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Welcome to Ava's Web Page.
Ava was diagnosed with Neuroblastoma Stage IV High risk, at 10 months old in January of 2004.
All the treatment protocols for Neuroblastoma are considered clinical trials since the relapse rate for this disease is extremely high especially for children with late stage disease. Please take a moment to visit the Lunch For Life website to learn more and help spread the word!
Funding for a cure
"Lunch For Life"
is raising money for research and to increase the level of awareness to help find a cure,
please visit their site to learn more about how you can help save the life
of all children like Ava!
Please sign the
guest book
as we greatly appreciate the inspiration.
Old Ava
Pictures Site!
Journal
Sunday, July 27, 2008 2:23 PM CDT Better late then never……
Well at least I did not wait a year to update this time and I actually updated the photos as well!!
Ava Is doing tremendous, all scans remain clear and the Doctors at Memorial Sloan in NY are very pleased with where she is in her journey. It is still hard for me to believe that it has been now over 4 years since Ava had her Stem Cell transplant at Duke. We are truly blessed to be where we are and are thankful each day for the miracle. Ava is quickly blossoming into a young lady years ahead of her time. She is very motherly to her two little sissys, especially Emma who is now 16 months. She will make a great mother one day. Ava and Maya are the best of friends although they fight like cats sometime and other times they love like kittens. All the girls have been enjoying the summer with daily trips to the beach, pool and or just playing with friends. We moved to a new neighborhood in Wilmington where we have made many new friends and the girls have tons of playmates. This Fall Ava will be headed off to real school or at least as real as Kindergarten is, but a huge step indeed.
We are grateful for all of you that have continued to follow and pray for Ava. One day when she is old enough to understand the journey she has traveled I am sure she will thank all of you herself.
Thank you and God bless,
Mark
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