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Welcome to our daughter, Isabelle's, Web Page. It has been provided to keep people updated about Isabelle following her life-saving multi-visceral transplant on October 21, 2004 and kidney transplant on June 9, 2006.
While you are here checking in on Isabelle, please take a moment and sign her guestbook - we appreciate all of your encouragement, support, and prayers!
After first hearing the Martina McBride song, “In My Daughter’s Eyes” I felt that it applied to the precious relationship between my daughter, Isabelle and me.
I'll never forget when my (at the time) four-year-old daughter was determined that she was taking me to show and tell at preschool. The teachers stated that no one had ever brought someone to show and tell. That day changed me forever and the days to follow in how I look at life. While talking about me to her class Isabelle had a beaming smile, was holding my hand, which she loves to do. Isabelle told the class how I am her best friend and always there to take care of her when she is not feeling good. Isabelle always is happy, puts a smile on everyone's face, never is down, and makes the best of a situation and is a determined girl.
Isabelle suffers from chronic pseudo-obstruction, immune deficiency, a mitochondrial and liver disease. As a result she could not eat and was fed by an IV 20 hours a day through her central line, she has a GJ Tube, along with an ostomy.
At just six years old, already a fighter in life, she had lived when doctors thought she would not -- relearning to walk and talk again. Good days were giving way to more bad days and her only hope for the future was a stomach, liver, small bowel, and pancreas transplant which she was blessed to receive thanks to the kindness of a stranger who looked beyond their grief and said "yes" to organ donation.
Isabelle made me realize that every day is precious, not to take life for granted, never to get discouraged, to have courage to overcome obstacles and to always live life to the fullest. She has taught me patience and the importance of having an adjustable attitude. Have fun, laughter, and excitement; do ordinary things in an extraordinary way; regard family and friends as the basis for security, support, and love; believe that anything is possible; and above everything else, remember that life is a precious gift.
Isabelle is a hero in my eyes. Through the way she lives she is a miracle and she gives me strength and makes me strong everyday.
Journal
Saturday, June 13, 2009 9:06 AM CDT 10 months today Isabelle passed away. There are no words to describe the huge void she has left in my life!
As the summer is upon us I see dresses everywhere that Isabelle would have loved. There are still stores that I have a hard time going into that were her favorite to look for dresses. As everyone knows, Isabelle loved to look and buy dresses. Her closest is full of dress, but some of them have stains on them from her g-tube leaking and that was always her excuse to want to buy new dresses. As Izzie was getting older it was becoming harder and harder to find dresses that, as she put it, were not “baby looking” because she only wore a size 5 and sometimes a 6!
Maddie is leaving tomorrow for a week long camp with a big group of friends and she is looking forward to that. As for me, I am excited for her, but the house will just be so quiet.
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