GABRIELLA MICHELE GIANNONE

Welcome to Gabriella's Web Page. Thank you for taking a moment to get an update on our baby girl. We thought this would be the most efficient means of communication. We would love to hear from you too, so please let us know what is going on with you and your families. Thank you for all the prayers and support, keep them coming.

Journal

Tuesday, June 30, 2009 3:50 PM CDT

Tomorrow we leave for Minnesota and man am I nervous. This is the first time taking Gabriella on a plane since her health status has changed and WHAT WAS I THINKING??? When we originally booked, I was so excited that we had access to a portable oxygen concentrator; I thought the rest would be a cinch. Now I am realizing how much equipment Gabriella has and I have NO IDEA what was going thru my mind when we booked. Of course my nerves got worse when I saw how big the oxygen concentrator is. I was expecting it to be a little more compact. Not to mention the plug, which is the same height and weight as Gabriella. I think trying to get everything into a reasonable amount of luggage, where we do not have to pay a fortune or look like we got hit by a tornado, is going to be a huge challenge. And what am I doing about it….. PROCRASTINATING…. STRESSING…..WORRYING….
OK BREATH!!!!

Outside of the above tirade, I am excited. We have our schedule, with a ton of appointments and we are look forward to seeing all the doctors and staff. It has been a long time (2 years) and Gabriella has changed so much. It is going to be very hard to think about how bubbly she was the last time we visited and compare it to her status now. We will keep a light heart and know that we are doing this all for the research. Gabriella is determined to have her disease known and to make her fight count in the lives of others. We will do our best to fight along with her.

In addition to tests and doctor appointments, we are looking forward to catching up with some friends and relaxing. I will update again either during the trip or when we return.

Wish us luck in the airport. If you are looking for a good laugh, come to Newark airport tomorrow around 2pm and watch as we try to get Gabriella (in her HEAVY wheelchair/stroller), the 2 of us, our carry on suitcase filled with medical equipment, an oxygen concentrator, a diaper bag, my purse and of course Michael’s computer (that we can not leave home without) all to the gate and boarded on an airplane….. WHAT ARE WE THINKING!!!

Wishing everyone well. Happy 4th!!

Love,
Michael, Michele and Gabriella

Hospital Information:

HOME (Most of the time)
112 Joerg Avenue
Nutley, NJ 07110

Links:

E-mail Author: michele.giannone@ey.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.