FROM YOU ALL TO HELP ME BE ABLE TO HELP HER TO GET HIM TO DO IT . CAUSE IF THE MEDS TASTE BAD TO ME I WILL NOT TAKE THEM I GET SICK. AND I GUESS I PASSED THIS ON TO MY PRECIOUS TYLER . WHAT A GIFT HUH? BUT IT IS HARD TO SEE HIM SHAKE AND THROW UP BEFORE HE EVEN TAKES THE MEDS . IT IS SO HARD TO GET HIM TO TAKE THEM . HE SAYS THEY DO NOT HELP CXAUSE THE CANCER COMES RIGHT BACK SO WHAT IS THE USE? WHAT DO WE SAY ? HOW DO WE ANSWER THAT? IT IS TRUE. WE DO NOT WANT HIM TO SUFFER . BUT GOD WE DO NOT WANT TO LOSE HIM EITHER AND HE IS TIRED . SO VERY TIRED AND SICK AND TIRED OF BAD NEWS EACH TIME HE GOES IT IS WORSE . YES WE REBUKE THE BAD REPORTS WE STILL KEEP GETTING THEM. WE STILL TEACH TYLER TO KEEP FIGHTING AS LONG AS HE IS BREATHING WE TEACH HIM TO FIGHT AND DO NOT GIVE IN TO CANCER TO KEEP FIGHTING IT . BUT ONLY HE KNOWS HOW MUCK MORE HIS BODY CAN STAND.PLEASE PRAY FOR HIM AND PRAY FOR US TO KEEP THE FIGHT IN US AND TO BE ABLE TO CALMLY TALK HIM IN TO ALL HIS MEDS . THIS IS A REAL WAR TO GET HIS MEDS IN HIM. GOD BLESS YOU ALL. WE LOVE YOU ALL. TILL NEXT TIME DEBBIE , SUSAN AND TYLER AND OUR FAMILY SENDS THANKS TO YOU ALL AND OUR LOVE PS ... THEY UPPED HIS MORPHINE TO EVERY THREE HOURS FOR PAIN AND THEY INCREASED THE MG TOO. HE IS IN LOTS OF PAIN NOW .
Friday, March 10, 2006 12:52 AM CST
HELLO EVERYONE, THIS IS TYLERS GRANDMA, HE WENT TO THE CLINIC TODAY. AND IT IS NOT GOOD NEWS AGAIN! SO HIS MOMMY EMAILED ME BUT I DID NOT SEE IT TILL I CALLED AND ASK WHY SHE DID NOT CALL ME WHEN THEY GOT HOME? WELL IT IS CAUSE TYLER IS RESTING AND IS VERY UPSET AND SHE IS TRING NOT TO CRY AND LOSE CONTROL IN FRONT OF HIM. SO SHE ASK ME TO UPDATE . THIS IS HARD AS I TOO AM CRYING AS I TYPE THIS. YOU KNOW DECEMBER 23RD 2005 TYLER WAS STILL CANCER FREE. THEN DECEMBER 26TH 2005 HE HAD GONE OUT OF REMISSION THAT FAST AND HIS LEUKEMIA CAME BACK FULL FORCE AND VERY AGRESSIVE. THEY PUT HIM ON HOSPICE CARE AND LOW DOES OF CHEMO TO SLOW IT DOWN. WELL MONDAY WHEN HE WENT FOR BLOOD WORK ALL HIS COUNTS WERE COMING UP ON THEIR OWN AND HE ONLY HAD 3 % CANCER CELLS . NO MORE BUT NO LESS . AS HE HAD 9% IN DECEMBER. NOW FROM MONDAY MARCH 6TH TO TODAY FRIDAY MARCH 10TH HE HAS 10 TO 15 % CANCER CELLS . MORE THEN BEFORE. SO HE IS VERY UPSET AND SO IS HIS MOMMY AND SO AM I. THEY ARE TALKING UPING HIS CHEMO . AS WE ALL KNOW HIGH DOES MEAN MORE HOSPITAL STAYS AND MORE THROWING UP AND MORE FEVERS . WHICH THEY ARE TRING NOT TO MAKE TYLER HAVE TO STAY IN THE HOSPITAL AS HE DOES NOT WANT TOO. PLEASE PRAY FOR HIM TO BE HEALED AND NOT TO BE IN PAIN OR LEAVE US! HIS HAIR IS GROWING FUZZIES BUT THE NEXT CHEMO HE GETS IT WILL FALL OUT AGAIN NUMBER SIX TIMES . BUT IF IT MEANS BEING BALD AND WITH US LONGER THEN SO BE IT . I WANT TYLER NOT HIS HAIR!!! BUT IT DOES UPSET TYLER AND THEN THAT MAKES US SAD IF HE IS SAD. PLEASE CONTINUE TO PRAY FOR HIM AND OUR FAMILY TO GET THRU THIS JOURNEY. THANK YOU . DEBBIE AND GOD BLESS YOU ALL
Monday, March 6, 2006 6:53 PM CST
Hello all, Tyler went to the clinic this morning.His blood counts are great!! he has a platlet count of 90 thousand whoopee!! He didn`t need blood or anything.We went to visit a little girl in the hospital, Tyler took her a teddybear. She has leukemia also and is having a really hard time.Tyler let her know that she is not alone .He still has active cancer in his blood, it seems to be steady rt now ,not worse or better.We discontinued his IV meds.So I made him promise to drink, which he isn`t doing much of yet.Tyler had his hot bath after getting rid of the IV ,he loves his hot baths.He goes back to the doctors on fri.He got a sticky foot today at the clinic and he was tossing it at the ceiling, his doc saw him and laughed.He is very ornery, But we love it !! Until next time....
Saturday, March 4, 2006 11:13 AM CST
Hi everyone, The fevers are gone and there is no growth as of yet from the cutures. He iss till coughing and on the twenty four hour IV fluids.He is still running to the bathroom alot.So he really needs the fluids to help him out until this virus is gone. We got uor pics taking at walmart yesterday,and they were really nice.My boys took their best ones on their own poses. Tyler had his done with both poobears.Walmart was so kind as too let us have all seven poses for free.We are so happy!!!Tyler woke up this morning and he wanted fried potatoes and cornbread . So you guessed it that is what I am cooking for him.I will close for now as I need to get him some cough meds. Until next time.....
Thursday, March 2, 2006 4:24 PM CST
Hello All, Tyler went to the clinic this morning.He had a fever and was vomiting and had loose stools too. They cutured his blood I have to call for the results tomorrow. i guess their is a virus going around that presents the way Tyler is feeling.He is resting rt now.I am going to give him IV fluids for the next four days to keep him from get dehydrated.He doesn`t want to eat and barely takes a sip of fluids.So he really needs these IV fluids.He got to see one of the girld here in town that has cancer too. She was in the clinic getting chemo.Tyler got her a t shirt from the radiothon and took it in to her room to her.She wanted to take a picture of Tyler with her cell phone.Well i will let you all know how he is doing tomorrow.Until next time....
Wednesday, March 1, 2006 12:00 AM CST
Hello all, Tyler has caught a cold virus. He is fevered ,but Dr. Cathy said since he goes in thursday for counts and maybe a blood transfusion, that we can geta sample of blood and culture it for bacteria. We will also get him a dose of iv antibiotics while he is there. She will arragnge it all so the other docs don`t try and admit him. We know it is due to the cold anyhow.He has a fit if he thinks theyt might keep him there. Tyler has about 6 more doses of the chemo vp16 and then he will be off for a week or two to let his counts recover.Last night he took a hot bath and came down and told me he saw a angel upstairs, well it threw me because I had just read about two kids on caringbridge that told their mommy`s that before they passed, and he was napping when I read that. Tyler had no idea about the angel stories. He then told me he was teasing me about the angel. i had a few good cries yesterday while he napped and then when he went to bed for the night. I will not let him see me cry because he doesn`t like it. He is watching Steve Erkel rt now. Today he is not eating well or drinking much either. I keep offering it to him ,I hope soon he will change his mind.I will update after he gets back from the clnic thursday.until next time......
Monday, February 27, 2006 1:14 PM CST
Hello all, Tyler went to the clinc this morning and he was in and out in a matter of an hour and a half.He will go back on thursday. I think he will be needing a blood transfusion then.His counts are dropping in that department and his little hands are like ice cubes all of the time. He was so happy not to stay there long today.He is singing to me rt now, I love it!! He keeps lifting weights and I worry he is doing too much. He wants to play football this spring so bad. I don`t have the heart to tell him he may not be able too, so I just stay mum on that subject.He printed out all of the Ohio requirements for the season.Bless his little heart.Maybe somehow we can get a way to let him play ,it is all that he has lived for in the past few years and everytime he went in remission he would think he was going to play them BAM!! back his cancer came again.His nurse told him today he is lifting too much for his weight and size. But my stubborn boy will hear none of that!!! So I let him do as he needs, he knows when to rest.This weekend he used all of his ink printing all of the stats on on his fav football players ,you should see the stack of papers he has .Today I took him to get (Kevin the fish) a snail for his tank, Tyler upgraded the tank to a one gallon tank a few days ago. Maybe Kevin won`t bite a snail.Tyler finally got the other poobear at the hospital that he has been after for a couple of years ,and he named him (Ronde poobear). So now you will see Ty toting around two bears. Today Dr. Talia was laughing at him saying ohhh now their are two hanging in your coat. Well I guess i updated all that I could , until next time God bless....
Friday, February 24, 2006 8:13 AM CST
HELLO FRIENDS AND FAMILY, TYLER IS HOME SAFE AND SOUND FROM FLORIDA. HE AND HIS TWO BROTHERS AND DAD LOVED THE TRIP. THANK YOU TO LEE MCCAULEY AND CANTON HALL OF FAME FOR MAKING THIS TRIP A DREAM COME TRUE FOR TYLER . HE REALLY ENJOYED MEETING RONDE BARBER BUT ALSO MET THE COACH TOO. SO IT WAS A SUPER TREAT FOR HIM. HE IS STILL TALKING ABOUT IT . WELL GERALDO AT LARGE WILL BE SHOWING TYLERS SHOW OF NEW YORK TONIGHT AT 7.00 PM ON GERALDO AT LARGE NATION WIDE . IT IS THE FOX CHANNEL. HOPE YOU ALL CAN GET IT . TYLER WENT TO THE CLINIC THURSDAY FOR BLOOD CHECKS . HIS COUNTS ARE LOW SO HE WILL BE MOST LIKELY GETTING TRANSFUSIONS MONDAY. HE HAS LOTS OF EXCITEMENT THIS MONTH. THANKS TO ALL YOUR PRAYERS AND ALL THE KIND PEOPLE WE STILL HAVE IN THIS WORLD THEY ALL HAVE MADE TYLER A VERY HAPPY BOY. AND HIS FAMILY VERY HAPPY SEEING HIM HAPPY. THANK YOU ALL SO MUCH. WE LOVE YOU ! SO DOES TYLER. KEEP PRAYING FOR ALL THE OTHER SICK KIDS AND THE THE KIDS WHO EARNED THEIR ANGEL WINGS AND DO NOT FORGET TO PRAY FOR THE FAMILYS OF THESE ANGELS AS THEY ARE LEFT HERE MISSING THEM AND EACH ANGEL TOOK A PIECE OF THE FAMILYS HEART WITH THEM SO CONTINUE TO PRAY FOR PEACE . THANK YOU! HUGGS DEBBIE ,,,,,,,, TUNE IN TO THE GERALDO SHOW TONIGHT TO WATCH TYLER!!!!!!
Wednesday, February 22, 2006 6:27 PM CST
Well hello everyone! Tyler is on his way home rt now from Florida.I can tell you that he is very excited about his trip ,as are his brothers.As a matter of fact none of them wanted to come home!! Tyler got to meet the family who made his trip possible, they just so happen to be former Massillon folks. He (LEE)took my kids and their dad out to dinner and to their wonderful hotel. My kids just loved the hotel and the beach.Then he took them to pick some oranges because my boys have never seen an orange tree before. Today he picked them up and took them to meet Tyler`s idle MR. Ronde Barber. Well Tyler got many great presents from Lee and Mr. Barber. And he is on cloud nine. I am reporting all of this to you as he told it to me on the phone today. So Lee if you read this THANK YOU ! to you and your wife and all who helped you. And thanks also to the Hall of Fame , Lee arranged for them to pay for the airfare for Tyler and his brothers and his daddy.Tomorrow Tyler goes back up to akron for a blood test to see if he is needing any transfusions.As always we love you and please continue to pray for all the sick childrren. God bless
Monday, February 20, 2006 1:14 PM CST
Hugs all, Tyler is back from the clinic. His platlets were 64 thousand,YEA!!! so he didn`t need a transfusion. He leaves tomorrow with his dad and two brothers to go to florida. He will be there tues and get home weds night.He gets to meet his favorite NFL football player Ronda Barber from the Tampa Bay Buccs.They will have lunch together and tour the stadium. Tyler and his dad,and brothers get to have some fun at the clearwater beach as well before coming home.Ty will only get vincristine once a month now, I guess it makes his counts go down too much. He will go back to the clinic on thurs for a cbc count. I hope he has a great time and brings me back alot of good pics.I will update when he gets home. God bless .....
Thursday, February 16, 2006 4:28 PM CST
Hello evryone, First let me say that we got word from the Geraldo show that once again they bumped Tyler`s story.We don`t know why but anyhow that is what I was told.We are all very upset about this.Next I will say that I took Tyler to the clinic today for platlets. His counts are holding for now some are panic level.But you will have that with chemo. He is very grumpy today and has a lot of back pain. He took a hot bath for it and is now on the heating pad, he also took morphine.Hopefully soon he will feel better.I take him back in to the clinic on mon .His temp today was below normal I`m not sure why. He is playing playstation rt now. We will keep you updated on how he is doing. God bless you all.
Tuesday, February 14, 2006 9:11 PM CST
Hello all, Well i took tyler up to the ER tonight.He has a fever .Dr. Friebert promised him that she would order a culture and give him iv antibiotics and send him home. And that is what she did, she even came in to see him at almost 9 pm. I was very greatful to her for that.Tyler is in bed and I didn`t get his meds in him at all today or tonight. He says he will be sick, if he takes them. HIs platlets are bad again so is the anc. So we will be going up tomorrow or weds for platlets.Tyler and I are in overload with all of this . When will he win the fight??? He is sleeping rt now poor little guy. I will update or have mom do it if things get worse .Oh yes before I go , I am a proud aunt for the first time!!! My sister Crystal Had a baby boy this early a.m Tyler and I are excited to see him. Ty gave her strict orders today to bring that baby to see him after they get settled in.Until next time god bless....
Monday, February 13, 2006 4:20 PM CST
Hello all, We took Tyler up to akron today for his bonemarrow asperation.I am sorry to say that the cancer is still there. He did not go into remission. I did not know that doctor Talia even thought that he did. So I was shocked and then upset about the news.We don`t know yet if there has been an improvment on the number of cells yet or not. The doctor just looked at the specimon and said that there was indeed leukemic cells. So as of tonight we are back on the vp 16 oral chemo for 22 days and decadron for five days. The doc thinks he will be needing platlets as early as this Fri. That is when we go back. He has already started showing lowered counts from the gleevac he takes every night.His white counts are lower as are his anc and his platlets.It will be a matter of a week or two and he will be fevered again . Rt now he is singing with head phones on it is so cute because I can hear him.He is upset that his hair will remain gone. I feel so bad for him. His dad met My hubby and I and Tyler up at akron for his procedure today. I cannot watch them do the asperation it just hurts me too much. So his daddy always does that part for Tyler and me. Tim stayed with me in the hall until Tyler was done. I had TY go home with his dad while we waited to get his chemo from the pharmacy. I was so upset with the two pharmacy`s they had me running back and forth between the two for a couple of hours. We finally got his meds two hours after he left the clinic. I have been upbeat for about a month now but for some reason today is not a good day. I cried some earlier seeing Tyler under sedation on oxygen and ekg`s but I need a good hard cry I think. This is just not fair for him. He has fought so long now, and it keeps coming back. Well anyway we want you all to continue to pray for all of the kids that are sick and all the ones we lost to the BIG BAD CANCER MONSTER. God bless you all.. until next time....
Thursday, February 9, 2006 6:52 PM CST
HELLO EVERYONE , TYLER WILL NOT BE ON THE GERALDO RIVERA SHOW TOMORROW AT SEVEN . THERE IS SOME NEWS THE SHOW WILL BE HAVING ON. IF THERE IS SOME NEWS THAT COMES ABOUT THEY BUMP THE OTHER SHOWS BACK. THEY SAY SOME DAY NEXT WEEK IT SHOULD AIR . THE LOCAL PAPER WILL KNOW AND POST IT HERE THE NIGHT BEFORE THEN I WILL LET EVERY ONE KNOW . I AM SORRY . I WAS DISAPOINTED TOO. BUT THE GOOD NEWS IS TYLER IS FEELING GOOD . AMEN FOR THAT NEWS . HE WILL BE GETTING HIS BONE MARROW BIOPSY MONDAY TO SEE IF THERE ARE ANY CANCER CELLS IN HIS BONE MARROW . PLEASE PRAY THAT IS IS CLEAR. WILL KEEP YOU POSTED . GOD BLESS YOU ALL. AT THIS MINUTE THE LOCAL NEWSPAPER REPORTER IS AT TYLERS HOUSE VISITING WITH SOME OF HIS CHUCH MEMBERS AND THEY BROUGHT TYLER ICE CREAM. HUGGS TO YOU ALL WE LOVE YOU . KEEP UP THE PRAYERS AND PLEASE SIGN TYLERS WEB GUESTBOOK AND LET HIM KNOW YOU WERE HERE . DEBBIE
Wednesday, February 8, 2006 4:01 PM CST
HELLO FRIENDS AND FAMILY, TYLER WENT TO THE CLINIC TODAY . HIS PLATLETS ARE A LITTLE LOWER BUT,,,, HIS GLEEVIC BROUGHT THEM DOWN. BUT HE DID NOT HAVE TO GET PLATLETS THO. HE WILL BE GETTING ANOTHER BONE MARROW BIOSY I THINK FRIDAY. BUT I WILL LET YOU KNOW FOR SURE WHEN . IT IS TO SEE HOW MUCH CANCER IS IN THE BONE MARROW AND BLOOD AND IF ANY OF THE CHEMO TREATMENTS ARE KILLING ANY OF THE CANCER CELLS. TYLER GOT A ROBOT FROM WALMART AND IT TALKS AND IT BURPS AMONG OTHER THINGS . HIS MOM IS SCARED OF IT .SHE WENT TO THE BATHROOM AND WHEN SHE CAME OUT HE HAD HIS ROBOT STANDING OUTSIDE THE DOOR AND SHE SCREAMED AND JUMPED UP AND DOWN AND HE LAUGHED AND LAUGHED . SHE CALLED ME AND HE WAS STILL LAUGHING AND SO DID I . SHE SAID SHE IS SENDING HIS ROBOT WITH HIM TO MY HOUSE THIS WEEK END . I SAID OK WE WILL PLAY WITH IT IN THE BASEMENT WHERE THERE IS MORE ROOM. SO TYLER IS STILL FEELING SPUNKY . THAT IS TYLER FOR YA . HE IS A JOKER AND A PRANKSTER. THAT IS WHAT I LOVE ABOUT HIM. HE KEEPS YOU ON YOUR TOES . DO NOT FORGET TO WATCH GERALDO AT LARGE FRIDAY THE 10TH AS TYLER WILL BE ON. HUGGS DEBBIE
Tuesday, February 7, 2006 9:38 AM CST
HELLO FRIENDS AND FAMILY, WELL AGAIN I MUST CHANGE THE DAY OF TYLERS SHOW ON THE GERADLO RIVERA . IT WILL AIR FRIDAY THE 10TH 2005 AT 7:00PM ON FOX OR GERADLO AT LARGE. NATIONWIDE SO ALL OF YOU NO MATTER WHAT STATE YOU LIVE IN SHOULD BE ABLE TO WATCH. THE PRODUCERS SAY THEY HAVE A GREAT STORY TO TELL ABOUT TYLER . THEY FOLLOWED HIM AROUND NEW YORK CITY VIDEOING HIM AND INTERVIEWING HIM.SO YOU WILL ALSO SEE TYLERS ADVENTURE TO NEW YORK. HE LIKES THE IMPIRE STATE BUILDING THE BEST . HE LOVES THE STATUE OF LIBERTY TOO BUT HE WAS REALLY IMPRESSED BY THE IMPIRE STATE BUILDING . AND SOMETHING ELSE HAPPENED TOO. A WOMAN CAME UP AND TAPPED TYLERS MOM ON THE SHOULDER AND ASK IF TYLER HAD LEUKEMIA ? SUSAN SAID YES AND HE IS IN NEW YORK FOR A LAST WISH. WELL THE LADY HAD A EIGHT YEAR OLD BOY NAMED TOMMY AND HE ALSO HAS LEUKEMIA . SAME AGE AS TYLER WHEN TYLER GOT IT . THE BOY IS FROM ITALY AND THEY WERE TAKING A TWO WEEK TREATMENT IN NEW HAVEN CONN. AND WAS ALSO VISITING NEW YORK. SO THE NEWS TEAM AND TYLER AND THE CREW LET THIS LITTLE BOY FOLLOW THEM AND BECAME PRETTY GOOD BUDDYS . THE MOTHER WAS EXCITED TO MEET TYLER AS SHE WAS TRING TO TELL HER SON TOMMY HE WAS NOT ALONE HAVING CANCER . THAT THERE ARE LOTS OF CHILDREN WITH CANCER. SO YOU SEE WHY WE MUST HAVE MORE FUNDS FOR CANCER RESEARCH?? THESE KIDS ARE EVERY WHERE . THEY NEED HELP OUR HELP. TYLER GOES TOMORROW FOR BLOOD WORK TO SEE WHAT HIS COUNTS ARE AND SEE IF HE NEEDS BLOOD OR PLATLETS . LETS PRAY THEY ARE STILL COMING UP AND HE WILL NEED NOTHING . HE HAS STARTED HIS GLEEVIC NOW AGAIN. AND I THINK THE DOCTORS WILL BE DOING OTHER KINDS OF CHEMO . HE WAS ON A BREAK FROM CHEMO TO LET HIS COUNTS COME BACK UP AS THEY ALL WERE ALMOST AT ZERO. I WANT TO KEEP HIM THIS WEEKEND SO PRAY HE WILL FEEL LIKE COMING . WE ARE GONE TO PLAY PLAY STATION WITH HIM AND TAKE HIM DOWN THE ROAD TO A SCHOOL PARKING LOT TO LET HIM RIDE HIS CROTCH ROCKET AND TO PLAY WITH IS ROBOT AND HIS ROMOTE CONTROL CAR. SO HE SHOULD HAVE PLENTY OF ROOM TO PLAY WITH HIS TOYS PROVIDING THE WEATHER IS OK BY NOT BEING TO COLD . SNOWING OR RAINING. I WANT TO SPEND QUALITY TIME WITH HIM. BUT YOU KNOW WHAT??? HE KEEPS ME BROKE CAUSE EVERY TIME YOU KISS HIS BALD HEAD YOU OWE HIM A DOLLAR AND I TRY AND KISS HIS CHEEK AND HE WILL MOVE AND MAKE ME KISS HIS HEAD AND SAY AWWW GRANDMA YOU OWE ME A DOLLAR BY THE TIME HE LEAVES HE GETS A POCKET FULL OF DOLLARS . SOME TIMES I JUST GIVE HIM A TEN OR TWENTY AND SAY NOW YOU OWE ME TEN MORE OR TWENTY MORE KISSES . I AM THE ONE WHO TOLD HIM TO CHARGE A DOLLAR SO I GUESS I HAVE TO PAY UP HUH??? HE IS WORTH EVERY DIME I SPEND ON HIM. HE IS MY ANGEL MY HERO MY MIRICLE. ALSO WE ARE PRAYING SINCE HE WILL BE ON NATONAL TV THAT MORE PEOPLE WILL BE PRAYING NATION WIDE AND THAT TYLER WILL BE HEALED AND HE WILL MINISTER NATION WIDE OF HIS HEALING AND HE WILL BE LIVING PROOF TO THE NATION THAT GOD DOES MIRICLES AND HE IS HEALED . AND IF FOR SOME REASON GOD HAS DIFFERENT PLANS FOR TYLER AT LEAST HE GOT THE MESSAGE OUT THERE NATION WIDE FOR OTHER KIDS THAT WE NEED TO DO MORE RESEARCH FOR CHILD HOOD CANCER . SO ALL YOU KIDS OUT THERE FIGHTING THIS BATTLE WITH TYLER WHO HAVE OR HAS HAD CANCER AND ALL WHOM HAVE EARNED YOUR ANGEL WINGS.... TYLER IS PUTTING OUT THE WORD NATION WIDE WE NEED THE CHILDHOOD CANCER RESERCH TO END THIS MONSTER FROM INVADING OUR PRECIOUS CHILDERNS BODYS!! IF TYLER CAN DO THIS AND SAVE OTHER KIDS FROM GONE THRU WHAT HE HAS AND IS THEN HIS BATTLE DID NOT GO IN VANE! HE IS FIGHTING FOR A CURE FOR ALL CANCERS FOR HIM SELF AND ALL OF YOU.AND FOR THE MEMORY OF ANGEL KEVIN. MARK YOUR CALENDER FOR FEBUARY 10TH 7:00PM FOR THE GERALDO RIVERA SHOW AT LARGE. WATCH TYLER FIGHT FOR YOU AND HIMSELF!!!!!! HUGS DEBBIE
Sunday, February 5, 2006 11:40 AM CST
HELLO FRIENDS AND FAMILY. TYLER SAFELY MADE IT BACK HOME FROM HIS WONDERFUL TRIP TO NEW YORK CITY. THE PILOT WAS WONDERFUL TO TYLER HE LET TYLER FLY THE PLANE BACK HOME FROM NEW YORK. TYLER SAID IT WAS LIKE BEING IN HEAVEN WATCHING THE CLOUDS PASS BY. WE WILL BE SENDIND TUESDAYS CHILD PICTURES SOON TO PUT ON HIS WEB PAGES . BUT THEY ARE TAKING A WELL NEEDED BREAK AT THIS TIME SO IT MAY BE A WHILE . BUT THEY WORK HARD AND LONG HOURS TRYING TO MAKE THESE KIDS WEB PAGE TO FIT WHAT THEY WANT AND LIKE . THEY ARE A WONDERFUL CHRISTIAN COUPLE OF LADYS WHO DESERVE A BIG APRAISEAL AND SO DOES HELEN WHO MAKES ALL THE BANNERS AND SEND GIFTS OUT TO CARING BRIDGE KIDS . THANKS CHRIS FROM TUESDAYS CHILD AND YOUR PARTNER AND THANK YOU HELEN WHO SOME KNOW AS THE BANNER LADY. I KNOW HER AS A TRUE FRIEND AND THE KICKIN CANCER STORE LADY AND BANNER LADY AND A VERY LOVING CAREING LADY I AM HAPPY TO HAVE IN OUR LIFE . AND FOR STAN JONES ALSO . HE IS A GREAT MAN AND TYLER WAS SO EXCITED TO SEE HIM WRITTING TO HIM AS STAN PALYED FOOTBALL AND COACHED THE BEARS AND TYLER LOOKS UP TO HIM AS A HERO OF FOOTBALL. SO HEARING FROM STAN PUTS A SMILE ON TYLERS FACE . BUT HE ALSO LOVES HEARING FROM EACH AND EVERY ONE OD YOU. SO KEEP SIGNING HIS WEB PAGE . AND BE LOOKING FOR PICTURES OS TYLERS NEW YORK TRIP SOON . TYLERS MOM GOT A DONATED BRAND NEW COMPUTER AND OUR LOCAL CABLE COMPANY IS GIVING THEM FREE INTERNET SERVICE FOR A YEAR. SO SHE WILL BE ABLE TO UPDATE THIS SITE TOO. SO YEAH GOOD BYR GRANDMA HELLO MOM . JUST KIDDING I KNOW YOU ALL ENJOYED MY UPDATES AND I WILL STILL BE UPDATEING FROM TIME TO TIME WHEN SUSAN ASK ME TOO. WE ARE IN THIS AS A TEAM AND I AM HERE FOR HER AND TYLER IN WHAT EVER THEY NEED AND WANT . I LOVE MY DAUGHTER AND MY GRANDSON WITH ALL MY HEART AND SOUL. GOD BLESS YOU ALL AND KNIW THAT WE ARE TRYING TO GET THE MESSAGE OUT TO ALL MEDIA HOW IMPORTANT IT IS FOR RESEARCH ON ALL CANCER AS THERE ARE MILLONS OF CHILDREN OUT THERE FIGHTING THIS CANCER OF ALL KINDS . TYLER IS ONLY ONE OF THEM AND BY ALL MEANS IS NOT ALONE AND THE MESSAGE NEEDS TO BE BROUGHT TO LIGHT TO INFORM THE WORLD THAT CHILD HOOD CANCER EXSIST AND WE NEED A CURE!!!! FIGHT FIGHT FIGHT ALL TOGATHER TO GET THE RESEARCH WE NEED . IF WE CAN PUT MEN ON THE MOON THEN WE CAN RESEARCH CANCER AND COME UP WITH A CURE FOR KIDS AS WELL AS ADULTS . BUT PEOPLE THERE SEEM TO BE MORE KIDS WITH CANCER THESE DAYS THEN THERE ARE ADULTS!!YOU JUST DO NOT KNOW IT TILL YOU LIVE IN CANCER WORLD WITH A CHILD OR RELATIVE OR FRIEND OF A CANCER CHILD . THEY ARE HERE . AND THEY SUFFER WITH THE TREATMENTS AND SOME WIN THE BATTLE AND SOME DO NOT . BUT THEY ALL COULD WITH THE PROPER RESEACH . I FOR ONE SAY PUT THE MONEY WHERE IT IS NEEDED MOST AND RESEACH THIS CANCER. THESE CHILDREN ARE OUR FUTURE AND EACH AND EVERY ONE OF THEM BATTLEING CANCER ALWAYS HAVE A SMILE AND LIVE LIFE TO THE FULLEST . IT IS AMAZEING ... ALL THSE KIDS WHO ARE THROWING UP THEIR TOENAILS AFTER RADATION AND CHEMO TREATMENTS ALWAYS SEEM TO LOOK UP AT US AND SAY IT IS OK . DO,NT CRY. I WILL BE OK . IT IS OK. THEY ARE SO BRAVE AND STRONG AND THEY ALL EACH AND EVERY ONE OF THEM ARE MY INSPIRATION. I FIND I CAN TAKE ANY PAIN I COME ACROSS AS I THINK OF THESE KIDS AND ALL THEY SUFFER AND HOW STRONG THEY ARE AND SUCH A FIGHT THEY FIGHT EVERY SINGLE DAY. AND THE ONE S WHO GO IN REMISSION... THEY ARE AND ALWAYS WILL BE FIGHTING THE REST OF THEIR LIFE AND THEY WILL ALWAYS BE BRAVE BUT YET SCARED WITH EVERY SINGLE CAT SCAN OR MRI OR BLOOD WORK . CAUSE THEY WILL NEVER WANT TO HEAR THE WORD CANCER AGAIN. SO LETS PRAY THAT EACH AND EVERY CHILD WHO HAS KICKED CANCER OUT THE WINDOW WILL FOR EVER STAY CANCER FREE!!!AS LONG AS THERE IS A BRATH IN ME I WILL BE FIGHTING FOR A CURE . SAY IT . FIGHT IT . CURE IT . LIVE STRONG! LETS FORM A TEAM AND FIGHT TOGATHER FIGHT FOR THE CURRENT CHILDREN AND IN MEMORY OF ALL THOSE CHILDERN WHOM EARNED THEIR ANGEL WINGS . THE ONES WHOM EARNED THEIR WINGS ARE STILL IN HEAVEN FIGHTING CANCER AND ARE GUARDIAN ANGELS FOR OUR KIDS WHO REMAIN HERE FIGHTING . SO LETS PRAY FOR A CURE . LETS TRY AND SAVE EACH CHILD LETS HAVE EACH CHILD HAVE A MIRCLE OF COMPLETE HEALING . LOVE AND HUGGS TILL NEXT TIME . GOD BLESS YOU ALL DEBBIE PS THANKS FOR THE PRAYERS TYLER IS TAKING HIS GLEEVICBETTER , BUT HE MADE HIS MOM DIG OUT THE PUPPET BEAR I BOUGHT HIM AND NAMED IT GLEEVIC BEAR. WE MAKE THE PUPPET TAK TO TYLER AND COAX HIM INTO TAKING IT . IT USE TO TAKE HIM FOUR HOURS TO TAKE IT AND HE WOULD THROW IT UP AND HAVE TO TRETAKE IT AND IT IS NOT CHEAP . IT IS VERTY EXPENCIVE. BUT HE TOOK IT IN FIFTEEN MINUTES LAST NIGHT . WHAT A GOOD BOY HE IS . I TOLD HIM WHAT SOME ONE ON HERE TOLD ME TO TELL HIM THE GLEEVIC IS HIS CANCER BOMBS AND THEY BOMB AWAY HIS CANCER CELLS .
Friday, February 3, 2006 10:27 AM CST
HELLO FRIENDS AND FAMILY, TYLER WENT TO THE CLINIC YESTERDAY AND HIS COUNTS ARE STILL UP NOT HIGH BUT BETTER PRAISE GOD. AND HE IS OR SHOULD BE SOON HERE ARRIVING IN NEW YORK CITY. HE WAS ON THE FOX 8 NEWS LAST NIGHT AND TODAY AND SHOULD BE ON TILL TONIGHT . HE WILL BE ON GERALDO RIVERA SHOW ON FOX TONIGHT MONDAY NIGHT AT 8 OCLOCK. I DO NOT KNOW IF ANY ONE WILL BE ABLE TO SEE HIM ON THE TODAYS SHOW . ALL I CAN SAY IS I HOPE YOU CAN. MY OH MY !!! EVERY ONE IS SHOWERING HIM WITH GIFTS AND LOVE AND PRAYERS AND WE ARE SO OVER WHELMED, BUT .. THE BEST PART IS WE ARE GETTING ACROSS TO THE WORLD ABOUT CHILD HOOD CANCER . SO IF NOTHING ELSE GOES RIGHT AT LEAST TYLER AND US WILL GET THE MESSAGE THE VERY IMPORTANT MESSAGE OUT TO EVERYONE ALL OVER THIS WORLD ABOUT CHILD HOOD CANCER AND WE SHOULD HAVE A RESEARCH ON ALL THE CANCERS ALL OF THEM NOT JUST SOME BUT ALL OF THEM . WE NEED TO FIND A CURE AND WAY TO STOP THIS CANCER , WE HAVE TO FIGHT TOGATHER. SO WHO ALL IS IN FAVOR HOLLER I!!!! WE ARE A TEAM AND WE ALL NEED TO STOMP OUT THIS CHILD HOOD CANCERS . EVERY TYPE THERE IS CAUSE I HAVE SEEN THEM ALL AND IT IS NOT PRETTY TO SEE ANY OF THESE KIDS SUFFER THEY WAY THEY DO AND HAVE . SO IF NOTHING ELSE I WILL TRY AND FIGHT IN MEMORY OF ALL THE KIDS WHO HAVE EARNED THEIR ANGEL WINGS AND FOR TYLER TOO. SIGN THE PETION STAMP FOR CHILD HOOD CANCER , JOIN LANCE ARMSTRONGS TEAM , JOIN ANY THING YOU CAN TO FIND A CURE FOR THIS EVIL MONSTER THAT IS NOT ONY ENVADING OUR CHILDERNS BODYS BUT ADULTS AS WELL. OK I AM DONE NOW . PLEASE PRAY TYLER HAS A SAFE AND WONDERFUL TRIP TO NEW YORK AND BACK. WE LOVE YOU ALL. GOD BLESS . AND ALSO TYLER WILL START CHEMO AGAIN NEXT WEEK AND THE INSURANCE DID DECIDE TO PAY FOR TYLERS GLEEVIC PILL CHEMOS . THANK YOU ALL FOR PRAYING FOR THIS . 'TILL TOMORROW WHEN I FIND OUT ABOUT TYLERS TRIP HAVE A SAFE AND WONDERFUL WEEK END EVERY ONE !!! HUGGS TO ALL DEBBIE
Wednesday, February 1, 2006 9:53 AM CST
HELLO FRIENDS AND FAMILY, WELL TYLER IS GONE TO BE OFF TO THE STATUE OF LIBERTY FRIDAY MORNING AT NINE AM HE WILL BOARD A TWIN ENGINE PRIVATE JET THAT HOLDS FIVE PEOPLE. AND ONE OF THE FIVE WILL BE THE NEWSPAPER REPORTER HERE IN MASSILLON THAT WRITES ALL THE STORIES ABOUT TYLER . HE WILL GET TO GO WITH HIM TO NEW YORK!! ALSO TYLER WILL VIEW THE TWIN TOWERS , AND A DINOSAUR MUSEUM . AND THE HERSEYS CHOCOLATE FACTORY AND THE STATUE OF LIBERTY . THEY WILL BOARD THE PLANE SATURDAY AT 3.00 PM TO COME HOME . THURSDAY TYLER AND HIS TWO BROTHERS JUSTIN AND NICK WILL BE GONE TO SEARS TO GET THEIR PICTURES TAKEN TOGATHER PAID FOR BY SEARS .AND FOX EIGHT NEWS WILL EITHER MEET THEM THERE TO INTERVIEW TYLER OR THEY WILL BE AT THE AIRPORT TO MEET HIM FRIDAY MORNING .THE FOX CHANNEL EIGHT NEWS REPORTED THIS MORNING ABOUT TYLER BATTLEING CANCER FOR THE PAST THREE YEARS AND GETS TO GO TO NEW YORK THANKS TO DONATIONS FROM MASSILLON AND CANTON MERCHANTS. TYLER SAYS HE IS A STAR!! AND WE SAID YES HE IS A STAR AS HE IS OUR SHINEING STAR!!! SUSAN GOT A PHONE CALL FROM NEW YORK TODAYS SHOW WANTING TO KNOW IF THEY CAN PUSH THEM AND TYLER UP TO THE FROM OF THE LINE SATURDAY MORNING TO SAY HI TO ALL HIS FAMILY AND FRIENDS ON TV!! NEW YORK ALREADY KNOWS TYLER IS COMING FRIDAY. SO WHO KNOWS WHAT ALL WILL TAKE PLACE . BUT HOW WONDERFUL THAT TYLER WILL BE PAMPERED AND TREATED LIKE A LITTLE KING FOR A DAY!! HE DESERVES IT AS HE SURE HAS BEEN ON A LONG JOURNEY THESE LAST THREE YEARS . HE HAS A MINI OLD CROUTCH ROCKET AND HE WANTS TO GET IT RUNNING SO HE CAN RIDE IT . HE HAD HIS STEP DADS TOOLS OUT IN THE BASEMENT LAST NIGHT . HE HAD A JACK UNDER THE MOTOR CYCLE AND HE HAD IT ALL TORN APART. HE WAS BEAT AFTER ALL THAT AND HAD TO TAKE A HOT BATH AND TAKE MORPHINE FOR PAIN. HE IS A LITTLE STINKER!! THANK YOU ALL FOR ALL YOUR PRAYERS THAT TYLER WILL STAY WELL ENOUGH TO GO TO NEW YORK. PRAYERS ARE ANSWERED AS ALWAYS . YOU ALL MEAN THE WORLD TO OUR FAMILY AND TYLER . THANK YOU SO VERY MUCH. AND TO STAN JONES>>>> TYLER GOT YOUR PRESENT OF THE HAT AND BULL AND OTHER GIFTS . HE LOVES THEM AND HE DECORATED HIS ROOM WITH THEM AND THE CARDS YOU SENT TOO. THEY MEAN ALOT TO HIM.HE THANKS YOU VERY MUCH. TYLER WILL START CHEMO NEXT WEEK AGAIN WHEN HE COMES BACK HOME . AND TO LET YOU ALL KNOW WHILE HE WAS IN THE HOSPITAL WITH HIS FEVER ALL HIS HAIR CAME OUT . HE WEARS BANDANAS AND HATS NOW . AND HE CHARGES A DOLLAR PER HEAD RUB OR KISS ON HIS HEAD . I STARTED HIM DOING THAT WHEN HE FIRST LOST HIS HAIR WHEN HE WAS EIGHT AND TRUST ME HE HAS GOTTON LOTS OF DOLLARS FROM ME .THE DOCTORS AND NURSES KNOW HIM AS THE KID WHO CHARGES A DOLLAR TO RUB HIS HEAD . HE SAVES ALL HIS DOLLARS AND BUYS STUFF HE WANTS BUT ONCE HE TOOK ALL HIS MONEY AND HAD HIS MOMMY BE HIS DATE AND HE TREATED HER TO THE MOVIES AND SODA POP AND POPCORN . THEY HAD A GOOD TIME . HE TOLD HER HE WAS THE BEST DATE SHE EVER HAD!!! AND HE WAS SO HAPPY TO BE THE ONE TO PAY FOR THE DATE. WELL TILL NEXT TIME GOD BLESS AND WILL LET YOU KNOW ALL ABOUT THE TRIP TO NEW YORK AND HOPEFULLY HAVE PICTURES TO PUT UP TOO!!! HUGGS DEBBIE
Monday, January 30, 2006 4:05 PM CST
HELLO FRIENDS AND FAMILY. TYLER WENT TO THE CLINIC TODAY AND HIS COUNTS ARE GONE UP AGAIN!! THANK YOU FOR ALL YOUR PRAYERS . HIS PLATLETS ARE 50,OOO AND HIS ANC IS 600 NOW IT WAS O . AND HIS PLATLETS WERE 4000. SO THANK GOD FOR ANSWERING PRAYERS ! HE WILL GO BACK THURSDAY AND IF EVERY THING IS GOOD HE SHOULD LEAVE FRIDAY FOR NEW YORK. HE IS EXCITED . AND HE ALSO WENT HUNTING SATURDAY AGAIN AND HE GOT A BIG RED SQUIRREL AND IS GETTING IT STUFFED . HE IS SO HAPPY . THANKS TO ALL OF YOU AND ALL YOUR SUPPORT AND PRAYERS . THANK YOU ALL SO MUCH FOR MAKING A DIFFERENCE IN TYLERS LIFE . WE LOVE YOU! PLEASE CHECK TYLERS NEW WEB PAGE MADE BY TUESDAYS CHILD . THERE IS A LINK UNDER HIS PICTURE WITH HIS TYLER TEDDY TO CLICK ON. THERE IS A GUEST BOOK IN THERE TOO TO LEAVE TYLER A MESSAGE OR TO LET HIM KNOW HOW YOU LIKE HIS NEW TEDDY WEB SITE. WILL LET EVERY ONE KNOW WHEN TYLER WILL BE LEAVING FOR THE BIG APPLE . ALSO HE WILL START CHEMO AGAIN WHEN HE GETS BACK FROM NEW YORK. CHEMO WILL DROP HIS COUNTS AGAIN SO THAT IS WHY THE DOCTOR IS WAITING TILL AFTER HIS NEW YORK TRIP. OTHER WISE HE WOULD HAVE TO WAIT ANOTHER MONTH AS THEY KEEP TRYING DIFFERENT CHEMO PROTCOLS . TYLERS BONE MARROW BIOPSY CAME BACK TOO AND HE HAS THREE ADNORMAL CHROMOSOMES NOW. IT IS DUE TO THE LEUKEMIA SO HE WILL BE ON GLEEVIC WHICH THEY HAVE SAID THE PAST THREE WEEKS . NOW THE INSURANCE IS GIVING A HARD TIME ON PAYING FOR IT . THE DOCTOR IS MAD CAUSE HE SAYS THE GLEEVIC MAY BE EXPENCIVE BUT BEING ADMITTED IN THE HOSPITAL IS MORE EXPENCIVE AND THEY WILL PAY FOR THAT. TYLER WAS ON THE GLEEVIC BEFORE HIS BONE MARROW TRANSPLANT AND THEY PAID FOR IT THEN . WELL TILL NEXT TIME . GOD BLESS AND WE ALSO PRAY FOR EACH AND EVERY CHILD OR ADULT WHO FACES CANCER AND THE ONES WHOM HAVE EARNED THEIR ANGEL WINGS AS WELL AND THEIR FAMILYS. HUGGS DEBBIE
Wednesday, January 25, 2006 10:46 AM CST
HELLO FRIENDS AND FAMILY, GREAT NES FLASH!!!!! TYLER WENT TO THE CLINIC AND HE DID NOT NEED ANY PLATLETS!!! HIS ANC(IMMUNES ) ABILITY TO FIGHT OFF INFECTION IS STILL AT ZERO THO. PLEASE PRAY THAT THE ANC COUNT COME UP SO HE CAN GO TO NEW YORK CITY SOON! HE IS GONE HOME TO EAT LONG JOHNS SILVER THEN HE WILL BE COMING TO MY HOUSE TO GET SOME PICTURES I GOT MADE FOR HIM. PLEASE CLICK ON HIS TUESDAYS CHILD PAGE AND SEE IT AND SIGN HIS GUEST BOOK TO LET HIM KNOW YOU WERE THERE . ASLO TURN UP THE VOLUME ON YOUR SPEAKERS AS THERE IS A GREAT SONG ON THAT PAGE . THE SONG IS HOW WE FEEL ABOUT TYLER. AND I KNOW IT WILL HIT HOME WITH SOME OF YOU TOO . BUT IT IS A REALLY BEAUTIFUL TOUCHING SONG. TUESDAYS CHILD DID A WONDERFUL JOB ON THIS CARINGBRIDGE PAGE AND HIS TUESDAYS CHILD . IF YOU WANT A PAGE FOR YOUR CHILD DONE PERSONALY CLICK ON TUESDAYS CHILD AND THEY WILL CREATE ONE FOR YOUR CHILD ALSO. AS YOU SEE THEY DO WONDERFUL WORK.MAY GOD BLESS THEM WITH THEIR WORK. HUGGS TO EACH AND EVERY ONE OF YOU. GOD BLESS AND KEEP SIGNING TYLERS WEB PAGE . HE GETS BORED AND LOVES READING THEM. TILL NEXT TIME........ LOVE IN CHRIST AND GOD BLESS
Monday, January 23, 2006 10:54 AM CST
DEAR FRIENDS AND FAMILY, TYLER WILL BE COMEING HOME TODAY FROM THE HOSPITAL. FIRST THEY WERE GONE TO KEEP HIM TO SEE IF THEY TOOK HIM OFF THE ANTIBIOTICS IF HIS FEVER WOULD RETURN. HE FEVER HAS BEEN GONE FORTY EIGHT HOURS NOW . HE WILL BE GETTING PLATLETS THEN THEY WILL LET HIM COME HOME . HE IS SO HAPPY TO GET TO COME HOME . HE HAS GOTTON PLATLETS AND BLOOD SINCE HE WAS ADMITTED ON FRIDAY MORNING . CHECK OUT HIS WONDERFUL WEB PAGE SITE BY TUESDAYS CHILD . THERE IS A LINK ON THIS PAGE . THERE IS A SONG ON THERE TOO SO TURN UP THE VOLUME ON YOUR SPEAKERS . IT IS A SONG BY MARK SHULTZ CALLED HE ,S MY SON. IT IS A MAN PRAYING TO GOD ABOUT HIS SICK LITTLE BOY . THE SONG SAYS IT ALL HOW WE FEEL ABOUT TYLER . I USE TO PLAY THAT SONG EVERY TIME TYLER WENT TO GET CHEMO AND BONE ASPIRATIONS AND SPINAL TAPS . A LITTLE BOY IN BOYS SCOUTS DADDY GAVE TYLERS MOM AND DAD THAT CD IN 2002 WHEN TYLER FIRST GOT LUEKEMIA . THAT SONG IS A GREAT WAY OF EXPRESSING HOW WE FEEL. PRAY PRAY AND PRAY FOR A MIRICLE FOR TYLER . THANK YOU ALL AND PLEASE CHECK OUT THE WONDERFUL JOB CHRIS FROM TUESDAYS CHILD AND HER PARTNER DID ON TYLERS WEB . CLICK ON IT AND IT WILL TAKE YOU TOO IT . AND THE TYLER BEAR IS THE BEAR LITTLE EMILY MADE AT BUILT A BEAR AND MAILED TO TYLER . SHE IS AN ANGEL. SHE IS ONLY FIVE YEARS OLD AND HAS A HEART OF GOLD . AND THE WHITE BEAR ON TUESDAYS CHILD WEB PAGE IN THE PICTURE WITH TYLER IS A BEAR I BOUGHT HIM AND HE NAMED HER EMILY BEAR AFTER EMILY. SO HE IS HOLDING EMILY BEAR AND TYLER TEDDY. THANK YOU AND PLEASE STOP BY TO SIGN TYLERS WEB PAGE AS HE LOVES HEARING FROM YOU AND WILL NOT KNOW YOU CAME BY UNLESS YOU SIGN HIS PAGE TO TELL HIM SO. LOVE AND HUGS TO EACH AND EVERY ONE O YOU. DEBBIE , SUSAN, AND TYLER AND THE WHOLE ENTIRE FAMILY
Friday, January 20, 2006 2:42 PM CST
HELLO FRIENDS AND FAMILY, BAD NEWS AGAIN:( TYLER WENT TO GET PLATLETS TODAY AS HE DOES EVERY OTHER DAY AND HE SPIKED A 102 PLUS FEVER WHILE GETTING HIS TRANSFUSION. SO THE DOCTOR KEPT HIM. HE WILL HAVE TO STAY A COUPLE OF DAYS OR LONGER TILL THEY GROW A CULTURE . THEY WERE NOT PREPARED AT ALL TO STAY. THEY HAD NOTHING WITH THEM EXCEPT TYLERS POOBEAR. ALSO MORE BAD NEWS IS DOCTOR SAID NO WAY CAN TYLER RIDE IN A PLANE TILL HIS ANC COUNT COMES BACK UP WHICH IS AT 0 STILL AND NO WAY TILL HIS PLATLETS ARE NORMAL WHICH ARE THE LOWEST EVER . THEY ARE AT FOUR THOUSAND AND NORMAL IS FOUR HUNDRED AND FIFTY THOUSAND. BUT KEEP PRAYING CAUSE THERE IS A MAN WE NEVER MET SAID HE WILL DO WHAT EVER AND PAY WHAT EVER TO GET TYLER TO THE STATUE OF LIBERTY . OH AND HE GOT TO GO HUNTING YESTERDAY TOO. HE HAD A BLAST . WANT TO KNOW WHAT HE GOT?? A TREE !!!! HE SHOT A TREE THREE TIMES .BUT HE WAS SO HAPPY TO HAVE GOT TO GO IN THE WOODS AND HUNT. IT WAS SO CUTE .SO THAT WAS ONE WISH THAT HE HAD THAT WAS FULFILLED . PRAY HE WILL GET OVER THIS FEVER AND COME HOME SOON. HE KEEPS LOSING WEIGHT TOO. HE IS GETTING SO LITTLE . WE ENJOY EVERY MINUTE OF EVERY DAY WITH HIM. HE WAS TO GO GET FAMILY PICTURES OF HIS COUSINS AND AUNTS AND UNCLES AND GRANDMA ON HIS DADDYS SIDE DOWN SUNDAY. BUT I GUESS THAT WILL NOW BE POSPONED . BUT WE ARE USE TO THIS , AS TYLER SAYS CAN NOT MAKE PLANS GO ONE DAY AT A TIME CAUSE SURE AS YOU DO HE ENDS UP IN THE HOSPITAL EVERY TIME . BUT MAYBE SOON HE WILL BE ABLE TO GET OUT AND COME HOME . PLEASE SAY A PRAYER FOR HIM THAT HE WILL FEEL BETTER AND NO MORE FEVER !! HUGGS GOD BLESS DEBBIE
Friday, January 20, 2006 2:42 PM CST
HELLO FRIENDS AND FAMILY, BAD NEWS AGAIN:( TYLER WENT TO GET PLATLETS TODAY AS HE DOES EVERY OTHER DAY AND HE SPIKED A 102 PLUS FEVER WHILE GETTING HIS TRANSFUSION. SO THE DOCTOR KEPT HIM. HE WILL HAVE TO STAY A COUPLE OF DAYS OR LONGER TILL THEY GROW A CULTURE . THEY WERE NOT PREPARED AT ALL TO STAY. THEY HAD NOTHING WITH THEM EXCEPT TYLERS POOBEAR. ALSO MORE BAD NEWS IS DOCTOR SAID NO WAY CAN TYLER RIDE IN A PLANE TILL HIS ANC COUNT COMES BACK UP WHICH IS AT 0 STILL AND NO WAY TILL HIS PLATLETS ARE NORMAL WHICH ARE THE LOWEST EVER . THEY ARE AT FOUR THOUSAND AND NORMAL IS FOUR HUNDRED AND FIFTY THOUSAND. BUT KEEP PRAYING CAUSE THERE IS A MAN WE NEVER MET SAID HE WILL DO WHAT EVER AND PAY WHAT EVER TO GET TYLER TO THE STATUE OF LIBERTY . OH AND HE GOT TO GO HUNTING YESTERDAY TOO. HE HAD A BLAST . WANT TO KNOW WHAT HE GOT?? A TREE !!!! HE SHOT A TREE THREE TIMES .BUT HE WAS SO HAPPY TO HAVE GOT TO GO IN THE WOODS AND HUNT. IT WAS SO CUTE .SO THAT WAS ONE WISH THAT HE HAD THAT WAS FULFILLED . PRAY HE WILL GET OVER THIS FEVER AND COME HOME SOON. HE KEEPS LOSING WEIGHT TOO. HE IS GETTING SO LITTLE . WE ENJOY EVERY MINUTE OF EVERY DAY WITH HIM. HE WAS TO GO GET FAMILY PICTURES OF HIS COUSINS AND AUNTS AND UNCLES AND GRANDMA ON HIS DADDYS SIDE DOWN SUNDAY. BUT I GUESS THAT WILL NOW BE POSPONED . BUT WE ARE USE TO THIS , AS TYLER SAYS CAN NOT MAKE PLANS GO ONE DAY AT A TIME CAUSE SURE AS YOU DO HE ENDS UP IN THE HOSPITAL EVERY TIME . BUT MAYBE SOON HE WILL BE ABLE TO GET OUT AND COME HOME . PLEASE SAY A PRAYER FOR HIM THAT HE WILL FEEL BETTER AND NO MORE FEVER !! HUGGS GOD BLESS DEBBIE
Thursday, January 19, 2006 9:47 AM CST
HELLO FRIENDS AND FAMILY, TYLER HAD SORT OF A BAD YESTERDAY. HE GOT PLATLETS AND WILL GET MORE TOMORROW . HIS PLATLET LEVEL IS 4 THOUSAND VERY LOW . AND ANC COUNT IS ZERO. HE BIT A PIECE OF SKIN ON HIS FINGER ON THE WAY HOME FROM THE HOSPITAL AND IT WAS BLEEDING VERY MUCH. IT STOPPED THO CAUSE HE HELD IT TIGHT WITH A NAPKIN. HE ALSO GOT SICK AND WAS THROWING UP. HE TAKES ZOFRAN FOR THE NAUSIA BUT THEN IN RETURN IT GIVES HIM A HEADACHE. GREAT NEWS THO.... A MAN WALKED IN THE MASSILLON POLICE STATION AND GAVE FIVE HUNDRED DOLLARS TOWARD TYLERS TRIP TO NEW YORK TO SEE THE STATUE OF LIBERTY. AND HE MAY GET A PRIVATE JET FREE TO TAKE HIM AND HIS MOM AND STEP DAD TO NEW YORK CAUSE OF HIS COUNTS BEING SO LOW , AND WALMART AND SEARS ARE BOTH LETTING HIM AND HIS TWO BROTHERS GET THEIR PICTURES TAKEN TOGATHER AND THEY ARE FOOTING THE BILL SO TYLER CAN HAVE HIS PICTURES TAKEN WITH HIS BROTHERS . PEOPLE HAVE BEEN SO AWESOME . I CRY BUT THEY ARE TEARS OF JOY ! I CRY WHEN I READ HIS WEB PAGE MESSAGES FROM YOU ALL BUT AGAIN TEARS OF JOY THAT YOU ALL GIVE SUCH SUPPORT AND LOVE AND PRAYERS TO TYLER AND OUR FAMILY . WE LOVE EACH AND EVERY ONE OF YOU AND WE THANK YOU FROM THE BOTTOM OF OUR HEARTS ! GOD BLESS YOU ALL. WELL IT DEPENDS ON HOW WINDY IT IS AS IF TYLER WILL GO HUNTING THIS AFTERNOON. THERE IS A STEEP HIM TO CLIMB AND TYLERS GRANDPA SAYS HE WILL CARRY TYLER UO THE HILL TO LET HIM HUNT . AGAIN I CRIED . BOY I AM SUCH A CRY BABY HUH???? AGAIN TEARS OF OVER WHELMING . ANY TIME ANY ONE SAYS OR DOES NICE THINGS FOR TYLER I PRAISE THE LORD AND I CRY HAPPY TEARS .TYLER WILL RETURN FOR MORE PLATLETS TOMORROW . I WILL UPDATE TOMORROW AND LET YOU KNOW IF HE WENT HUNTING AND IF SO IF HE SAW ANY THING .HUNTING IS JUST SOMETHING HE ASK TO DO .AND WE WILL TRY AND SEE TO IT HE GETS TO DO IT .WE LOVE YOU ALL GOD BLESS TILL NEXT TIME.......
Monday, January 16, 2006 4:53 PM CST
HELLO FRIENDS AND FAMILY, TYLER WENT TO THE CLINIC TODAY. HE HAS NO ANC ABILITY TO FIGHT INFECTIONS . THEY ARE 0 NOW . AND HIS PLATLETS ARE VERY VERY LOW . SO WED HE WILL HAVE TRANSFUSIONS AGAIN .I DO NOT UNDERSTAND WHY THEY DO NOT ORDER HIS BLOOD AND PALTETS FOR EVERY MONDAY CAUSE BY WED. THEY ARE SO LOW HE IS STARTING TO BLEED THRU HIS SKIN. THANK YOU JAY FOR YOUR ENCOURAGING WORDS TO TYLER . FOR ANY ONE WHO DOES NOT KNOW JAY IS A TEN YEAR OLD BOY FROM AUSSIE WHO HAS NEUROBLASTOMA A RARE CANCER OF THE NERVOUS SYSTEM .HE IS A GREAT INSPIRATION TO LOTS OF KIDS FIGHTING CANCER OF ALL KINDS . HE TELLS THEM NOT TO GIVE UP .PLEASE VISIT JAY AT HIS WEB SITE AT http://www.caringbrodge.org/visit/jay also read the messages he leaves for tyler . he has been given two or three months to live but he says he can and will beat cancer . his site is a must see site . and please pray for jay and please sign his guest book cause he is one awesome little boy . a very handsome boy too. so full of life . also tyler has a candle now with a scent named after him . go to wwww.cathyscandles4kids.com and see the kids and the candles . i bought one of angel kevins , and one of caitlins and one of cathys daughter sabrina whom also earned her angel wings and tylers candle . the money goes for cancer research and the candles are also a great fund raiser . check it out . tyler got baptised last night praise god !!! PLEASE KEEP TRISHA IN YOUR PRAYERS AS SHE FINISHED CHEMO YEAH!!! AND WILL BE HAVING LOTS OF TESTING NOW . PLEASE PRAY ALL HER TEST COME BACK CANCER FREE AND SHE CAN HAVE HER LIFE BACK AGAIN. GO TRISHA !! GO TIGERS . !! ALSO PRAY FOR ANGEL KEVINS FAMILY AND FOR CAITLIN TO GET HER KNEE BACK IN WORKING CONDITION AND PAIN FREE . AND MISS HATTI FINALY CAME HOME FROM HER SURGERY . PRAY FOR HER COMPLETE RECOVERY ALSO. TYLER DID NOT GET TO GO HUNTING CAUSE OF THE COLD WEATHER BUT HOPEFULY THURSDAY HE CAN GO . HIS GRANDPA ALREADY HAS HIS GUN READY TO GO . NOW IT ALL DEPENDS ON THE WEATHER AND TYLERS HEALTH AND HOW HE FEELS BY THEN . PLEASE PRAY HE GETS TO GO . HE REALLY IS LOOKING FORWARD TO IT . LOTS OF LOVE AND HUGS DEBBIE , TYLER , SUSAN AND THE ENTIRE FAMILY SAYS THANK YOU FOR ALL YOUR LOVE AND SUPPORT GOD BLESS YOU ALL!!!
Sunday, January 15, 2006 2:11 PM CST
HELLO FRIENDS AND FAMILY, TYLERS MOMMY WAS HERE FRIDAY TO DROP TYLER OFF TO SPEND THE NIGHT WITH ME AND I HAD HER UPDATE . BUT ..... I NOTICED IT DID NOT TAKE SO SHE MUST OF NOT ADDED IT RIGHT . I AM SO SORRY . WELL. TYLER HAS BEEN GETTING FEVERS AGAIN SINCE MONDAY. HIS LAST FEVER WAS 102 THURSDAY NIGHT . HE HAS NOT HAD ONE SINCE AND WE HOPE HE DOES NOT . HIS ANC IS VERY LOW IT BOTTOMED OUT . IT IS ONLY ONE HUNDRED . HE GOT TWO BAGS OF BLOOD TRANSUFUSIONS AND ONE PLATLET FRIDAY . HE DID NOT GO HUNTING SATURDAY AS IT WAS TOO WINDY AND COLD . WITH IS COUNTS AND IMMUNES SO LOW WE DID NOT WANT HIM TO GET SICK AND NOT BE ABLE TO FIGHT IT OFF. SO WE EXPLAINED THAT ALL THE ANIMALS WERE HIDEING OUT OF THE COLD AND IT WILL BE WARMING UP THIS WEEK IN THE UPPER 40S AND HIS GRANDPA WILL TAKE HIM OUT THEN. HE SAID OK BUT HE WAS SOME WHAT SAD. WELL HE GOT TWO MORE BEARS . SO WE HAD NINE BEARS TO SLEEP WITH . HE HAD FUN THIS WEEK END WITH US . WE WATCHED MOVIES AND HE LAUGHED AND LAUGHED AND HE PLAYED PLAY STATION 2 WRESTLING AND HE KICKED HIS GRANDPAS BE HIND AND YOU SHOULD OF HEARD HIM LAUGH. IT WAS MUSIC TO OUR EARS TO HEAR HIS LAUGH . I LOVE IT . HE ALSO SCARED ME TWICE THIS WEEK END . HE WAITS TILL I AM ALMOST SLEEPING AND HE PUTS HIS POOBEARS HEAD IN MY FACE AND I SCREAMED AND HE BELLOWERED AND LAUGHED . THEN THE NEXT DAY HE GOT ME AGAIN . HE IS SO ORNERY . TYLER IS A JOY TO BE AROUND . IF HE IS FEELING GOOD HE KEEPS YOU LAUGHING . HE IS SUCH A COMEDIAN . SO FULL OF LIFE . HE WAS PLAYING PLAY STATION 2 2006 AND HE MADE A PLAYER TO BE HIM AND HE WAS BRAGGING ON HOW MANY RUSHES HE HAD . HE KNOWS HIS FOOTBALL AND HE BEATS EVERYONE WHO PLAYS HIM. BEFORE HIS GRANDPA COULD EVEN FIGURE OUT THE CONTROLS TYLERS HAD HIM DOWN IN WRESTLING. HE IS FANTASTIC ON IT . COMES WITH LOTS OF PRACTICE THO. HE GOES TOMORROW MONDAY AFTERNOON FOR MORE PLATLETS AND BLOOD . HE GETS BAPTISED TONIGHT AT 5:45 PM. IT IS 3:25 RIGHT NOW SO IN A COUPLE OF HOURS HE WILL BE WATER BAPTISED . LOTS OF PEOPLE ARE COMING TO WITNESS IT AND SHOWING SUPPORT TO HIM. WELL I WILL UPDATE TOMORROW AFTER HE RETURNS FROM GETTING HIS TRANSFUSIONS . THANK YOU JAY FOR ALL YOUR SUPPORT ANS KIND WORDS TO TYLER .YOUR POST TO HIM IS SO INSPIRING AND YOU TOO LITTLE MAN ARE IN OUR PRAYERS FOR A COMPLETE MIRICLE OF HEALING . GOD BLESS YOU ALL. WE LOVE YOU . THERE WILL SO BE ANOTHER LINK OF TUESDAYS CHILD TO ANOTHER WEB PAGE FOR TYLER ,. COMEI NG SOON... IT WILL HAVE ANGEL KEVINS LITTLE SISTERS BEAR SHE BULIT FOR TYLER AT BUILD A BEAR AND SHE NAMED HIM TYLER TEDDY. THERE WILL BE A SONG ON THAT LINK BY MARK SCHULTZ ... HE,S MY SON. IT IS A BEAUTIFUL SONG . GOD BLESS YOU ALL LOVE AND HUGGS DEBBIE , TYLER , SUSAN AND THE ENTIRE FAMILY
Thursday, January 12, 2006 2:07 PM CST
HELLO FRIENDS AND FAMILY, TYLERS FEVER BROKE AND THAT IS GREAT NEWS . HE GOT BLOOD AND PLATLETS WED. AND FRIDAY HE WILL HAVE TO HAVE MORE BLOOD AND PLATLETS. NOW THE SAD NEWS IS .... TYLER HAS LOST ALL HIS HAIR FOUR TIMES NOW DUE TO THE CHEMO . THIS TIME THE DOCTORS TOLD HIM LILLTE OR NO HAIR WILL BE LOST . WELL..... HE IS LOSING IT AGAIN!! IT IS FALLING OUT ALL OVER HIS BEARS AND HE SAW IT AND HE PULLED ON IT AND IT IS COMING OUT . HE IS SO UPSET. HE SAYS HIS HEAD HURT AND LAST FOUR TIMES HE LOST HIS HAIR HIS HEAD HURT AND EVERY TIME HE LOST HIS HAIR HIS CANCER RETURNED . HE SAYS HE WILL NOT MAKE IT TO SIXTH GRADE. HE ROLLED OVER AND FACED THE WALL ON THE COUCH HOLDING HIS BEARS . HE NEEDED TIME TO VENT AND THINK . HE HAS SO MUCH RUNNING THRU HIS HEAD . AND WE CAN NOT MAKE HIM ANY PROMISES CAUSE WE DO NOT KNOW WHAT PUNCHES LIFE WILL THROW NEXT AS WE HAVE NO CONTROL. ALL WE CAN DO IS COMFORT HIM AND BE HERE FOR HIM AND PRAY FOR HIM. SO PLEASE EVERY ONE PRAY HARD FOR HIM AND PLEASE KEEP SIGNING HIS GUEST BOOK. I DO NOT CARE IF YOU COME BACK TEN TIMES A DAY TO VISIT HIS SITE ... YOU CAN SIGN IT TEN TIMES A DAY IF YOU WISH. THE SUPPORT AND ENCOURAGMENT AND PRAYERS IS JUST THE RIGHT THING FOR HIM AT THIS TIME . HE IS SO VERY SAD AND HURT ABOUT THIS CANCER RETURNING AND LOSING HIS HAIR FOR THE FIFTH TIME . TYLER ALWAYS HAS TROUBLE WITH LOSEING HIS HAIR . WE WISH HE DID NOT HAVE A PROBLEM WITH IT SINCE HE IS A BOY BUT HE ALWAYS HAS . HE TAKES PRIDE IN HIS HAIR. AND FIVE TIMES????? WELL THAT IS A LTTLE MUCH FOR HIM . SO PLEASE HELP US TO HELP HIM KNOW WE ARE THERE FOR HIM HAIR OR NO HAIR WE LOVE HIM JUST THE SAME AND HAIR DOES NOT MAKE A PERSON IT IS WHAT IS IN THE HEART THAT COUNTS!! GOD BLESS YOU ALL WE LOVE YOU LOVE DEBBIE , TYLER AND SUSAN AND THE FAMILY AND ALL TYLERS BEAR FAMILY!!!
Thursday, January 12, 2006 2:07 PM CST
HELLO FRIENDS AND FAMILY, TYLERS FEVER BROKE AND THAT IS GREAT NEWS . HE GOT BLOOD AND PLATLETS WED. AND FRIDAY HE WILL HAVE TO HAVE MORE BLOOD AND PLATLETS. NOW THE SAD NEWS IS .... TYLER HAS LOST ALL HIS HAIR FOUR TIMES NOW DUE TO THE CHEMO . THIS TIME THE DOCTORS TOLD HIM LILLTE OR NO HAIR WILL BE LOST . WELL..... HE IS LOSING IT AGAIN!! IT IS FALLING OUT ALL OVER HIS BEARS AND HE SAW IT AND HE PULLED ON IT AND IT IS COMING OUT . HE IS SO UPSET. HE SAYS HIS HEAD HURT AND LAST FOUR TIMES HE LOST HIS HAIR HIS HEAD HURT AND EVERY TIME HE LOST HIS HAIR HIS CANCER RETURNED . HE SAYS HE WILL NOT MAKE IT TO SIXTH GRADE. HE ROLLED OVER AND FACED THE WALL ON THE COUCH HOLDING HIS BEARS . HE NEEDED TIME TO VENT AND THINK . HE HAS SO MUCH RUNNING THRU HIS HEAD . AND WE CAN NOT MAKE HIM ANY PROMISES CAUSE WE DO NOT KNOW WHAT PUNCHES LIFE WILL THROW NEXT AS WE HAVE NO CONTROL. ALL WE CAN DO IS COMFORT HIM AND BE HERE FOR HIM AND PRAY FOR HIM. SO PLEASE EVERY ONE PRAY HARD FOR HIM AND PLEASE KEEP SIGNING HIS GUEST BOOK. I DO NOT CARE IF YOU COME BACK TEN TIMES A DAY TO VISIT HIS SITE ... YOU CAN SIGN IT TEN TIMES A DAY IF YOU WISH. THE SUPPORT AND ENCOURAGMENT AND PRAYERS IS JUST THE RIGHT THING FOR HIM AT THIS TIME . HE IS SO VERY SAD AND HURT ABOUT THIS CANCER RETURNING AND LOSING HIS HAIR FOR THE FIFTH TIME . TYLER ALWAYS HAS TROUBLE WITH LOSEING HIS HAIR . WE WISH HE DID NOT HAVE A PROBLEM WITH IT SINCE HE IS A BOY BUT HE ALWAYS HAS . HE TAKES PRIDE IN HIS HAIR. AND FIVE TIMES????? WELL THAT IS A LTTLE MUCH FOR HIM . SO PLEASE HELP US TO HELP HIM KNOW WE ARE THERE FOR HIM HAIR OR NO HAIR WE LOVE HIM JUST THE SAME AND HAIR DOES NOT MAKE A PERSON IT IS WHAT IS IN THE HEART THAT COUNTS!! GOD BLESS YOU ALL WE LOVE YOU LOVE DEBBIE , TYLER AND SUSAN AND THE FAMILY AND ALL TYLERS BEAR FAMILY!!!
Wednesday, January 11, 2006 3:29 PM CST
HELLO FRIENDS AND FAMILY, TYLER WENT TO GET PLATLETS AND BLOOD TRANSFUSIONS . WE THOUGHT HE NEEDED BLOOD AS WELL AS PLATLETS CAUSE HE WAS GETTING VERY WEAK AND TIRED. HE HAS A VIRUS AND FEVER OF 102 . WE THOUGHT HE MAY HAVE TO STAY IN THE HOSPITAL BUT THEY ARE RELEASEING HIM WITH ANTIBIOTICS . HE WILL GO BACK AGAIN FRIDAY FOR BLOOD CHECKS . HE GOES EVERY THREE DAYS . I HOPE HE FEELS BETTER BY FRIDAY SO HE CAN GO HUNTING EVEN IF IT IS ONLY FOR A HALF AN HOUR . IT IS SOMETHING HE WANTS TO DO AND WE WANT TO SEE TO IT THAT HE WILL GET TO DO IT AT LEAST ONE TIME . ALSO HE WILL BE GETTING BAPTISED SUNDAY NIGHT AT 5:45 PM . THEY ONLY HAVE BAPTISUM ONCE A MONTH AND SO I HOPE HE FEELS WELL ENOUGH TO GO THRU WITH IT . THANKS AGAIN TO LISA , AND CAITS MOM TRISHA AND EMILYS MOM BRENDA AND HATTI AND TRISHAS MOM KATHY AND JAY AND HELEN FOR ALL YOUR POST ON YOUR WEB PAGES TO PRAY FOR TYLER AND TO SIGN HIS GUEST BOOK. WE ALSO WOULD LIKE TO REMIND EVERYONE TO ALSO REMEMBER THE WILLIS FAMILY IN PRAYER FOR THE HARD DAYS OF COPING WITH THEIR LOSS OF ANGEL KEVIN AND TO PRAY FOR HATTI AND CAITLIN , AND TRISHA AND KYLE AND JAY AND EMILY AND CASSIE , AND FOR ALL THE CHILDREN FIGHTING THIS CANCER . AND FOR ALL THE KIDS WE DO NOT KNOW CAUSE THERE ARE LOTS MORE . BUT A TEN YEAR OLD NAMED JAY FIGHTING CANCER SAID SOMETHING ON HIS WEB PAGE THAT I WILL ALWAYS REMEMBER NOW . IT WAS SAY YOU CAN.. THE 1ST THREE LETTERS IN CANCER HE SAYS SPELLS CAN AND THE 1ST THREE LETTERS IN CAN,T SPELLS CAN . AND ALL OF THESE KIDS CAN FIGHT AND NEVER GIVE UP. HE SAYS STAY STRONG AND POSITIVE AND KEEP THE COURAGE TO KEEP FIGHTING ALWAYS SAY YOU CAN!!!! THAT ALL CAME FROM A BRAVE CARING BOY WITH CANCER HIMSELF NAMED JAY FROM AUSTRALIA. VISIT THIS BOY AT www.caringbridge.org/visit/jay READING HIS MESSAGES TO TYLER I DECIDED TO VISIT HIS WEB PAGE AND I AM SO HAPPY I DID . HE IS ONE LOVING CARING INSPIRING LITTLE BOY . I HAVE GREAT ADMIRATION FOR HIM AND HE SURELY WILL BE IN OUR PRAYERS EVER DAY. GIVE HIM A VISIT I PROMISE YOU WILL NOT BE SORRY YOU DID !!! HE WILL MAKE YOU FEEL GREAT BY THE TIME YOU LEAVE HIS SITE BUT REMEMBER DO NOT LEAVE WITH OUT SIGNING HIS GUEST BOOK. HE DESERVES OUR SUPPORT TOO!! HUGGS AND WE LOVE YOU ALL LOVE DEBBIE , SUSAN , TYLER AND ALL TYLERS ENTIRE FAMILY AND OF COURSE ALL TYLERS BEARS TOO!
Tuesday, January 10, 2006 8:23 AM CST
HELLO FRIENDS AND FAMILY, TYLER WENT TO THE CLINIC YESTERDAY .... BUT ? THEY DID NOT HAVE HIS PLATLETS ORDERED :( HE HAD HIS EMLA CREAM ON HIS MEDIPORT SO THEY COULD GIVE HIM HIS PLATLETS AND ALL THEY DID WAS POKED HIS FINGER FOR BLOOD COUNTS . HE WAS SO UPSET . HIS PLATLETS DROPPED AGAIN 20.000 AND HE SAYS GRANDMA ! IF THEY DROP ANOTHER 20.000 I WILL NOT HAVE ANY LEFT ! BLESS HIS HEART . HE GOES BACK WED. TO GET HIS PLATLETS . THEY ARE REALLY LOW CAUSE HIS FINGERNAILS WERE STARTING TO BLEED THRU THE CUTICLES AND HE PUMPED HIS FOOT WITH HIS REMOTE CONTROLL CAR AND HIS TOE STARTING TO BLEED PRETTY BAD . SO NO POTATO CHIPS OR RUFF FOODS TILL HE GETS HIS PLATLETS . HIS PLATLETS SHOULD BE 450.000 THOUSAND AND THEY ARE NOW 25.000 THOUSAND NOW .SO PRAY THEY WILL NOT GO DOWN NO MORE . HE WILL GET TO GO HUNTING SATURDAY IF HE FEELS UP TO IT . HE ASK TO GO HUNTING SO THAT HE WILL GET TO DO .I TOLD HIM HE WILL HAVE TO USE A 22 SHOTGUN CAUSE A REGULAR ONE WILL KICK TO HARD AND WE ARE AFRAID TO BRUISE HIM OR HURT HIM.HE IS EXCITED . TYLERS FROG IS STILL OK . TYLER WANTS TO GET A FAKE FROG TO PUT IN WITH KEVIN THE BETA FISH TANK TO GET KEVIN USE TO THE FROG . IF KEVIN WANTS TO HAVE HIS TANK ALL TO HIMSELF THAT IS FINE WITH TYLER CAUSE HE WAS HERE 1ST AND HE MEANS A LOT TO TYLER AS HE IS NAMED AFTER ONE VERY SPECIAL ANGEL ( KEVIN WILLIS) AND TYLER LOVES HIS FISH KEVIN. THAT IS WHY HE GOT HIM THE FROG FOR COMPANY AND NAMED THE FROG TYLER . CUTE WHAT KIDS THINK OF ... SO TYLER WILL BE GONE FISH TANK SHOPPING TO GET TYLER THE FROG HIS OWN TANK CAUSE HE IS IN A SMALL CLEAR JAR . TYLER WILL BE GETTING BAPTISED SUNDAY THE 15TH AT 5.45 PM BEFORE CHURCH STARTS . GOD BLESS YOU ALL . WE LOVE EACH AND EVERY ONE OF YOU ! HUGGS LOVE DEBBIE , SUSAN AND TYLER AND ALL HIS FAMILY
Monday, January 9, 2006 10:43 AM CST
HELLO FRIENDS AND FAMILY , TYLER GOT DEDICATED TO THE LORD SUNDAY MORNING . BUT ... SUNDAY NIGHT AFTER HIS CLASS TO BETTER UNDERSTAND WHAT IT MEANT TO BE BAPTIZED THE PREACHER CAME IN THE ROOM AND SAID THE HEATER WENT OUT OF THE POOL THEY BAPTIZE IN CAUSE THE POWER MUST OF GONE OUT AND THE WATER WAS TOO COLD SO WE WILL GO BACK NEXT SUNDAY JAN 15TH TO BE BAPTIZED . WE WERE DISAPOINTED CAUSE THERE WERE LOTS OF PEOPLE SHOWED UP TO WITNESS IT . BUT THEY ALL SAID THEY WILL BE BACK NEXT SUNDAY . TYLER WAS SO ORNERY TOO AFTER HE GOT HOME . HE WAS REALLY SHOWING OFF CAUSE ALL THE PEOPLE WHO CAME TO CHURCH TO SEE HIM ALL WENT TO HIS HOUSE AFTERWADS TO VISIT WITH HIM . HE WAS ROTTON ORNERY . AFTERWARDS WHEN THEY ALL LEFT HE HAD TO TAKE MORPHINE CAUSE HE HAD LOTS OF PAIN . I BOUGHT HIM A FROG ...HE NAMED HIM TYLER ... TO GO IN THE FISH TANK WITH HIS BETA FISH KEVIN . BETAS WERE TO GET ALONG WITH THESE DAWRF FROGS THE PET STORE SAID AND SO DID TYLERS TEACHER . BUT WHEN THEY PUT TYLET IN WITH KEVIN KEVIN DID NOT LIKE SHARING HIS TANK . SO NOW TYLER SITS IN HIS BOWL SIDE BY SIDE WITH KEVIN AND THEY LOOK AT EACH OTHER . THEY CAN STILL KEEP ONE ANOTHER COMPANY BUT KEVIN HAD THE TANK ALL ALONE FOR SOME TIME NOW AND DOES NOT CARE TO SHARE IT . THAT IS FINE THO . TYLER WAKES UP EVERY MORNING AND SAYS GOOD MORNING KEVIN!! GOOD MORNING TYLER !!! IT IS CUTE . TYLER IS AT THE CLINIC TO DAY GETTING PLATLETS . THE OTHER DAY HE HAD BLOOD BLEEDING THRU THE SKIN ON HIS FINGERNAILS . THAT IS SCAREY WHEN THEIR PLATLETS DROP SO LOW SO FAST! TYLER IS STAYING WITH ME THIS WEEK END . I AM COUNTING DOWN THE DAYS AS I LOVE HIM SO MUCH! HE WANTS TO GO HUNTING . SO HIS GRANDPA IS TAKING HIM HUNTING IF HE FEELS LIKE IT . BUT TYLER LIKES TO SLEEP REALLY LATE AND TO GO HUNTING HE WILL HAVE TO GET UP EARLY . I WANT TO THANK ALL OF YOU AGAIN FOR ALL YOUR SIGNING TYLERS GUEST BOOK . HE LOVES TO READ THEM AND SO DO WE . THEY ALL TOUCH OUR HEARTS . EVERY ONE OF THEM . TYLER IS A LITTLE UPSET THAT THE BUCCANEERS LOST THEIR LAST GAME . HE CRIED AND COULD NOT EVEN FINISH HIS SUPPER . POOR LITTLE FELLOW . IT HURT US SO BAD . IF THE BUCCANEERS WOULD OF STAYED IN THE PLAYOFFS SOME PEOPLE WERE WORKING ON GETTING HIM TO TAMPA BAY TO MEET THE BUCCANEERS . HE LIKES RONNIE BARBER AND WANTS TO MEET HIM. AND STAN JONES WHO SIGNS TYLERS WEB PAGE???? HE WOULD SURE LOVE TO MEET AND TALK WITH YOU ALSO . YOU MADE A GREAT IMMPRESSION ON TYLER AND HIS FRIEND . IT WOULD BE GREAT IF THEY COULD MEET YOU AT THE NEXT RIB BURNOFF HALL OF FAME NEXT YEAR . GOD BLESS YOU ALL HUGGS FROM DEBBIE , SUSAN , TYLER AND TYLERS WHOLE FAMILY
Friday, January 6, 2006 10:14 AM CST
HELLO FRIENDS AND FAMILY, WE ARE SO OVERWHELMED AT ALL THE PEOPLE WHO HAVE STOPPED BY TO SIGN TYLERS GUEST BOOK . SO MANY PEOPLE AND FROM EVERYWHERE . IT IS JUST AMAZING OF ALL THE DIFFERNT STATES AND TOWNS EVEN IN OHIO YOU ARE ALL WRITTING TO HIM FROM. I CRY EVERY TIME I READ HIS MESSAGES . BUT THEY ARE TEARS OF JOY AS TO WONDERFUL PEOPLE AND ALL YOUR SUPPORT AND PRAYERS . YOU ALL MEAN THE WORLD TO US .THANK YOU ALL SO VERY MUCH! AND LISA WILLIS YOU ARE JUST SO AWESOME TO TELL ALL YOUR FRIENDS TO PRAY FOR TYLER AND TO SIGN HIS GUEST BOOK . WE KNOW THIS IS HARD ON YOU ALSO. GOD MUST HAVE SENT YOU TO US FOR A GOOD REASON! I JUST KNOW YOU MEAN AN AWEFUL LOT TO OUR FAMILY . MORE THEN WORDS CAN DESCRIBE. THANK YOU SO MUCH ! TYLER GETS BABTIZED SUNDAY NIGHT. PRAY HE WILL STAY FEELING WELL ENOUGH TO GO THRU WITH IT AS YESTERDAY HE WAS IN LOTS OF PAIN. HIS TUMMY HURT SO BAD HE WAS CRYING AND SWEATING . HE TOOK MORPHINE AND LAYED AND CUDDLED WITH HIS MOMMY AND BEARS AND IT FELT BETTER AFTER A WHILE . WE HATE TO SEE HIM IN PAIN . IT BREAKS OUR HEARTS . HE IS AT THE HOSPITAL CLINIC FOR BLOOD COUNTS TODAY TO SEE IF HE NEEDS PLATLETS . NEXT WEEK HE WILL GO ON THE GLEEVIC CHEMO PILL THAT HE HATES . PLEASE PRAY THAT HE WILL BE ABLE TO TAKE THE PILL . HE HAS SO MUCH TROUBLE TAKING IT . HE SHIVERS AND THROWS UP AND GETS HIMSELF ALL WORKED UP HOURS BEFORE HE TAKES IT . IT IS TERRIABLE. WE HAVE TRIED IT ALL WITH PUDDING , COCOA JELLY , ICECREAM, JUICE , EVEN HIDING IT IN FOOD . EVERY THING WE TRY HE WILL NOT EAT OR DRINK THAT FOOD ANY MORE . WE CAN NOT HAVE THAT AS HE IS LOEING WEIGHT LIKE CRAZY NOW . WE HAVE THE DRINKS LIKE ENSURE TO GIVE HIM AND HE WILL NOT DRINK THOSE EITHER . HE JUST CAN NOT STAND PILLS . HE WILL NOT TAKE THEM WHOLE SO WE HAVE TO CRUSH THEM AND HE TAKES THEM UNDERTHE TONGUE WITH WARM LIPTON TEA . NO OTHER TEA BUT LIPTON EITHER . SO PLEASE PRAY HE WILL DO OK THIS TIME BEING PUT BACK ON HIS GLEEVIC . POOR KID WAS PROMISED AFTER HIS BONE MARROW NO MORE CHEMO OR PILLS AGAIN. WHO EVER THOUGHT THIS WOULD HAPPEN . THREE ROUNDS OF CANCER FOR HIM .HE SAYS NOONE SHOULD EVER HAVE TO GO THRU ANY TYPE OF CANCER IT IS PURE TORTURE!! BLESS HIS HEART! GOD BLESS YOU ALL AND THANK YOU ALL AGAIN. LOVE DEBBIE , SUSAN AND TYLER AND ALL TYLERS FURRY BEAR FRIENDS!!! POOH BEAR , POPPA BEAR , MOMMA BEAR , BROTHER BEAR , SISTER BEAR , AND POOHS BUILD A BEAR GIRLFRIEND AND BABY POOH BEAR AND SISTER CINDY BEAR AND FUZZY WUZZY BEAR . I HOPE I GOT THEM ALL !!
Wednesday, January 4, 2006 7:57 AM CST
HELLO FRIENDS AND FAMILY, TYLER HAS AN APPOINTMENT THIS MORNING TO GET HIS VINCRISTINE CHEMO AND BLOOD CHECKED AND IF NEEDED PLATLET TRANSFUSION. HE HAS BEEN GETTING PLATLETS ABOUT EVERY THREE DAYS . HE WILL NEED LOTS OF THEM . THEY SAID THEY WERE SHORT ON THEM SO WE NEED PEOPLE TO DONATE MORE BLOOD NO MATTER WHERE YOU ARE THERE IS ALWAYS A NEED FOR BLOOD AND PLATLETS EVERY WHERE . YOU WOULD BE SAVING A LIFE EVERY TIME YOU DONATE . IT DOES NOT HAVE TO BE FOR TYLER IT CAN BE FOR ANYONE WHO NEEDS THEM . TYLER IS STILL IN GOOD SPIRITS . HE HAS LOTS OF PAIN BUT IS CURRENTLY TAKING MORPHINE FOR THAT . I HATE IT CAUSE HE GOES TO SLEEP A HALF HOUR AFTER HE TAKES IT AND HE SLEEPS A VERY LONG TIME . BUT I ALSO ON THE OTHER HAND DO NOT WANT TO SEE HIM IN PAIN EITHER .I HAVE BOUGHT HIM A HUGE TEDDY BEAR FOR CHRISTMAS AND HE CALLS HIM POPPA BEAR FOR HIS POOH BEAR AND HE WANTED ANOTHER BIG BEAR FOR THE MOMMA BEAR SO I BOUGHT HIM ANOTHER ONE . HE SPENT THE NIGHT WITH ME AND THE WHOLE BED WAS NOTHING BUT BEARS ! THERE WERE SIX BEARS IN THE BED AND I HAD TO REALLY LOOK TO FIND TYLER AS HE WAS ALL SURROUNDED . BUT I GUESS THEY ARE HIS SECURITY . HE TAKES THEM WHERE EVER HE STAYS . I ASK HOW HE WILL BE ABLE TO CARRY ALL THOSE BEARS AND HE REPLYED ..... THAT IS WHAT THEY MAKE BIG WHITE BAGS FOR GRANDMA!! I SAID WELL!! ALRIGHTY THEN .. HE SAID ALSO I CAN CARRY THEM IN A CLOTHS BASKET . SO I GUESS HE HAS IT ALL FIGURES OUT . TWO OF HIS FAVORITE FOOTBALL PLAYERS WENT TO SEE HIM YESTERDAY AND ONE OF HIS SCHOOL FRIENDS TOO. AND HIS SECOND AND THIRD GRADE TEACHERS VISITED WITH HIM WHEN HE WAS AT MY HOUSE SUNDAY. TYLER IS BEING BAPTIZED SUNDAY EVENING . PLEASE CONTINUE TO PRAY FOR HIS MIRCLE . WITH GOD ALL THINGS ARE POSSIABLE!!! THANK YOU ALL AND PLEASE SIGN TYLERS GUESTBOOK AS HE DOES READ THEM ALL. LOVE AND HUGGS DEBBIE, SUSAN, TYLER
Wednesday, December 28, 2005 6:40 AM CST
DEAR FRIENDS AND FAMILY, THIS IS TYLERS GRANDMA.... WE GOT SOME DEVASTATING NEWS YESTERDAY ABOUT TYLER. HE WENT TO CLINIC ON FRIDAY AND EVERYTHING WAS GOOD WITH HIM . THE DOCTOR SAID HE DID NOT HAVE TO COME BACK BUT ONCE A MONTH INSTEAD OF EVERY TWO WEEKS . TYLER EVEN ASK TO HAVE HIS MEDIPORT TAKEN OUT AND THEY SAID THAT WOULD BE AN OPTION THEY WOULD THINK ABOUT . THEN MONDAY HE SPIKED A 102 FEVER . SO HE WAS ADMITTED FOR TEST AND OUR WORST FEAR WAS CONFIRMED ! TYLERS CANCER HAS RETURNED. HE WAS PUT ON PALIMENT CARE (HOSPICE CARE) HE WILL HAVE OUT PATIENT CHEMO AND PAIN MEDS . IT WILL SLOW THE LUEKEMIA DOWN BUT WILL NOT PUT HIM IN REMISSON. I WONDER??? WHAT KIND OF PAIN MEDS ARE THEY WILLING TO OFFER TO MEND A BROKEN HEART? THE PAIN WE ARE ALL FEELING IS UNTOUCHABLE. PLEASE PRAY FOR TYLER TO BE HEALED ONCE AGAIN . HE DOES NOT AND WILL NOT GIVE UP THIS FIGHT . HE HAS PLANS HERE . PLEASE PRAY HE CAN FULFILL HIS DREAMS . PLEASE SIGN HIS GUESTBOOK AND LET HIM KNOW YOU CAME BY. HUGGS FROM ALL OF US TO YOU
Friday, December 16, 2005 9:59 AM CST
Hello everyone, Tyler is doing better from the last time I wrote. He seems to have pased his kidney stone. He really bruises alot lately. His platlets have been good, but he has beuises all over his legs more then he has ever had in his history of being sick.He is still rotton ornery too... He loves to play his dad and I like the fiddle.The other day he put stickers on me that his teacher from 3rd grade got him. These stickers have his name on them and it also came with a stamper that says Tyler.Well you guessed it he stamped me and put stickers on me and told his step- dad that I belonged to him!!! He told Tim that he owned me!! Imagine that (He He). I am back in school now and he don`t like that either. But he will get used to it .He misses the Tiger games alot. He is counting down until next season. He goes to clinic now once a month, and he is very excited about that!!I think that is about it for now. Merry Christmas and God Bless!!!
until next time....
Tuesday, December 6, 2005 12:26 AM CST
HELLO ALL, I HAD TO RUN TYLER TO THE HOSPITAL LAST NIGHT. HE WOKE UP IN SEVERE PAIN AND WAS VOMITING.HE WAS CRYING FOR ME TO TAKE HIM TO AKRON FOR PAIN MEDS. I KEPT CALLING THE DOC, AND HE TOLD ME TO GIVE HIM PAIN MEDS ,AND I DID. BUT THEY DID NOT WORK. HE COULD'NT SIT OR LAY DOWN. SO I TOOK HIM IN AND AS I WAS ON MY WAY SUE CALLLED TO TELL ME TO TAKE HIM IN TO THE ER. I TOLD HER I WAS ALREADY HALF WAY THERE. THE DOCS WERE NOT SURE WHAT WAS CAUSING THE PAIN AT FIRST. AFTER ABOUT THREE HOURS IN THE ER, THEY TESTED HIS URINE AND FOUND OUT HE HAD BLOOD IN IT. SO THEN THEY SENT HIM FOR A CAT SCAN. IT TURNS OUT HE HAS A KIDNEY STONE!!!! MY POOR BABY AS IF HE HASN`T SUFFERED ENOUGH!! SO NOW FOR THE NEXT 48 HOURS I HAVE TO SCREEN HIS URINE FOR THE STONE AND TAKE IT IN TO THE CLINIC.HE IS ON PAIN MEDS TOO. HE HAS TO GO BACK TO THE CLINIC WEDS. AFTERNOON TO CHECK NO HIS KIDNEYS NOW. THEY FLUSHED HIM WITH A BIG BAG IF IV FLUID.I WILL LET YOU KNOW HOW IT ALL TURNS OUT. UNTIL NEXT TIME.......
Friday, December 2, 2005 2:02 PM CST
HELLO ALL, TYLER WENT TO THE DOCTOR TODAY. HIS COUNTS WERE ALL GOOD! INFACT, HE HAD TO GET HIS FINGER POKED TWICE BECAUSE THEY SAID HIS PLATLETS WERE SO GOOD THAT HE CLOTTED UP. HE IS SO VERY EXCITED ABOUT TOMORROWS GAME. HE SAID NOTHING OR NO ONE WILL STOP HIM FROM GOING TO SEE HIS TIGERS WIN. THIS SUN, TIM HAS A CHRISTMAS PARTY IN CLEVLAND FOR THE ARMY SO WE ARE TAKING THE KIDS TO THAT. TYLER LOVES HELICOPTERS AND ARMY TANKS SO HE WILL HAVE FUN I`M SURE.HE GOES BACK IN TWO WEEKS FOR ANOTHER CBC AND TO GET HIS MONTHLY DOSE OF HIS LUNG INHALER. THEN HE IS GOING TO GO ONCE A MONTH. OHHHHH BOY!!! HE IS VERY HAPPY ABOUT THAT. WELL UNTIL NEXT TIME HUGS TO ALL.....
Wednesday, November 23, 2005 2:35 PM CST
HELLO EVERYONE!!!! THIS IS SUSAN ,AND I WANT TO LET YOU ALL KNOW THAT WE ARE ALL DOING WELL. TYLER IS LOOKING FORWARD TO THE HOLIDAYS. HIS STEPDAD AND I TOOK HIM TO GET A HAIR CUT TODAY. THEY GAVE IT TO HIM FOR FREE, SEE IT WAS HIS FIRST CUT IN ABOUT TEN MONTHS. HE HAD ME BUY EXTRA PIES TODAY FOR DINNER TOMORROW. I AM VERY EXCITED ABOUT THANKSGIVING. WE HAVE SO MUCH TO BE THANKFUL FOR THIS YEAR.HE ALSO HELPED US PUT UP THE TREE LAST NIGHT. I TOOK PICS OF HIM AND TIME(MY NEW HUBBY).I WAS SO HAPPY AND IN THE SPIRIT.WELL ANOTHER WIN FOR MASSILLON LAST WEEK AND YOU GUESSED IT TYLER IS GOING TO THIS GAME TOO.WELL THATS ABOUT IT. HUGS TO YOU ALL. UNTIL NEXT TIME......
Monday, November 14, 2005 9:56 AM CST
HELLO FRIENDS AND FAMILY . TYLER WENT TO THE CLINIC FRIDAY AND HIS COUNTS ARE ALL UP AND HE IS FEELING GREAT!!!! HIS HAIR CAME IN BLONDE AND HE SAYS HE NEEDS A HAIRCUT . THE HAIR IS OK ALL OVER HIS HEAD EXCEPT IT HANGS OVER HIS EARS AND HE NEEDS A TRIM . HE HAS NOT MISSED BUT ONE BALL GAME THIS SEASON . HE GOES TO ALL THE PLAYOFF GAMES TOO. YOU WOULD NEVER KNOW HE WAS SICK BY LOOKING AT HIM . HE LOST WEIGHT THO HE WAS 107 NOW HE IS 95 POUNDS AND IS 4 FOOT 9 AND A QUARTER. HE IS A HANDSOME LITTLE GUY!!! THANK YOU FOR ALL YOUR PRAYERS ! KEEP TYLER IN YOUR PRAYERS SO HE WILL STAY IN REMISSON . HUGGS TO YOU ALL DEBBIE , SUSAN AND TYLER AND ALL TYLERS FAMILY
Tuesday, November 1, 2005 7:14 AM CST
HELLO FRIENDS AND FAMILY, TYLER IS DOING GREAT AND LOOKS SO HANDSOME. HE IS GROWING HIS HAIR BACK AND IT WAS COMEING IN BLACK BUT IT TURNED BLONDE!! HE LOOKS SO CUTE BUT OF COURSE STILL ORNERY AS EVER! I WANT TO THANK THE PERSON WHO SENT TYLER A BOX OF PRESENTS TO MY ADDRESS . I DO NOT KNOW WHO YOU ARE AS YOU USED A MAGIC MARKER FOR YOUR RETURN ADDRESS AND THE LETTERS RAN TOGATHER AND I COULD NOT MAKE THEM OUT . ALL I KNOW IS BY THE ZIP CODE YOU ARE NOT HERE IN OHIO . ANY WAY HERE IS A STORY FOR YOU ALL. TYLERS DADDY DID NOT WANT TO COME TO MY HOUSE TO PICK UP THE PACKAGE SO I TOOK IT TO TYLERS HOUSE AND I TOOK HIM SOME HALLOWEEN CANDY I SAVED FOR HIM. HE ASK ME TO OPEN HIS BOX FOR HIM . NOW I WAS IN MY ASTRO MINI VAN AND HE WAS STANDIND OUTSIDE ON THE PASSENGER SIDE OF MY VAN AND THE WINDOW WAS DOWN . I OPENED THE BOX AND FIRST THE WAS THREE SETS OF COMICAL FALSE TEETH FOR HALLOWEEN THEN THERE WAS A PACKAGE OF BUTTERFLYS AND LEAVES . THEN I PICKED UP A SORT OF LONG OBJECT AND IT SORT OF MOVED AND FELT FUNNY . I WAS NOT LOOKING AT THE OBJECT AT THE TIME . I WAS LOOKING AND TALKING TO TYLER . I LOOKED DOWN AT WHAT I WAS HOLDING IN MY HAND AND IT WAS A FAKE BUT REALISTIC LOOKING SNAKE!!!! NOW LE\T ME TELL YOU I AM SCARED TO DEATH OF SNAKES AND I MEAN PASSING OUT COLD CHILLS HEART ATTACK SCARED TO DEATH OF SNAKES!!!! I THREW THAT SNAKE AND BOX CLEAR TO THE OTHER SIDE OF THE VAN AND IT HIT THE FLOOR AND I JUMPED OUT OF THAT VAN AND SLAMMED THE DOOR ! I WAS SCREAMING TO TYLER TO GET IT OUT OF MY VAN GET IT OUT NOW HURRY AND GET THAT THING OUT OF MY VAN NOW!!!! HE WAS LAUGHING SO HARD AND TRING TO TELL ME HE COULD NOT OPEN THE DOOR AS IT WAS LOCKED ! I JUST KEPT TELLING HIM TO GET IT GET IT NOW . I FINALLY HEARD HIM BETWEEN ALL HIS LAUGHING THAT THE DOOR WAS LOCKED ! I OPEND MY DOOR CLICKED HIS DOOR LOCK OPEN AND SAID NOW GET IT !! AFTER HE GOT IT I WAS STILL SHIVERING AND I SAID TO HIM I WILL NEVER EVER OPEN ANOTHER PACKAGE FOR YOU . HE SAID WHY ??? I SAID CAUSE I WILL NEVER EVER ENCOUNTER THAT EXPERINCE AGAIN ! HE WAS LAUGHING SO HARD AND CALLED EVERY ONE TO TELL THEM . OF COURSE ANY ONE WHO KNOWS ME KNOWS I DO NOT LIKE SNAKES OR ANY DARN REPTILES OF ANY SORT . SO I IMAGINE EVERY ONE GOT A LAUGH FROM TYLERS SURPRISE PACKAGE . I TOLD TYLER I CAN NOT IMAGINE THAT THING SITTING ON MY TABLE ONE HOUR BEFORE I DELIVERED IT TO HIM THEN IT RIDING IN MY CAR TO HIS HOUSE THEN ME TOUCHING IT!! OH YUKKY YUCCKY SCREECHHHHHHH!!! SO I DO NOT THINK WHO EVER YOU ARE THAT YOU MEANT FOR ME TO OPEN THE BOX AND TO SCARE THE DAYLIGHTS OUT OF ME BUT JUST WANTED TO SHARE THE STORY WITH YOU AND LET YOU KNOW WHOM EVER YOU ARE TYLER RECIEVED YOUR GIFT YESTERDAY AND HE THANKS YOU WITH ALL HIS HEART . THAT REALLY WORKED OUT GREAT FOR HIM FOR ME TO SEE THAT SNAKE AS MY GRANDSONS ALL WANT TO TORTURE ME WITH FAKE SNAKES AND I TELL THEM HOW EXTREMELY SCARED I AM AND I COULD PASS OUT AND GET HURT OR HAVE HEART FAILURE IF THEY DO THAT TO ME . SO THIS WAS A WAY TO DO IT TO ME AND NOT GET ANY BLAME AT ALL !!YOU MADE TYLERS DAY WHO EVER SENT HIM THAT BOX!! I ALSO THANK YOU FOR THINKING OF TYLER BUT YOU MAY EMAIL ME AND I WILL GIVE YOU TYLERS ADDRESS SO YOU CAN SEND HIS PACKAGE DIRECTLY TO HIM . THAT WAS ONE SCARE TO MANY FOR ME . ANY HOW TYLER IS GREAT AND IS BEING TUTORED AT HOME AND LOVES HIS TEACHER .PLEASE CONTINUE TO KEEP HIM IN YOUR PRAYERS TO STAY IN REMISSON. AS WE WILL CONTINUE TO PRAY FOR ALL OF YOU AND KEEP YOU ALL IN OUR PRAYERS . HUGGS STILL SHAKEING AND CHILLED TO THE BONE DEBBIE (TYLERS GRANDMA)
Monday, October 24, 2005 1:29 PM CDT
HELLO FRIENDS AND FAMILY, TODAY IS TYLERS BIRTHDAY ! HE IS ELEVEN TODAY . HE IS GROWING SO FAST. BUT THANK THE LORD FOR ANSWERING ALL OUR PRAYERS AND HEALING TYLER. HE WENT TO THE CLINIC FRIDAY AND HIS POTASSIUM IS LOW BUT ALL HIS OTHER COUNTS ARE OK. HE GOT HIS MEDIPORT FLUSHED AND HE TOLD ME HIS NEW MEDIPORT WORKS GOOD! HE WAS SCARED CAUSE HIS OLD ONE THAT THEY REMOVED WAS A SMALL ONE AND IT CAUSED HIM PAIN AS HIS MUSCLE AND TENDENTS GREW AROUND IT . WELL PLEASE SIGN TYLERS GUEST BOOK AND WISH HIM A HAPPY BIRTHDAY AS IF IT WERE NOT FOR ALL YOUR PRAYERS EACH AND EVERY ONE OF YOU TYLER COULD NOT OF MADE THIS JOURNEY HE HAS . IT IS ALL DO TO THE DOCTORS AND NURSES AND ALL OF YOUR SUPPORT AND PRAYERS AND LOVE THAT HAS GOTTON TYLER THRU ALL THIS . AND THANK YOU ALL AGAIN AND AGAIN AND MAY GOD BLESS EACH AND EVERY ONE OF YOU!!! HUGGS DEBBIE , SUSAN AND TYLER AND ALL TYLERS FAMILY
Friday, October 14, 2005 5:52 AM CDT
HELLO EVERYONE, GREAT NEWS!! TYLER IS DOING GREAT!! HE IS GONE TO HAVE HIS PORT CLEANED TO DAY AND HIS BLOOD COUNTS CHECKED . THEN HE WILL BE GONE TO THE FOOTBALL GAME. HE HAS BEEN GONE OUT ON THE FOOT BALL FIELD WITH THE PLAYERS EVERY GAME . THEY LOVE TYLER AND THEY CARRY HIM ON THEIR SHOULDERS WHEN THEY WIN AND SAY THEY WON IT FOR TYLER . WE ARE UNDEFEATED SO FAR . WE ARE DOING GREAT THIS YEAR BUT IT IS MCKINLEY WE REALLY HAVE TO BEAT AND THEY HAVE WON ALL THEIR GAMES TOO . SO I SURE HOPE TYLER CAN BE OUR MASSILLON FOOTBALLS LUCKY CHARM THIS YEAR. TYLERS FISH KEVIN IS DOING GREAT! WELL WE LOVE YOU ALL AND KEEP PRAYING FOR TYLER TO STAY IN REMISSION! HUGGS DEBBIE
Tuesday, October 4, 2005 10:01 AM CDT
HELLO FRIENDS AND FAMILY, TYLER IS DOING GREAT. THANK YOU JESUS AND THANK ALL OF YOU FOR ALL YOUR PRAYERS. HE WILL BE GETTING TUTORED AT HOME THRU A COMPUTER HOOKED UP IN HIS HOUSE DIRECTLY INTO SCHOOL. HE IS EATING AND DRINKING AND LOOKS GREAT. HE HAD A GREAT TIME SATURDAY IN PARMA AT THE FOOTBALL GAME WE PLAYED ST. IGNOTIOUS AND NEVER BEAT THEM IN EIGHT YEARS . WE BEAT THEM SAT 29- 26 . MASSILLON WAS SO HAPPY . TYLER GOT TO GO DOWN TO THE FOOTBALL PLAYERS LOCKER ROOM WITH THEM BEFORE AND AT HALF TIME AND AFTER THE GAME. HE TOLD THEM TO WIN THIS GAME FOR HIM . THEY DID AND THEY PICKED TYLER UP OVER THEIR SHOULDER AND ALL CHANTED THAT THEY WON THE GAME FOR TYLER! THEY ARE GETTING HIM A FOOTBALL WITH OBIE THE TIGER ON IT AND ALL SIGNING IT AND GIVING IT TO HIM. AFTER THE GAME THE POLICE PUT UP ROAD BLOCKS AND MASSILLON CHEERED THE FOOTBALL PLAYERS AS THEY RODE THRU TOWN ON THE RETURN HOME DOWN TOWN. IT WAS AWESOME. WE ARE UNDEFEATED SO FAR!! I AM SO HAPPY FOR BRETT HUFFMAN AND TROY ELLIS AS THEY ARE SENOIRS THIS YEAR AND TYLERS IDOLS . THEY TREAT TYLER GOOD AND SPECIAL AND I WANT SO MUCH FOR THEM TO BE UNDEFEATED AND WIN ALL THEIR GAMES AND WIN THE PLAYOFFS . IT WILL BE A YEAR TO REMEMBER FOR THEM AND TYLER! SO THINGS ARE CERTAINLY GONE IN TYLERS FAVOR ALL THE WAY AROUND . THANK YOU ALL FOR HELPING MAKE THAT HAPPEN. PLEASE PRAY FOR HATTI AS SHE IS BACK IN THE HOSPITAL AND PRAY FOR TRISIA AND Emily to start feeling well also and for their comlete healings . Kyle Tylers other friend from poland who has brain tumors is doing good too. scans show no growing of the tumors . god bless you all and Lisa , Greg and Emily we Love you and are praying for you daily. LOVE DEBBIE , TYLER AND SUSAN
Friday, September 30, 2005 8:44 AM CDT
HELLO FRIENDS & FAMILY, TYLER IS DOING SO MUCH BETTER !!!! HE WAS GONE TO THE CLINIC EVERY OTHER DAY NOW IT IS DOWN TO ONCE A WEEK. ALL HIS COUNTS ARE GONE UP SO HE DOES NEED ANY TRANSFUSIONS AS OF NOW. THANK YOU JESUS TYLER IS GETTING BETTER . AND NOT WITH OUT ALL YOUR PRAYERS ! THANK YOU EACH AND EVERYONE OF YOU... THANK YOU SO MUCH. I PRAY THAT GOD WILL DO SOMETHING SPECIAL FOE EACH AND EVERYONE OF YOU FOR PRAYING FOR TYLER AND HELPING HIM THRU THIS .YOU ALL ARE SO SPECIAL. TYLER WILL BE GONE TO THE GAME SATURDAY WITH HIS DAD AND HE INVITED CJ AND MARISSA TO GO WITH HIM. THANK YOU MRS. SIMINETTI FOR SIGNING TYLERS GUEST BOOK AND DEBBIE SMITH TOO. I WILL ASK HIS MOMMY TO ASK THE DOCTOR IF TYLER CAN MAKE A SHORT VISIT TO THE SCHOOL TO SAY HI TO EVERYONE . HIS FISH KEVIN IS DOING GREAT. THAT FISH HAS A PERSONAILTY . IT SWIMS ALL OVER THAT TANK WATCHING EVERY MOVE THAT ANYONE MAKES. IT HAS TO BE ABLE TO SEE PEOPLE WHEN THEY ARE IN THE ROOM. IT IS SO CUTE WATCHING HIM WATCH TYLER AND HIS MOMMY. THEY TALK TOO HIM AND HE ACTS LIKE HE IS LISTENING . WELL WILL UPDATE AGAIN SOON. UNTILL THEN GOD BLESS YOU ALL AND PLEASE CONTINUE PRAYING FOR TYLER TO GET ALL BETTER AND PLEASE PRAY FOR ALL THE OTHER SICK CHILDREN AND FOR OUR ANGELS WHO HAVE EARNED THEIR WINGS. MAY GOD BLESS THEM. HUGGS DEBBIE AND TYLER AND HIS FAMILY
Tuesday, September 27, 2005 8:53 AM CDT
HELLO FRIENDS AND FAMILY, GREAT NEWS! TYLER WENT TO THE CLINIC YESTERDAY AND THEY TOOK OUT HIS IV LINE . HE IS DRINKING AND EATING ENOUGH NOW THAT HE WILL NOT NEED IT . HE DOES NOT EAT ALOT BUT IS ASKING FOR DIFFERNT FOODS NOW AND IS STARTING TO DRINK MORE . THANK YOU FOR PRAYING .WE NEVER COULD OF COME THIS FAR WITHOUT ALL OF YOU AND ALL YOUR PRAYERS AND SUPPORT. TYLER WANTS HIS DAD TO TAKE HIM OCTOBER 23RD TO SIX FLAGS FOR HIS BIRTHDAY . HIS BIRTHDAY IS OCTOBER 24TH. HE WILL BE ELEVEN . HIS MOMMY AND TIM ARE DOING GREAT . AND HIS MIDDLE BROTHER JUST TURNED FIFTEEN SEPT 19TH. AND OH MY GOODNESS HIS OLDEST BROTHER JUSTIN WILL BE EIGHTEEN MARCH 31ST. TIME FLYS . I STILL REMEMBER THE DAY HE WAS BORN! WELL REMEMBER TO KEEP KEVIN WILIS FAMILY IN YOUR PRAYERS . WITH ALL THE HOLIDAYS COMING UP THEY NEED OUR SUPPORT AND PRAYERS .ALSO KEEP HATTI , KYLE , CAITLIN, TRISIA AND EMILY ALL IN YOUR PRAYERS. GOD BLESS YOU ALL. REMEBER TO SIGN TYLERS GUEST BOOK AS HE DOES GET TO READ THEM. HUGGS FROM TYLERS FAMILY TO ALL OF YOU
Friday, September 23, 2005 6:40 AM CDT
HELLO EVERYONE, TYLER DID WELL SPENDING THE NIGHT AT MY HOUSE . HE IS STILL ASLEEP IN GRANDMAS BED. HE WATCHED A MOVIE LAST NIGHT AND TV . HE WAS STILL UP WHEN I WENT TO BED . I WAITED TILL HE FELL ASLEEP TO GO TO BED BUT HE GOT BACK UP AND WAS WATCHING TV AFTER I WENT TO BED . HE ATE TACO BELL BEFORE HE CAME TO MY HOUSE . THEN HE WANTED PIZZA ROLLS SO I MADE THEM THEN HE WANTED A PEANUT BUTTER MIRCLE WHIP SANDWISH SO I GAGGED AND MADE HIM THAT AND HE ATE HALF OF IT . AND HE DRANK ALMOST A FULL GLASS OF WATER . YEAH!! I WAS PROUD OF HIM. HE NEEDS TO EAT AND DRINK MORE SO HE CAN GET RID OF HIS IV FLUIDS . THE IV FLUIDS ARE WHAT IS KEEPING HIM OUT OF THE HOSPITAL. I AM GONE TO LEARN HOW TO HOOK HIM UP TO THEM AND UNHOOK THEM SO HIS MOMMY CAN GET SOME SPARE TIME TO SPEND TIME WITH HER NEW HUBBY. THEY RENTED A MOVIE AND WENT OT GET A ICECREAM SUNDAY . SO THAT WAS A NICE EVENING FOR THEM WHILE TYLER WAS HERE WITH ME . HE WILL BE HERE MOST OF THE DAY SO HIS MOMMY AND TIM CAN HAVE A DAY TOGATHER . THEN I THINK MAYBE TYLER AND HIS DADDY WILL BE GONE TO THE FOOTBALL GAME TONIGHT. SO FAR WE ARE UNDEFEATED . WELL I HAVE ONE BABY HERE NOW AND THREE MORE TO COME . I BABYSIT FOUR BABYS TO FOUR DIFFERENT FAMILYS . SO COUNTING TYLER I WILL HAVE FIVE KIDS HERE TODAY. GOD BLESS YOU ALL . CONTINUE TO SIGN TYLERS GUEST BOOK AS HE LOVES READING IT . AND HE IS HERE TODAY SO HE CAN GET ON HERE AND READ ALL HIS MESSAGES !!!! HUGGS FROM TYLER , AND ALL HIS FAMILY
PLEASE PRAY FOR CAITLIN AS SHE FELL AND HURT HER LEG AGAIN AND PRAY FOR LITTLE HATTI CAUSE SHE IS IN THE HOSPITAL FOR CHEMO AND PRAY FOR EMILY THAT ALL HER COUNTS STAY UP AND PRAY FOR TRISHA THAT HER PLATLETS COME UP AND THAT HER CHEMO GOES WELL TODAY AND SHE DOES NOT GET SICK. MAY GOD BLESS ALL THESE KIDS AND ALL THEY GO THRU AND THEIR PARENTS AS THEY TAKE CARE OF THEM . IT IS A REAL BIG JOB CARING FOR THESE SICK KIDS . YOU NEVER KNOW ONE MINUTE TO THE NEXT WHAT WILL HAPPEN FROM A FEVER TO NEEDING PLATLETS OR BLOOD . THERE IS ALWAYS A HIDDEN SURPRISE SOMEWHERE AND THESE KIDS AND PARENTS LIVE IN HOSPITALS ... SO PLEASE PRAY FOR THEIR COMPLETE HEALINGS!!! ALSO PRAY FOR KYLE WHO WILL BE GETTING A CAT SCAN TODAY TO SEE IF HIS BRAIN TUMORS HAVE SHRUNK ANY. PRAY THEY DID AS HE IS ONLY SEVEN YEARS OLD. THANK YOU!!
Thursday, September 22, 2005 5:25 PM CDT
HELLO EVERYONE, TYLER HAD TO GET PLATLETS TODAY. THE NURSE SAYS HIS BONEMARROW LOOKS GOOD . GREAT NEWS HUH??? KEEP PRAYING IT STAYS IN REMISSION. HE HAS BEEN ASKING TO COME TO MY HOUSE ALOT . HE IS COMEING TONIGHT TO SPEND THE NIGHT . PRAY FOR ME AS I HAVE TO GET UP AND BABY SIT AT 5 AM TOMORROW AND THAT LITTLE BURGER LIKES TO STAY UP LATE . BUT I WOULD LOSE AN ALL NIGHT OR ALL WEEK SLEEP JUST TO HAVE HIM HEALTHY ENOUGH TO WANT TO COME SPEND THE NIGHT WITH HIS GRANDMA . PRAISE GOD ! I LOVE THAT LITTLE FELLA ! THANK EACH AND EVERY ONE OF YOU FOR ALL YOUR SUPPORT AND PRAYERS . TYLER COULD NOT OF WENT THRU ALL THIS WITHOUT EACH AND EVERYONE OF YOU. GOD BLESS YOU AND I PRAY FOR GOD TO BE EXTRA KIND TO ALL OF YOU FOR BEING BY OUR SIDE THRU ALL OF THIS . GOD BLESS TILL NEXT TIME AND CONTINUE TO SIGN TYLERS GUEST BOOK AND CONTINUE TO PRAY FOR ALL THE SICK KIDS AND FOR THE ONES WHO HAVE GOTTON THEIR ANGEL WINGS AND FOR THE PARENTS OF THEM ALL TO GET THRU THIS VERY TUFF TIME . PEACE BE WITH THEM ALL AND GOD BE WITH YOU ALL HUGGS AND LOTS OF LOVE FROM TYLER AND HIS FAMILY
Thursday, September 22, 2005 5:25 PM CDT
HELLO EVERYONE, TYLER HAD TO GET PLATLETS TODAY. THE NURSE SAYS HIS BONEMARROW LOOKS GOOD . GREAT NEWS HUH??? KEEP PRAYING IT STAYS IN REMISSION. HE HAS BEEN ASKING TO COME TO MY HOUSE ALOT . HE IS COMEING TONIGHT TO SPEND THE NIGHT . PRAY FOR ME AS I HAVE TO GET UP AND BABY SIT AT 5 AM TOMORROW AND THAT LITTLE BURGER LIKES TO STAY UP LATE . BUT I WOULD LOSE AN ALL NIGHT OR ALL WEEK SLEEP JUST TO HAVE HIM HEALTHY ENOUGH TO WANT TO COME SPEND THE NIGHT WITH HIS GRANDMA . PRAISE GOD ! I LOVE THAT LITTLE FELLA ! THANK EACH AND EVERY ONE OF YOU FOR ALL YOUR SUPPORT AND PRAYERS . TYLER COULD NOT OF WENT THRU ALL THIS WITHOUT EACH AND EVERYONE OF YOU. GOD BLESS YOU AND I PRAY FOR GOD TO BE EXTRA KIND TO ALL OF YOU FOR BEING BY OUR SIDE THRU ALL OF THIS . GOD BLESS TILL NEXT TIME AND CONTINUE TO SIGN TYLERS GUEST BOOK AND CONTINUE TO PRAY FOR ALL THE SICK KIDS AND FOR THE ONES WHO HAVE GOTTON THEIR ANGEL WINGS AND FOR THE PARENTS OF THEM ALL TO GET THRU THIS VERY TUFF TIME . PEACE BE WITH THEM ALL AND GOD BE WITH YOU ALL HUGGS AND LOTS OF LOVE FROM TYLER AND HIS FAMILY
Sunday, September 18, 2005 12:53 AM CDT
HELLO FRIENDS AND FAMILY, TYLER SPENT TWO DAYS IN THE HOSPITAL AFTER HIS MEDIPORT SURGERYS. THE MUSCLE AND TISSUES WRAPPED AROUNG TYLERS PORT AND THE DOCTOR HAD TO MAKE FIVE CUTS TO REMOVE THE MEDIPORT IN PROCESS HE FRACTURED THE PORT TO GET IT OUT. TYLER NEEDED BLOOD AND PLATLETS AND MORPHINE FOR PAIN MANAGEMENT. ALSO HE GOT A FEVER THURSDAY MORNING 2 AM SO THAT MEANT ANOTHER DAY IN THE HOSPITAL. HE IS VERY SORE . HE DID HOWEVER GO TO THE MASSILLON FOOTBALL GAME THANKS TO A NICE FAMILY GIVING UP THEIR PRESS BOX SEATS TO TYLER AND HIS DADDY. THE LOCAL NEWSPAPER WAS THERE TALKING TO TYLER AND TAKING PICTURES OF HIM THEY PRINTED AN ARTICLE ABOUT TYLER WITH TWO OF HIS BEST FOOTBALL PLAYERS TROY ELLIS AND BRETT HUFFMAN. HE GOT TO GO OUT ON THE FIELD AND THE THE FOOTBALL PLAYERS CAME RUNNING TO HIM TAKING TIME OUT OF THEIR WARM UPS . TYLER GOT TO STAY ALL BUT THE LAST FIVE MINTUES OF THE GAME AS HE HAD ONLY BEEN RELEASED A FEW HOURS FROM THE HOSPITAL THAT DAY. TYLER WENT TO THE CINCICNATI MASSILLON GAME AND MASSILLON MANSFIELD GAME . HE HAS ONLY MISSED ONE GAME AND THAY WAS MASSILLON DOVER HOME GAME CAUSE HE WAS STILL IN CINCINATI HOSPITAL. HIS MOMMY HAS TO HOOK HIM UP TO AN IV EVERY NIGHT ALL NIGHT AS HE STILL IS LOW ON POTASSIUM AND HE STILL IS NOT DRINKING NOR EATING ENOUGH. SO CONTINUE TO PRAY HE WILL EAT AND DRINK. HE WANTS TOO HIS BODY JUST REJECTS IT . ALSO PRAY HE WILL STAY CANCER FREE. WELL GREAT NEWS !!! HIS MOMMY SUSAN AND TIM GOT MARRIED SATURDAY SEPT 17TH FOUR PM. TYLER MADE A SONG UP LIKE THE BRADY BUNCH THAT HIS FAMILY AND TIMS KIDS HAVE NOW COME TOGATHER AS ONE FAMILY . IT WAS CUTE AND MADE TIM HAPPY .HE ALSO SAID HIS BEAR POOBEAR NOW HAS A STEP GRANDPA. TIM SAYS HE IS HONORED TO BE POOBEARS STEP GRANDPAPPY!! SO ALL IS WELL ON THE HOME FRONT. YEAH!!!! GREAT NEWS HUH!!! TYLER IS IN REMISSION AND HIS MOMMY FOUND TRUE LOVE . WHAT MORE CAN A FAMILY ASK FOR? AND LISA AND GREG WILLIS THANK YOU FOR TAKING TIME TO COME BY TYLERS SITE AND CHECK ON HIM AND SIGN HIS GUEST BOOK. WE LOVE YOU AND ARE AND WILL ALWAYS KEEP YOU AND YOUR FAMILY IN OUR PRAYERS. AND TO ALL THE SICK KIDS AND KIDS IN REMISSION AND TO ALL OUR KIDS WHOM HAVE EARNED THEIR ANGEL WINGS WE LOVE YOU ALL. GOD BLESS YOU EACH AND EVERY ONE OF YOU. LOVE TYLER AND HIS FAMILY
Thursday, September 15, 2005 7:33 AM CDT
HELLO FRIENDS AND FAMILY. TYLER HAD HIS SURGERY YESTERDAY TO REMOVE HIS BROVIACAND MEDIPORT AND TO PUT IN A NEW MEDIPORT. THE DOCTOR RAN INTO A PROBLEM. TYLERS MUSCLE AND AND TISSUE GREW AROUND HIS MEDIPORT AND THE DOCTOR HAD TO MAKE A LONGER INCISION AND OTHER CUTS TO REACH THE MEDIPORT AND TO GET IT OUT OF HIM HE EVEN FRACTURED THE OLD MEDIPORT HE SAID. SO HE KEPT TYLER IN THE HOSPITAL OVER NIGHT FOR PAIN MANAGEMENT AND TO WATCH HIS PLATLETS. POOR FELLA ALWAYS HAS SOME KIND OF PROBLEM. THAT IS WHY TYLER HAD SO MUCH PAIN IN THAT OLD MEDIPORT. THE NEEDLE HAD GOTTON STUCK IN IT AND CINCINATI HURT HIM WHEN THEY TRIED TO USE THE MEDIPORT OR FLUSH IT. IT CAUSE TREMEMDOUS PAIN FOR TYLER FOR IT TOO BE TOUCHED IN ANY WAY. THAT IS WHY THEN CAUSE HIS MUSCLES GREW OVER IT . WELL WE ARE HAPPY THAT IS OVER. NOW IF WE CAN KEEP HIM EATING AND DRINKING AND STOP GETTING SICK , HE WILL BE OK. HE IS STILL BEING HOOKED TO IV AT NIGHT . HIS POTASSIUM IS VERY LOW, SO HE GETS IT IN THE IV AND IS TOO TAKE TWO PILLS AT NIGHT BUT HE CAN NOT TAKE THEPILLS AS HE WILL THROW THEM RIGHT BACK UP. WELL KEEP PRAYING FOR HIM AND SIGN HIS GUEST BOOK PLEASE TO SHOW HIM YOU STOPPED BY. GOD BLESS YOU ALL HUGGS FROM TYLER FAMILY
Sunday, September 11, 2005 2:35 PM CDT
HELLO FRIENDS AND FAMILY, TYLER IS STILL NOT DOING WELL . BLESS HIS HEART. HE WILL NOT EAT NOR DRINK YET. NO MATTER WHAT HE IS OFFERED OR WHAT HE ASK FOR HE JUST CAN NOT SEEM TO TOLORATE ANY THING . SO HE HAS TO BE HOOKED UP TO AN IV EVERY EVENING ALL NIGHT LONG TO GET FLUIDS IN HIM. HE HAS LOST FIVE POUNDS IN A WEEK ALREADY. HE WILL BE HAVING SURGERY EITHER WED OR THURSDAY, THE HOSPITAL TELLS HIS MOM THURSDAY BUT THEN TELL HIS DAD WED SO I DO NOT KNOW WHAT DAY FOR SURE IT WILL BE. TYLER HAD A GOOD TIME AT HIS FUNDRAISER. WE DID NOT STAY FOR ALL OF IT AS HE WAS GETTING COLD AND HE WAS VERY TIRED AND NOT FEELING WELL HE HAD THROWN UP THAT MORNING AND AFTERNOON BEFORE HE WENT. THEY WILL BE PUTTING A TUBE EXCESSED IN TYLERS NEW MEDA PORT UNDER THE SKIN SO HIS MOMMY CAN GIVE HIM HOME IV IN IT . THEN EVERY WEEK END HE WILL HAVE TO GO BACK TO AKRON CHILDRENS HOSPITAL TO HAVE IT FLUSHED AND NEW TUBES IN IT . I SURE HOPE TYLER CAN EAT AND DRINK SOON IT HAS BEEN NINE WEEKS NOW. POOR LITTLE FELLA SAYS JUST PUT EVERY THING I NEED IN MY IV. I TOLD HIM HE WILL NOT BE ABLE TO GO DO THE THINGS HE WANTS WITH AN IV HANGING FROM HIS CHEST . HE NEEDS TO EAT AND DRINK. HE TRIES BUT HE THROWS UP EVERY TIME . THE CHURCH AND ALL THE PEOPLE AT THE FUNDRAISER ALL GATHERED ROUND TYLER AND OUR FAMILY AND A WHOLE BUNCH OF PEOPLE TOOK TURNS PRAYING FOR TYLERS HEALING. THE GOSPAL BANDS ALL GAVE TYLER T SHIRTS WITH THEIR BAND NAMES ON THEM AND CD S AND STICKERS AND ONE BOY GAVE TYLER HIS DRUM STICKES AFTER HE SIGNED THEM. IT WAS AWESOME . WHAT EVER MONEY THEY MADE WILL BE SENT OT THE HOSPITAL FOR TYLERS MEDICAL BILLS .ONE BAG OF PLATLETS COST TWO THOUSAND DOLLARS. CAN YOU BELEIVE THAT? THEY ARE DONATED FREE AND THEY MAKE THE PATIENT PAY TWO THOUSAND PER BAG. AND CANCER PATIENTS GET PLENTY OD PLATLETS AND BLOOD TRANSFUSIONS. THANK YOU EMANUAL CHURCH OF CHRIST AND ALL THE BANDS AND PEOPLE WHO CAME AND ALL THE SPEAKERS AND SPONCERS. THANK YOU ALL AND GOD BLESS YOU ALL. LOVE HUGGS TO EACH AND EVERYONE WHO READS THIS. TYLER AND HIS FAMILY
Thursday, September 8, 2005 2:27 PM CDT
HELLO FRIENDS AND FAMILY, AKRON CHILDRENS POSTPONED TYLERS SURGERY AGAIN. NOW IT WILL BE NEXT WEEK SOME TIME. CINCINATI CALLED ME TODAY AND SAID TYLER WAS ON THEIR LIST OF OUT PATIENT SURGERY AT 1.30 TODAY TO HAVE THE SURGERY . I TOLD THEM HE CAME HOME LAST THURSDAY AND HE WAS HAVING HIS SURGERY IN AKRON CHILDRENS. I GUESS SOME ONE IS NOT ON THE SAME PAGE. TYLER IS GONE TO THE GAME FRIDAY WITH HIS DADDY. THERE WILL BE A BENIFIT FROM A LOCAL CHRISTIAN CHURCH SATURDAY SEPT 10TH FOR HIM. SEVERAL CHRISTIAN BANDS ARE DONATING THEIR TIME TO PLAY FOR HIM. THANK YOU ALL FOR ALL YOUR PRAYER AND SUPPORT. GOD BLESS YOU ALL AND PLEASE CONTINUE TO PRAY FOR TYLER TO REMAIN IN REMISSION AND PRAY FOR ALL THE OTHER SICK KIDS AS WELL. THEY ALL NEED OUR PRAYERS. HUGGS DEBBIE
Wednesday, September 7, 2005 5:52 AM CDT
HELLO EVERYONE, TYLER HAS BEEN VERY BUSY SINCE HE HAS GOTTON OUT OF CINCINATI HOSPITAL. HE HAS GONE TO CINCINATI TO WATCH OUR TIGERS PLAY IN WHICH WE WON 34 TO 31 YEAH GO TIGERS!!!! HE WENT YESTERDAY TO AKRON CHILDRENS TO HAVE HIS SURGERYS BUT. THEY ONLY DID LAB WORK ON HIM SO HE WILL GO BACK THURSDAY FOR PLATLETS , ANTIBIOTICS AND SURGERYS. THEN IF HE IS FEELING OK HIS DAD IS TAKING HIM TO MANSFIELD TO THE FOOTBALL GAME. HIS DADDY SAID HIS EYES ARE A LITTLE YELLOW . THAT IS SCAREY CAUSE IT COULD MEAN LIVER PROBLEMS . TYLER DOES NOT TALK ALOT. HIS DADDY SAID HE HAS NOT TALKED ALOT SINCE HIS TRANSPLANT. WONDER WHAT IS GONE THRU HIS CUTE LITTLE HEAD? I AM HAPPY HATTI GOT TO SEE TYLER TUESDAY. I WILL KEEP UPDATED ALL I FIND OUT . TYLERS MOMMY MOVED SATURDAY IN WITH HER BOYFRIEND AND THEY PLAN TO MARRY NEXT WEEK. PRAY IT WORKS OUT AS SHE ONLY MET HIM JUNE EIGHTEENTH. SHE HAS SPENT A WHOLE THREE WEEKS WITH HIM SINCE SHE MET HIM. BUT .. ANY ONE WITH KIDS KNOW THAT YOU CAN NOT TELL YOUR KIDS NOTHING WHEN THEY SET THIER MINDS TO SOMETHING THEY PRETTY MUCH STICK TO WHAT THEY WANT TO DO WHEN THEY BECOME AN ADULT. SO ALL I CAN SAY IS I PRAY IT WORKS OUT FOR THEM. I AM GRATEFUL HOW EVER THAT SHE HAS FOUND COMPANIONSHIP AS IT EASES SOME PAIN IN HER HEART FOR ALL SHE HAS WATCHED TYLER GO THRU . AND ALL THE LOVE AND SUPPORT FROM FAMILY AND FRIENDS DOES NOT EQUAL THAT OF A COMPANION TYPE OF LOVE. IT IS A DIFFERNET TYPE OF LOVE THAT CAN NOT BE REPLACED AND A SECURITY. SO FOR THAT I AM HAPPY SHE HAS HIM IN HER LIFE. AND YES TRICIA IS RIGHT HE MUST BE A GOOD HEARTED MAN TO TAKE ON CANCERLAND.YOU NEVER KNOW WHAT IS NEXT . WELL HUGGS TO EVERYONE .KEEP PRAYING FOR TYLER TO STAY IN REMISSION AND PRAY FOR HIS MOMMY TO BE HAPPY IN HER NEW MARRIAGE AND THAT TIM WILL BE EVERYTHING SHE WANTS HIM TOO BE AND THEY HAVE A LONG LASTING LOVING MARRIAGE !! THERE WILL NOT BE PICTURES OF THE WEDDING . THEY WILL JUST GO SOMEWERE AND GET MARRIED . BUT IF YOU LOOK IN THE PHOTO ALBUM ON THE HOME PAGE I DID PUT A PICTURE OF TIM AND SUSAN ON THERE AND I ALSO PUT A GOOD PICTURE OF SUSAN AND TYLER ON THERE TOO. I POSTED THEM ABOUT TWO WEEKS AGO I GUESS I SHOULD OF MENTIONED IT.
Tuesday, September 6, 2005 7:40 AM CDT
HELLO EVERYONE, TYLER IS HOME AND DOING GREAT. HE WILL BE HAVING SURGERY TODAY IN AKRON CHILDRENS HOSPITAL TO TAKE OUT HIS BROVIAC AND MEDIPORT AND WILL BE GETTING ANOTHER MEDIPORT THAT IS BIGGER UNDER THE SKIN . THIS IS SO HE CAN GET BLOOD AND PLATLETS .I SAW HIM A FEW MINUTES SATURDAY. HIS OLDER BROTHER JUSTIN BROUGHT HIM BY TO SEE US BEFORE THEY WENT TO THE FAIR. I HOPE HE WILL BE OK AS HE HAS WENT TO THE FAIR AND ZOO AND FOOTBALL GAME. I WOULD THINK IF HE IS ALOUD TO DO ALL THAT THAT HE COULD GO TO SCHOOL. BUT I DO NOT KNOW WHAT THE DOCTORS WANT . I GUESS THEY WILL KNOW TODAY WHAT AND HOW THE DOCTORS WILL BE TREATING HIM SINCE HE HAS GROWN HIS OWN BONEMARROW. HE IS SO CUTE . HE HAS COAL BLACK EYELASHES AND EYEBROWS AND HIS HAIR IS COMEING IN BLACK. HE IS SO ADORABLE!!! WILL UPDATE WHEN I HEAR SOMETHING ABOUT HIS SURGERY. HUGGS AND GOD BLESS AND PLEASE CONTINUE TO PRAY FOR TYLER TO STAY IN REMISSION AND PRAY FOR CAITLIN THAT HER CAT SCAN ON HER LUNGS COME OUT OK TOO. I KNOW THAT IS A WORRY TILL THE RESULTS ARE IN. PRAY FOR TRICIA AND EMILY AND HATTI AND KYLE TOO AND ALL THE CARINGBRIDGE CHILDREN AND ADULTS AND PLEASE PRAY FOR HELEN OUR BANNER LADY TOO FOR HER HEALTH AND NEW JOB .
Thursday, September 1, 2005 9:00 AM CDT
HELLO FRIENDS AND FAMILY, TODAY IS THE DAY THE DOCTOR IS SUPPOSE TO SRING TYLER. HE WILL BE HAVING HIS MEDIPORT SURGERYS IN AKRON WHEN HE COMES HOME . CINCINATI DID NOT HAVE TIME TO DO IT THERE . WISH HIM LUCK WITH IT . HE WILL HAVE TO HAVE PLATLETS FIRST AND ANTIBIOTICS BEFORE THE SURGERY SO HE DOES NOT GET INFECTION. KEEP HIM IN YOUR PRAYERS THAT HE STAYS IN REMISSION. THANK YOU AND GOD BLESS EACH AND EVERY ONE ONE OF YOU. DO NOT FOR GET TO SEND TYLERS MOMMY BEST WISHES ON HER ENGAGEMENT. SHE PLANS ON GETTING MARRIED IN SEPTEMBER AS TIM IS IN THE ARY RESERVES AND COULD BE CALLED FOR DUTY ANY TIME AND SO THEY WANT TO BE MARRIED. TYLER LIKES HIM SO THAT IS A PLUS. GOD BLESS
Wednesday, August 31, 2005 6:26 PM CDT
HELLO FAMILY AND FRIENDS, TYLER WILL BE HOME TOMORROW .HIS MOM BUGGED THE DOCTOR TO LET HER GO HOME BEFORE THE WEEK END AS SHE HAS PLANS TO MOVE IN WITH HER NEW BOYFRIEND . THEY PLAN TO MARRY IN SEPT. SO TYLER I GUESS WILL HAVE HIS SURGERYS TUESDAY AT AKRON CHILDRENS HOSPITAL SINCE THEY COULD NOT FIT HIM IN IN CINCINATI WHEN TYLERS MOM WANTED THEM TOO. I DO NOT KNOW IF TYLERS MOM WILL HAVE A PC WHEN SHE GETS MOVED THIS WEEK END SO I WILL TRY AND UPDATE AS MUCH AS I CAN WHEN AND IF I HEAR NEWS ABOUT TYLER. THAT IS ALL I KNOW FOR NOW . THANK YOU ALL FOR ALL YOUR PRAYERS AND GOD BLESS DEBBIE
Wednesday, August 31, 2005 6:26 PM CDT
HELLO FAMILY AND FRIENDS, TYLER WILL BE HOME TOMORROW .HIS MOM BUGGED THE DOCTOR TO LET HER GO HOME BEFORE THE WEEK END AS SHE HAS PLANS TO MOVE IN WITH HER NEW BOYFRIEND . THEY PLAN TO MARRY IN SEPT. SO TYLER I GUESS WILL HAVE HIS SURGERYS TUESDAY AT AKRON CHILDRENS HOSPITAL SINCE THEY COULD NOT FIT HIM IN IN CINCINATI WHEN TYLERS MOM WANTED THEM TOO. I DO NOT KNOW IF TYLERS MOM WILL HAVE A PC WHEN SHE GETS MOVED THIS WEEK END SO I WILL TRY AND UPDATE AS MUCH AS I CAN WHEN AND IF I HEAR NEWS ABOUT TYLER. THAT IS ALL I KNOW FOR NOW . THANK YOU ALL FOR ALL YOUR PRAYERS AND GOD BLESS DEBBIE
Monday, August 29, 2005 1:12 PM CDT
HELLO FRIENDS AND FAMILY, TYLER WENT TO SEE DR DAVIES TODAY. HE WILL BE GONE TO CINCINAT CHILDRENS MEDICAL CENTER WED OR THRUSDAY TO GET HIS BROVIAC TAKEN OUT AND HIS MEDIPORT TAKEN OUT BUT ... A NEW BIGGER MEDIPORT PUT BACK IN. THE REASON FOR THE BROVIAC BEING TAKEN OUT IS THEN THERE WILL NOT BE A NEED TO WORRY ABOUT HIM GETTING INFECTION IN IT AND IT WILL NOT LIMIT HIM TO ACTIVITES . THE REASON FOR THE MEDIPORT BEING REMOVED IS .. IT IS TOO SMALL AND WORN OUT . THE REASON TO HAVE A BIGGER ONE PUT BACK IN IS ... SO IF HE NEEDS BLOOD OR PLATLETS HE CAN GET IT AND ALSO USE IT TO HAVE BLOOD DRAWS INSTEAD OF POKING HIM . HIS VEINS ARE SMALL AND THEY ROLL. HE GOT THAT FROM ME . ANY WAY AFTER HIS SURGERY AND THEY SEE HOW WELL HE IS DOING THEN WE WILL KNOW THE DATE HE WILL RETURN HOME. I TOLD HIS MOMMY TO ASK WHAT ALL HIS RESTRICTIONS WILL BE AND TO WHERE AND WHERE NOT HE CAN GO IN PUBLIC AS NOT TO ENCOUNTER GERMS. I WILL KEEP YOU POSTED . THANK YOU ALL AND KEEP PRAYING . HUGGS AND LOVE AND PLEASE SIGN TYLERS GUEST BOOK TOO SHOW HIM YOU WERE HERE. DEBBIE
Friday, August 26, 2005 5:00 PM CDT
WELL EVERYONE, TYLER IS COMING HOME!! NEXT WEEK .THE DOCTOR WANTS TO CHECK HIM OUT REALLY GOOD AND MAKE SURE THERE ARE NO INFECTIONS AND THEN SHE WILL CALL AKRON CHILDRENS TO RELEASE HIM BACK TO HIS DOCTOR HERE THEN SHE WILL LET HIM GO. SO PRAY EVERYTHING GOES WELL WITH HIM. THE DOCTORS IN CINCINATI ARE PUZZLED AND HAVE NO CLUE WHAT TO DO TO TREAT TYLER SINCE HE GREW BACK HIS OWN CELLS .THEY SAID THEY GO BY THE BOOK EVERY DAY FROM A BONE MARROW TRANSPLANT WHEN THE PATIENT GRAFTS THE DONORS CELLS . BUT TYLER GREW HIS OWN SO THEY DO NOT KNOW WHAT TO TO FOR HIM. SO I GUESS WE PRAY THAT HIS IMMUNES STAY UP AND NO INFECTIONS . I DO NOT KNOW YET HOW THEY ARE GONE TO TREAT TYLER AS HE WENT THROUGH THE RADATION AND CHEMO AND TRANSPLANT SO HE BASICALLY IS A TRANSPLANT PATIENT BUT JUST REGREW HIS OWN NEW CELLS BACK. BUT HE WILL BE COMING HOME NEXT WEEK VERSES THE END OF OCTOBER SO PLEASE CONTINUE TO PRAY FOR HIM AND WE WILL CONTINUE TO UPDATE ON HIS PROGESS. BESIDES WE KINDA GREW FOND OF ALL OF YOU. YOU ALL ARE FAMILY NOW TO OUR FAMILY . WE WANT TO KEEP YOU ALL. HUGGS DEBBIE
Thursday, August 25, 2005 11:32 AM CDT
HELLO FRIENDS AND FAMILY. TYLER IS GETTING TO GO TO THE HOTEL THIS AFTERNOON. YEAHHH!!HE IS HIS ROTTON ORNERY SELF . I TALKED TO HIM ON THE PHONE AND HE WAS WATCHING HIS MOMMY LEARN ON A BOARD HOW TO CHANGE HIS DRESSING ON HIS BROVIAC AND SHE TOUCHED SOMETHING AND THAT MEANT SHE CONTAMINATED IT AND HE LAUGHED AT HER . HE WOULD YELL OUCH!! YOUR HURTING ME WHEN SHE PULLED THE TAPE OFF THE BOARD WHICH WAS REPRESENTING TYLER FOR PRACTICE. SHE WOULD JUMP WHEN HE YELLED . HE WAS HAVING A BLAST HARRASSING HIS MOMMY AS ALWAYS. I THINK WE HAVE OUR WONDERFUL TYLER BACK. HIS SINCE OF HUMOR AND ORNERYNOUS. THAT IS OUR TYLER . THAT IS WHY I CALL HIM TYLER SHAME . HIS NAME IS TYLER SHANE . I CALL HIM SHAME WHEN HE IS BEING ROTTON. HE CALLES ME GRANDMA SHAME . IT IS A THING BETWEEN US NOW . PRAISE GOD HE IS GETTING BACK HIS SENCE OF HUMOR. HE WILL GO TO THE CLINIC TOMORRW FOR BLOOD WORK . NEXT WEEK HE WILL HAVE OUT PATIENT SURGERY TO REMOVE HIS MEDIPORT. HE WILL KEEP THE BROVIAC FOR A WHILE THO. I ASK WHEN HE WILL BE COMING HOME BUT SUSAN SAYS WE ARE NOT ALOUD TO ASK THAT . DR.DAVIES WILL KEEP AN EYE ON HIM FOR A WHILE AND WANTS TO GET HIM STABLE . SHE WANTS HIS THROWING UP TO STOP AND HIS FEVERS TO STAY GONE AND TO BE OFF MOST HIS MEDS AND IV . SO DO WE . WE WANT TO FEEL NORMAL AGAIN. I FELL WITH ALL OF MY HEART JESUS HAS HEALED TYLER. HE HEALED HIM BACK IN MARCH . BUT THE DOCTORS STILL WANTED TO GO THRU ALL THE PRESEDURES OF THE CHEMO, RADATION, AND TRANSPLANT. WELL. TYLER DID NOT GRAFT THE DONORS CELLS BUT IN FACT GREW HIS OWN WHICH TESTED NO LEUKEMIA. SO TYLER HAS BEEN HEALED . HE HAS HIS OWN NEW CELLS CANCER FREE AND I TRUST HE WILL BE A COMPLETE NEW BOY AND BE GONE TO ALL THE MASSILLON FOOTBALL GAMES SOON. GO TIGERS ... GO TYLER!!!! PLEASE CONTINUE TO PRAY FOR TYLER TO KEEP BAFFLING THESE DOCTORS AND LET THE DOCTORE KNOW THAT GOD HEALED TYLER NOT MEDICINE! AND ALL OF YOU HELPED WITH PRAYERS TRUST AND BELIEF. WE COULD NEVER HAD DONE IT WITH OUT ALL OF YOU . PLEASE CONTINE TO PRAY FOR HATTI,EMILY, CAITLIN, KYLE, GOOCH,AND TRISIA AND ALL THE CHILDREN FIGHTING ALL KINDS OF CANCER. THERE ARE TOO MANY TO MENTION. I PRAY FOR EACH AND EVERY CHILD AND FAMILY OF THESE KIDS TO GET THEIR HEALING ALSO. AND I PRAY FOR ALL THE CHILDERN WHO HAVE THEIR ANGEL WINGS NOW AND FOR THEIR FAMILYS. I DO NOT WANT TO QUESTION GODS PLANS BUT I DO HAVE TO ASK ? WHY DO SOME OF GODS CHILDREN MAKE IT IN THIS BATTLE AND SOME DO NOT! I DO NOT UNDERSTAND THIS AS I THOUGHT WE ALL ARE EQUAL IN THE EYES OF GOD . I KNOW EVERY BABY IS BORN WITH A NUMBER . BUT I REALLY DO NOT SEE A CANCER CHILD BEING TAKEN BY A NUMBER OF A TERRIABLE CANCER NUMBER. PLEASE PRAY FOR A CURE SO EVERY CHILD CAN HAVE A MIRICLE. NO ONE NOT NO ONE DESERVES ALL THE TORTURE THAT CANCER DRUGS MAKE THEM GO THRU. IT TEARS MY HEART OUT .PLEASE PRAYER WARRIERS PRAY HARD FOR ALL THESE KIDS . GOD KNOWS EVERY CHILDS NAME . PLEASE PRAY AS I HAVE AND STILL WILL BE FOR THEIR MIRICLES . THANK YOU AND GOD BLESS YOU WILL UPDATE AS I HEAR IT WHAT WILL HAPPEN NEXT WITH TYLER. LOVE HUGGS AND PRAYERS GOD BLESS TILL NEXT TIME DEBBIE
Thursday, August 25, 2005 11:32 AM CDT
HELLO FRIENDS AND FAMILY. TYLER IS GETTING TO GO TO THE HOTEL THIS AFTERNOON. YEAHHH!!HE IS HIS ROTTON ORNERY SELF . I TALKED TO HIM ON THE PHONE AND HE WAS WATCHING HIS MOMMY LEARN ON A BOARD HOW TO CHANGE HIS DRESSING ON HIS BROVIAC AND SHE TOUCHED SOMETHING AND THAT MEANT SHE CONTAMINATED IT AND HE LAUGHED AT HER . HE WOULD YELL OUCH!! YOUR HURTING ME WHEN SHE PULLED THE TAPE OFF THE BOARD WHICH WAS REPRESENTING TYLER FOR PRACTICE. SHE WOULD JUMP WHEN HE YELLED . HE WAS HAVING A BLAST HARRASSING HIS MOMMY AS ALWAYS. I THINK WE HAVE OUR WONDERFUL TYLER BACK. HIS SINCE OF HUMOR AND ORNERYNOUS. THAT IS OUR TYLER . THAT IS WHY I CALL HIM TYLER SHAME . HIS NAME IS TYLER SHANE . I CALL HIM SHAME WHEN HE IS BEING ROTTON. HE CALLES ME GRANDMA SHAME . IT IS A THING BETWEEN US NOW . PRAISE GOD HE IS GETTING BACK HIS SENCE OF HUMOR. HE WILL GO TO THE CLINIC TOMORRW FOR BLOOD WORK . NEXT WEEK HE WILL HAVE OUT PATIENT SURGERY TO REMOVE HIS MEDIPORT. HE WILL KEEP THE BROVIAC FOR A WHILE THO. I ASK WHEN HE WILL BE COMING HOME BUT SUSAN SAYS WE ARE NOT ALOUD TO ASK THAT . DR.DAVIES WILL KEEP AN EYE ON HIM FOR A WHILE AND WANTS TO GET HIM STABLE . SHE WANTS HIS THROWING UP TO STOP AND HIS FEVERS TO STAY GONE AND TO BE OFF MOST HIS MEDS AND IV . SO DO WE . WE WANT TO FEEL NORMAL AGAIN. I FELL WITH ALL OF MY HEART JESUS HAS HEALED TYLER. HE HEALED HIM BACK IN MARCH . BUT THE DOCTORS STILL WANTED TO GO THRU ALL THE PRESEDURES OF THE CHEMO, RADATION, AND TRANSPLANT. WELL. TYLER DID NOT GRAFT THE DONORS CELLS BUT IN FACT GREW HIS OWN WHICH TESTED NO LEUKEMIA. SO TYLER HAS BEEN HEALED . HE HAS HIS OWN NEW CELLS CANCER FREE AND I TRUST HE WILL BE A COMPLETE NEW BOY AND BE GONE TO ALL THE MASSILLON FOOTBALL GAMES SOON. GO TIGERS ... GO TYLER!!!! PLEASE CONTINUE TO PRAY FOR TYLER TO KEEP BAFFLING THESE DOCTORS AND LET THE DOCTORE KNOW THAT GOD HEALED TYLER NOT MEDICINE! AND ALL OF YOU HELPED WITH PRAYERS TRUST AND BELIEF. WE COULD NEVER HAD DONE IT WITH OUT ALL OF YOU . PLEASE CONTINE TO PRAY FOR HATTI,EMILY, CAITLIN, KYLE, GOOCH,AND TRISIA AND ALL THE CHILDREN FIGHTING ALL KINDS OF CANCER. THERE ARE TOO MANY TO MENTION. I PRAY FOR EACH AND EVERY CHILD AND FAMILY OF THESE KIDS TO GET THEIR HEALING ALSO. AND I PRAY FOR ALL THE CHILDERN WHO HAVE THEIR ANGEL WINGS NOW AND FOR THEIR FAMILYS. I DO NOT WANT TO QUESTION GODS PLANS BUT I DO HAVE TO ASK ? WHY DO SOME OF GODS CHILDREN MAKE IT IN THIS BATTLE AND SOME DO NOT! I DO NOT UNDERSTAND THIS AS I THOUGHT WE ALL ARE EQUAL IN THE EYES OF GOD . I KNOW EVERY BABY IS BORN WITH A NUMBER . BUT I REALLY DO NOT SEE A CANCER CHILD BEING TAKEN BY A NUMBER OF A TERRIABLE CANCER NUMBER. PLEASE PRAY FOR A CURE SO EVERY CHILD CAN HAVE A MIRICLE. NO ONE NOT NO ONE DESERVES ALL THE TORTURE THAT CANCER DRUGS MAKE THEM GO THRU. IT TEARS MY HEART OUT .PLEASE PRAYER WARRIERS PRAY HARD FOR ALL THESE KIDS . GOD KNOWS EVERY CHILDS NAME . PLEASE PRAY AS I HAVE AND STILL WILL BE FOR THEIR MIRICLES . THANK YOU AND GOD BLESS YOU WILL UPDATE AS I HEAR IT WHAT WILL HAPPEN NEXT WITH TYLER. LOVE HUGGS AND PRAYERS GOD BLESS TILL NEXT TIME DEBBIE
Tuesday, August 23, 2005 3:50 PM CDT
HELLO EVERYONE, THANK YOU ALL FOR ALL YOUR SUPPORT AND PRAYERS. WE COULD NOT DO THIS ALONE WITH OUT EACH AND EVERY ONE OF YOU. YOUR PRAYERS AND WORDS OF KINDNESS HAS GOT US THIS FAR. NOW FOR THE GOOD NEWS SO FAR. TYLER HAD HIS BONEMARROW BIOPSY. AND SO FAR THEY SEE NO TRACES OF LEUKEMIA CELLS OR CANCER. PRAISE GOD!!! THANK YOU JESUS! HIS FEVER THEY THINK IS CAUSE OF HIS WHITE CELLS TRYING TO GROW. THERE IS NO SIGNS OF ANY BACTERIA OR INFECTIONS IN TYLERS TEST. THEY WILL HAVE ALL THE RESULTS BACK IN A FEW DAYS . THEN WE WILL KNOW FOR SURE WHAT WE ARE DEALING WITH. THEY WANT TO KEEP TYLER FOR A WHILE IN CINCINAT TO SABLELIZE HIM. THEY NEED TO GET HIS VOMITING AND FEVER UNDER CONTROL. THEN WHEN HE COMES HOME I THINK HE WILL BE CLOSELY WATCHED BY AKRON CHILDRENS AGAIN. THE BAD NEWS IS ... IF TYLERS LEUKEMIA SHOULD COME BACK, THEN THERE IS NOTHING ELSE THAT CAN BE DONE FOR HIM. SO I ASK EACH AND EVERY ONE OF YOU TO PRAY PRAY PRAY EVERYDAY THAT THAT DOES NOT HAPPEN.WE ARE SO OVER WHELMED WITH THE FACT TYLER IS IN REMISSION. NOW WE HAVE TO PRAY HE STAYS THERE . THE DOCTORS ARE PUZZLED WHY TYLER WOULD NOT HAVE GROWN ANY DONOR CELLS BUT IN FACT GREW HIS OWN BACK . THEY SAY HE IS THE MOST STUBBORN LITTLE BOY THEY EVER MET.THANK YOU ALL AGAIN AND I WILL KEEP YOU UPDATED WITH EVERY THING GONE ON . THE TEST RESULTS AND WHEN HE CAN GO BACK TO THE HOTEL AND WHEN HE CAN COME HOME AND WHAT WILL HAPPEN NEXT. GOD BLESS YOU HUGGS DEBBIE
Tuesday, August 23, 2005 3:50 PM CDT
HELLO EVERYONE, THANK YOU ALL FOR ALL YOUR SUPPORT AND PRAYERS. WE COULD NOT DO THIS ALONE WITH OUT EACH AND EVERY ONE OF YOU. YOUR PRAYERS AND WORDS OF KINDNESS HAS GOT US THIS FAR. NOW FOR THE GOOD NEWS SO FAR. TYLER HAD HIS BONEMARROW BIOPSY. AND SO FAR THEY SEE NO TRACES OF LEUKEMIA CELLS OR CANCER. PRAISE GOD!!! THANK YOU JESUS! HIS FEVER THEY THINK IS CAUSE OF HIS WHITE CELLS TRYING TO GROW. THERE IS NO SIGNS OF ANY BACTERIA OR INFECTIONS IN TYLERS TEST. THEY WILL HAVE ALL THE RESULTS BACK IN A FEW DAYS . THEN WE WILL KNOW FOR SURE WHAT WE ARE DEALING WITH. THEY WANT TO KEEP TYLER FOR A WHILE IN CINCINAT TO SABLELIZE HIM. THEY NEED TO GET HIS VOMITING AND FEVER UNDER CONTROL. THEN WHEN HE COMES HOME I THINK HE WILL BE CLOSELY WATCHED BY AKRON CHILDRENS AGAIN. THE BAD NEWS IS ... IF TYLERS LEUKEMIA SHOULD COME BACK, THEN THERE IS NOTHING ELSE THAT CAN BE DONE FOR HIM. SO I ASK EACH AND EVERY ONE OF YOU TO PRAY PRAY PRAY EVERYDAY THAT THAT DOES NOT HAPPEN.WE ARE SO OVER WHELMED WITH THE FACT TYLER IS IN REMISSION. NOW WE HAVE TO PRAY HE STAYS THERE . THE DOCTORS ARE PUZZLED WHY TYLER WOULD NOT HAVE GROWN ANY DONOR CELLS BUT IN FACT GREW HIS OWN BACK . THEY SAY HE IS THE MOST STUBBORN LITTLE BOY THEY EVER MET.THANK YOU ALL AGAIN AND I WILL KEEP YOU UPDATED WITH EVERY THING GONE ON . THE TEST RESULTS AND WHEN HE CAN GO BACK TO THE HOTEL AND WHEN HE CAN COME HOME AND WHAT WILL HAPPEN NEXT. GOD BLESS YOU HUGGS DEBBIE
Monday, August 22, 2005 9:28 AM CDT
HELLO FRIENDS AND FAMILY, TYLER STILL HAS A FEVER OF 101.6 AND IS STILL THROWING UP . HE HAS BEEN THROWING UP CONTINUEOUSLY SINCE 4.AM THIS MORNING . SO HE IS GONE TO THE ER IN CINCINATI AND THEY WANT OT ADMIT HIM AGAIN AND DO BLOOD CULTURES AND EXRAYS AND OTHER TEST AND GIVE HIM SOME FOOD THRU IV AS HE HAS NOT EATEN SINCE HE WAS RELEASED SATURDAY. HE WENT TO CINCINATI ZOO . THEY RENTED A WHEEL CHAIR . ALL HE GOT TO SEE WAS THE BUTTERFLYS BEHIND GLASS WINDOWS .HE THOUGHT OF HIS FRIEND HATTI WHO ASLO IS FIGHTING CANCER . HATTI LOVES BUTTERFLYS . TYLER SAID MOM IT WOULD BE GREAT TO TAKE A PICTURE AND GIVE IT TOO HATTI OF THE BUTTERFLYS ! BUT THEY DID NOT HAVE A CAMERA. HE GOT VERY SICK AND BEGAN TO THROW UP AND WAS TIRED AND GOT A FEVER. IT WAS NICE HE GOT TO ATTEMPT TO GO BUT I KNEW IT WOULD BE TOO MUCH FOR HIM AS HE HAS BEEN IN A HOSPITAL BED FOR 7 WEEKS. YOU JUST LOSE YOUR STRENGTH AND BECOME LIMP AS A WASH RAG. BESIDES THE FACT HE HAS NOT BEEN ABLE TO KEEP NOTHING DOWN IN SEVEN WEEKS EITHER .HE IS TIRED OF IT ALL AND SO ARE WE. BUT IF THERE IS A THIN CHANCE OF HOPE FOR HIS SURVIVEAL THEN WE HAVE TO TRY IT , IF.... TYLER STILL WANTS TO FIGHT . THIS FIGHT IS A TOUGH ONE FOR A CHILD OR ADULT. NOONE KNOWS BUT A CANCER PATIENT WHAT TORTURE THEY GO THRU . TYLER IS SO SICK OF THROWING UP. IT IS SAD. SUSAN AND I CRIED ON THE PHONE TOGATHER THIS MORNING . WE BOTH TRY NOT TOO BUT THAT IS LIKE TELLING THE SUN NOT TO SHINE.THE HURT AND FRUSTRATION ARE UNBEARABLE. PRAY EVERYONE PRAY FOR TYLERS MIRICLE. AND IF GOD DECIDES HE IS GONE TO NOT GRANT IT THEN PRAY FOR OUR FAMILY TO BE ABLE TO EXCEPT IT . CAUSE NONE A ONE OF US IS EXCEPTING NOTHING BUT FOR GOD TO HEAL HIM COMPLETLELY AND ALL OF US WATCHING HIM PLAY FOOTBALL AS THAT IS HIS DREAM. THANK YOU ALL FOR ALL YOUR PRAYERS . PLEASE SIGN TYLERS GUSETBOOK AND LET HIM KNOW YOU HAVE NOT GIVEN UP ON HIM AND ARE PRAYING AND SUPPORTING HIM EVEN MORE NOW THEN EVER. HUGGS DEBBIE (TYLERS GRANDMA)
Saturday, August 20, 2005 11:16 AM CDT
HELLO FRIENDS AND FAMILY, TYLER WILL GET RELEASED TODAY AFTER HE GETS BLOOD TRANSFUSIONS TO GO TO THE HOTEL. THERE IS NOTHING MORE THAT CAN BE DONE FOR HIM. HE HAS NOT GROWN ANY DONOR CELLS . HE HAS HOW EVER GROWN HIS OWN BACK. THEY WILL BE OPERATING AND DOING A BONE MARROW BIOPSY TUESDAY MORNING 9:30 AM. THEY ARE LOOKING FOR LEUKEMIA CELLS IN HIS B0NE MARROW OR A BONE MARROW INFECTION. EITHER WAY HE WILL MOST LIKELY BE COMING HOME THIS WEEK.BUT IT IS NOT WRITTEN IN STONE .THE DOCTOR IS LETTING TYLER GO TO THE CINCINATI ZOO TODAY. HE IS SO HAPPY BUT HE HAS TO WEAR HIS MASK SO HE DOES NOT ENCOUNTER GERMS. HE IS PUSHING IT NOW HE WANTS TO GO SHOPPING . THE DOCTORS SAY ONE MINUTE THAT IF SUSAN AND ALL OF US BELEIVE IN GOD THEN WE SHOULD GO PRAY . THEN THE NEXT MINUTE THEY SAY THERE IS NOTHING THEY CAN DO . THEY CAN NOT DO RADATION OR CHEMO AS HIS BODY CAN NOT TAKE ANY MORE . BUT WHEN HIS DOCTOR COMES BACK FROM VACATION THEY CLAIM SHE MAY HAVE SOMETHING IN MEDICINE FORM THAT COULD KILL ALL TYLERS BONE MARROW AGAIN AND DO ANOTHER TRANSPLANT. ANY HOW WE ARE BACK ON THE ROLLER COASTER AGAIN! ALL WE WANT IS A MIRCLE . AS LONG AS THERE IS BREATH IN TYLER THERE IS HOPE. HOPE AND A MIRCLE IS ALL WE HAVE . PLEASE CONTINUE TO PRAY FOR TYLER .THE DOCTORS SAY LET HIM LIVE HIS LIFE NOW SO WHAT DOES THAT MEAN. I KNOW HOW WE ARE TAKING IT . ONE DAY AT A TIME AND TRING TO MAKE TYLER AS HAPPY AS WE CAN . HE IS A JOY TO KNOW AND BE AROUND . HE STILL IS CRACKING JOKES AND BEING TYLER . HE IS SO FUNNY. HE WANTS A GO CART THAT WILL RUN 70 MILES PER HOUR . DARE DEVIL HUH?? HE AND HIS MOMMY WENT TO THE CHAPEL LAST NIGHT TO PRAY AND MOST OF YOU KNOW WHO POOBEAR IS . WELL POOBEAR TOLD TYLERS MOMMY HE AND TYLER DO NOT WANT TO DIE!!! NOW HOW HEART BREAKING IS THAT???? OH BOY DID I EVER LOSE SELF CONTROL WHEN SHE TOLD ME THAT I CRIED FOR HOURS NON STOP AND 1ST THING WHEN I WOKE UP THIS MORNING I HAVE BEEN CRYING . I TRY NOT TOO BUT I CAN NOT STOP THE TEARS FROM FLOWING. TYLER IS MY YOUNGEST OF THREE GRANDSONS . I WATCHED HIM BE BORN . I WAS THE 1ST TO TOUCH HIM BESIDES THE DOCTOR AND NURSES . HE WAS CRYING AND I RUBBED HIS LITTLE CHEST AND TOLD HIM WELCOME TO THE WORLD TYLER IT IS OK . AND HE SHUT UP UNTILL THEY TOOK HIM TO WEIGH HIM AND TO DO HIS FOOT PRINTS . HE LEFT HIS PRINTS IN MY HEART THAT DAY AND I WILL ALWAYS CHERISH THAT MOMENT THAT I BONDED WITH HIM. HIS DIMPLES HIS EYES AND HIS ROTTON GRINS. EVERY THING ABOUT HIM IS PRECIOUS. EVERONE WHO MEETS HIM FALLS IN LIVE WITH HIM. HE IS A FUN LITTLE GUY TO HANG OUT WITH . JUST ASK HIS BIKER FRIEND JD . HE WILL TELL YA . NOW WE ARE TALKING A MAN WHO LOVES COUNRTY MUSIC AND WHEN JD ASK TYLER WHAT KIND OF MUSIC HE WOULD LIKE TO HEAR ON HIS BIKE RIDE ... WELL TYLER SAYS RAP!!! JD SAYS RAP???? RAP???? NOT ON MY BIKE LITTLE BUDDY... BUT GUESS WHAT??? JD FOUND RAP ON THE RADIO AND TYLER AND HE LISTENED TOO RAP . TYLER GOT OFF THAT BIKE WITH A SMILE FROM EAR TO EAR AND STILL TALKS ABOUT HIS FRIEND JD AND HIS RAP MUSIC. JD SAYS TYLER WILL HAVE EVERY ONE BREAK DANCING NEXT! WHEN JD TOOK TYLER TO GET AN ICE CREAM CONE ALL TYLER WANTED WAS A PEPSI AND A HOT DOG. HE REALLY AMAZED JD. BUT TYLER AND JD BONDED THAT DAY. IT JUST IS NOT HARD AT ALL TO BOND WITH TYLER. DO I SOUND PREDJUICE. NAWW I AM NOT . I WOULD WRAP MY ARMS AROUND EACH AND EVERY KID OUT THERE WITH CANCER AND TRY AND PROTECT THEM FROM THIS MONSTER. I PRAY THEY FIND A CURE SOON FOR ALL CANCERS . NO PARENT SHOULD HAVE TO DEAL WITH HOW SICK THESE KIDS GET FROM CANCER TREATMENTS. GOD BLESS YOU ALL TILL NEXT TIME ... I WILL UPDATE YOU ON TYLERS RESULTS OF THE BONE MARROW AND ALSO AS TO WHEN HE WILL BE COMING HOME. HUGGS TYLERS GRANDMA DEBBIE
Friday, August 19, 2005 10:15 AM CDT
DEAR FAMILY AND FRIENDS, THIS IS THE HARDEST DAY OF ALL DAYS I THINK DURING TYLERS JOURNEY.WE HAVE BAD NEWS... TYLER DID NOT GROW ANY OF THE DONORS CELLS, HIS BODY ONLY GREW HIS OWN CELLS BACK. HIS BONE MARROW TRANSPLANT DID NOT TAKE! NOW THE OPTION IS SEEING IF THE DONOR WILL DONATE AGAIN . THIS TIME IS HE DOES THEY WILL IMPLANT THE WHITE CELLS. IT IS CALLED A BOOST. TYLER WILL NOT HAVE TO HAVE CHEMO FOR THIS. BUT HIS STAY WILL START ALL OVER WITH HIS ONE HUNDRED DAYS. HE AND HIS MOMMY ARE VERY UPSET. ALL THEY WANT TO DO IS GO TO THE HOTEL EVEN FOR ONE DAY TO FEEL NORMAL. THIS NEWS IS DEVASTING TO US ALL. I CAN HARDLY TYPE THIS THRU TEARS SO IF THERE ARE TYPOS PLEASE EXCUSE IT. PLEASE PEOPLE PLEASE PRAY HARD FOR TYLER TO WIN THIS BATTLE. PLEASE?? THANK YOU AND GOD BLESS EACH AND EVERYONE OF YOU. AND GARY THANK YOU FOR TYPING TYLER PS.91 VERSE. THAT WAS VERY TOUCHING AND TO THE POINT AND VERY HELPFUL. THANK GOD I READ YOUR POST TO TYLER BEFORE I GOT THE NEWS THIS MORNING. PLEASE EVERYONE SIGN TYLERS GUEST BOOK WITH WORDS OF ENCOURAGEMENT AS HE NEEDS THE SUPPORT MORE NOW THEN EVER. HUGGS DEBBIE
Friday, August 19, 2005 10:15 AM CDT
DEAR FAMILY AND FRIENDS, THIS IS THE HARDEST DAY OF ALL DAYS I THINK DURING TYLERS JOURNEY.WE HAVE BAD NEWS... TYLER DID NOT GROW ANY OF THE DONORS CELLS, HIS BODY ONLY GREW HIS OWN CELLS BACK. HIS BONE MARROW TRANSPLANT DID NOT TAKE! NOW THE OPTION IS SEEING IF THE DONOR WILL DONATE AGAIN . THIS TIME IS HE DOES THEY WILL IMPLANT THE WHITE CELLS. IT IS CALLED A BOOST. TYLER WILL NOT HAVE TO HAVE CHEMO FOR THIS. BUT HIS STAY WILL START ALL OVER WITH HIS ONE HUNDRED DAYS. HE AND HIS MOMMY ARE VERY UPSET. ALL THEY WANT TO DO IS GO TO THE HOTEL EVEN FOR ONE DAY TO FEEL NORMAL. THIS NEWS IS DEVASTING TO US ALL. I CAN HARDLY TYPE THIS THRU TEARS SO IF THERE ARE TYPOS PLEASE EXCUSE IT. PLEASE PEOPLE PLEASE PRAY HARD FOR TYLER TO WIN THIS BATTLE. PLEASE?? THANK YOU AND GOD BLESS EACH AND EVERYONE OF YOU. AND GARY THANK YOU FOR TYPING TYLER PS.91 VERSE. THAT WAS VERY TOUCHING AND TO THE POINT AND VERY HELPFUL. THANK GOD I READ YOUR POST TO TYLER BEFORE I GOT THE NEWS THIS MORNING. PLEASE EVERYONE SIGN TYLERS GUEST BOOK WITH WORDS OF ENCOURAGEMENT AS HE NEEDS THE SUPPORT MORE NOW THEN EVER. HUGGS DEBBIE
Wednesday, August 17, 2005 9:38 AM CDT
HELLO EVERYONE, TYLER WILL NOT BE GETTING OUT OF THE HOSPITAL TODAY:( HE IS UPSET. HE IS SHUTTING DOWN AGAIN WITH THE NOT WANTING TO EAT AND DRINK. HE IS SHAKING ALL OVER AND THEY ARE CALLING IN A MASSAGE THEROPIST TO COME AND MAGGAGE HIM TO CALM HIM DOWN. THEY DID ANOTHER DNA TEST AND HE HAS A FEVER . THEY GOT HIM ON ANTIBIOTICS AGAIN. THEY MENTIONED LEUKEMIA AGAIN!!! THAT SCARED SUSAN AND TYLER AND OF COURSE I AM CRYING MY EYES OUT TOO. THEY SAID IF THERE WAS NOT A MISTAKE IN THE DNA TEST AND THIS TEST COMES BACK THE EXACT SAME THEN THEY ARE AFRAID HE STILL HAS LEUKEMIA CELLS . THEY THOUGHT HIS NEW CELLS WERE GROWING CAUSE HIS COUNTS CAME UP BUT THEY HAVE HIM ON MEDS THAT ARE BOOSTING HIS COUNTS UP. SO NOW IT IS UNSURE IF THE NEW BONEMARROW IS GROWING OR IF IT IS THE MEDS BOOSTING HIS COUNTS. THEY HAVE HIM SCEDULED FOR A BONE MARROW BIOPSY MONDAY TO SEE IF HIS NEW BONE MARROW IS GROWING OR IF IT HAS LEUKEMIA IN THEM. SO PLEASE PLEASE PLEASE PRAY EXRTA HARD TO GOD FOR TYLER . WE COULD NOT BARE THE NEWS THAT HE HAS LEUKEMIA AGAIN. THIS NEWS IS GOT US PULLING OUT OUR HAIR NOW . WE ALL ARE SO SCARED!!! WE CAN NOT LOSE OUR LITTLE FELLA . HE HAS FOUGHT THIS CANCER FOR ALMOST THREE YEARS NOW . HE CAN NOT LOSE NOW. HE HAS TO BEAT IT , HE JUST HAS TOO. PLEASE PRAY FOR HIM. PRAY FOR US ALL TO GET THRU THESE NEXT FEW DAYS OF WAITING ON THE NEWS . I CAN NOT BELIEVE WE ARE WAITING AGAIN ON THE TEST RESULTS TO SEE IF IT IS CANCER AGAIN. WELL THIRD TIME IS THE CHARM . I HOPE AND PRAY THIS IS THE LAST SCARE WE HAVE TO ENDURE . HUGGS EVERY ONE . AND THANK YOU FOR YOUR PRAYERS . IF YOU CAN WRITE TO TYLER AND GIVE HIM ENCOURAGEMENT PLEASE DO SO. ONLY THING IS I DO NOT THINK THEY HAVE BEEN ON A COMPUTER IN A FEW DAYS AND WITH THIS NEWS TYLER PRETTY MUCH GIVES UP DOING ANYTHING BUT SLEEPING . HE JUST PLAIN GIVES UP. AND HE MUST KEEP FIGHTING!!!! HUGGS DEBBIE (TYLERS GRANDMA WHOM LOVES HIM WITH ALL MY HERAT)
Tuesday, August 16, 2005 8:28 PM CDT
HELLO FRIENDS AND FAMILY, THIS IS TYLERS GRANDMA . TYLER DID NOT GET TO GET OUT OF THE HOSPITAL TODAY. HE IS RUNNING A LOW GRADE FEVER AND THEY DID NOT WANT TO LET HIM OUT THEN HE COULD COME BACK IN TO THE EMERGENCY ROOM FOR A FEVER. ALSO THEY HAD TO DO ANOTHER MOUTH SWAB TODAY FOR ANOTHER DNA TEST. THEY ARE NOT SURE NOW IF TYLER IS GROWING DONOR CELLS . THEY THINK THERE COULD OF BEEN A MIX UP AT THE LAB. GO FIGURE !!! HUH??? WELL PEOPLE DO MAKE MISTAKES. BUT I SURE HOPE THEY CORRECT IT SOON. ALSO TYLERS CULTURES SHOWS A VIRUS IN HIM AND THE DONOR. THE DONOR DID NOT GIVE IT TO TYLER THE DONOR AND TYLER JUST BOTH CARRY THE SAME VIRUS. IT DID NOT SHOW UP IN ANY TESTING THE DONOR DID AS IT WAS DORMENT (SLEEPING) IT WOKE UP IN TYLER. SO BECAUSE OF THESE THREE THINGS TYLER DID NOT GET TO LEAVE THE HOSPITAL TODAY . MAYBE TOMORROW HE CAN. KEEP PRAYING EVERY THING TURNS OUT FOR HIM.HIS MOMMY WORKED HARD FOR TWO DAYS SHOPPING FOR TYLERS FAVORITE FOODS LIKE CHEF BOY R DEE PIZZA AND STUFF TO COOK AT THE HOTEL. SHE TOOK ALL HER STUFF AND TYLERS FROM THE HOSPITAL TO THE HOTEL . POOR TYLER TOLD HER SHE MAY AS WELL BRING ALL HIS STUFF AND CLOTHS BACK TO HIS HOSPITAL ROOM CAUSE HE FEELS HE WILL STILL BE THERE FORTY YEARS FROM NOW!! POOR LITTLE FELLA IS SOOOO VERY DISAPOINTED!!! WE ALL ARE . BUT THIS IS JUST ANOTHER STEPPING STONE . LOVE CAN BUILD A BRIDGE .. AND GOD CAN DO MIRICLES AND TYLER CAME THIS FAR WITH THE HELP AND SUPPORT OF EACH AND EVERY ONE OF YOU AND ALL YOUR PRAYERS YOU SENT UP TO HEAVEN FOR HIM . SO KEEP TALKING TO GOD SO TYLER WILL GET HIS FULL MIRICLE. AND TO EACH AND EVERY CHILD OUT THERE AND ADULT WITH CANCER YOU ARE IN OUR PRAYERS AS WELL. KICK CANCERS BEHIND !!WE LOVE YOU ALL. GOD BLESS YOU . HUGGS FROM DEBBIE (TYLERS GRANDMA) AND TYLER AND HIS MOMMY SUSAN
Monday, August 15, 2005 9:04 AM CDT
HELLO EVETRYONE! TYLER GOES TO THE HOTEL ON TUES. HE IS DOING WELL AND EATING ON HIS ON.I HAVE LEARNED HOW TO GIVE HIM MEDS THROUGH HIS IV MACHINE.I HOPE I DON'T MESS IT UP. I AM VERY NERVOUS BUT I GOT TO DO IT.I HAVE HAD THREE LESSONS AND I GET ANOTHER ONE TODAY. KURT NUBMER 74 FROM OHIO STATE CALLED TYLER YESTERDAY AND IT MADE TY SO HAPPY.WE MISS HOME SO MUCH. ANOTHER SIX WEEKS SHOULD DO IT AND TY SHOULD BE ABLE TO COME HOME. WE CANNOT WAIT TO SEE OUR TOWN AGAIN. TYLER IS SO EXCITED ABOUT GETTING OUT OF HERE.HIS PLATLETS ARE LOW BUT HEY ARE NOT GOING TO TRANSFUSE HIM TODAY AND HIS WHITE COUNTS ARE LOWER BUT STILL GOOD.'WE ARE GREAT AND WANT TO THANK YOU ALL FOR THE CARDS AND WELL WISHES.I HAD A BLAST PUTTING THETM ALL OVER TYS ROOM AND HE LOVED READING THEM ALL. WE LOVE YOU AND GOD BLESS
Monday, August 8, 2005 9:52 AM CDT
HUGS TO ALL, IT HAS BEEN AFEW DAYS SINCE I UPDATED. TYLER HAS HAD ONLY ONE GOOD DAY AND THAT WAS SUN.WE CUDDLED UP IN HIS BED AND WATCHED A MOVIE.AND HE PLAYED AND WE SANG.THEN LAST NIGHT ALL NIGHT AND TODAY HE HAS BEEN VOMITING AND RUNNIG TO THE BATHROOM EVERY FEW MIN. WE ARE RUNNING OUT OF OPTIONS FOR THE VOMITING.HE IS STILL UNABLE TO EAT OR DRINK ANYTHING OR TAKE MEDS BY MOUTH.IT HAS BEEN A ROLLER COASTER RIDE.POOR TYLER ALL THE KIDS AROUND THE WARD ARE GOING HOME AND HE IS JUST NOT DOING AS WELL.IT HAS BEEN FIVE WEEKS THAT WE HAVE BEEN HERE.WE MISS HOME VERY MUCH.TYLER GOT A NEW PLAYSTATION GAME,IT IS THE 2006 NCAA FOOTBALL.HE HAS HIS OHIO STATE GUYS ON IT AND SHAWN CRABLE TOO. TYLER GOT A PHONE CALL LAST WEEK FROM JUSTIN ZWICK, HE WAS VERY HAPPY TO ANSWER THAT CALL. SO A BIG THNAK YOU TO KURT FROM OHIO STATE. TYLER CAN NOT WAIT TO PLAY YOU AGAIN IN FOOTBALL KURT.HE GOT PLATLETS YESTERDAY AGAIN.IT BOOSTED HIS COUNTS TO 19000 FROM 9000. I JUST WISH I COULD HELP HIM GET BETTER, BUT I CANNOT. IT HURTS TO SEE HIM THROW UP TO HARD THAT THE NURSES OUT IN THE HALL HEAR HIM. IT SOUNDS AS IF HIS INSIDES ARE GOING TO COME OUT.WE LOVE YOU ALL AND WILL UPDATE AGAIN SOON.GOD BLESS.....UNTILL NEXT TIME.
Wednesday, August 3, 2005 9:35 AM CDT
TODAY WE HAVE GREAT NEWS!!!!! TYLER HAS CELLS!!!!!!!!!!HE A HAS A WHITE COUNT AND HE HAS A ANC.WE ARE SO SO SO HAPPY. BUT HE STILL HAS TO GET A BONE MARROW ASP AND A BONE MARROW BIOPSY. WE ARE NOT LOOKING FORWARD TO THAT AT ALL IT IS SCHEDULED FOR 2:30 TOMORROW .SO PLEASE PRAY FOR TYLER AND I THANK YOU IN ADVANCE. WE ARE BVERY HAPPY WITH THIS NEWS.TYLER HAS A BAD UPSET TUMMY . HE IS WORKING WITH HIS OT TODAY ON A CRAFT PROJECT I GOT HIM YESTERDAY.EVERYONE IS COMING IN TO TELL HIM THEY HEARD THE GOOD NEWS.SO AGAIN THANK YOU TO EVERYONE AND WE LOVE YOU ALL.....
Monday, August 1, 2005 9:27 AM CDT
TODAY TYLER IS NOT IN THE BEST SPIRITS.HE GOT SICK ALREADY AND THE DOC IS PUSHING FOR HIM TO EAT. THAT IS THE LAST THING HE WANTS TO DO RT NOW.THEY WANT TO TAPER HIS TPN(IV NUTRITION) AND THEY CAN NOT DO THAT IF HE CAN'T EAT OR DRINK.HE IS IN A MOOD NOW.HE DID GET UP AND DO SOME PT THEROPY. HE WILL HAVE MORE TODAY AS THE DAY GOES ON.THEY WANT HIM UP AND MOVING OFF AND ON.THEY SAY THAT IS WHY HE HURTS SO MUCH FROM NOT GETTING OUT OF BED.THE DOC TOLD ME BOYS ARE MORE LAZY THEN GIRLS ON THIS MATTER.THERE IS STILL NO SIGN OF ANY INGRAFTMENT YET.THEY TELL ME IT WILL COME AROUND DAY 24. TODAY IS DAY +19.HE WROTE TO HIS DONOR ON THURSDAY. IT MADE THE LADY WHO IS SENDING IT CRY.IT WAS SHORT BUT VERY SWEET. HE EVEN DRREW HIS DONOR A PIC OF THE DONOR GIVING HIM THE BLOOD AND TYLER RECEIVING IT.TYLER TOLD HIM THAT HE WAS HIS HERO.....HOW SWEET IS THAT?WELL TODAY HE WILL BE GETTING PLATLETS AGAIN.AND I WANT TO SEND A SPECIAL THNAK YOU TO EMILY AND HER MOMMY I WENT ON EMILY'S SITE THE OTHER DAY AND TO MY SURPRISE THEY WERE ASKING THEIR FAMILY AND FRIENDS TO PLEASE PRAY FOR TYLER. IT REALLY TOUCHED ME THANK YOU BRENDA.GOD BLESS YOU ALL AND PLZ CONTINUE TO PRAY FOR ALL THE SICK KIDS.
Friday, July 29, 2005 9:38 AM CDT
HUGS TO ALL, TYLER STILL HAS NOT GRAFTED YET.HE HAS NO COUNTS AS OF YET.HE GOT BLOOD TRANSFUSIONS YESTERDAY. I THINK HE MAY GET PLATLETS BY TOMORROW. THEY WERE WORRIED THAT HE MAY HAVE HAD A BRAIN BLEED A FEW DAYS AGO HE WAS HAVING BLURRY VISION AND HEADACHES.IT WAS DUE TO LOW PLATLETS.HE IS STILL VOMITING DAILY.HE HAD WATERMELON YESTERDAY, AND AS SOON AS HE ATE IT HE LOST IT. HE WAS SO UPSET. HE CRAVED IT FOR A WHILE AND THE DOCS WENT OUT AND BOUGHT IT FOR HIM AND THEY CUT IT FOR HIM.I EVEN TOOK PICS OF HIM EATING IT.THE REASON WE WERE SO EXCITED IS BECAUSE TYLER HAS NOT EATEN OR DRANK IN TWO WEEKS!!!!SO THIS WAS A BIGGGGG DEAL!!!BUT THE GOOD NEWS IS HE WILL TRY AGAIN TODAY.IF HIS COUNTS COME IN SOON THEN HE WILL BE HERE ABOUT TWO WEEKS THEN GO TO THE HOTEL FOR ANOTHER 8 WEEKS.WE HAVE 3 WEEKS IN ALREADY THANK GOD. UNTIL NEXT TIME GOD BLESS....
Monday, July 25, 2005 9:16 AM CDT
GOOD MORNING TO ALL, TYLER WOKE UP EARLY TODAY ,HE HAD POOH BEAR LOOKING AT ME IN MY BED.HE WAS ON OXYGEN AGAIN LAST NIGHT BUT HE HAS NO NEED FOR IT IN THE DAY TIME.THE DOCOTOR SAID THAT IT WILL BE ABOUT ANOTHER WEEK BEFORE WE SEE SIGNS OF NEW CELLS GROWING.SHE ALSO SAID HE SHOULD BE DONE WITH THE WORST OF THE PAIN AND VOMITING.WE SURE HOPE SHE IS RIGHT. HE IS AGAIN LOOSING HIS HAIR, SO THE HAIR FAIRY IS GOING TO PAY HIM A VISIT AND BRING HIM A PRESENT.THIS IS HIS 4TH TIME LOOSING HIS HAIR.IT WAS PURE BLOND THIS TIME. I HAVE TO GO TO THE HOTEL SOON AND GET A SHOWER AND TYLER DIDN'T WANT ME TO GO SO I TAPED A PIC OF ME TO HIS BED AND GAVE HIM MY BLANKET TO COVER UP WITH.I TOLD HIM I WON'T BE GONE LONG.HE SAID HE FEELS LIKE HE IS IN JAIL HERE.I KNOW HOW HE FEELS.POOR LITTLE GUY TOMORROW IT WILL BE 3 WEEKS WE HAVE BEEN HERE.HE WILL BE GETTING PLATLETS AGAIN TODAY AS WELL.HE SPIKED A FEVER LAST NIGHT BUT IT IS NORMAL TODAY. HE WILL ALSO BE GETTING A CHEST X-RAY TODAY TOO.DR. DAVIES JUST WANTS TO MAKE SURE THAT HE DON'T HAVE A FUNGUS GROWING IN THE CHEST AREA.IT IS JUST PRECAUTION.THAT IS ABOUT ALL FOR NOW .HUGS TO YOU ALL. AND GOD BLESS.
Thursday, July 21, 2005 2:03 PM CDT
HELLO, TYLER HAD A FEVER LAST NIGHT ,BUT IS NORMAL NOW. HE HAS BACK APIN TODAY WE FOUND OUT IT WAS FROM NEW MEDS HE WILL GET DAILY NOW FOR HIM TO GROW WHITE CELLS.HE IS ON A CONSTANT PAIN DRIP AND ALSO HE CAN PUSH THE PAIN BUTTON WHEN HE NEEDS TOO.HE IS DOING OT RIGHT NOW.SO HE MUST BE FEELING SOMEWHAT BETTER THEN THIS AM.SO FAR HE GOT SICK ONE TIME TODAY.HE HAS HIS MIND SET ON BUYING A MINI CROTCH ROCKET(MINI MOTORCYCLE) WHEN HE GETS OUT OF HERE.HE IS ONLINE DAILY LOOKING AT THE ONE HE WANTS AND SHOWING HIS NURSES TOO.TODAY IS DAY +8.IN A FEW DAYS WE SHOULD SEE DONOR CELLS GROWING IN HIS BONEMARROW.HUGS TO ALL AND GOD BLESS.....
Wednesday, July 20, 2005 9:55 AM CDT
HUGS TO ALL, TYLER IS STILL SLEEPING THIS MORNING. HE IS GETTING TWO UNITS OF BLOOD TODAY. HE IS GOING OFF OF A MED CALLED ZOFRAN, IT HELPS WITH VOMITING. THEY THINK IT IS THE SOURSE OF HIS HEADACHE.SO HE WILL START A NEW MED THAT WILL HELP WITH VOMITING AND MAKE HIM HUNGRY. HE GOT SUCH A NICE BLANKET FROM HIS FRIEND KYLES MOMMY. SHE MADE IT FOR HIM AND GAVE IT TO HIM JULY 4. HE USES IT EVERY DAY.IT IS COOL IN HERE AND THAT BLANKET IS SO WARM. SO THANKS AGAIN SANDY WE LOVE YOU GUYS!!THE POOR LITTLE GUY CANNOT STAND NOISE OF ANY KIND. HE TAPED UP HIS INTERCOM BECAUSE HE SAID THE NURSES WERE TOO LOUD ON IT.HE HAS HIS HEAD COVERED WITH HIS ARM NOW.HIS ROOM IS GETTING CLEANED AND I THINK HE HEARS HER EVEN IF HE IS SLEEPING.TODAY IS DAY 7 FOR THE TRANSPLANT.SO FAR HIS COUNTS ARE BOTTOMED OUT TO A BIG ZERO.HIS PLATLETS CAME UP FROM YESTERDAT,THEY WERE 9000 NOW THEY ARE 30000.THAT IS REAL GOOD BECAUSE HE WAS BLEEDING FROM HIS PORT SITE IN HIS CHEST.I THINK THAT IS ABOUT IT FOR NOW .BIGGEST HUGS TO YOU ALL WE LOVE YOU.
GOD BLESS
Tuesday, July 19, 2005 9:42 AM CDT
HUGS TO YOU ALL, TYLER HAD A VERY BAD NIGHT, HE GOT SICK TWICE FROM SEVERE HEARTBURN.HE WAS IN SOOOO MUCH PAIN HE KEPT HITTING HIS PAIN PUMP.HE HAD A HEADACHE NON STOP.HE GOT PLATLETS TODAY AND HE SLEPT RT THOUGH THEM. HE GOT A SPECIAL PHONE CALL LAST NIGHT FROM N UMBER 74 OHIO STATE.HE TOLD ME THAT TYLER WAS ON HIS MIND AT WORK AND HE WANTED TO CHECK ON HIM.HE AND HIS FRIEND ARE THE BEST MEDICINE THAT TYLER HAD ON SAT.SO MISS PAM THANK YOU FOR TELLING YOUR FRIEND KIM CATHY AND KIM THANKS FOR TELLING YOUR FRIENDS AT CONCORD ABOUT MY TY-TY.HE REALLY GOT A KICK OUT OF THE VISIT.I THINK HE MADE TWO NEW FRIENDS. I HEAR THE BENEFIT WENT WELL.THANKS TO ALL WHO WENT,WE WISH WE COULD HAVE BEEN THERE.AND TO MOM AND DAVID AND JAN A BIG HUG AND I LOVE YOU ALL.MARY YOU ARE THE BEST I MISS YOU AND YOUR WONDERFUL KIDS.I HOPE TO SEE YOU ALL HERE SOON.I AM CHECKING TO SEE IF THE KIDS CAN COME.I GUESS IT IS A CASE BY CASE ANSWER. WE BEEN HERE TWO WEEKS TODAY.TOMORROW WILL BE ONE WEEK TYLER GOT HIS NEW CELLS.BIG HUGS TO YOU ALL.TWO OF HIS NURSES FROM THE CLINIC JUST STOPPED IN TO SEE HIM AND HE NEVER EVEN KNEW THEY WERE HERE.THEY ARE THE ONES WHO TELL HIM RENECK JOKES.HE LOVES LARRY THE CABLE GUY AND JEFF FOXWORTHY.TYLER AND THESE TWO NURSES CAN KEEP IT GOING.THEY SAID THEY ARE GOING TO GET HIM A TALKING DOLL.HE WOULD LOVE THAT.WELL I BETTER GO HUGS TO ALL AND GOD BLESS.
Monday, July 18, 2005 10:01 AM CDT
HI ALL, TYLER IS HAVING A GOOD DAY TODAY.HE HAS HAD OT COME IN TWICE ALREADY AND IT IS ONLY 11 AM.HE PLAYED FOOTBAL IN HIS ROOM THIS MORNING WITH THE FIRST LASY.IT KEEPS HIS ARM STRENGH UP. THIS SAT HE WOKE UP CRYING. HE WAS HOMESICK AND FEELING BAD.WELL THNAKS TO HIS FRIEND PAM.. SHE HOOKED HIM UP WITH A SWEET GUY IN CANTON WHO WORKS IN CONCORD.HE IN TUEN HAD HIS FRIEND COME WITH HIM FROM OHIO STATE.THEY MADE MY SON SMILE FOR THE REST OF THE DAY.BIG THANKS TO GARY AND KURT.THEY TOOK PICS AND PLAYED PLAYSTATION WITH HIM AND BROUGHT HIM AUTOGRAPHED PICS AND FOOTBALLS.AND THAN KS TO ALL OF YOU AT CONCORD WHO SIGNED TYLERS SHIRT.SO MANY THANK YOUS.TODAY MY SON IS EATING JELLO.THIS IS A BIG DEAL BECAUSE HE HAS NOT ATE IN 8 DAYS.IM SO PROUD OF HIM HE IS SOOOO STRONG AND SO FAR HE IS DOING SO WELL.HE HAD A FEVER YESTERDAY.SO HE IS ON 3 ANTIBIOTICS IV DRIP.HE IS MY HERO.AND SO ARE THE GUYS WHO CAME ALL THE WAY FROM CANTON TO SEE HIM.GARY TOLD HIM TO NEVER GIVE UP AND THAT TYLER COULD DO ANYTHING!!!!WE TOOK LOTS OF PICS OF THE GUYS AND TYLER SO WATCH FOR THEM COMING SOON.KATHY THANKS FOR ALL YOUR MESSAGES TOO FROM CONCORD.WE KNOW YOU ARE ALL OUT THERE AND THANK YOU.WHEN TYLER GETS CARDS WE HANG THEM IN HIS ROOM TO DECORATE THIS OLD PLACE.WE ARE PROUDLY DISPLAYING HIS NEW FOOTBALLS AND PICS HE GOT TOO.HUGS TO ALL AND GOD BLESS.
Friday, July 15, 2005 10:08 AM CDT
HELLO, TYLER IS VOMITING ALOT THIS MORNING.THAT MAKES IT VERY HARD TO GET MEDS DOWN.HE IS GETTING PLATLETS TODAY.HIS ANC IS AT A BOTTOMED OUT O.THIS IS WHAT WE WANTED.NOW THE NEW MARROW CAN GROW.IT CAN START TO SHOW SIGNS OF ENGRAFTMENT AT 7 DAYS.BUT NORMALLY IT TAKES AT LEAST TWO WEEKS.TY IS VERY GRUMPY TODAY AS WELL.HE SAYS HE CANNOT TAKE IT ANYMORE.HE THINKS I AM MEAN BECAUSE I KEEP PRODDING HIM TO TAKE HIS MEDS.RT NOW HE FINALLY TOOK 3 OUT OF FOUR OF THEM.HE IS PLAYING PLAYSTATION RT NOW.HE DRIVES LIKE A WILD MAN ON THIS GAME.NOT TO SELF DO NOT RIDE WITH TYLER WHEN HE GETS A CAR.HA HA.ANYHOW THEY THINK HIS KIDNEYS ARE LEAKING OUT SOME IMPORTANT NUTRIENTS.HOPEFULLY THAT IS NOT THE CASE.SO THEY ARE WATCHING HIS OUTPUT.HE STILL HAS NOT ATE .ITS BEEN ABOUT 6 DAYS NOW.IF HE DOES TRY HE GETS SICK. HE FEELS WHY BOTHER IT WILL COME BACK UP ANYHOW.HIS PAIN PUMP WAS CHANGED TO A DIFF PAIN MED, HOPEFULLY IT WON'T MAKE HIM SICK.WELL THE NURSE JUST TOOK HIS TEMP AND HE HAS A FEVER. SO WE GOT TO TAKE CULTURES ON BOTH CHEST PORTS.HE IS NOT HAPPY.IF TYLER ISN'T HAPPY THEN MOMMY ISN'T.I THINK THAT IS ABOUT ALL. GOD BLESS .
Thursday, July 14, 2005 11:41 AM CDT
HELLO EVERYONE, TYLER GOT HIS NEW BONEMARROW ON JULY 13 AT 8:45 AM.HE WAS DONE TRANSFUSING AT 9:45 AM.IT WAS A LITTLE UNDER FOUR OUNCES OF RED BLOOD.I CRIED LAST NIGHT THINKING ABOUT HIS DONOR.I MET SOME PARENTS HERE AND SEVERAL HAVE TOLD ME THAT THEIR CHILD'S DONOR BACKED OFF. I COULD NOT IMAGINE THAT HAPPENING TO US.TY'S DONOR IS MY SECOND HERO, AS TYLER IS MY FIRST ONE.HE IS DOING WELL WITH IT SO FAR.WE HAD IT BLESSED BY A MINISTER AND TYLER GOT ANNOITED WITH HOLY OIL AND HE GOT A PRAYER CLOTH HE SLEEPS WITH IT.HE IS GETTING READY TO GET A BLOOD TRANSFUSION.HE MAY GET PLATLETS TOMORROW.AGAIN THANKS TO WONDERFUL DONORS.YOU JUST CANNOT IMAGINE HOW GOOD PEOPLE ARE UNTIL YOU SEE WHAT ALL OF THESE DONORS DO FOR US . WE TOOK LOTS OF PICS OF TYLER GETTING HIS NEW MARROW. I BOUGHT HIM A HAPPY BIRTHDAY BALLOON, BECAUSE THIS WILL BE HIS SECOND B-DAY NOW.SOME OF YOU MAY NOT KNOW THIS BUT TYLER WAS BORN ON MY WEDDING ANNIVERSARY.ODDLY ENOUGH HE GOT HIS NEW MARROW ON THE DAY OF MY DIVORSE ANNIVERSARY.I KNOW IT IS VERY STRANGE.HE WAS SUPPOSED TO GET HIS MARROW ON THE 12TH. BUT IT GOT BACKED UP A DAY.I WISH SO MUCH WE COULD THANK HIS DONOR BUT WITH THE NEW HEPA LAWS WE CANNOT.I HOPE HE IS DOING OK AND IS NOT TOO SORE.WHAT A WONDERFUL MAN HE IS.TYLER CANNOT EAT YET ,AS HE IS STILL VOMITING .HE IS NOW TWENTY FOUR HOURS IN TO HIS 100 DAY COUNTDOWN.PLEASE KEEP HIM IN YOUR PRAYERS THIS IS A VERY RISKY TIME FOR HIM. HE HAS NO COUNTS AT ALL .GOD BLESS YOU ALL, WE SURE DO LOVE YOU.
HUGS TYLER AND SUSAN
Monday, July 11, 2005 9:21 AM CDT
GOOD MORNING.TYLER IS NOT DOING WELL AT THIS TIME.HE FINISHED HIS RADS AND CHEMO.HE HAS BEEN VOMITING FOR 3 DAYS ,SO MUCH THAT HE HAD BLOOD IN IT.LAST NIGHT HE HAD BLOOD IN THE URINE.HE HAS THE RUNS CONSTANTLY.HE HAS A FEVER OF 103.HE HAS TEN PUMPS RUNNING ON HIM SOME OF WHICH ARE DOUBLE PUMPS.SO YOU CAN IMAGINE HOW MUCH MEDS HE IS GETTING.HE CANNOT EAT OR DRINK FOR 3 DAYS NOW.HE IS ON A MORPHINE PUMP THAT HE CONTROLS FOR PAIN.THEY TELL ME ALL OF THIS IS THE NORM.TYLER SAID THIS AM AT 3:30 THAT HE NO LONGER COULD DO THIS.WE BOTH CRIED.ON THE GOOD SIDE OF THINGS... HIS DONOR IS A 26 YEAR OLD MALE .HOW MANY YOUNG MEN DO YOU KNOW THAT WOULD DONATE HIS MARROW TO A STRANGER???? WE ARE VERY EXCITED ABOUT THIS.TYLER SAYS (THATS COOL).WE GOT A ROOM AT THE RONALD MCDONALD HOUSE SO I CAN TAKE A SHOWER ,BUT I CANNOT LEAVE TYLER FOR VERY LONG.I GOT A CELL PHONE AND IF I LEAVE HIM MORE THEN A FEW MIN HE CALLS ME AND SAYS(MOM IM SICK AGAIN WHERE ARE YOU?)I KEEP A DAILY JERNAL ON HIM AND IT HELPS TO WRITE THINGS DONE. I ALSO BEEN GOING TO THE CHAPEL. IT HELPS ME ALOT.IT IS A VERY NICE ONE.I WRITE IN THE JERNAL THERE AND I NOTICED SOMEONE READ IT AND WROTE BACK TO GOD ABOUT TYLER AND I.I LOVE TYLER SO MUCH ANDS I JUST WANT HIM TO GET BETTER.I HOPE WE ARE DOING THE RIGHT THING FOR HIM.WE LOVE YOU ALL AND THANKS FOR ALL THAT YOU HAVE DONE FOR US.HERE IS TYLERS NUMBER AND ADDY IF YOU WANT TO WRITE OR CALL.(513)-636-1519 CINCINNATI CHILDREN`S HOSPITAL MEDICAL CENTER,3333 BURNET AVE, CINCINNATI,OHIO 45229-3039 THANKS AGAIN AND GOD BLESS
Wednesday, July 6, 2005 2:34 PM CDT
HELLO ALL, WELL WE MADE IT TO CINCCI.THIS IS OUR SECOND DAY , TYLER HAD TWO DOSES OF RADIATION TODAY.HE HAD ONE THIS MORNING AND ONE THIS AFTERNOON.HE HAS TWO MORE DAYS OF THIS AND THIN TWO DAYS OF HIGH DOSES OF CHEMO. HE GETS HIS MONEMARROW ON JULY 13.WE ARE ONE DAY DELAYED ON THIS.THEY ARE VERY NICE TO TYLER HERE.HIS SURGERY TO GET HIS NEW BROVIAC WENT VERY SMOOTH.IT TOOK MAYBE 30 MIN.HE NEEDS SMALL AMOUNTS OF MORPHINE FOR THE PAIN OF THE TWO CUTS HE HAS.HE LOVES THE FOOD , HE CAN ORDER WHAT HE WANTS WHEN HE WANTS.SOON HE WILL NOT EAT AT ALL SO WE WANT HIM TO ENJOY.HE IS ON A SPECIAL DIET NOT RAW FOODS.THIS HE DOES NOT LIKE BECAUSE HE LOVES SALADS AND CELERY.WE LOVE YOU ALL AND GOD BLESS.
Wednesday, June 22, 2005 2:44 PM CDT
HELLO EVERYONE. WE ARE HOME FROM CINNCI.IT WENT WELL, THEY TOOK 27 TUBES OF BLOOD.TYLER HAT SCANS DONE AND WAS MEASURED FOR HIS RADIATION.HE GOT HIS HEART TESTS AND KIDNEY TESTS DONE TOO.WE GOT THERE OK, BUT COMING HOME I ALMOST MESSED UP .I WAS SCARED BUT MY OLDEST BOY JUSTIN HELPED ME THROUGH IT.THANK YOU GOD FOR JUSTIN!!!MEN HAVE A BETTER SENCE FOR DIRECTIONS THEN I DO.TY GOES TO AKRON ON FRI MORNING FOR A BONE MARROW ASP.HE WILL BE PUT TO SLEEP FOR THAT. THE AIRPLANE RIDE WAS THE BEST TIME WE EITHER ONE HAD.WE GOT TO RIDE FOR 45 MIN.IT WAS SO PRETTY UP THERE.WE GOT TO GET UP AND WALK ALL OVER IN THE PLANE. EVEN IN SMALL SPACES UNDER THE PILOTS.WE WERER IN HEAVEN UP THERE. TYLER AND I TALKED ABOUT HEAVEN TOO ,WE KNOW KEVIN IS UP THERE.TYLER WAS INVITED BACK NEXT YEAR, HE WANTS TO GO.POOH BEAR AND I AND TYLER GOT A VIP STICKER AND A CERTIFICATE TO SAY WE RODE A B-17 FIGHTER PLANE FROM 1940.IF YOU NEVER DID I ..GO FOR IT.WELL TYLER GOES TO CINCCI ON JULY 5 AT 10 AM.GOD BLESS ALL.
Thursday, June 16, 2005 10:10 AM CDT
HUGS TO ALL, TYLER HAS A BUSY WEEKEND.TODAY HE IS GOING TO FINISH IS PYRIMID THAT HE IS MAKING WITH HIS TEACHER.IT WILL EVEN HAVE A MUMMY IN IT.HE MADE THAT IN THE HOSPITAL AND TOLD HIS NURSES THAT IT WAS ME.FRI, HE GETS TO GO ON A AIRPLANE THANKS TO WISHES CAN HAPPEN. HIS FRIEND HATTI COULDN`T GO AND ASKED FOR HIM TO GO IN HER PLACE.SAT IS THE CAR SHOW IN MASSILLON, AND TYLER HAS A NAIL PLACE ON ERIE THAT IS DOING A TWO HOUR BENIFIT FOR HIM. SO IF YOU NEED A MASSAGE AND YOU ARE DOWN AT THE CAR SHOW STOP AT PAMPERED NAILS AND GET A MASSAGE, AND IF YOU SEE TYLER DOWN THERE WHICH WE WILL BE IN THE PARKING LOT UP AGAINST THE FENCE BY BOB EVANS, YOU CAN SAY HI TO HIM.SUN TYLER GOES BACK TO THE AKRON AIRPORT TO SEE A AIR SHOW ALSO THANKS TO WISHES CAN HAPPEN.MON HE GOES TO AKRON TO GET SOME TESTS DONE.THEN FRI, HE GOES BACK IN AND HAS A BONEMARROW ASP UNDER SEDATION.AS FOR THE FOLLOWING WEEK SOMETIME WHENEVER BOTH HOSPITALS CAN FIGURE OUT WHAT THEY ARE DOING TYLER WILL GO TO CINCCI FOR TWO DAYS FOR US TO SIGN THE CONTRACT AND GO OVER THINGS.I KEEP GETTING TOLD WE ARE GOING ONE DAY THEN THEY CHANGE IT. SO WE DON`T KNOW ANYTHING ABOUT WHEN HE STAYS YET!!!!WELL TYLER IS AWAKE NOW SO I`M GONIG TO GO GIVE HIM HIS MEDS ,HUGS TO ALL
Monday, June 13, 2005 10:14 AM CDT
HUGS TO ALL, TYLER GOT OUT OF THE HOSPITAL ON SAT.HE CAME HOME AND WE HAD A FIRE AND MADE SMORES AND HOTDOGS.WE WENT SWIMING TOO.ON SUN WE SPENT THE DAY SWIMMING AND WE WENT FOR A CAR RIDE LAST NIGHT IN GRANDMA`S CONVERTABLE. AFTER WE GOT HOME LAST NIGHT WE SAT ON THE DECK AND THEN TYLER HAD SOME BONE PAIN SO HE ASKED FOR MORPHINE.RT NOW IT IS 11 AM AND HE IS STILL SLEEPING.I FEEL BAD FOR HIM.TODAY HE GOES BACK UP TO AKRON AND GETS HIS BLOOD CHECKED AND GET ANOTHER CHEMO THROUGH THE MEDIPORT IN HIS CHEST.WE ARE GETTING MORE NERVOUS ABOUT LEAQVING FOR CINCCI.PLEASE KEEP TYLER AND ALL THE LITTLE KIDS IN YOU PRAYERS.IT`S HORRIBLE TO SEE THESE KIDS UP THERE SUFFERING THERE ARE EVEN BABIES UP THERE,LITTLE TINY BABIES WITH CANCER.I JUST CAN`T FIGURE OUT WHY?????/SO PLEASE KEEP THEM IN YOUR PRAYERS.GOD BLESS...
SUSAN
Wednesday, June 1, 2005 8:03 PM CDT
HELLO ALL, TY WENT TO THE CLINIC TODAY AND HAD HIS CBC COUNTS DONE.THEY WERE REALLY GOOD.WE GAVE THE GO AHEAD TO CONTACT THE DONOR AGAIN AND START HIS TESTING.WE ARE A GO FOR CINCCINATTI.THIS WAS DECIDED TODAY BECAUSE I TALKED WITH TYLER`S DOC AND HIS ONCOLOGIST AND SUE , AND THIS IS THE BEST RATED PLACE FOR TYLER TO BE.SO WE ARE GOING AROUND JUNE 20 OR 25.TYLER GOES IN THIS MON FOR ANOTHER ROUND OF CHEMO FOR 5 DAYS.THIS WILL BE HIS LAST ROUND EVER AT AKRON.AFTER THIS HE WILL GET FUTHER TESTING DONE ON ALL OF HIS ORGANS TO MAKE SURE HE IS GOOD TO GO FOR HIS TRANSPLANT.WE ARE EXCITED AND SCARED.TYLER JUST WANTS TO GET DONE WITH IT ALL.WE ALSO FOUND OUT TODAY THAT HIS PHILI CHROMASOME IS NOT APPEARING IN HIS BLOOD.THE NASTY GLEEVAC IS WORKING (OHHH THANK YOU LORD)!!!!SO WE HAVE ALOT TO BE THANKFUL FOR TODAY. TYLER FELT GOOD ENOUGH TO TAKE NOT ONE BUT TWO TODAY.IT WAS VERY FUN TO SPENS TIME WITH HIM WE USE TO WALK ALL THE TIME .TY CALLS IT NIGHT WALKS BECAUSE WE WALKED IN THE EVENING.OHH THOSE WERE THE DAYS.I MISS MY KIDS BEING SO SMALL AND INOCENT, IF ONLY WE COULD STOP TIME AND ERASE MISTAKES.WE VIVITED HATTI TODAY TOO. TYLER MADE HER A CARD AND WORE A FUNNY FACE WHEN HE GAVE IT TO HER, HER MOMMY AND HER BOTH TOOK PICS OF US .WE HAD A VERY NICE TIME WITH THEM AS ALWAYS.WELL THAT`S ABOUT IT TILL NEXT TIME GOD BLESS.......
Sunday, May 29, 2005 7:48 PM CDT
HELLO, TYLER IS HOME NOW.WE ARE SO HAPPY TO BE HOME TODAY.HE GOT RELEASED AT TWELVE TODAY.HE IS STILL COUGHING ,BUT THE DOCTOR SAYS HIS LUNGS ARE CLEAR.I STILL WORRY ABOUT HIM GETTING WORSE.HIS TUTORING IS GOING WELL.SHE IS GOING TO USE SOME BEADS WITH MATH ON THEM TO DO A PROJECT WITH HIM SINCE HE LIKES BEADS SO WELL.HE GOES BACK IN TO SEE DR. TALIA ON WEDS FOR A BLOOD COUNT.WE ARE STILL TRYING TO GET AN APPT. FOR RAINBOW IN CLEVELAND.HATTI CAME BY WEDS TO SEE TYLER AND BROUGHT US BOTH A SWEET PRESENT SHE IS THE BEST.THANK YOU HATTI!!!TRISHA IS A GIRL FROM OUR TOWN THAT GOES TO SCHOOL WITH MY MIDDLE SON NICK. WE SPENT ALOT OF TIME WITH HER AND HER MOMMY THIS WEEK UP IN AKRON. THEY ARE A WONDERFUL FAMILY AS WELL.IT IS DOING GOOD FOR TYLER TO KNOW HE IS NOT ALONE IN HIS FIGHT.WE ALSO SPENT TIME WITH A GIRL NAMED DIAMOND WHO IS FROM AKRON.HER MOMMY IS SUPER AS WELL.I ADMIRE ALL OF THESE PEOPLE I JUST MENTIONED ESPECIALLY BECASUE THEY ALL HAVE A STRONG BOND WITH GOD.THE KIDS AS WELL AS THE PARENTS.HELEN THANK YOU FOR THE LETTER AND THE BRACLET TYLER LOVES IT AND HE WILL WRITE YOU BACK.MRS. PALLARD TYLER WILL WRITE YOU BACK AS WELL. I MISS TALKING WITH YOU.TYLER IS A TOUGH LITTLE GUY AND I`M SO PROUD OF HIM.I LOVE HIM SO MUCH AND HIS SMILE IS RETURNING .I THNAK GOD FOR EVERY GOOD DAY.HUGS TO ALL AND GOD BLESS.OHHH YES LESLIE THANKS FOR THE CARD AND THE VISIT YOU KNOW WE LOVE YOU ...
Thursday, May 26, 2005 6:48 PM CDT
HELLO TYLER HAS A FEVER TODAY OF 101 . WE DO NOT KNOW WHEN HE WILL BE RELEASED YET. HE IS ON MORPHINE EVERY FOUR HOURS NOW . HE IS NOT DRINKING OR EATING MUCH. HE IS STILL ON A FEEDING BAG . HIS WHITE COUNTS WENT FROM .2 TO .9 WHICH IS STILL TOO LOW . HE HAS NO ANC WHICH FIGHTS INFECTIONS . HIS MOMMY WOULD LIKE TO START A DONATION TO AKRON CHILDRENS HOSPITAL CRAFTS OF ANY KIND OF CRAFT MATERIALS , LIKE BEADS , CONSTUCTION PAPER, CLAY , MARKERS ,OR ANY TYPE OF ARTS OR CRAFTS SUPPLYS. VOUNTEERS GO IN THESE CHILDERNS ROOM AND HELP THEM MAKE CRAFTS . ALL THE MATERIAL IS DONATIONS. THIS IS THE ONLY THING TYLER HAS ENJOYED DOING WHILE HE IS IN THE HOSPITAL . HE REALLY ENJOYS MAKING THE BEAD CRAFTS . SUSAN HAS FOUND THAT OTHER KIDS ON THE HEMO FLOOR ALSO ENJOY MAKING CRAFTS TOO. MOST ARE TOO SICK TO GO OUT OF THEIR ROOMS TO GO AND DO THINGS OR TO GO TO THE GAME ROOMS .SO CRAFTS ARE SOMETHING THEY CAN DO RIGHT FROM THEIR BEDS AND ENJOY DOING. TYLER ENJOYS MAKING THESE THINGS AND GIVING THEM AWAY TO THE NURSES AND HIS MOMMY AND OF COURSE HIS POOH BEAR. SUSAN TOOK PICTURES TODAY OF TYLER PRESENTING A NECKLACE HE MADE OF ORANGE AND BLACK TO HIS FAVORITE NURE PATSY BECAUSE SHE IS FROM CANTON. SHE PRUDLY WORE IT ALL DAY LONG AND SAYS SHE WILL TREASURE IT ALWAYS. HUGGS TO EVERYONE WHO READS THIS AND DO NOT FORGET TO SIGN TYLERS GUESTBOOK TO LET HIM KNOW YOU VISITED HIS SITE . UNTILL NEXT TIME HUGGS FROM DEBBIE , SUSAN AND TYLER
Monday, May 23, 2005 7:33 AM CDT
HELLO FRIENDS AND FAMILY, TYLER HAD A GREAT TIME ON HIS HARLEY RIDE. HE HAS A NEW HERO .. IT IS JD THE WONDERFUL MAN HE IS ON THE HARLEY WITH. THAT MAN SURE DID STEAL TYLERS HEART. HE HAS NOT STOPPED TALKING ABOUT HIM . THE FREEDOM HARLEY DAVIDSON SHOP AND THEIR BIKERS WERE SO AWESOME TO TYLER AND ALL OF US. THEY DONATED TYLER A MODEL HARLEY AND A T SHIRT AND A SCARF AND A HARLEY BASE BALL CAP THAT THEY LET HIM PICK THEM ALL OUT OF ANY THING IN THE STORE . TYLER WORE A HUGE SMILE . UNFORTANTLY .... HE CAME HOME AND GOT A HIGH FEVER AND ENDED UP BACK IN THE HOSPITAL THAT EVENING. HE HAS MOUTH SORES FROM CHEMO AND IT GAVE HIM A FEVER AND MUCH PAIN. SO HE IS ON MORPHINE EVERY THREE HOURS AND INBETWEEN IF NEEDED. ALSO HE HAD TO GET BLOOD AND PLATLET TRANSFUSIONS . HIS BODY IS THROWING OFF AND ANTIBODY TO SOME BLOOD NOW MAKING IT HARDER TO FIND HIM A BLOOD MATCH. HE HAS A DONOR AS WE TOLD EVERYONE FOR HIS BONEMARROW TRANSPLANT BUT HOWEVER HE CAN NOT GET IT TILL HE IS STABLE CONDITION. SO PLEASE PRAY FOR HIM TO GET STABLE SO HE CAN CONTINUE HIS JOURNEY TO RECOVERY. THANK ALL OF YOU FOR ALL YOUR PRAYERS AND SUPPORT . PLEASE DO NOT FORGET TO SIGN TYLERS GUESTBOOK SO HE WILL KNOW YOU CAME BY TO VISIT HIM:) GOD BLESS EACH AND EVERY ONE OF YOU. WE LOVE YOU HUGGS TYLERS GRANSMA DEBBIE
Thursday, May 19, 2005 8:54 PM CDT
HELLO ALL, TODAY TYLER WENT TO CLINIC AGAIN.HIS LIVER PANEL TEST SHOWED SOME ABNORMAL RESULTS.DR.TALIA DOESN`T WANT TO RISK SHUTTING DOWN HIS LIVER OR OTHER ORGANS,SO HE IS AGAIN POST PONING CHEMO AND THE SPINAL TAP UNTIL NEXT WEDS.TYLER DID GET HIS VINCRISITNE CHEMO TODAY.HE IS ALSO NO LONGER TAKING HIS MED CALLED BACTRIM AS IT TOO CAUSES HIS LIVER TO ACT UP. SO TODAY HE WAS SENT DOWN TO THE RESP . AREA FOR A BREATHING TREATMENT UNDER A BUBBLE AND IT DOES THE SAME THING AS THE BACTRIM, BUT HE ONLY HAS TO GET THIS ONE TIME A MONTH,WHERE THE PILL WAS TWO TIMES A DAY 3 TIMES A WEEK.SO TYLER LIKES THIS BETTER.HE TOOK HIS GLEEVEC PILL TOMIGHT LIKE A BRAVE SOLDIER.OHHH I WAS SO PROUD OF HIM.WE DIDN`T ARGUE OVER IT ,IT DIDN`T TAKE HIM TWO HOURS TO TAKE IT.HE ALSO GOT MORPHINE TODAY FOR HIS BONE PAIN.AND THE BIGGEST NEWS OF ALL IS THAT WE GOT A DONOR!!!!!!!!!!!!!!!!!!!!!I JUST WISH WE COULD GO TO CLEVELAND.SO WE HAD A PRETTY BIG DAY TODAY.WE ALSO GOT TO VISIT WITH HATTI TOO.SHE IS A WONDERFUL 11 YR OLD GIRL AT THE CLINIC,SHE LOVES GOD AND EVERY ONE ELSE.UNTIL NEXT TIME GOD BLESS.......
Monday, May 16, 2005 7:51 AM CDT
HELLO TYLER WILL BE COMING HOME TODAY SOMETIME. HE HAS TO GET THREE CHEMO SHOTS IN HIS LEGS TODAY. HE HAS BEEN ON ABOUT SIX DIFFERENT CHEMOS THIS WEEK. HE HAS MOUTH SORE AND OTHER SORE SPOTS THRU OUT HIS BODY. HE CAN NOT WAIT TO COME HOME AND HAVE HIS CHEF BOY R DEE PIZZA I BUY HIM. HE IS CRAZY ABOUT THEM . I HOPE IT DOES NOT HURT HIS MOUTH SORES THO. POOR KIDS I FEEL SO SORRY FOR THEM. THEY GET ALL THAT CHEMO THEN THEY SUFFER SORES AND HURTING BONES AND NAUSEA . IT IS HORRIABLE WHAT THEY GO THRU . SUCH TORTURE!! ANY HOW TYLER HAD FUN PLAYING POOL AND SENDING CARDS BACK AND FORTH TO HATTI. HATTI IS A SWEET HEART!!!. THANK YOU HATTI FOR KEEPING TYLER COMPANY. HE REALLY ENJOYED YOUR TIME YOU SHARED WITH HIM. WELL TYLERS MOMMY WILL UPDATE YOU MORE WHEN SHE COMES HOME . TILL THEN GOD BLESS YOU ALL AND KEEP SIGNING TYLERS GUEST BOOK. HE LOVES HEARING FROM YOU! . ALSO BE SURE TO READ THE POEM IN HIS GUESTBOOK THAT HIS FRIEND CJ WROTE FOR HIM. IT IS BEAUTIFUL. HUGGS DEBBIE , SUSAN AND TYLER
Thursday, May 12, 2005 11:45 AM CDT
HELLO FRIENDS AND FAMILY, THIS IS TYLERS GRANDMA... TYLER AND SUSAN ARE IN THE HOSPITAL FOR TYLERS ROUND OF CHEMO. HE HAD A SPINAL TAP AND BONE MARROW ASP YESTERDAY. ONE POKE FOR ALL OF IT . HE WAS SEDATED AND BEFORE HE WENT UNDER HE ASK WHERE HIS DOCTOR WAS??? THEY SAID HE IS RIGHT BEHIND YOU TYLER AND IS ALREADY WORKING ON YOU! TYLER SIGHED WITH RELIEF AS HE TRUST HIS DOCTOR WHEN IT COMES TO SPINAL AND BONE MARROW . TYLER HAS A SINUS INFECTION AND HAD TO GET TWO BLOOD TRANSFUSIONS BEFORE THEY COULD START HIS METHO CHEMO. IF EVERY THING GOES WELL HE WILL BE HOME MONDAY OR TUESDAY. KEEP THEM IN YOUR PRAYERS . GOD BLESS YOU ALL LOVE AND HUGGS DEBBIE
Monday, May 9, 2005 8:52 PM CDT
WELL WE GOT BACK FROM CINNCI.IT WAS A TRAFFIC MESS ALL THE WAY THERE.WE GOT A HOTEL AT 11PM.WE GOT UP AND WENT TO SEE THE HOSPITAL. LET`S JUST SAY WE LOVE AKRON!!!!IF THERE WAS ANY WAY POSSIBLE,(WHICH THERE IS NOT) WE WOULD CHOOSE TO STAY AT AKRON.ITS WAS WAY TOO FAR AND THE HOSPITAL WAS NOTHING LIKE WE ARE USED TOO.TYLER WAS VERY UPSET AS WAS HIS DADDY AND I.THE ONLY THING WE LIKED WAS THE DOCTOR.SHE WAS VERY SWEET .I KNOW WE ARE OVERWHELMED (TRUST ME WE ARE VERY OVERWHELMED)!!!WE WERE NEVER SO GLAD TO BE HOME.I HAVE NO CLUE HOW WE WILL GET THROUGH SEVERAL MONTH`S OF THIS.I CRIED THERE ,AND WHEN WE GOT HOME.IT WILL JUST BE TYLER AND I THERE .AT LEAST 6 WEEKS IN THE HOSPITAL THEN 2 TO 3 MONTHS OF LIVING NEAR THE HOSPITAL.THEN EVERY TWO WEEKS FOR CHECK UPS.TYLER WANTS TO SEE HOW CLEVELAND CHILDREN`S LOOKS AND SO DOES HIS DAD AND I.THIS WEDS. TYLER GETS ADMITTED INTO AKRON FOR A SPINAL TAP ,AND A BONEMARROW ASP, AND CHEMO.HE WILL BE UP THERE FOR A WEEK.PLEASE KEEP HIM IN YOUR PRAYERS.HE REALLY NEEDS IT RT NOW.THANK YOU ALL AND GOD BLESS.
Wednesday, May 4, 2005 1:15 PM CDT
HELLO ALL, WELL I`M GOING TO CHANGE TYLER`S UPDATE AGAIN.IT SEEMS THAT WE ARE GOING TO CINNCI THIS SUN TO MEET EVERYONE ON MON.SO TYLER IS NOT GOING TO THE HOSPITAL ON FRI AFTER ALL.THIS WILL BE POSTPONED UNTIL WE GET BACK.OF COURSE MY CAR IS BREAKING DOWN, SO ONCE AGAIN IT IS IN THE SHOP SO THAT WE WILL HAVE A SAFE TRIP THERE.RT AT THE MOMENT I`M VERY STRESSED OUT FROM WORRY.IF IT`S NOT TYLER, THAN ITS THE CAR OR WORRYING ABOUT THIS TRIP.I`M JUST GOING TO GIVE IT ALL TO THE LORD BECAUSE I`M OVERWELMED.WHEN I TOOK MY CAR TO THE SECOND SHOP TODAY I FOUND OUT THE MAN THERE HAS A GRANDSON WHO GOES TO AKRON ALSO WITH LEUKEMIA.THIS BOY IS 14 AND DOING WELL.SO YOU JUST NEVER KNOW WHEN YOU MEET SOMEONE WHAT A CONVERSATION WILL BRING.YOU ALSO DON`T REALIZE HOW MANY PEOPLE NEAR YOU ARE GOING THROUGH THIS TOO.I THINK WE MOMS AND DADS NEED TO RALLY TOGETHER AND FIND OUT WHAT IS GOING ON IN OUR ENVIRONMENT THAT IS MAKING OUR KIDS SICK!!!I GET SO ANGRY ABOUT THIS ,IF I WERE NOT SO BUSY CARING FOR MY SON I SURE WOULD BRING ON AN INVSTAGATION.WELL I` LL KEEP YOU ALL INFORMED.
Monday, May 2, 2005 11:50 AM CDT
HELLO EVERYONE, TYLER IS STILL HAVING SOME PAIN ON HIS SIDES,MORE OF THE RIBS.I HAD TO GIVE HIM SOME PAIN MEDS,HE IS RESTING NOW.HIS FAVORITE SHOW (FAMILY MATTERS) WITH THE BIG (STEVE URKAL)IS COMING ON AT ONE PM.THIS IS TYLER`S FAV T.V PERSONALITY.SOMETIMES THAT IS THE ONLY TIME OF THE DAY THAT HE WILL SMILE.HE ALSO LOVES THE DOGS THAT COME IN TO SEE HIM AT AKRON.HE LOVES WHEN THEY GET UP PN HIS BED.WE HAVE SOME PICS OF THIS ONE DOG NAMED (ZAKE) HE WEARS CLOTHES, AND TYLER JUST LAUGHES SO HARD WHEN HE COMES IN.TYLER GOES BACK IN TO AKRON THIS FRI. HE GETS A SPINAL TAP AND BONEMARROW ASP, AND IF HIS COUNTS ARE GOOD HE WILL BE ADMITTED FOR INPATIENT CHEMO.SO WE ARE ENJOYING THE FEW DAYS WE HAVE LEFT AT THE HOUSE.WE ARE STILL WAITING TO GET A DATE FOR CINNCI TO VISIT .I WOULD STILL LIKE TO VISIT CLEVLAND TOO.THIS IS VERY SCARY TO DEAL WITH.I DON`T KNOW HOW IT WILL ALL TURN OUT.THANK YOU FOR ALL THE EMAILS AND CARDS AND PHONECALLS.(LESLIE) A BIG THANK YOU FOR LUNCH!!IT HELPS TO GET AWAY FOR AN HOUR ONCE IN A WHILE.WELL I WILL CLOSE FOR NOW HUGS TO ALL.UNTIL NEXT TIME.....
Friday, April 29, 2005 3:51 PM CDT
HELLO ALL, TYLER GOT HIS BLOOD CHECKED TODAY AND HIS COUNTS WENT UP A BIT.HE GOT HIS SPINAL TAP TODAY.HE GOES BACK THIS FRI FOR ANOTHER SPINAL TAP AND A BONEMARROW ASPERATION. HE WILL BE PUT UNDER FOR THAT.I AND HE INSIST ON BYING PUT UNDER FOR A BONEMARROW.IF HIS COUNTS ARE GOOD ON FRI HE WILL BE ADMITTED AFTER THE PROCEDERES FOR 5 TO 6 DAYS OF CHEMO.IF HIS COUNTS ARE TOO LOW HE WILL WAIT A FEW DAYS AND SEE IF THEY GO UP.THATS PRETTY MUCH WHAT I KNOW AT THIS POINT. TAKE CARE AND GOD BLESS.
Wednesday, April 27, 2005 6:10 PM CDT
HELLO EVERYONE, TYLER WENT TO THE CLINIC TODAY FOR HIS BLOOD COUNT.WELL IT WAS NOT PRETTY. THEY POKED HIS LITTLE ARM AFTER I TOLD THEM HIS VEINS WOULD BLOW. THEN IT BLEW, SO THEY POKED HIS OTHER ARM ,AGAIN IT BLEW. THEN SHE PRECEDED TO POKE HIS HAND ..AGAIN NOTHING.SO SHE FELT BAD AND ASKED THE DOC IF THEY COULD USE HIS MEDIPORT(WHICH I TOLD THEM IT WAS NUMB AND READY TO GO). SOOOOOO HIS FAVORITE NURSE CAME IN TO POKE HIM ONCE AGAIN AND YOU GUESSED IT !!!!SHE HAD TO POKE HIM TWO MORE TIMES AND STILL NO BLOOD!!!!SO SHE ALMOST CRIED AND ASKED YET ANOTHER NURSE TO HELP GET HIS NEEDLE IN AND BINGO IT WORKED ON TTHE SEVENTH POKE. SO AFTER ALL OF THAT TYLER LAYED DOWN WEARING LOTS OF SPONGEBOB BANDAIDES. AN HOUR OR SO LATER THE DOC CAME IN TO SAY TYLER STILL HAS JAUNDICE AND YET IT IS SOMEWHAT BETTER.HIS WHITE COUNTS ARE VERY LOW, HIS PLATLETS ARE LOW AND HIS ANC (ABILITY TO FIGHT INFECTION IS REALLY LOW.HE ALSO HAS TO GO BACK FRI FOR A SPINAL TAP ,AFTER WHICH HE MAKE HOPEFULLY GET SOMETHING TO HELP BOOST HIS COUNTS.WE ALSO RECEIVED GOOD NEWS TODAY FROM CINNCI. THERE ARE FIVE PEOPLE WHO MAY BE A MATCH FOR TYLER. THE DOCS HAVE SENT WORD ALREADY REQUESTING A MORE IN DEPTH BLOOD TEST,THIS WILL TAKE 12 WEEKS TO DO. SO IT SOUNDS LIKE TYLER WILL GO TO STAY IN CINNCI ABOUT THE MONTH OF AUG.WE WILL GO EITHER NEXT MON. OR THE MON. AFTER TO VISIT THE HOSPITAL.UNTIL NEXT TIME HUGS TO YOU ALL.AND AS ALWAYS PLEASE PRAY FOR ALL OF THE KIDS..GOD BLESS
SUSAN ,TYLER AND DEBBIE
Tuesday, April 26, 2005 2:00 PM CDT
HELLO ALL, TODAY TYLER IS NOT FEELING WELL AT ALL.HE IS LAYING ON THE COUCH RT NOW WITH A BAD HEADACHE ,TUMMYACHE,AND HIS SIDES ARE REALLY HURTING HIM. HE WOKE UP THIS EARLY AM VOMITING FROM HEARTBURN.HE TAKES PEPSID FOR THIS AS IT IS.I WISH I CAN MAKE IT ALL GO AWAY ,BUT I CAN`T.HE GOES INTO THE CLINIC WEDS. FOR A BLOOD COUNT BUT, I GOT A SCARY FEELING HE MAY BE ADMITTED. PLEASE PRAY THIS WILL NOT BE THE CASE. HE IS ALSO SHAKING VERY BADLY.THANK YOU ALL FOR WRITING TO HIM AND TO LESLIE ,AND J LAURRELL ,FOR ALL THE SWEET CARDS AND GIFTS TOO. THEY BRIGHTEN HIS DAY.AS THE TIME GETS NEARER TO FINDING A MATCH I FIND MYSELF GETTING SCARED . I KEEP READING UP ON ALL THE STUFF THAT WILL AND CAN HAPPEN AND IT MAKES ME SO NERVOUS. ANYHOW PLEASE KEEP TYLER AND ALL OF THESE KIDS IN YOUR PRAYERS.GOD BLESS YOU ALL. SUSAN ,TYLER AND DEBBIE
Friday, April 22, 2005 3:17 PM CDT
HELLO EVERYONE, TYLER WENT TO THE CLINIC TODAY.HE NEEDED CYROPRECIPATE, WHICH HELPS IN THE PLATLETS. HIS LIVER ENZEMES ARE UP. HE NOW HAS JAUNDICE TOO ,DUE TO THE CHEMO LAST WEEK.HE GOES BACK WEDS.FOR A BLOOD TEST TO CHECK HIS COUNTS.WE HEARD FROM CINNCINATTI AFTER WE GOT HOME.THEY FOUND SEVERAL POTENTIAL MATCHES, NOW WE HAVE TO WAIT TO HAVE FUTHER TESTING DONE TO SEE IF ANY MAKE A FULL MATCH TO TYLER.WE WILL HEAR BACK FROM THEM THIS MON FOR AN OPPT. TO GO SEE THE FACILITY.WE WILL LET YOU ALL KNOW WHAT HAPPENS NEXT.THX FOR ALL THE KIND THOUGHTS AND PRAYERS.
Thursday, April 21, 2005 11:34 AM CDT
HELLO EVERYONE... THIS IS SUSAN (AKA) TYLER`S MOM. TODAY TYLER IS SICK AT HIS TUMMY AND HAS A BAD HEADACHE HE IS RESTING RT NOW. HE HAD SOME MEDS TO HELP HIS UPSET TUMMY .HE IS SO TIRED OF TAKING MEDS,WE STRUGGLE EVERY NIGHT WHEN IT IS TIME FOR HIS GLEEVIC (CHEMO) PILLS.THE TASTE IS VERY BAD AND NOTHING WE TRY HELPS HE WILL ONLY TAKE THEM CRUSHED WITH HOT TEA.HE STILL HAS FUZZY LITTLE HAIRS ON HIS HEAD EVERY TIME I TOUCH HIS HEAD OR KISS IT I HAVE TO PAY HIM ONE DOLLAR.LAST NIGHT HE HID BEHIND THE CHAIR FROM ME SO THAT HE DIDN`T HAVE TO TAKE HIS GLEEVIC. HE WANTED ME TO TAKE IT FOR HIM.I TOLD HIM I WOULD IF I COULD ,BUT IT WOULDN`T HELP HIM OR I IF WE DID THAT.I HAD TO TAKE A PIC OF HIM HIDING BEHIND THE CHAIR LOL IT WAS SO CUTE.WE HAD LOTS OF CUDDLE TIME YESTERDAY TOO , OUT ON THE DECK IN THE SWING. IT FELT SO GOOD TO BE IN FRESH AIR WITH HIM.WE ALSO WANT TO SAY THANKS TO ALL OF YOU WHO SEND CARDS AND SIGN HIS GUEST BOOK.WE LOVE YOU ALL!!!!
XXX TYLER, SUSAN AND DEBBIE
Wednesday, April 20, 2005 1:59 PM CDT
HELLO FRIENDS AND FAMILY, TYLER IS HOME. HE IS NOT TO TALKATIVE OR ACTIVE BUT HE IS OK. HIS MOMMY WENT TO THE BAKERY TO GET HIM SOME SMILEY FACE SUGAR COOKIES. I GAVE HER MONEY TO BUY AN EXTRA DOZEN OF THEM AS HE LOVES THEM. HE STILL DOES NOT LIKE HIS GLEEVIC MEDS. HE TAKES TWO AND THREE HOURS TO TAKE IT. HE LOOKS AT THE CRUSHED PILL ON HIS SPOON AND SWEARS THERE IS MORE THEN ONE PILL ON IT . POOR KID WILL TAKE ANY MEDS WITH NO PROBLEM BUT HE HATES HIS GLEEVIC . HE WAS MAD AT HIS MOMMY LAST NIGHT AND SAID SOME MEAN THINGS . BUT HE IS FINE ONCE HE GETS THAT GLEEVIC DOWN HIM. I WISH HE COULD SWALLOW PILLS INSTEAD OF HAVING THEM CRUSHED 1ST. THEN HE WOULD NOT TASTE THEM AND LIFE WOULD SEEM SO MUCH BETTER IN HIS MEDICINE WORLD. I BOUGHT HIM A PUPPET BEAR AND WE NAMED HIM HIS GLEEVIC BEAR. WE MAKE IT TALK TO HIM WHEN HE HAS TO TAKE HIS MEDS. NOW HE REFUSES TO TAKE THEM UNLESS GLEEVIC BEAR TELLS HIM TOO. GLEEVIC BEER MAKES HIM LAUGH. I SPOIL HIM AS I HATE TO SEE HOW UPSET HE GETS OVER HIS MEDS. IT BREAKS MY HEART TO SEE HIM SO UPSET. I TOLD HIM HE NEEDS THE MEDS TO HELP HIM GET BETTER BUT .. IF ANY WAY I COULD MAKE HIM NOT HAVE TO TAKE THEM I WOULD BUT I CAN NOT . HIS MOMMY TRIES TO GET ME TO BE THE ONE TO GIVE IT TOO HIM BUT I TRY AND IF HE REFUSES I JUST LET HIM TAKE HIS TIME THEN HE WILL DO IT .WHAT EVER WORKS !! HE TAKES THEM BUT ON HIS OWN TIME . THERE IS ANOTHER ARTICLE IN OUR LOCAL PAPER ABOUT HIM TODAY.YOU CAN READ IT BY GOING TO www.indeonline.com AND CLICKING ON THE LOCALS . HE HAS BECOME POPULAR THESE DAYS. THE NEWSPAPER REPORTER KEEPS OUR TOWN INFORMED PRETTY WELL ON HIS UPDATES. THEY HAVE BEEN WONDERFUL!! WELL TILL TOMORROW ....HUGGS AND KEEP TYLER IN YOUR PRAYERS . HE WILL FO FRIDAY FOR CHEMO AS OUT PATIENT. HUGGS DEBBIE, TYLER AND SUSAN AND TYLERS DADDY AND BROTHERS AND GRANDPA
Tuesday, April 19, 2005 9:38 AM CDT
HELLO EVERYONE, TYLER IS COMING HOME TODAY !YEA!!! HE HAS TO GET A BLOOD TRANSFUSION FIRST AND THAT WILL TAKE ABOUT FOUR OR FIVE HOURS SO BY THIS EVENING HE WILL BE HOME! HE WILL GO BACK FRIDAY THO FOR MORE CHEMO AS AN OUT PATIENT THEN WE WILL KNOW WHEN HE GOES BACK AS IN PATIENT FOR MORE CHEMO . I KNOW IT WILL BE A WEEK OR TWO BUT HE WILL HAVE TO GO BACK FOR INPATIENT CHEMO. BUT FOR NOW HE WILL HAVE A BREAK! I AM SO HAPPY HE AND SUSAN HIS MOMMY WILL BE ABLE TO SLEEP IN A REAL BED! AND THE WEATHER IS WARMING UP SO THEY CAN HAVE FRESH AIR. I FRSHLY FILLED MY BIRD FEEDER SO TYLER CAN SIT ON THE DECK AND BIRD WATCH. HUGGS TYLERS GRANDMA
Monday, April 18, 2005 11:25 AM CDT
HELLO FRIENDS AND FAMILY, THE DOCTOR SAYS IF TYLERS METHO LEVELS ARE OK BY TOMORROW OR WED HE CAN COME HOME!! YEA!! HE ALSO IS GONE TO TALK THE GERM DOCTOR OUT OF HAVING A IV HERE AT HOME . HE SAYS IF WE CONTINUE WITH THE IV ANTIBIOTICS HE IS AFRAID IF TYLER DOES GET A BACTERIA OR VIRUS THAT HE WILL BE IMMUNE TO ANTIBIOTICS AND THEY WILL NOT HELP HIM WHEN HE NEEDS THEM. PRAY THAT TYLER GETS TO COME HOME TOMORROW AS TODAY IS DAY TWENTY THREE IN THE HOSPITAL. HE NEEDS A BREAK! STILL NO NEWS ON HIS BONE MARROW DONOR YET, PRAY WE FIND ONE SOON! THANK YOU EVERY ONE WHO READS HIS UPDATES AND SIGNS HIS GUESTBOOK AND PRAYS FOR TYLER AND OUR FAMILY. TYLER LOVES YOU ALL AND SO DOES HIS FAMILY . GOD BLESS AND HUGGS FROM TYLER AND THE FAMILY
Friday, April 15, 2005 8:23 AM CDT
HELLO FRIENDS AND FAMILY, TYLER GOT A SPINAL TAP YESTERDAY WITH THREE CHEMOS INJECTED IN HIS SPINE . THEN HE GOT A SMALL BAG OF METHRO WHEN HE GOT TO HIS ROOM . THEN HE HAS TO TAKE FIVE MORE BAGS OF METHROTAXATE WHICH EACH BAG TAKES SEVEN HOURS TO DRIP THRU AND IV THRU HIS MEDAPORT.IT WILL TAKE THIRTY FIVE HOURS TO GET ALL HIS METHRO . THEN HE HAS TO GET THREE CHEMO SHOTS IN THE LEG MUSCLES . THEY ARE GIVING HIM LOTS OF ZOFRAN TO KEEP HIM FROM GETTING SICK . HE IS ON TWO ANTIBIOTICS . ONE PILL FORM THE OTHER IV . WHEN HE COMES HOME A VISING NURSE HAS TO COME AND HOOK UP A IV PUMP AND TEACH US HOW TO INSERT TYLERS ANTIBIOTIC INTO HIS MEDAPORT AND HOOK IT TO HIS IV PUMP. THE GERM DOCTOR WANTS HIM ON THIS ANTIBIOTIC WHILE TAKING CHEMO TO MAKE SURE HE DOES NOT GET A INFECTION OR GERMS. THEY HAD TO HAVE A HELOCOPTER LIFE FLIGHT TEAM COME AND INSERT ANOTHER IV LINE IN TYLER FOR HIS ANTIBIOTICS CAUSE THEY CAN NOT GIVE CHEMO AND THIS ANTIBIOTIC IN THE MEDAPORT THE SAME TIME . THEY STILL BLEW TYLERS VEIN. HIS VEINS ARE SMALL AND THEY BLOW EASY . THEY THOUGHT THE LIFE FLIGHT COULD DO IT WITH OUT BLOWING THEM BUT .. NO SUCH LUCK. HOPFULLY ALL WILL GO WELL AND TYLER CAN COME HOME BY NEXT WEEK END . TODAY IS DAY TWENTY FOR HIM AND HIS MOMMY IN THE HOSPITAL. WE TRY AND HAVE HER LEAVE AND LET US STAY ON THE WEEK END BUT....SHE WILL NOT LEAVE. SHE DID HOWEVER LEAVE WITH A FREIND A WHILE TO GET OUT , DIANNA TOOK HER OUT TO EAT AT APPLE BEES . AND SHE WENT SHOPPING TO BUY MORE CAMERAS. WELL PLEASE CONTINUE TO PRAY FOR TYLER THAT HE DOES NOT GET A FEVER OR TOO SICK ON THIS CHEMO. ALSO PRAY NO GERMS OR INFECTIONS. HE WAS SNEEZING THIS MORNING , I HOPE HE DOES NOT GET A COLD OR PNEUMONIA . HE DOES NOT NEED ANY MORE SET BACKS. HUGGS DEBBIE
Thursday, April 14, 2005 10:09 AM CDT
HELLO FRIENDS AND FAMILY, TYLER IS GETTING PT ON HIS LEGS AND FEET .HE GETS IT DAILEY AS HE WAS HAVING PROBLEMS A FEW DAYS A GO WALKING . THEY ARE TAKING URIN SAMPLES DOWN TO THE LAB TWENTY FOUR HOURS STRAIGHT TO MAKE SURE HIS KIDNEYS ARE PUTTING OUT WHAT THEY SHOULD BE FOR HIS AGE , SIZE AND FROM THE MEDS. HIS KIDNEYS ARE NOW ENLARGED. WE ARE HOPING THE LEUKEMIA IS NOT IN THE KIDNEYS NOW. THE ANTIBIOTIC HE IS ON EFFECTS THE KIDNEYS... BUT THE GERM DOCTOR WANTS HIM ON IT FOR A FEW MORE WEEKS AS HIS CHEMO WILL ALSO EFFECT THE KIDNEYS. THEY DID HOW EVER DECREASE THE ANTIBIOTIC FROM EVERY SIX HOURS TO EVERY TWELVE HOURS. BY NOON TODAY WE SHOULD KNOW IF THEY WILL BEGIN HIS CHEMO HE IS TWO WEEKS BEHIND ON. HE WILL GET THREE SHOTS IN THE LEG MUSCLES OF CHEMO AND HE WILL GET A SPINAL TAP THEN THREE MORE CHEMOS INJECTED INTO HIS SPINE , THEN HE WILL TAKE A TWO DAY DOSE OF METHROTRAXATE IN THE MEDAPORT. THEN HE WILL HAVE TO BE CLOSELY WATCHED FOR THE LEVELS TO DROP OF THE METHO CAUSE IT WILL BE VERY STRONG. HIS URIN WILL GLOW IN THE DARK FOR TWO DAYS! THEY WILL BE FLUSHING OUT HIS KIDNEYS WITH A SPECIAL IV SOLUTION AFTER EACH CHEMO METROTRAXATE CAUSE THEY WILL BE GIVING HIM VERY HIGH FATAL DOSES AND WHAT HIS BODY DOES NOT NEED THEY NEED TO FLUSH IT OUT OF HIM. HIS COUNTS WILL DROP AGAIN AFTER HE GETS HIS CHEMO. I WANT TO THANK EVERY ONE FOR YOUR PRAYERS , AND CARDS AND DONATIONS IN TO TYLERS FUNDS AND ANYONE WORKING ON FUN RAISERS FOR TYLERS MEDICAL EXPENCES. THANK EACH AND EVERY ONE OF YOU. THANK YOU MRS .BIASELLA S CLASS FOR YOUR CARDS YOU MAILED TO TYLER. HE HAS THEM ALL TAPED TO HIS WALLS AND DOORS IN HIS HOSPITAL ROOM. ALSO THANKS TO DIANNA AND HARRISON FOR THE MANY VISITS AND PHONE CALLS TO TYLER . THANK YOU LESLIE FOR YOUR PHONE CALLS AND VISITS AND TACO BELL YOU TAKE TO TYLER AND SUSAN. AND THANK YOU ALL FOR SIGNING TYLERS WEB PAGE. CONTINUE TO SIGN IT AS HE CAN GO TO THIRD FLOOR AND USE A COMPUTER TO LOOK AT HIS GUESTBOOK. AND IF HE FEELS TO BAD TO GO I CALL HIM AND READ THEM TO HIM. HE ENJOYS YOU SIGNING IT . YOU CAN SIGN AS MANY TIMES AS YOU LIKE.THANK YOU EVERY ONE!!! KEEP TYLER IN YOUR PRAYERS THAT HE DOES NOT GET TOO SICK FROM HIS CHEMO AND KEEP PRAYING FOR HIS BONE MARROW MATCH TO COME THRU . HUGGS FROM DEBBIE(TYLERS GRANDMA) TYLER, SUSAN(TYLERS MOMMY) DENNIS(TYLERS DADDY) JUSTIN AND NICK TYLERS TWO BROTHERS)PS THANK YOU MRS. CONTINI (TYLERS PRINCIPAL FOR THE BASKET OF CANDY , CHIPS, BOOKS .COOKIES AND BALLOON . HE EATS FROM THE BASKET ALL DAY TILL HE GOES TO BED. WHICH IS A GOOD THING CONCIDERING HE TOOK A WEEK OFF OF NOT EATING OR DRINKING.THANK YOU MRS.CONTINI!!! :)AND THANK YOU CHRIS PUGH FROM THE MASSILLON INDE FOR THE UPDATES ON TYLER. AND THANK YOU MR. EDITOR OF THE MASSILLON INDE FOR THE PIECE YOU WROTE ABOUT TYLER! AND THANK YOU COACH SHEPAS , AND BRET AND TROY AND ANDREW FOR YOUR VISITS AND PHONE CALLS AND SIGNING TYLERS GUESTBOOK AND FOR THE MASSILLON TIGER GIFTS! I AM JUST IN A THANKFUL MOOD FOR ALL EVERYONE HAS DONE FOR TYLER AND OUR FAMILY. AND THANK YOU SANDY , JOE AND KYLE FOR YOUR PHONE CALLS AND VISIT AND LOTION FOR TYLER AND ALL YOU HAVE DONE FOR HIM AND OUR FAMILY. HUGGS !!!
Wednesday, April 13, 2005 7:16 PM CDT
HELLO FRIENDS AND FAMILY, TYLER DID NOT GET HIS CHEMO YET.THEY DID A ULTRA SOUND TO DAY ON HIM. HIS SPLINE AND LIVER AND LUNGS LOOK OK BUT... HIS KIDNEYS ARE ENLARGED. THEY DO NOT KNOW IF LEUKEMIA IS IN THE KIDNEYSOR IF IT IS DO TO THE MEDS HE IS ON. SO THEY ARE CHECKING HIS KIDNEYS FOR 24 HOURS TO SEE. THEY CAN NOT GIVE HIM CHEMO YET UNTILL THEY KNOW WHAT IS CAUSING THE ENLARGEMEMT AS THE CHEMO WILL BE VERY TOXICTO THE KIDNEYS AS IT IS. SO BETTER SAFE THEN SORRY. BUT THIS JUST MEANS MORE TIME IN THE HOSPITAL. TOMORROW WILL BE DAY 18 FOR HIM. HE IS EATING BETTER NOW . AND THE SWELLING IN HIS ARM IS BETTER . HIS ELBOW IS STILL SWELLED THO. POOR BOY ..EVERY DAY IS SOMETHING ELSE. STILL NO MATCH FOUND YET FOR HIS BONEMARROW TRANSPLANT. WHEN THEY DO FIND A MATCH TYLER HAS TO BE STABLE THEN HE WILL GO TO CICINATTI FOR THE REST OF HIS CHEMO AND RADIATION THEN GET HIS BONEMARROW TRANSPLANT. PLEASE PRAY THAT THEY CAN GET TYLER ON THE RIGHT TRACK AND HE CAN GET HIS CHEMO AND COME HOME . HE NEEDS A HOSPITAL BREAK . SO DOES HIS MOMMY. TILL NEXT TIME . GOS BLESS EVERY ONE WHO READS THIS HUGGS DEBBIE
Wednesday, April 13, 2005 7:16 PM CDT
HELLO FRIENDS AND FAMILY, TYLER DID NOT GET HIS CHEMO YET.THEY DID A ULTRA SOUND TO DAY ON HIM. HIS SPLINE AND LIVER AND LUNGS LOOK OK BUT... HIS KIDNEYS ARE ENLARGED. THEY DO NOT KNOW IF LEUKEMIA IS IN THE KIDNEYSOR IF IT IS DO TO THE MEDS HE IS ON. SO THEY ARE CHECKING HIS KIDNEYS FOR 24 HOURS TO SEE. THEY CAN NOT GIVE HIM CHEMO YET UNTILL THEY KNOW WHAT IS CAUSING THE ENLARGEMEMT AS THE CHEMO WILL BE VERY TOXICTO THE KIDNEYS AS IT IS. SO BETTER SAFE THEN SORRY. BUT THIS JUST MEANS MORE TIME IN THE HOSPITAL. TOMORROW WILL BE DAY 18 FOR HIM. HE IS EATING BETTER NOW . AND THE SWELLING IN HIS ARM IS BETTER . HIS ELBOW IS STILL SWELLED THO. POOR BOY ..EVERY DAY IS SOMETHING ELSE. STILL NO MATCH FOUND YET FOR HIS BONEMARROW TRANSPLANT. WHEN THEY DO FIND A MATCH TYLER HAS TO BE STABLE THEN HE WILL GO TO CICINATTI FOR THE REST OF HIS CHEMO AND RADIATION THEN GET HIS BONEMARROW TRANSPLANT. PLEASE PRAY THAT THEY CAN GET TYLER ON THE RIGHT TRACK AND HE CAN GET HIS CHEMO AND COME HOME . HE NEEDS A HOSPITAL BREAK . SO DOES HIS MOMMY. TILL NEXT TIME . GOS BLESS EVERY ONE WHO READS THIS HUGGS DEBBIE
Tuesday, April 12, 2005 1:42 PM CDT
HELLO FRIENDS AND FAMILY. WELL TYLER STILL IS ON HOLD WITH HIS CHEMO. THEY FOUND SPOTS ON HIS LUNGS IN HIS CHEST X RAY . SO THEY HOOKED UP A IV NEEDLE IN HIS ARM YESTERDAY AS TO DO A CAT SCAN . WELL.... THEY WOULD NOT FEED HIM ALL DAY CAUSE HE CAN NOT EAT FOR THREE HOUR PRYER TO HIS CAT SCAN AND GUESS WHAT??
