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Alexis Nicole

Here is a picture of Alexis The Menus band from Cincinnati, OH, they played at Liquid Ultra Lounge in Toledo for the ReMax Cinco de Mayo party on May 1st to benefit Children's Miracle Network and the Susan G. Komen Foundation.
Alexis sang a song with them!


Alexis turned 8 years old on April 11, 2008.
Alexis was diagnosed with T-Cell ALL
(Acute Lymphoblastic Leukemia)
on July 3rd, 2004 at Riley Hospital in Indy. Her treatments started out on a weekly basis and she started maintenance in March 2005. She completed all of her Chemotherapy treatments on October 21, 2006 and is now on bi-monthly doctor visits. On October 24, 2006 Alexis had a Bone Marrow check and it came back clear...she is Cancer Free! She will continue to have bi-monthly doctor visits for the this second year post treatment, then periodically for the next 5 years.
We have created a foundation in Alexis' honor to help offset the costs of treatment and travel necessary to obtain treatment for Alexis and other children battling cancer from Northwest Ohio. We have closed the account but wanted to say THANK YOU to everyone that donated either their time for fundraisers or the monitary donations that helped us and other families with medical / travel expenses. We have been blessed with the opportunity to be able to offer a some financial help to several other families with your support. Thank you!

LIFE'S TUG OF WAR


Life can seem ungrateful and not always kind...
Life can pull at your heartstrings and play with your mind....
Life can be blissful and happy and free...
Life can put beauty in the things that you see ...

Life can place challenges right at your feet...
Life can make good of the hardships we meet...
Life can overwhelm you and make your head spin...
Life can reward those determined to win...

Life can be hurtful and not always fair...
Life can surround you with people who care ...
Life clearly does offer its Up and its Downs...
Life's days can bring you both smiles and frowns...

Life teaches us to take the good with the bad...
Life is a mixture of happy and sad...

SO

Take the Life that you have and give it your best...
Think positive, be happy, let God do the rest...
Take the challenges that life has laid at your feet...
Take pride and be thankful for each one you meet...

To yourself give forgiveness if you stumble and fall...
Take each day that is dealt you and give it your all...
Take the love that you're given and return it with care...
Have faith that when needed it will always be there...

Take time to find the beauty in the things that you see...
Take life's simple pleasures let them set your heart free....
The idea here is simply to even the score
As you are met and faced with Life's Tug of War


Alexis will be 8 on her next birthday!
Lilypie Baby PicLilypie Baby Ticker

Alexis was featured on the Make A Child Smile website for June 2005. There is a link at the bottom of the page to take you to her site. This has her story from the very beginning. Please take a few moments to check out this site. Also, they now have photo albums and we have taken advantage of that and have posted several pictures. Hopefully I can get some from the past year loaded soon!! Keep watching!)

Alexis was chosen as the Ambassador for Mercy Children's Hospital for the annual tree lighting to kick off the 20th Anniversary for the "Brighten a Child's Life" campaign for Children's Miracle Network and Fifth Third Bank Northwest Ohio in Nov. 2006. Fifth Third bank raises money every year for area pediatric hospitals. She has practiced her line that she had to say at the end "Give a Gift Too Big To Wrap", she was very excited!

We went to Dance Marathon at BGSU and had an awesome time! Everyone there was just wonderful with the kids. I don't think I have seen Alexis smile so much in my life! Thank you!! Please be sure to check the Make A Child Smile Photo album for additional photos. If you have photos that you would like to send to us please
e-mail to teflynn@williams-net.com or
send to Alexis F. PO Box 478 Pioneer, OH 43554
Dance Marathon will be at BGSU on March 29th & 30th, 2008
University of Toledo Dance Marathon will be March 28th & 29th 2008

Normal range for blood count numbersWBC (white blood count) 5.5-15.5
Hemoglobin 11.5-13.5(transfuse around 8)
Platelets 140-450
ANC above 1000



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Journal

Wednesday, May 7, 2008 6:46 AM CDT

Alexis had a 2 mo. check-up on Monday and an eye doctor appt on Tuesday. Both visits went just fine. The eye doctor said that her eyes looked very healthy and that they were working together just fine...no need for glasses! We were waiting in the waiting room and she read the doctors name (she has been to him before) and I told here that we weren't seeing him we were going to see the other doctor in the same office...she said "I hope he's good!" the receptionist laughed...very cute.
Her clinic visit went fine. We did stay around for counts to come back because she had little petechiae dots under her eye, her platelets were fine and the doctor said that she must have been screaming or something too much. She did go to a big birthday party on Saturday and she was running around a lot. Who knows...The doctor said not to worry. All of her other blood counts were within normal range as well!

We were invited to be the "Miracle Family" to represent Children's Miracle Network at the Cinco de Mayo party in Toledo last Thursday put on by ReMax Preferred group in Toledo at the Liquid Ultra Lounge. It was to benefit The Children's Miracle Network and the Susan G. Komen Foundations. We had a blast, all 3 of us spoke...yes even Tony and Alexis helped Auction off 6 items and then was invited up on stage by The Menus band to sing a song with them...Alexis on stage with a live band...it was Awesome! Thanks to everyone that made us feel welcome and made Alexis feel so special. One of the other highlights of the evening was when Kathy, a realtor, bid $600 on a pink bike with a bunch of accessories with it which Alexis was auctioning off came up and gave it to Alexis! The look on her face was priceless...Thank you!

Alexis had her piano recital the last Sunday in April and she is getting ready to perform her dance recital Thursday and Saturday of this week. She has started tumbling classes with Class Act and Stage Wright Theatre and was invited to be a part of their mini cheer team! I am a little nervous but she is definitely building up muscle and that will help to protect her bones, her instructor knows of her situation and is not pushing her too fast. They compete November - March from Toledo to Cleveland to Detroit for Nationals! I am hoping that we can possibly arrange for a few groups to stop by BGSU Dance Marathon and perform for the dancers in March after Nationals!

So...that is life for us here right now...oh yeah, we are also involved with the Walk for Wishes for Make A Wish on June 14th at the Westfield Shopping Center in Toledo. Tony will be providing sound again and we will be walking. Here is a link...sorry copy and paste or follow the link at the Links section to join our team or to make a pledge. http://walkforwishestoledo.kintera.org/faf/r.asp?t=4&i=273713&u=273713-217102290&e=1688346893
Thanks for your support!

Austin graduates this year...June 1st, can't believe it! We will be having an open house for him on the 1st, of course we will have music later in the evening.

Thanks for catching up on Alexis and all of the things she is starting to be involved in...being more "normal" is a little scary since we have been so cautious and protective for the past...4 years...!
Thanks again for the continued thoughts and prayers...I still think about the possibility of relapse especially when we are waiting for her counts to come back at the doctor visits and as we get closer to July...
Erica

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Hospital Information:

Patient Room: We Are HOME!!

St. Vincent Mercy Children's Hospital
Cherry St.
Toledo, OH

Links:

http://www.makeachildsmile.org/2005/prev_2005_jun1.shtml   Make A Child Smile - Alexis
http://www.makeachildsmile.org/gallery2/v/macs_kids/alexis_f   Alexis' photo albums
http://walkforwishestoledo.kintera.org/faf/r.asp?t=4&i=273713&u=273713-217102290&e=1688346893   WALK FOR WISHES - MAKE-A-WISH


 
 

E-mail Author: teflynn@williams-net.com

 
 

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