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Precious Moments has a beautiful park and chapel in Missouri. There is a mural in the chapel called "Hallelujah Square." It celebrates the lives of children whose lives ended too soon.
http://www.preciousmoments.com/content.cfm/park_chapel
Welcome to Timmy’s Web Page. Our lives were completely changed when our son Timmy was diagnosed with a brain tumor on November 27, 2004. He was admitted to the Pediatric Intensive Care Unit of Children’s Hospital of Philadelphia for seven days. Timmy had a biopsy of the tumor which revealed a Grade 2 Thalamic Astrocytoma. Because it was diffused, infiltrative and located deep in the brain, it was and still is considered inoperable.
Timmy has undergone six weeks of IMRT (radiation) at the Hospital University of Pennsylvannia. He is currently undergoing ten rounds of oral chemotherapy (Temador) as an outpatient at Children’s Hospital of Philadelphia.
Timmy’s journey has been filled with many ups and downs. I have created Timmy’s Journal to keep our family and friends updated along the way.
Thank you everyone for the love and support you have shown Timmy and our family during this difficult time. We could not do this without all of you.
As of May 18, 2005, Timmy’s tumor has shrunk 35 percent!
On August 21, after a routine MRI, we get the heartbreaking news that Timmy's tumor has regrown about 20 percent. After much research, we chose to place Timmy in a clinical trial with a phase 2 drug called Lapatinib. The night before we were to start, the trial was closed due to a severe toxic reaction caused by the drug. We decide our next best course of treatment is a protocol of Vincristine and Carboplatin. For many years these drugs have been shown to be effective in shrinking or stabilizing some tumors.
On September 9th, the new protocol begins.
On September 16th, Timmy has a port put in his chest to help better deliver his chemotherapy and draw blood. After ten weeks of this protocol, another MRI will be done to see how effective these drugs have been.
On November 11th, we once again get the heartbreaking news that the chemotherapy has failed and the tumor has progressed.
We once again decide to enter the re-opened Lapatinib clinical trial. Timmy starts oral Lapatinib on November 28th.
We hope and pray that this tumor will again shrink and someday die. Our brave, beautiful son deserves the chance to grow up and live his life. He dreams of becoming a policeman or an army man. I know he can make a good difference in this world someday.
Please sign our guestbook. We love reading your messages and gain strength and encouragement from them.
On January 19, 2006 after two months in the Lapatinib clinical trial, Timmy's MRI shows aggressive tumor progression. Timmy is admitted to Children's Hospital for one week on a high dose of steroids. The steroids fail to help Timmy become strong enough to start more chemotherapy. The decision is made to bring Timmy home under the care of hospice.
 
*HUGS* TOTAL!
Give Timmy Some Hugs!
Timmy's "Song of Love"
A favorite picture; when I would ask Timmy, "are you okay?"
He would always say, "I'm fine, Mom, I'm fine."
Me and my beautiful boy.
Somewhere Over The Rainbow
Timmy's "My Life" Video
Journal
Saturday, April 11th, 2009 12:00 AM CDT
Timothy John Pauxtis
April 11th, 2006 to April 11th 2009
Today marks three very long years since I have last seen my Timmy. It is so hard to believe he has been gone this long. I miss him. I miss him with all my heart. It’s so incredible how hard the grief hits on this day every year. I somehow expected it to get easier. I guess maybe this is the way it will always be. It always has brought me comfort knowing that Timmy passed away during Easter Holy week. I love knowing that when Timmy left us, the gates to Heaven were wide open. I know somehow, someway Timmy’s spirit lives on. I know one day I will see my boy again. I hope then I will learn the reason why this happened to him and our family. One day, when it is my time, I will hold my son again.
I look back over the past five year’s and I am so thankful to all my family, friends, and all the wonderful people I have met and come to love from the Caringbridge community. I know without a doubt I could never have survived this journey of love, heartache, fear, brain cancer and unimaginable loss without all of you. Caringbridge has been so good to me by giving me a place to write my story...Timmy’s story. With Caringbridge’s new enhancements I can now have a Caring book made. This book will include all my journal entries from the very beginning until today. It will have pictures and guest book entries too. I will have Timmy’s story to treasure forever!
This will be my last Caringbridge journal entry.
Thank you everyone for allowing me to share a beautiful, blue-eyed little boy’s life and journey with brain cancer with you. I know Timmy will be remembered, and he will live on in many hearts forever.
It is our hope that through “The Timothy Pauxtis Foundation” we will continue to raise awareness and the much needed money for research of pediatric brain tumors.
I will miss all of you very much.
With Love, Thanks & Missing Timmy,
Susan
Read Journal History
Hospital Information: Patient Room: Angel in Heaven
Links: http://www.timothypauxtisfoundation.org
http://www.tourdeshore.org
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